Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

should i even take a multi vitamin?


DJFL77I

Recommended Posts

DJFL77I Experienced

https://www.glutenfreeliving.com/blog/multivitamin-necessary-celiac-disease/

After speaking with Welstead, I asked Dr. Guandalini whether taking a supplement is necessary and, if so, which brand he would recommend. “Once in full remission on a strict gluten-free diet, celiac patients can be considered just as healthy as individuals who do not have celiac, with no additional needs for vitamins or other types of supplements,” he said. “If the patient chooses to supplement, a general multivitamin preparation would be more than adequate.”

Many people need to supplement because they consume a great deal of packaged gluten-free food, which is highly processed and stripped of most minerals and vitamins. If you do choose to take a multivitamin, a one-a-day like Rainbow Light is fine and no different from vitamins marketed toward celiac patients, such as CeliAct and Alorex.

Overall, following a strict gluten-free diet and eating nutrient-dense foods like those mentioned above are the most important steps you can take. After the gut has healed, patients who follow a healthful gluten-free diet don’t need any supplementation. As it turns out, at the end of the day, food truly is the best medicine.

 

 

most recently, about 2 weeks ago , I had B12 and Iron checked...  both seemed normal..    does that mean i'm absorbing ok?

I want to get a full vitamin + mineral panel done...  if that would come back normal , do I even need to take a multivitamin?      I've been taking one for about 3 days... 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

See my other response to you.  
 

Take the multi.  You bought them.  They will not hurt and they may make you feel better.  
 

You are under a doctor’s care and seeing a dietician.  Lucky you.  If they were really worried about your health, they would have done more.  Maybe you are pretty healthy and you do not need additional care.  You are young, right? 
 

If you are not deficient in iron or B-12, you are able to absorb your other vitamins and minerals.  Whether you are consuming good foods that contain vitamins and minerals is a different story.  If you live on junk food and never go out into the sunshine, you could be deficient in vitamins.  That will happen to non-celiacs too.  
 

Please  consider talking to your doctor about your mental health.  You are really struggling.  A new celiac disease diagnosis and a pandemic.  Hard to deal with so many new things.  Do you live with family?  

knitty kitty Grand Master

B12 can be stored in the liver for two to five years.  Most of the eight B vitamins are water soluble and must be replenished every day, but B12 is the exception. 

Other B vitamins, such as thiamine, can become depleted in as little as nine days.  (Ever watch television show "Naked and Afraid"?  The people on that show develop vitamin and mineral deficiencies.  It's not just about calories.)

The liver also stores iron.  Iron stores can last from six months (if you're a menstruating female) to three years (if you're a male).  

There are four stages of anemia before changes in red blood cells occurs.  By the time you get changes in the size and color of red blood cells, you've been deficient for a while.  

 

Here's some informative articles that might help you decide for yourself.  

https://www.merckmanuals.com/home/disorders-of-nutrition/vitamins/vitamin-b12-deficiency

https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency-anaemia/causes/

https://www.uspharmacist.com/article/iron-deficiency-anemia-a-closer-look

 

DJFL77I Experienced
18 minutes ago, cyclinglady said:

You are under a doctor’s care and seeing a dietician.  Lucky you.  If they were really worried about your health, they would have done more.  Maybe you are pretty healthy and you do not need additional care.  You are young, right? 
 

If you are not deficient in iron or B-12, you are able to absorb your other vitamins and minerals.  Whether you are consuming good foods that contain vitamins and minerals is a different story.  If you live on junk food and never go out into the sunshine, you could be deficient in vitamins.  That will happen to non-celiacs too.  
 

Please  consider talking to your doctor about your mental health.  You are really struggling.  A new celiac disease diagnosis and a pandemic.  Hard to deal with so many new things.  Do you live with family?

Young.. I dunno. I'm 42..     i'm just not used to being sick in any way.. I literally went for 15 straight years before this without even having a common cold.

I haven't been eating any junk foods.. I'm only eating meats and potatoes and some veggies and fruits ..  Bryers vanilla Ice cream is the only thing I've been having as a snack..  I do have walnuts but haven't been eating them..

 

Awol cast iron stomach Experienced
6 hours ago, DJFL77I said:

most recently, about 2 weeks ago , I had B12 and Iron checked...  both seemed normal..    does that mean i'm absorbing ok?

I want to get a full vitamin + mineral panel done...  if that would come back normal , do I even need to take a multivitamin?      I've been taking one for about 3 days... 

It sounds like they did the blood draw and looked for the big concerns iron and b-12. Since they didn't specifically point one out. I would consider as a patient that to mean I was not deficient and within the normal range value. 

I'm in the Midwest so before proper  diagnosis I was tested and found to be vitamin D deficient. Not unusual K suppose for my undiagnosed state and geographic location. The times western med Dr wanted me on a specific supplement or vitamin they gave me a prescription. The times I was prescribed specific supplements by a western med Dr was when I was vitamin D deficient and during my pregnancies. One Ob had me on extra folic acid in addition to my prenatal multi. The other OB wanted me on a specific prenatal multi. In the past I had a beloved chiropractic/naprapathy Dr who monitored my calcium/ magnesium. 10 years ago I had the Dr who discovered I was D deficient.It depends on the Dr. and where I was stage/ health wise. They were upfront about it and prescribed it like they would a prescription. 

Do you have access to your online reports of lab blood test? You can request them . The medical system my current Dr's are in post my results in my online portal within a few days of my blood draw. She reviews them and leaves me a note at the bottom. My last report showed my value in one column and the normal range off to the side. 

 

DJFL77I Experienced
3 hours ago, Awol cast iron stomach said:

Do you have access to your online reports of lab blood test?

 

 

here is what my bloodwork looked like early March when I first went in about 3 weeks after symptoms started

 

 

 

 

l1.gif

l2.gif

Kate333 Rising Star

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.   

I also recently had complete vitamin/mineral blood tests and my results were also normal (although my vitamins D and magnesium were on the low end of normal).  But my PCP doc recommended I take supplements, including a high dose vitamin B (all the Bs), to boost those vitamin levels but primarily because of my chronic fatigue/sleep/anxiety issues to see if they help me feel any better.

CL's advice about considering the effect of stress on overall health is spot on!  Speaking for myself as a "newbie"  (on gluten-free diet for only 6 months), 2020 has been the hardest year of my life, trying to cope with the twin, sudden gut-punches of both celiac disease diagnosis and pandemic has been overwhelming to say the least.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DJFL77I Experienced
9 hours ago, Kate333 said:

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.   

not sure how if they found my villi are blunted...

DJFL77I Experienced
9 hours ago, Kate333 said:

I also recently had complete vitamin/mineral blood tests and my results were also normal (although my vitamins D and magnesium were on the low end of normal).  But my PCP doc recommended I take supplements, including a high dose vitamin B (all the Bs), to boost those vitamin levels but primarily because of my chronic fatigue/sleep/anxiety issues to see if they help me feel any better.

I wanted to have vitamin and mineral panel just to see but the Dr said I don think we need too.  I'm still going to get it though...

there's a complex B multivitamin:

https://www.amazon.com/Now-Supplements-Vitamin-B-50-Capsules/dp/B0013OSL5S/ref=mp_s_a_1_3?dchild=1&keywords=now+b-50&qid=1594130906&sr=8-3

and just B1:  https://www.amazon.com/NOW-Vitamin-B-1-Thiamine-Tablets/dp/B0009P3DRS/ref=mp_s_a_1_3?dchild=1&keywords=now+thiamine+100mg&qid=1594130844&sprefix=now+thiamine&sr=8-3

docaz Collaborator
10 hours ago, DJFL77I said:

not sure how if they found my villi are blunted...

Blunted villi can range from mildly blunted to almost flat. If your villi have only lost the tip and are rounded (blunted) instead of greatly reduced in size, the absorption is mostly unaffected. If you want to go into more depth you could ask the pathologist to reviewed the slides to send you an image of a typical section that shows the damage and you can see for yourself because that is actually easily evaluated even by a lay person. What is more difficult to evaluate is the white cell infiltrate because not all of them are diagnostic for celiac disease and also not all blunting is caused by celiac disease. Here is a diagram of the extremes but most celiac patients have something inbetween 

https://www.alamy.com/stock-photo-coeliac-disease-or-celiac-disease-small-bowel-showing-coeliac-disease-176992313.html

This is what it looks like under a microscope

https://celiac.org/about-the-foundation/featured-news/2015/03/biopsy-samples-diagnosis-celiac-disease/

The many dark dots in the flattened celiac sample are the white cell infiltrate. 

ravenwoodglass Mentor

You have gotten some great advice on this and other posts. I do have one thing to add. You mention in another thread that you are eating lactose free ice cream and cottage cheese. You may want to drop all dairy until you are doing a bit better. There are some good dairy free ice creams (although personally I would avoid soy based for now) as well as sherbets and other non-dairy frozen treats. It is not uncommon for celiacs to have an issue with dairy until they have fully healed and when you reintroduce dairy start with hard cheeses like cheddar which have much less lactose. Some folks will have an intolerance to casien the protein in dairy not lactose which is the sugar. Once you have healed well go ahead and add back in dairy and see how it goes. I hope you heal quickly but have patience as it can take some time.

DJFL77I Experienced
On 7/25/2020 at 8:00 PM, Kate333 said:

Your tests are all normal and your diet is great, so you probably are getting enough V/Ms from healthy, natural food.     

did you ever ask your DR what your dizziness might be coming from

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.