Understanding my lab results... *first post*

[glasshalffull.mama]

My doctor, who is a man of few words, said my blood tests came back positive for Celiac. He scheduled an endoscopy and sent me on my way. 

 

He didn't really go over my results or explain them to me and I'm curious to know if it's possible if you could test positive with blood work but negative with an endoscopy?

My results are below and if I'm being completely honest, I have no idea what any of it means. 

Anti-Endomysial Ab 1:40 High 

TRANSGLUTAMINASE IGA,Ab 46.0 High 

GLIADIN(DP) IgG.Ab 96.0 High

GLIADIN(DP) IgA Ab 28.0 High

TRANSGLUTAMINASE, IgG,Ab <0.6

 

 

[Scott Adams]

So I can't see the scale used for each of the tests you had, however, it's clear that you are high on several of them. Did you ask your doctor about these results? We can't diagnose you here, but it certainly looks like you've tested positive for celiac disease. Ask you doctor for clarification.

[ravenwoodglass]

Welcome to the club you never wanted to join. it is possible to still get a negative biopsy if your intestinal damage is patchy but with results that high I doubt that will happen.  The doctor does have to be looking for celiac but it sounds like your doctor knows what he is doing. Be sure to keep eating gluten daily until the biopsy which hopefully will be soon. Do check out the 'Newbie 101' thread at the top of the Coping section so you know how to keep yourself safe.  You can start the diet as soon as the biopsy is done. I hope you heal quickly but be prepared for some ups and downs at first. We are here to help so ask any questions you need to ask.

[glasshalffull.mama]

Thank you! I just bookmarked it to read later. I have an idea of what to expect because I've browsed so many topics/posts, but I'm still nervous. It's such a huge change and I'm desperate to feel better. 

I know it's all mental, but eating gluten intentionally every day for the test is difficult when you actually know what it's doing to your body. I thought I was going to want one last hurrah, but I guess not 😂

[cyclinglady]

I was in the same boat.  I had to wait seven weeks for endoscopy due to work constraints.  I made sure to eat all the gluten things that I loved.  Packages of cookies (just a few and passed it on to my neighbors), literally a loaf of sourdough bread a day, etc.  By my endoscopy date, I knew had celiac.  My blood tests were correct.  I was done with gluten.  No regrets either.  I do not miss it at all because I found substitutions for just about everything.  And best thing?  I felt so much better.  Even my enlarged thyroid and nodules went away!  
 

Take this time to research the diet.  It will make for an easier transition.  
 

Hang in there!  

[glasshalffull.mama]

1 hour ago, cyclinglady said:

I was in the same boat.  I had to wait seven weeks for endoscopy due to work constraints.  I made sure to eat all the gluten things that I loved.  Packages of cookies (just a few and passed it on to my neighbors), literally a loaf of sourdough bread a day, etc.  By my endoscopy date, I knew had celiac.  My blood tests were correct.  I was done with gluten.  No regrets either.  I do not miss it at all because I found substitutions for just about everything.  And best thing?  I felt so much better.  Even my enlarged thyroid and nodules went away!  
 

Take this time to research the diet.  It will make for an easier transition.  
 

Hang in there!  

That's exactly how I feel. I never realized which foods were making me feel awful until I was kind of forced to eat them. Before my blood work, I hated pizza, bread and pasta. I would eat it from time to time since my kids and husband love them, but I could never stomach too much without feeling heavy. 

Funny you say that, too, because they just did an ultrasound of my thyroid and found nodules. I wonder if that's what has been causing it. 

[cyclinglady]

On 8/27/2020 at 11:02 AM, glasshalffull.mama said:

That's exactly how I feel. I never realized which foods were making me feel awful until I was kind of forced to eat them. Before my blood work, I hated pizza, bread and pasta. I would eat it from time to time since my kids and husband love them, but I could never stomach too much without feeling heavy. 

Funny you say that, too, because they just did an ultrasound of my thyroid and found nodules. I wonder if that's what has been causing it. 

They should run thyroid antibodies.  I have Hashimoto’s Thyroiditis which is autoimmune like celiac disease.  Not saying a gluten free diet helped my thyroid, but treating my celiac disease did (which is adhering to a gluten free diet).  I think doctors should say, “You have autoimmune disease. Right now it is attacking your thyroid and small intestine.  We can treat the small intestine with a gluten free diet.  We will monitor you for other autoimmune in the future.”  
 

My cousin had a natural dislike for pancakes when she was young.  They just sat in her stomach.  So funny, like you.  😊 

[glasshalffull.mama]

18 minutes ago, cyclinglady said:

They should run thyroid antibodies.  I have Hashimoto’s Thyroiditis which is autoimmune like celiac disease.  Not saying a gluten free diet helped my thyroid, but treating my celiac disease did (which is adhering to a gluten free diet).  I think doctors should say, “You have autoimmune disease. Right now it is attacking your thyroid and small intestine.  We can treat the small intestine with a gluten free diet.  We will monitor you for other autoimmune in the future.”  
 

My cousin had a natural dislike for pancakes when she was young.  They just sat in her stomach.  So funny, like you.  😊 

I agree completely. Especially since (from what I've read) Celiac can cause so many other disorders/illnesses. I'm looking forward to my endoscopy on Monday. 

Honestly, I just want answers. Even if they're awful. 

[DJFL77I]

endoscopy is easy..  its over before you know it happened