Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any advice on how to gain weight after being gluten free?


Claire grace

Recommended Posts

Claire grace Rookie

I have always been very very thin, since childhood My doctors have always commented about my being underweight. Unfortunately I didn't find out I had celiac until my mid 30s when I had pregnancy complications due to malabsorption. I have been gluten free almost 4 years now, and I do feel a lot better, but I am now having an even more difficult time maintaining weight. I eat more than twice what my husband does and we both eat the same meals, but he is average weight and still gains weight periodically, whereas I struggle to stay at 107 lbs at 5 ft'7 in tall.

 

Any advice on how to gain weight ?

 

I'm recently more disturbed about this because now that I'm not in my 20s anymore, the waif look does not Usually come with a positive reaction from people. Some of my friends have been making comments hinting that they thought that I was hiding a cancer diagnosis. Things like "You can talk to me about anything you know", "When my mother was Diagnosed with breast cancer she hid it from her friends and family for years, and it was really hard on us to find out and then have to deal with that on top of it all". 

 

Then my husband told me he overheard 1 of his coworkers saying "did you see xxx's wife?(at his company picnic)what is she on heroin?"😢

 

I'm so frustrated, I feel like I've tried everything and nothing works ....I don't know what to do ..... There are millions of articles talking about how to lose weight but nothing for the reverse unless you happened to be a body builder. (Yes I even tried their protein shakes etc) nothing 😭

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master
On 9/3/2020 at 9:05 PM, Claire grace said:

I have always been very very thin, since childhood My doctors have always commented about my being underweight. Unfortunately I didn't find out I had celiac until my mid 30s when I had pregnancy complications due to malabsorption. I have been gluten free almost 4 years now, and I do feel a lot better, but I am now having an even more difficult time maintaining weight. I eat more than twice what my husband does and we both eat the same meals, but he is average weight and still gains weight periodically, whereas I struggle to stay at 107 lbs at 5 ft'7 in tall.

 

Any advice on how to gain weight ?

 

I'm recently more disturbed about this because now that I'm not in my 20s anymore, the waif look does not Usually come with a positive reaction from people. Some of my friends have been making comments hinting that they thought that I was hiding a cancer diagnosis. Things like "You can talk to me about anything you know", "When my mother was Diagnosed with breast cancer she hid it from her friends and family for years, and it was really hard on us to find out and then have to deal with that on top of it all". 

 

Then my husband told me he overheard 1 of his coworkers saying "did you see xxx's wife?(at his company picnic)what is she on heroin?"😢

 

I'm so frustrated, I feel like I've tried everything and nothing works ....I don't know what to do ..... There are millions of articles talking about how to lose weight but nothing for the reverse unless you happened to be a body builder. (Yes I even tried their protein shakes etc) nothing 😭

 

 

I am confused.  Did you not say in another post that you do not have any chewing teeth and that you are eating baby food pouches?  That could be a reason why you are thin.  

Have you healed from celiac disease?  When did you last get your antibodies tested?  Maybe you need to get another endoscopy.  

DJFL77I Experienced

try to eat more calories..

or drink high calorie shake

DJFL77I Experienced

i lost alot of weight too... i was able to gain or maintane when i was still eating gluten foods.. but after going gluten free i lost a lot..

might be that im just not eating enough calories though

  • 2 months later...
Emily Elaine Newbie

I’m in a similar boat. Currently I’m 115 pounds and I am 5’7”. I’ve been trying to gain weight for months and wondering what is wrong with me because I haven’t gained a pound. Also, I try to eat a lot but a lot of times my appetite is weird and small amounts of food will fill me up for hours. And well...I didn’t limit myself on bread and other carbs because people always say that’s what makes them gain weight. 

So then last week, I went to the doctor because I was having very bad depression and also I was having what felt like a really bad rheumatoid arthritis flare up—very painful stiffness in my back and hips and numbness in hands  and feet. I’ve been going through it off and on since March and the main thing that triggers it is sugar. My body immediately starts stiffening up after eating sugary foods. 
 

So my doctor immediately said, this makes me think celiac, which I thought was weird bc I never thought gluten had anything to do with my pain. So he tested me for celiac, and sure enough I had a whopping 250+ for the antibody test. 
 

Now thinking back, bread has always made me feel tired and I remember instances where my body would almost want to shut down from tiredness and also really bad brain fog. There were a couple times I remember feeling really disoriented. 
 

So now I’m reading that celiac can cause weight loss, poor appetite and malnutrition which is freaking me out but explains why I look waif like thin. My wrists have really been bothering me because they look so thin and fragile. I cringe when I see myself in pictures because I look so thin I don’t look healthy (at least to me, I don’t know what other people think). 
 

I just wanted to let you know, I’m going through it too, really wanting to gain a good 20 lbs to not feel so freakishly thin and fragile. I’m hoping that going off gluten and sugar will bring my appetite back. I’m also going to try to eat a lot of potatoes and high fat foods like avocados. I especially need to focus on eating a lot more protein. Which is hard for me bc it’s not something I “feel” like eating half the time. So I’ve been forcing myself to eat boiled eggs the last few mornings. I’m never that hungry at breakfast time so I really have to make myself. I hope you can get it figured out too. Usually most people want to lose weight, so I keep it to myself that I would love nothing more than to gain weight and put some meat on my bones. I’m glad I’ve found out I have celiac so now I can take a step in the right direction. 

trents Grand Master
(edited)

It takes time for your gut to heal and when that has happened it wouldn't surprise me if you have a better appetite. In the meantime, focus on educating yourself on how gluten is hidden in the food industry through terminology and cross contamination. Read the labels on every processed food item you buy that is not certified gluten free. Avoid eating out as much as possible. Eat simple, basic foods such as fresh meat, fruits and vegetables. Check meds and supplements for gluten. Every time you get "glutened" your gut healing will experience a setback.

Do your exercise regularly? That helps with appetite as well.

Edited by trents
DJFL77I Experienced
6 hours ago, trents said:

 

Do your exercise regularly? That helps with appetite as well.

 

no because then you lose more weight


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Not necessarily. Not if it gets your appetite going. And it depends on the type of exercise. Resistance/weight training can build muscle mass and add weight and the right kind. Of course, the exercise would need to be age appropriate and we don't know what age group you are in.

DJFL77I Experienced

The Gluten free diet alone will make you lose lots of body fat

I used to lift weights everyday.. then stopped after I started feeling sick..

 

trents Grand Master
4 hours ago, DJFL77I said:

The Gluten free diet alone will make you lose lots of body fat

I used to lift weights everyday.. then stopped after I started feeling sick..

 

Not necessarily so. I gained 10 lb. after diagnosis and going gluten-free. There are still lots of carby foods you can eat to replace the carbs from bread and noodles you used to eat. And many celiacs gain weight after going gluten-free because they now absorb nutrients better.

DJFL77I Experienced

Not me. I lost like 12 lbs. Can't gain much. Although I'm not eating anywhere near a 2000 calorie diet 

Scott Adams Grand Master

Generally speaking increasing carbohydrates, and decreasing fat and protein in your diet should cause you to gain more weight. Sitting on your butt to much like I do also helps 😄.

You can also gain more muscle mass/weight if you go on a high protein diet and exercise more, but honestly, the higher carb route would be a better bet until you at least get back to where you should be.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.