Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Poll: How Many Had Elevated Liver Enzymes?


trents

Recommended Posts

trents Grand Master

How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jenn2005 Contributor

My husband has elevated liver enzymes. His weren't elevated before dx or even right after but they were at this last visit. He was dx last August. His doctor tested him for Hepatitis and he had Ultra Sounds and CT Scans to check for other things going on and since everything else was negative he said its from the Celiac and he'll monitor the levels and they should go down once he's healed more.

Jennifer

Guest Robbin

Count me in on that crazy symptom, too. Have had this off and on for ten years and was tested for hepatitis, and was told it was fatty liver disease common in diabetes, but I don't HAVE diabetes, so the drs. are stumped (of course) :)

angielackner Contributor

my liver enzymes are slightly high...i had them tested when i was being tested for PCOS (which I have)...they had to test me before i could do any kind of fertility treatment...and we have not been able to figure out why they were slightly elevated...celiac had never occured to me...i dont have an "official" diagnosis of celiac...but i do most likely have it...or at least for sure a gluten intolerance...i'll have to bring this up with my GI doc when i see him next.

angie

Bonnie Explorer

I kept waking up in the morning with a yellow face and eyes. Also incredibly nauseous. Had bloods tests which revealed I have very high billirubin (liver enzymes). Doctor says that I have Gilbert's Syndrome. Have I? Who knows - these quacks talk a lot of rubbish.

Yvonne

zakismom Newbie

Before diagnosis my liver enzymes were all over the place, some were too high others were too low. My GP sent me to a liver specialist gastroenterologist- who of course checked for everything else first.

ravenwoodglass Mentor
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

Mine were slightly elevated at times. My twin however had his liver deteriorating since birth. We have no way to know if this was celiac related as he passed away at 15, at that time his liver had been totally destroyed. Please be aware that you should not drink or take tylenol if your enzymes are elevated. Especially if you are young and still growing liver damage can be greatly accelerated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pturse Apprentice

My liver enzymes were elevated too. It was not the case my entire life though, only during a certain period. Went on the diet when first diagnosed (after the whole Hepatitis testing blah blah). Liver was okay after that. Went OFF the diet for a period of 6-8 months and felt absolutely fine but I ran a marathon and I guess that was too much for my body to take and my liver started acting up again and I lost some weight and the color in my face. Started back on the diet in Feb. 06 and have gained a bunch of weight back (ugh), have the color back in my face and I think my enzymes are fine. We shall see, I am donating platelets this weekend and I can ususally tell how my levels are doing by my iron tests during the donation period. I know that isn't a "scientific" way of judging but is a good indication for me.

jenvan Collaborator

pturse-

Why did you end up going off the diet?

plantime Contributor

My liver enzymes were in the very low end of the normal range last time they were tested. Doc said it was perfectly normal, but I started taking herbs to treat sluggish liver, and I feel much better!

  • 2 weeks later...
Guest snowy
How many of you had elevated liver enzymes as one of your presenting medical issues before Celiac diagnosis?

I was diagnosed with Gilbert's syndrome about 10 years ago. My bilirubin was 3x higher than normal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Teaganwhowantsanexpltion posted a topic in Introduce Yourself / Share Stuff
      0

      A little about me and my celiac disease

    2. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    3. - Paulyw commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    4. - xxnonamexx posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Healthy Gluten Free Foods low sugar that you found?

    5. - Jmartes71 replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,232
    • Most Online (within 30 mins)
      7,748

    Melvin McDowell
    Newest Member
    Melvin McDowell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Teaganwhowantsanexpltion
      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.