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Poll: How Many Of You Had Elevated Liver Enzymes?

trents

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trents Grand Master
trents
Posted

I was wondering how many of you had elevated liver enzymes as one of your presenting medical conditions in the process of Celiac diagnosis. In retrospect, that was the first tip for me that something was wrong. I was first made aware of the liver enzymes being a little high when I went to donate blood in about 1990 at a Red Cross bloodmobile. They continued being high until about 2 years ago when I was diagnosed with Celiac's disease and went gluten free. Now they are normal but I think some permanent damage was done to the hepatacytes as now my total protein and albumin are always a little low. I should mention that my employer pays for a free CBC every year so I have been able to monitor these things for quite some time.

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jenvan Collaborator
jenvan
Posted

I had high liver enzymes for years. That is very common with Celiacs. Most of the time they do return to normal after the gluten-free diet. Had mine cked a few weeks ago--back to normal. My albumin also came back slightly low, but I'm not aware of that being a problem for me at this point. Nice your employer pays!

jerseyangel Proficient
jerseyangel
Posted

Mine were high--I had blood work done after 6 months on the diet, and the levels had returned to normal.

happy4dolphins Enthusiast
happy4dolphins
Posted

Mine have been rather on the high side as well. A few years ago they kept checking me for hemochromotosis (sp), but nada.

I donated blood back in early Feb and nobody said has said anything to me about anything. SO I presume I'm fine.

Nicole

Guest Robbin
Guest Robbin
Posted

I've had this too, off and on for about 15 years. My last test was in the normal range, I believe thanks to being gluten-free now, but one has to wonder what the damage is when it goes on for awhile. Does anyone know what the connection is between gluten and liver enzymes? My drs. were stumped and had me increase fiber--only added fuel to an already out-of-control-blaze!!

trents Grand Master
trents
Posted
  • Author
I've had this too, off and on for about 15 years. My last test was in the normal range, I believe thanks to being gluten-free now, but one has to wonder what the damage is when it goes on for awhile. Does anyone know what the connection is between gluten and liver enzymes? My drs. were stumped and had me increase fiber--only added fuel to an already out-of-control-blaze!!

No one knows for sure what the connection is. The best theory I've heard has to do with the leaky gut syndrome caused by the inflamation of the autoimmune response to gluten in people with Celiac disease. According to the theory, the gut lining becomes more permeable and allows larger than normal protein molecules from incompletely digested food to pass into the blood stream. These larger than normal molecules are, in effect, toxins that the liver has to deal with constantly and so it is overtaxed.

slpinsd Contributor
slpinsd
Posted

Mine were in the normal range- but I did have elevated platelets- which I was told was due to inflammation.

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    • cristiana
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      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
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      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
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