5 years post diagnosis, flare up?

[Kathryn T]

Hi, diagnosis by endoscopy and blood tests in 2016, Marsh 3b damage. Strict gluten-free diet since, no change to HH or diet.

  In January 2021, a heart stent and 4 days in hospital, in late March ended 2nd Covid vaccine. Many new meds.

Early April began ongoing serious diarrhea with pain in upper abdomen, daily. Many fecal tests for everything, all negative. This continues through July when decal tests repeated, and endoscopy done again, still marsh 3b, diagnosis as “non responsive”.

Continuing strict gluten free diet, iron and ferritin levels still not responding.. but only stated Easy Iron and FloraVital one week ago.

Any other suggestions? Nutritionist has confirmed I should be correct in what I’m doing, no suggestions from her. 
What am I missing???

  Thank you!

[RMJ]

You’ve probably already checked, but any chance one of the “Many new meds” has gluten in it?

[Kathryn T]

I actually finished checking this morning… there are 2 out of 5 that need a different manufacturer!

  I’m not sure that small amount would make a difference, but I’ll call the pharmacy on Monday!

 Thank you!!!

[Scott Adams]

Yes, search all of your meds here:
https://dailymed.nlm.nih.gov/dailymed/

Also, if you eat outside your home, and especially in restaurants, you could be getting small amounts of cross contamination which keeps the autoimmune reaction going that leads to villi damage, low iron, etc.

[Kathryn T]

4 minutes ago, Scott Adams said:

Yes, search all of your meds here:
https://dailymed.nlm.nih.gov/dailymed/

Also, if you eat outside your home, and especially in restaurants, you could be getting small amounts of cross contamination which keeps the autoimmune reaction going that leads to villi damage, low iron, etc.

Thank you for the updated list!

  We’re very much home bound, so it’s on me…