Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questions On This Milk Reaction...

VydorScope

By VydorScope
in Related Issues & Disorders

Recommended Posts

VydorScope Proficient
VydorScope
Posted

I was just thinking, well trying to...

First refresher... I was suspecting milk was a problem, so I bought some lactait pills and took two of them with around 12 oz of whole milk, and well 24 hours later I am still recovering. Pain, brain fog, gas, etc. I have had the scratch test and showed NO food allergies of any kind. The reaction to the milk was almost instant. Less then a minute thats for sure.

Since I took the lactait, it is not likely to be lactose... and I was thinking milk alergy and that the scratch test was just plan wrong... instant reaction like that is not typical of a intolernce, its more typical of an allergy (expections always exist of course...)

BUT it just occure to me, it cant be an allergy, I am taking Zytrec-D (RX anti-histamean) daily for seasonal allergies and have been for a week or 2 now (season just starting...). That should have prevented/weakened any reaction right????

So it has to be an intolerence to somthing other hte lactose right???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted
I was just thinking, well trying to...

First refresher... I was suspecting milk was a problem, so I bought some lactait pills and took two of them with around 12 oz of whole milk, and well 24 hours later I am still recovering. Pain, brain fog, gas, etc. I have had the scratch test and showed NO food allergies of any kind. The reaction to the milk was almost instant. Less then a minute thats for sure.

Since I took the lactait, it is not likely to be lactose... and I was thinking milk alergy and that the scratch test was just plan wrong... instant reaction like that is not typical of a intolernce, its more typical of an allergy (expections always exist of course...)

BUT it just occure to me, it cant be an allergy, I am taking Zytrec-D (RX anti-histamean) daily for seasonal allergies and have been for a week or 2 now (season just starting...). That should have prevented/weakened any reaction right????

So it has to be an intolerence to somthing other hte lactose right???

I'm not sure Zrteck or any antihistimine is effective in surpressing allergic reactions in the gut. They work for the nasal passages and epidermal areas but I'm not sure it would impact problems in the gut. Maybe somebody else could address this question with more authority than I.

VydorScope Proficient
VydorScope
Posted
  • Author

Well our alergist said if our son got egg to give him benedryl, so I would think its the same basic idea?

StrongerToday Enthusiast
StrongerToday
Posted

I think they are different medicines... Benedryl blocks the histimine and Zyrtek does .... :blink: ok, I don't know... but it's like comparing Tylonel and Advil - both are pain releivers but do different things.

It could be a lactose thing - the milk may just have been too much for you to process on one little pill. Why don't you try some of that lactose free milk and see if you have a reaction? My friend (who is not gluten-free) can not tolerate any milk, ice cream, or soft cheese (cottage, ricotta, etc.). She can have mozzerella and other hard cheese without any suffering.

VydorScope Proficient
VydorScope
Posted
  • Author
I think they are different medicines... Benedryl blocks the histimine and Zyrtek does .... :blink: ok, I don't know... but it's like comparing Tylonel and Advil - both are pain releivers but do different things.

It could be a lactose thing - the milk may just have been too much for you to process on one little pill. Why don't you try some of that lactose free milk and see if you have a reaction? My friend (who is not gluten-free) can not tolerate any milk, ice cream, or soft cheese (cottage, ricotta, etc.). She can have mozzerella and other hard cheese without any suffering.

Well I took the max dose, 2 :D And I am considering trying lactose free skim milk (incase its milk fat reaction), but right now stranded with out a car cause mines in the shop. I would think if it was lactose the pills would have helped SOME at least. This was as strong of a reaction as I have ever had.

Just wish there was some magic test that I could like spit in cup and they could tell me the asnwer. :(

Zyrtec acording to thier web site is an "antihistamine" so in that sense it is the same.

Mango04 Enthusiast
Mango04
Posted

Lactaid pills do not help me at all whatsoever and I have tested negative to all of the milk allergy tests. I cannot tolerate any trace of dairy product whether it's lactose free rice cheese with casein or a casein free product that contains lactose. Sometimes the best thing to do is eliminate dairy entirely for about six weeks or so and see how you feel. If it makes you sick don't drink it!!!!! :D

Carriefaith Enthusiast
Carriefaith
Posted

You may be intolerant to casein.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


VydorScope Proficient
VydorScope
Posted
  • Author
Lactaid pills do not help me at all whatsoever and I have tested negative to all of the milk allergy tests. I cannot tolerate any trace of dairy product whether it's lactose free rice cheese with casein or a casein free product that contains lactose. Sometimes the best thing to do is eliminate dairy entirely for about six weeks or so and see how you feel. If it makes you sick don't drink it!!!!! :D

How about skim milk ? I have been trying to read up on this stuff and seems some ppl only react to milk fat.

Cheri A Contributor
Cheri A
Posted

Vincent ~ the Zyrtec is time released so that it lasts for a longer amount of time. Benadryl is to be used for a quick allergic reaction (like what you described).

Also, my dd used to be on zyrtec chewables until I found out they had lactose in them. Check out the 2 websites I found for you...

Open Original Shared Link

Open Original Shared Link

You can be allergic to casein (milk protein) or lactose (milk sugar). My dd is allergic to both.

I hope you figure this out soon and are feeling better soon.

PS ~ I made egg-free, yummy chocolate chip cookies tonight that actually came out like cookies

flagbabyds Collaborator
flagbabyds
Posted

I'm allergic to casein and can not use the lactaid pills.

VydorScope Proficient
VydorScope
Posted
  • Author

Oh great just looked at my mulitvi, it has latcose in it too. Adn so does Zyrtec??? bah.

UGH.

OKay from what I can tell there appears to be 3 parts to milk that cuase problems.

1) Milk Fat - seems much rarer though

2) Lactose

3) Casien

Soooo Since I took lactate with my milk, its not likly to be #2, but it was whole milk so #1 and #3 are still in play. I guess the only way to know is to get some lactose free skim milk (saw it in the store) chug that, and if I react then it has to be #3, if I do not then its likely to be Milk Fat, and I next try Lactose free whole milk. If I still do not react then it has to ba lactose and the lactiate pills just suck.

That sound logical?

penguin Community Regular
penguin
Posted

I'd really reccommend not chugging milk...drinking it slowly is probably a better idea, IMO. Even if it's skim milk, it's still kind of rich... Drinking milk fast will make anyone sick. :blink:

Also, as far as Zyrtec is concerned, I'm allergic to tree nuts (oral allergy syndrome) and my reaction is NOT lessened by allergy meds like Zyrtec or Claritin. Someone mentioned that Zyrtec is slow acting, that's true, benadryl works more acutely, it also knocks you out...

Oh, FYI, my allergist said never to use topical benadryl for your skin in an allergic reaction, he said it makes allergies worse :ph34r:

Kasey'sMom Enthusiast
Kasey'sMom
Posted

My dd and I do liquid Zyrtec and it works really well for us. I started taking it several years ago for anaphylatic reactions and now daily. The Zyrtec syrup comes pre-flavored in grape-banana. Yes, Zyrtec is a second-generation anti-histimine. I also take Xolair injections. Xolair is an anit-IgE antibody injection which attaches to the IgE anti-body and passes through the body befor histamines are released. I take the shot every four weeks.

I went off dairy for several months and now I can tolerate it small amounts. My dd and I didn't test positive in the scratch test for dairy (IgE.) She did test positive on the YORK test for dairy (IgG-delayed reaction) so we've taken dairy out of her diet as well.

I did have a disscusion with our allergist and he mentioned that the two hardest sugars for the body to digest are maltos and lactose.

If I still do not react then it has to ba lactose and the lactiate pills just suck.

Sometimes I've found that I have to take 2 lactaid pills. Are you taking additional digestive enzymes?

Soooo Since I took lactate with my milk, its not likly to be #2, but it was whole milk so #1 and #3 are still in play. I guess the only way to know is to get some lactose free skim milk (saw it in the store) chug that, and if I react then it has to be #3, if I do not then its likely to be Milk Fat, and I next try Lactose free whole milk.
To test #3 you might try one of the soy or rice cheese that contain casien but are lactose free.

PS ~ I made egg-free, yummy chocolate chip cookies tonight that actually came out like cookies
Do you mind to share your recipe? My dd is allergic to eggs as well. She tested postive in the single blood test, (IgE -classic allergy) but she didn't test positive in her scratch testing.....kind of weird. I got some Enjoy Life Chocolate Chips since they're safe and I've been dying to make cookies. :lol:
VydorScope Proficient
VydorScope
Posted
  • Author
I did have a disscusion with our allergist and he mentioned that the two hardest sugars for the body to digest are maltos and lactose.

Sometimes I've found that I have to take 2 lactaid pills. Are you taking additional digestive enzymes?

To test #3 you might try one of the soy or rice cheese that contain casien but are lactose free.

Yes took 2, thats the max dose, so thats what I took. Dunno anything about any other enzymes. Up till yesterday I was eating yogurt daily fi that counts.

Did not know that about Rice or Soy cheese, how do I know which have Casien in them?

Thanks!

Kasey'sMom Enthusiast
Kasey'sMom
Posted

Kroger has this brand.....Open Original Shared Link

They have both veggie and rice types. I looked at the rice variety the other day and it listed casien in the ingredient list on the back. I'm not sure how great they taste but it might be a good way to test! :D

I don't know anything about soy yogurt but it may have casien in it as well.

Mango04 Enthusiast
Mango04
Posted
How about skim milk ? I have been trying to read up on this stuff and seems some ppl only react to milk fat.

If you're determined to drink milk you might want to try organic raw dairy. Some people who cannot tolerate any other form of dairy can tolerate it raw.

VydorScope Proficient
VydorScope
Posted
  • Author
If you're determined to drink milk you might want to try organic raw dairy. Some people who cannot tolerate any other form of dairy can tolerate it raw.

Im not, but I am detrimined to know what the trigger is.

trents Grand Master
trents
Posted

Deleted.

trents Grand Master
trents
Posted

I've been reading a book on food allergies and it points out that there are several proteins in milk that can cause allergic reactions. Casseine is jus the most common one.

tarnalberry Community Regular
tarnalberry
Posted

well, the scratch test would have tested you for IgE mediated casein allergies. IgE mediate allergies are also the ones that release histamine, so are the ones that taking an antihistamine like zyrtec or benadryl would affect. but you could have an IgG intolerance, would wouldn't show up on the scratch test or be affected by the antihistamine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.