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Slayxbella

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Scott Adams Grand Master

@dixonpete sent me a personal message with:

Quote

My celiac status would still be in doubt because back in 2008 when I figured out it was gluten that was making me sick I refused to go back on for the biopsy - because gluten was making me so sick.

My last major gluten exposure without hosting hookworms was 9 years ago. I was sick for a full day and a half with projectile vomiting and projectile diarrhea all while trying not to pass out. Without hookworms I'd never be able to complete the gluten consumption requirement required for the biopsy. 

Thanks for the clarification/reminder--so you've never been diagnosed with celiac disease, which means that you may not have it at all, and might have the more common non-celiac gluten sensitivity (NCGS). This is a very good reason why you should avoid promoting hookworm treatment instead of the gluten-free diet for those with celiac disease. At this point there is only anecdotal evidence to support the idea that hookworm treatment might allow a celiac to eat gluten, but the science/studies done so far definitely do not support this idea--and quite the opposite--they show that people with celiac disease should not eat gluten.

Whether or not you agree with the outcome of those studies is, to me at least, irrelevant--they are the best science that we have to date on this topic, and @John Scott's claim that if only the studies were conducted differently, then the outcome would have supported the idea that someone with celiac disease and hookworm infection can eat gluten is just an assumption--which comes from a non-scientist who has never conducted a study, and isn't an expert on celiac disease.

I do think hookworm therapy might be helpful for certain people with certain autoimmune issues, but it definitely isn't for everyone. For those with celiac disease the best option is still a gluten-free diet, and if they are worried about cross-contamination they should consider AN-PEP enzymes like GliadinX (a sponsor here) before hookworm treatment, as there have been many more studies done on AN-PEP enzymes than hookworm therapy for celiac disease.  


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    • HilaryM
      Thank you Scott - I can’t think of much that’s changed diet wise but I’ll definitely try to see if any of this works and probiotics are a great idea thank you!
    • cristiana
      Hello there @maylynn  I'm a slow healer from the UK.  I sympathise.  Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy.   For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none).  But I would say even very little iron from an approved source made my stomach sore, I think it can be quite irritating. Perhaps that is an issue for you? Oats (the gluten-free pure ones) were an issue for many years (now fine).   Even though my endoscopy findings did not reflect any problems with healing, or any other issues, I self-diagnosed myself with gastritis as it seemed the feeling of nausea and in my case burning in the stomach pointed to it.  I went onto a gastritis/reflux diet and that really helped.   Have a google - there are tonnes online.  That meant avoiding spicy, greasy food, onions, tomatoes, coffee and alcohol.  (Actually, I don't drink, but I did toast someone during that time at a baptism and it set my stomach on fire.)   Instead of drinking strong coffee, I drank water, camomile tea, warm ginger water... so soothing.  I would not go to bed with a full stomach when things were bad, I would let my stomach rest from say 8pm to 8am, which really helped.   My husband and I then decided to buy a new oven and to buy a new dishwasher - we did need new ones anyway.  The new oven had two compartments, gluten goes in one, gluten free in the other.  The new dishwasher was a Miele which does a full rinse with clean water before washing the dishes.  But before I could afford a new dishwasher I would hand wash the dishes and make sure they were really rinsed well, no residue  (unlike our old dishwasher that was really not rinsing well at all). I stopped eating out for quite a few years - I think this is a biggy - although I would have coffee and soft drinks out. Eventually, my levels normalised.  What of the above was the 'silver bullet'?  I am not sure, but finally I did feel a lot better.  Occasionally I will take an over the counter PPI (omeprazole) or a small dose of Gaviscon, but most of the time I don't need them now. I'm not expecting anyone to go to all these lengths, but it could be that one or two of the tips I give you might work.  Don't give up hope! Cristiana
    • RMJ
      Yes, it would make sense to go mostly gluten free, since it gives your troubles.
    • SMK7
      Yes, I made an effort to eat extra gluten at least 3 weeks before the endoscopy. I probably ate a some amount in the weeks before that. I had diarrhea, which resolved once I cut back after the endoscopy. So I think it would make sense to go mostly gluten free?  
    • RMJ
      Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
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