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NEW TO CELIAC DISEASE


Slayxbella

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Scott Adams Grand Master

@dixonpete sent me a personal message with:

Quote

My celiac status would still be in doubt because back in 2008 when I figured out it was gluten that was making me sick I refused to go back on for the biopsy - because gluten was making me so sick.

My last major gluten exposure without hosting hookworms was 9 years ago. I was sick for a full day and a half with projectile vomiting and projectile diarrhea all while trying not to pass out. Without hookworms I'd never be able to complete the gluten consumption requirement required for the biopsy. 

Thanks for the clarification/reminder--so you've never been diagnosed with celiac disease, which means that you may not have it at all, and might have the more common non-celiac gluten sensitivity (NCGS). This is a very good reason why you should avoid promoting hookworm treatment instead of the gluten-free diet for those with celiac disease. At this point there is only anecdotal evidence to support the idea that hookworm treatment might allow a celiac to eat gluten, but the science/studies done so far definitely do not support this idea--and quite the opposite--they show that people with celiac disease should not eat gluten.

Whether or not you agree with the outcome of those studies is, to me at least, irrelevant--they are the best science that we have to date on this topic, and @John Scott's claim that if only the studies were conducted differently, then the outcome would have supported the idea that someone with celiac disease and hookworm infection can eat gluten is just an assumption--which comes from a non-scientist who has never conducted a study, and isn't an expert on celiac disease.

I do think hookworm therapy might be helpful for certain people with certain autoimmune issues, but it definitely isn't for everyone. For those with celiac disease the best option is still a gluten-free diet, and if they are worried about cross-contamination they should consider AN-PEP enzymes like GliadinX (a sponsor here) before hookworm treatment, as there have been many more studies done on AN-PEP enzymes than hookworm therapy for celiac disease.  


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    • Wheatwacked
      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
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