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Rashes


alexsb01

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alexsb01 Apprentice

I’ve been diagnosed with celiac over 2 months ago. My stomach issues have gone as well my other symptoms. I am eating healthier and cooking at home. I am extra careful with cross contamination etc. and seasonings. 
 

After 4 weeks of diagnoses, I started getting random red rashes all over my body. They come and go, sometimes they’re not even itchy.  Sometimes just an itchy bump and then it just disappears. 
 

I’ve changed my body wash, detergent and stopped using fabric softener. Everything I use is approved by the Canadian Celiac Association. I’m wondering if this is a withdrawal or maybe a totally different issue. Has anyone else experience this? I never got this pre-diagnosis. 


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Scott Adams Grand Master

That is strange, and it sounds like some sort of allergy rather than dermatitis herpetiformis, which is the skin condition associated with celiac disease. 

Did you add new things to your diet after going gluten-free, and are you sure your diet is 100% gluten-free? One idea is that maybe you have an allergy to some new food you introduced after going gluten-free.

alexsb01 Apprentice

No I haven’t added anything new, I try and avoid boxed/processed foods that say they’re gluten free. I hardly go out to restaurants because it’s too stressful. I’ve only gone out twice since diagnoses. 
I haven’t really tried anything new either. Any seasonings I use are gluten free. 
it’s been about 5 weeks that this has been happening. I am at my wits end. 

Scott Adams Grand Master

Do you eat oats? About 9% of celiacs cannot tolerate oats. You may want to keep a food diary and cut out things like dairy, eggs, corn, etc., and see if it helps.

alexsb01 Apprentice

No oats. I’m going to start cutting out the other stuff like eggs, dairy and corn and see if it’s any of those. 

Scott Adams Grand Master

You may want to just do one at a time and see if you can find the culprit.

PS - While you are recovering from celiac disease you likely have leaky gut syndrome, which can cause temporary food intolerance/sensitivity issues. These may go away after you fully recover. 

alexsb01 Apprentice

Oh definitely! 
 

oh wow I no idea! As long as it goes away!! This disease sucks! I’ve never been so stressed out in my life! 


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Wheatwacked Veteran

I'd start with the corn.  Some reactions include: Hives (red, itchy skin bumps) or a skin rash.

For stress start by increasing your intake of vitamin D.  It is traditional for Celiac, and most diseases to be low.

Lithium Picolate 5 mg helps with "gotta do it, now!" 

What are the symptoms of pellagra, B3 Niacin deficiency.

  • Chronic diarrhea, sometimes bloody.
  • Abdominal pain and indigestion.
  • Loss of appetite, nausea and vomiting.
  • Itchy or painful skin rashes.
  • Mouth sores and a red, swollen tongue.
  • Fatigue, weakness and malaise.
  • Mood changes, depression.
  • Neurological symptoms such tremors or numbness and tingling in the hands and feet.
  • Delirium and dementia.
cristiana Veteran
(edited)

I had something that sounds just like that and it turned out to be a type of eczema, strange because I hadn't had it as a child.  It started in my early 50s.

I went to the doctor and he prescribed a topical steroid, Betnovate, and an emollient gel with an added anti-inflammatory agent known as Adex.  He advised me to apply the Adex 20 minutes before a thin layer of Betnovate, twice a day.  It was fantastic - within days the rash was almost gone.  I used Neutrogena tar shampoo for my itchy scalp. 

I now rarely have this rash - if it starts up again, I start using the cream and/or steroid and it seems to clear up really quickly.

Interestingly, when I had it badly I happened to have a blood test as part of my celiac annual testing which showed I had elevated IgE levels.

https://www.webmd.com/skin-problems-and-treatments/eczema/eczema-allergen-ige-test

I think at the time I had given up chocolate and instead was eating something that contained almonds, not in great quantity, but I think for me that was the trigger - why almonds have never affected me in this way before I don't know, but I suppose people develop allergies/intolerances at different stages in their lives?

 

 

 

 

 

 

Edited by cristiana

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    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
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      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
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