Elevated tTg IgA Antibodies 2 years into strict gluten free diet

[lisaberkow]

My daughter had the same problem after eating a strict gluten free diet. A doctor recommended a cross reactivity test, because there are a list of foods that your body could see and think it’s gluten. Her test came back saying that tapioca and oats make your body react as if you ate gluten. When she went off those two things her numbers came down to normal. 

[Beverage]

Some of the things that got me early on, that I didn't think of, was airborne gluten, like grain dust from feeding my neighbor's chickens.  We also have done a good deal of remodeling in our older home, and finally figured out the old plaster and wall board was an issue, also cutting chip board or plywood.  I'm real leery now of going down the grocery store aisle where flour is, especially if I see them stacking the shelves.  Also, I put all my groceries down at checkout to be told that a bag of flour had broken there, and then I could see all my stuff was contaminated with it.  Anyway...any airborne or dust possibilities?

[Russ H]

On 5/25/2023 at 5:43 PM, Scott Adams said:

I agree that this can be the case, however, something like 20-30% of people who have been diagnosed with celiac disease fail to properly follow a gluten-free diet. Many continue eating out, cheat on their diets, etc., so it's unclear exactly what this chart is showing here. For those in the study who took longer than 2 years it may be showing a dietary compliance issue, rather than the actual time necessary if someone is 100% gluten-free.

Good point. It would be nice to have a strict study with weekly tests to see what actually happens.

[RMJ]

My TTG IgA came down pretty quickly, but my DGP IgA took six years to get into the normal range.  I found that using foods labeled gluten free isn’t enough for me, it has to be certified gluten free.  

[MiriamW]

@Acacia VoynarI have a similar problem. I've been on a very strict gluten free diet, not eating out etc etc for a number of years but my gut lining remains inflamed. I've noticed that any starch makes me feel worse. I don't touch oats, dairy, nuts, seeds, none of the gums (like guar, xantham....) as I now react to all of them. My gastro specialist mentioned that some people can react to fructose, do you eat lots of fruit? I presume you take some good probiotics. 

[Acacia Voynar]

On 5/30/2023 at 2:22 PM, lisaberkow said:

My daughter had the same problem after eating a strict gluten free diet. A doctor recommended a cross reactivity test, because there are a list of foods that your body could see and think it’s gluten. Her test came back saying that tapioca and oats make your body react as if you ate gluten. When she went off those two things her numbers came down to normal. 

Where did you get a cross reactivity test?

[trents]

5 minutes ago, Acacia Voynar said:

Where did you get a cross reactivity test?

I'd like to know that as well. What was the test called, specifically? The only tests I know of for food reactions are of the allergy type which would not apply in the case of celiac cross reactions.

[lisaberkow]

4 hours ago, trents said:

I'd like to know that as well. What was the test called, specifically? The only tests I know of for food reactions are of the allergy type which would not apply in the case of celiac cross reactions.

The name of the test is Cyrex Laboratories Array 4 - gluten associated cross reactive foods and food sensitivity. We had a functional doctor order it for us. You can google and see the list of foods. 

[trents]

10 minutes ago, lisaberkow said:

The name of the test is Cyrex Laboratories Array 4 - gluten associated cross reactive foods and food sensitivity. We had a functional doctor order it for us. You can google and see the list of foods. 

Thank you.

[Acacia Voynar]

On 6/2/2023 at 7:46 PM, lisaberkow said:

The name of the test is Cyrex Laboratories Array 4 - gluten associated cross reactive foods and food sensitivity. We had a functional doctor order it for us. You can google and see the list of foods. 

Thank you so much!