Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Gfdf Probiotics?


terps19

Recommended Posts

terps19 Contributor

I think that the only one I have found is Flora-Q and Florastor (has yeast in it). So I think I am going to give the Flora-Q a try but I also wanted to know if anyone else uses probiotics and if so are they gluten free and dairy free? have they made a difference?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Florastor contains lactose so its not casein free.

terps19 Contributor
Florastor contains lactose so its not casein free.

Interesting about florastor containing lactose... I didnt see that in the ingredients list. Do you kow if Flora-Q is ok?

mookie03 Contributor

I use Jarrodophilus, says on the bottle "contains NO common allergen"- got them at whole foods

www.jarrow.com

jaten Enthusiast

My GI gave me samples of FloraQ. Tummy felt pretty yuck for a few days when I first started. Those symptoms settled completely. I suspect it was the battle of good vs. evil :ph34r:

Lisa Mentor

I still don't understand the Probiotics. Rachel, can you spell it out for me in laymens terms. I think that you have to take Pro to counter the Anti-B, when you need them....other than that I don't know. Should I be taking them now .

Lisa

dlp252 Apprentice
I still don't understand the Probiotics. Rachel, can you spell it out for me in laymens terms. I think that you have to take Pro to counter the Anti-B, when you need them....other than that I don't know. Should I be taking them now .

Lisa

I'm not Rachel, but I'll take a stab at it. Our bodies contain bacteria, both good and bad. They live there in a sort of balance until something upsets that balance. If you take antibiotics, for instance, they kill both the good and bad bacteria, but the bad stuff comes back quicker. Other things can upset the balance as well, so we take a probiotic to help balance out the bad stuff. I try to take them all the time because I have sooooo many things going on, lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mookie03 Contributor
I'm not Rachel, but I'll take a stab at it. Our bodies contain bacteria, both good and bad. They live there in a sort of balance until something upsets that balance. If you take antibiotics, for instance, they kill both the good and bad bacteria, but the bad stuff comes back quicker. Other things can upset the balance as well, so we take a probiotic to help balance out the bad stuff. I try to take them all the time because I have sooooo many things going on, lol.

Donna- i have a question about this. This was my understanding about using probiotics as well, but i just started taking them last week after a visit to a nutritionist. All of the sudden the last few days i have had a bit of D, but not like i have been glutened, more like my body is trying to flush something out of it (i.e., no pain, cramps, etc. Just D). Could this be the probiotics at work flushing out the bad bacteria? Or does it not work that way?

dlp252 Apprentice
Donna- i have a question about this. This was my understanding about using probiotics as well, but i just started taking them last week after a visit to a nutritionist. All of the sudden the last few days i have had a bit of D, but not like i have been glutened, more like my body is trying to flush something out of it (i.e., no pain, cramps, etc. Just D). Could this be the probiotics at work flushing out the bad bacteria? Or does it not work that way?

Yes, I think they can actually work that way. I'm not sure it's technically flushing out, but I do think that it can cause D sometimes. They don't affect me that way any more but I do believe in the beginning they did.

penguin Community Regular

The good bacteria (what's in the probiotics) helps you digest foods in your GI tract.

When you have D, the bacteria gets flushed out and your GI tract is "off", you can be grumbly, irregular, etc. Same thing with antibiotics, because those kill all bacteria. That's why you get yeast infections on antibiotics, too. The good bacteria keep the yeast in check, and can't when they're killed off.

mookie03 Contributor
Yes, I think they can actually work that way. I'm not sure it's technically flushing out, but I do think that it can cause D sometimes. They don't affect me that way any more but I do believe in the beginning they did.

Thanks, that is reassuring. the best i can describe is that it feels like "productive D", if you get what i mean. :D it certainly doesnt feeling like a rxn from food. i'm also getting over a sinus infection which could be part of it too... Chelsea- thanks for the info- i used to take acidophilus daily when i was younger b/c i was on antibiotics throughout my childhood. Never realized until recently that i could take it when i wasnt on antibiotics!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.