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mishyj

By mishyj
in Coping with Celiac Disease

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mishyj Newbie
mishyj
Posted

My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!

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mishyj Newbie
mishyj
Posted
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Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.

trents Grand Master
trents
Posted
1 hour ago, mishyj said:

My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!

What kind of stool test was done? Can you be more specific? 

trents Grand Master
trents
Posted
1 hour ago, mishyj said:

Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.

"her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.

Scott Adams Grand Master
Scott Adams
Posted

Has she had blood panels done for celiac disease?

 

 

Awol cast iron stomach Experienced
Awol cast iron stomach
Posted
On 4/24/2024 at 5:03 PM, mishyj said:

Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.

I am sorry to read, your daughter still has issues despite her removing gluten from the home. Most of us also have to do a whole foods diet to avoid cross contamination from processed foods on shared manufacturing lines. Many of us avoid eating out to avoid cross contamination at restaurants. Lastly, we also have to take care to avoid gluten cross contamination in make up and personal care items.

We are on alert to avoid any form of ingestion or contact with gluten or cross contamination on our skin.  

Best wishes to you, and your daughter.

Scott Adams Grand Master
Scott Adams
Posted

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

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Mari Contributor
Mari
Posted

Hi mishyj,

When I was told that I might have Celiac Disease about 18 years ago I went online and read what I could find about this condition. I had a blood test called a Celiac Panel and my IgA was elevated but the TTg was in the normal range. I ordered a Genetic test from Enterolab.com that showed I had a Main Celiac Gene (DQ8) from one parent and a DQ6 from my other parent. That combination the report noted meant that if I had developed Celiac Disease it would be worse.  I also saw that Enterolab offered a stool or fecal test that was said to be more sensitive than the blood test. That means that if a person did a Blood test and then a fecal test for gluten antibodies the fecal test would most likely give higher numbers.

 

I looked online today and found that a person can order and do a fecal test at home and they are offered by several companies. If your daughter used one of these at home tests the results might be higher than her last blood test for gluten intolerance. If she is not experiencing increased symptoms this result may not be useful unless she has another endoscopy with biopsys and it shows that she continues to have small intestinal damage from the presence of gluten in her food or environment. I found this article online today : Stool tests reveal it's common for unintended gluten to get into a strict gluten-free diet | BeyondCeliac.org

If you or your daughter have any problems understand this article please come back and ask questions.

Regards,

Marian

 

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      Welcome to the forum, @Beagirl! What you are feeling is what we have all felt to one degree or another and we typically feel it more intensely when we already have a laundry list of health issues to work around. It's often the result of a sense of loss . . . of having to say goodbye to some good foods that we enjoy that may have been part of a shrinking list of things that are left that we still found pleasure in. And also for many it represents a social loss . . . not being able to accept dinner invitations from family and friends because you are unsure if they know how to cook gluten free . . . not being able to go out to just any restaurant with family and friends because their menu doesn't have gluten free offerings and if it it does, are they careful with regard to cross contamination issues?
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