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Immune system and Celiac Disease


Jenn D

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Jenn D Rookie

I am curious to hear anyone's thoughts on the immune system.and Celiac Disease. My 12 year old son was diagnosed a year ago. He was always catching colds etc. pre diagnosis.  The strange thing is since he's been gluten free his immune system reacts strongly. For example,  all of his friends caught 5th disease (a viral skin rash) he had a fever of 102 for half of a day and was completely fine the next. 

This week he had a sore throat and got a fever of 104.3 for half of a day and the next day the fever was completely gone. Although he still has a bit of a sore throat. His friends also have the same and have been sick for days. My concern is the high fevers. Why is his immune system  reacting so strongly to any illness? He's never had high fevers before. He has been much healthier since going gluten free, but these fevers are scary. I would love to hear your stories or thoughts. Thank you


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trents Grand Master

One thing I would point out is that he as now entered adolescence and there are a lot of changes in general going on in his body.

Jenn D Rookie

That is true, but usually the older you get the less likely it is to have a high fever. His friends the same age aren't having an immune response like this. The only difference is the Celiac....Very good point though. I really appreciate it

trents Grand Master

Do his fevers respond to acetamenophen? 

Jenn D Rookie

yes they do

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    • trents
      TTG would refer to a blood antibody test. Not valid if you are already eating gluten free or mostly so. DQH would refer to a genetic test to see if you possess either or both of the two genes that have been connected most strongly to developing active celiac disease. The genetic test is more of a rule out measure than a diagnostic test as about 40% of the general population have one or both of those genes but only about 1% of the general population develops active celiac disease. If you don't have the genes but gluten causes you issues then the conclusion is NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. So, the genetic testing helps with a differential diagnosis. I don't know about the 2P. 2 Pairs of genes?
    • Scott Adams
      Tell him to get me a case...just kidding! I wonder why they are not labelled gluten-free here in the USA? They don't have gluten ingredients.
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      Glad this helped. There are lots of alternative breads out there, so someone has likely made some sort of paleo bread with no grain. And if you bake, experiment with some of the alternative flours to see what you can come up with. If you commit to the gluten-free diet 100%, you may want to do a bit of research on some of the tricker aspects of getting gluten out of your diet, such as cross contamination in the home kitchen (pots and pans, cutting boards, toaster, airborne flour). Don't feel you have to do everything at once, or let this overwhelm you. I've always said that going gluten free is a process, not a moment. The reason I mention this is that, if you think you are gluten-free, but still having symptoms, you may realize that even minute amounts of gluten cause a reaction for a while. Let me know if you have any questions.  Pam
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    • Scott Adams
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