Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Menstrual Irregularities

Guest Babbia

By Guest Babbia
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest Babbia
Guest Babbia
Posted

Just something you all might find interesting...... Since first getting my period at age 12 (am now 30), I have never had normal periods. I would literally get ONE period per year, unless I was on the pill. Doctors said I had PCOS. Well....over the last while (not on pill) I have had FOUR periods in 8 months. The only thing that I have changed was going gluten-free. I have always been a "healthy" eater, so problem was not that....it was the damn gluten all along! I have yet to relay this to my doctor and am wondering what he'll have to say about it.

Babbia

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


corinne Apprentice
corinne
Posted

Gluten free changed mine too. My periods were the opposite of yours - very heavy and long (average 12-15 days). Since going gluten-free 3 months ago, they're now pretty normal, about 5 days. Woohooo.

Megan Rookie
Megan
Posted

WOW!! I've always had problems so hopefully this can change for me to!! (too bad I'm on the Gluten challenge!! NO FUN!!!)

Ann1231 Enthusiast
Ann1231
Posted

mine are much lighter and shorter since gluten free. thank goodness. I had times when I was anemic they were so bad!

plantime Contributor
plantime
Posted

Mine were quite regular, 5 days every 28 days, but very bad with cramps. Since going gluten-free, the cramps have let up significantly.

italiana1981 Newbie
italiana1981
Posted

I got my period when I was 10 years old-and ever since then have gone several years without getting my period!

No doctors could ever find a reason why. They would put me on BC pills, which gave me nasty mood swings.

I just go my enterolab test last week, and have not had gluten since.

Currently, I have not gotten my period in about five months and have quite a bit of hair loss.

I am 24!

How long has it taken people for their periods to regulate? Did you take any supplements or see any doctors that helped? Or should I just try a gluten free diet?

ehrin Explorer
ehrin
Posted

Just something you all might find interesting...... Since first getting my period at age 12 (am now 30), I have never had normal periods. I would literally get ONE period per year, unless I was on the pill. Doctors said I had PCOS. Well....over the last while (not on pill) I have had FOUR periods in 8 months. The only thing that I have changed was going gluten-free. I have always been a "healthy" eater, so problem was not that....it was the damn gluten all along! I have yet to relay this to my doctor and am wondering what he'll have to say about it.

Babbia

I find this very interesting. I have never had normal periods and they attributed it to my having PCOS as well. I've never found their diagnosis to be firm...meaning I just don't buy it. Yes, my testosterone levels are a bit high but I've had a hard time believing that I have PCOS. I don't have any of the other typical symptoms. And generally people with T2 diabetes have this, not T1, which is what I have. However, I can't go off the pill to find out if being gluten-free has helped regulate my periods. I am sexually active and I do not want kids yet and my BF certainly doesn't want kids yet so....I'd love to hear if others have found a similar experience as you, Babbia! Quite interesting!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


italiana1981 Newbie
italiana1981
Posted

I find this very interesting. I have never had normal periods and they attributed it to my having PCOS as well. I've never found their diagnosis to be firm...meaning I just don't buy it. Yes, my testosterone levels are a bit high but I've had a hard time believing that I have PCOS. I don't have any of the other typical symptoms. And generally people with T2 diabetes have this, not T1, which is what I have. However, I can't go off the pill to find out if being gluten-free has helped regulate my periods. I am sexually active and I do not want kids yet and my BF certainly doesn't want kids yet so....I'd love to hear if others have found a similar experience as you, Babbia! Quite interesting!!!

I was also diagnosed with PCOS b/c of my menstrual irregularities.

francelajoie Explorer
francelajoie
Posted

Oh my god!!

That's it!!!

I also had really really long periods (12 to 14 days), major cramping, and very heavy bleeding.

Now, they last 5-7 days, barely any pain, and its not heavy at all.

It's sooooooo much better now.

mookie03 Contributor
mookie03
Posted

Along these lines, has anyone ever had to take provera to induce period? (gluten-free 9 mos and havent gotten period yet). If you have, please pm me, i have questions :D

Mahee34 Enthusiast
Mahee34
Posted

mine have been lighter and shorter too since i've been diagnosed.....by shorter i mean like 2 days long.....although i still sometimes have cramping, depending on how badly i give into my chocolate and soda craving habits.....this month i've been good. some months are horrible!! but darn it, sometimes you just need some chocolate.

penguin Community Regular
penguin
Posted

My period was 10 days late last month, my first month gluten-free and I was coincidentally off the pill that month. Freaked me out. Before that, I started just spotting for my period and the dr blamed it on the pills (which I've been taking for 7 years) but I think the pill was the only thing making me have it to begin with.

I was also a late starter, two days before my 14th birthday.

corinne Apprentice
corinne
Posted

I didn't realize that 14 was a late start. I started at 15 and my mom at 16.

penguin Community Regular
penguin
Posted
I didn't realize that 14 was a late start. I started at 15 and my mom at 16.

I was on the late end of normal, but it also depends on the calendar year you got your first period. Over the last 50 years, the average age of menarche has gotten younger and younger. The average age is now 12, as opposed to 16 a hundred years ago...

jerseyangel Proficient
jerseyangel
Posted

Yes, my niece was only 9 when she started.

PreOptMegs Explorer
PreOptMegs
Posted

I just started on BC last week because it had been 2 years since my last period. First, I lost a lot of weight, then the gluten thing, then I continued to have thyroid problems, so finally I should be set up to have one in about 17 days. I hate the bc pills though... tons of bloating/ weight issues and it makes me totally nautious. It sucks because i just got synthroid increased, so I should be losing weight...

Ashley Enthusiast
Ashley
Posted

Mine's the opposite of everybody---mine are getting worse and worse. Ever since Celiac, my periods are much heavier and the pain is getting were I can't tolrate it very well at all. Until like the last two days (6-7), they're HEAVY. Except for those last two days, I'm miserable most of the time. If it's really bad, it's 8-9 days.

Ashley Enthusiast
Ashley
Posted

'Pose I'm gonna have to bump this up to get a reply. If it's better for anyone, just PM me instead.

jerseyangel Proficient
jerseyangel
Posted

Rinku--It interesting how your symptoms mirror mine when I was younger. You previously said that you feel dizzy a lot (like you could faint). I had this for years, along with progressively heavier and painful periods. This began in my teens, and went on (except for short periods after the birth of 2 children) until 2 years ago. I just lived with it, which , looking back was unnecessary. There are several things that can cause the heavy blood loss--but that, very possibly, is what is at the root of your dizziness--because it can lead to anemia. Have you seen a gynocologist? I would strongly suggest you do, and tell him/her about all of your symptoms--including the dizziness. These things can be dealt with--don't make the mistake that I did--I thought it was "just me"--and that I just had to live with it. Not true--Feel free to PM me anytime, and good luck with it :)

carriecraig Enthusiast
carriecraig
Posted

WOW! That is so interesting. I had spotting between periods for almost 3 years straight, and just thought it was my pill and I tried a million of them. Of course I was told I would have spotting when I switched pills - what a vicious cycle.

Now, I am on Yasmin, with lighter periods, no spotting, and they are light.

wolfie Enthusiast
wolfie
Posted

This is a really interesting thread. Since going gluten-free 3 months ago, my periods have definitely changed. First they were more frequent (every 20-21 days). Gyn ran a bunch of tests, nothing wrong, really. Now this month I am a week late (on day 35 now!!). WTH? I am fine with lighter periods b/c mine were ridiculous. I really think going gluten-free does change things. Oh and I am not pregnant, my tubes are tied (or if I am, DH is going to flip! LOL).

mick66 Newbie
mick66
Posted
Mine's the opposite of everybody---mine are getting worse and worse. Ever since Celiac, my periods are much heavier and the pain is getting were I can't tolrate it very well at all. Until like the last two days (6-7), they're HEAVY. Except for those last two days, I'm miserable most of the time. If it's really bad, it's 8-9 days.

Rinku, Mine are exactly like yours, why are we the only ones, is there really something that could be wrong? I have to go see gyno this summer for a pap, but I'm not sure I should wait that long.

This past fall I was in the hospital for something unrelated to this, and they did tests one of them an ultrasound and it showed fibroids, could this be what's causing the heavy periods and painful cramps?

Or is it the gluten free diet? They told me in the hospital that the fibroids should just shrink by themselves. When I have my period, coincidently now!, I feel like shrinking right into bed its so bad!!!!!!

Thanks for that post, I thought I was the only one, Mick

aorona Rookie
aorona
Posted

My cycles were 28 days, but my periods were long (12-17 days!!!). Since being on the gluten free diet for 9 months now, my period have gotten lighter and shorter (5-10 days.) I have also been taking Vitamin K, which I think has helped alot. The Vitamin K should not be taken with a multi-vitamin or Vitamin E, since these can block the effects of Vitamin K. Good Luck.

Guest MyKidsMom
Guest MyKidsMom
Posted

Wow! I could have written that first post...started the same time, am currently the same age and was also diagnosed with PCOS but didn't respond to infertility with conventional PCOS treatments. Before pregnancies I had about 2 periods a year, now I am almost regular. My problem is now I bleed in between and sometimes don't even stop. I think it was causing me to be anemic. I started taking iron and it seems better. One other possible cause for intermittent bleeding is that I now have an IUD.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.