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The Best Advice Or Info About celiac disease You Have Gotten From

Jnkmnky

By Jnkmnky
in Coping with Celiac Disease

Recommended Posts

luvs2eat Collaborator
luvs2eat
Posted

Ooooh... I almost forgot. One of the BEST things I learned on here was that the macaroni in Kraft Mac and Cheese isn't gluten-free, BUT THE CHEESE POWDER IS!!!

My DD (diagnosed last year) was the happiest to learn that!! You can buy it in a shakey can like Parmesan cheese in some groceries!

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  • Replies 67
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Canadian Karen Community Regular
Canadian Karen
Posted

Another thing!

I learned here that Swiss Chalet chicken, dipping sauce, baked potato and sour cream are all gluten free! I thought Swiss Chalet was lost to me forever because I just assumed that the sauces they had would have gluten in them. Of course their gravy does have gluten in it, but the dipping sauce is fine along with their chicken! Yipee!

Karen

ianm Apprentice
ianm
Posted

ALTOIDS!!!!

Canadian Karen Community Regular
Canadian Karen
Posted
ALTOIDS!!!!

LMAO! :lol::lol: You had a truckload delivered, didn't you!!!!! ;)

Hugs.

Karen

Jnkmnky Collaborator
Jnkmnky
Posted
  • Author

PF CHANG'S has a gluten free menu.... YUM!!!!

Classico alfredo sauces are gluten free. My kids really like them, but they have a bunch of stuff we're avoiding so we only have them once in awhile.

chrissy Collaborator
chrissy
Posted

i can't think of which advice has been the best-----but i loved it when vincent posted the picture of the gluten free cocoa pebbles box. the front of the box is different from the old ones, so i knew what to look for----and found them!!!! the lists that people have sent me have been helpful. just knowing that i can come on here and ask a question about celiac and get answers is wonderful.

christine

tarnalberry Community Regular
tarnalberry
Posted

lots and lots of things. lots and lots of little things that add up to make my life easier. thank you - to everyone!

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kabowman Explorer
kabowman
Posted

My number one thing is from Richard: I now use BBQ salt, that I found and modified, for everything - his suggestion for my missing real BBQ. Made grilling fun again.

But along with that is all the support!

jaten Enthusiast
jaten
Posted

THANK YOU, EVERYONE!!! I cannot imagine where I would have been these last few mos. Still glutening myself regularly, no doubt. Either that or choking down the yucky foods.

This board recommends great brands....Kinnikinnick, Pamela's, Enjoy Life, EnviroKidz....

This board offers delicious recipes.....Nini's chicken, and so many, many more.....

This board offers tremendous support....

Hey, and while individually, I think we all have some struggles, collectively we're very intelligent.

I don't think CC ever would have occurred to me without all of you, eventhough it's a very real problem for me.

I, too, hesitate to mention names because I have learned so MUCH from so MANY, but I also want to thank Elonwy for offering advice on how to use the Triumph dining cards. (When I do eat out again, I know I'll use her tips with my new cards).

I'm a lucky Celiac. Y'all are the best :P

Judyin Philly Enthusiast
Judyin Philly
Posted

WOW THANKS GUYS :)

I haven't been in this thread before and was overwhelmed by the nice comments people posted about me and others..

Let me assure you all, it came at a very good time for me.

I'll have to regroup and post later...I just want to say that 'THIS FORUM HAS BEEN A LIFE LINE TO SANITY FOR ME ON THIS JOURNEY OF SELF-DISCOVERY AND 'BREAKING THE CODE' :lol: OF CELIAC DISEASE.

NO-- not the Da Vinci Code---won't go into religion--your all safe here :lol:

GOD BLESS YOU ALL FOR AWAYS BEING THERE WHEN I NEEDED SUPPORT! :):):)

JUDY IN PHILLY :)

Rikki Tikki Explorer
Rikki Tikki
Posted

I can't even remember how I found this board, but I have been so thankful many times. There are so many of you that have helped me through many trials and errors, items to check etc. And many of you that have made me laugh. I think initally KaitiUSA and celiac3270 held me up through the very worst of it, but many thanks to all

  • 3 months later...
AndreaB Contributor
AndreaB
Posted

I had never even heard of celiac before finding this site. I had originally been searching for wheat allergies or intolerances. Learned about enterolab and had that testing done. Found out 3 of us are gluten intolerant. Never even went through the doctor. I would like to thank Scott for putting this site and forum up. I've learned a lot and made a lot of friends.

emcmaster Collaborator
emcmaster
Posted

This board has been a lifesaver.

One of the biggest things I learned was CC issues and how to get hubby to be more careful (I use the rat poison analogy all the time now!)

Big thanks to everyone that has helped!

Sarah8793 Enthusiast
Sarah8793
Posted

This group has been so supportive with information and emmotionally for me. If it wasn't for all of you I would feel so alone and frustrated. It is comforting to know that there are people here who care and will help me. And I hope that I can help others in return.

Sarah

jayhawkmom Enthusiast
jayhawkmom
Posted

I am still very new to the Celiac/Gluten free world. So, I'm really getting a wealth of information from this thread alone! Thanks for starting it!!!

taz sharratt Enthusiast
taz sharratt
Posted
In light of recent arguments, let's each think of some advice or info you've received from a poster on this board that helped you deal with Celiac disease. It's not necessary to remember the poster's name if you can't. Just let others know the advice or info and make sure it came from someone here.

For me... I learned that Post Cocoa and Fruity Pebbles were gluten free *I have children.

Also, that chapsticks need to be checked and so does shampoo. Also, ordering on line from Kinnikinnick is safe and Chebe bread is great. Modified Food starch doesn't mean gluten.... check the source!!! Opened up a lot of banned food choices for us!

If I wasn't a member of this board, I don't know that I'd know these things.

Thanks everyone!

This thread has great potential for being a newbie resource! :)

queen of hearts for telling me about wheat. ursula, well for nearly every question ive asked, talenberry for the right calcium. carla b for advice about the kids. everyone on this board is super nice and will share any info freely with anyone who asks, youve all been really good to me. thanx

Mia H Explorer
Mia H
Posted

I am so thankful for this site. Without it I would have tested negative on a blood test and been sick the rest of my life. But now I tested with enterolab and found gluten and casein intolerances and that made all the difference.

Also I found out I get the burning from tapioca and I'm sad because it's in all Bette's bread recipes and kinnickinick. But where on earth would I have learned about that!

I am thankful to all of you! and Nini and Carla B especially. Carla has a similar enterolab profile to me and that makes me feel like I'm not the only person in the world like this. She has given me the courage to believe that it is not all in my head because I am "just" gluten intolerant. Also, Tom, I don't know his signature name, but he was very welcoming.

Also wondering what Carrie's breadstick recipe is and Nini's chicken recipe?

Oh, and thanks for Tinkyada pasta! I thought my spagetti days were history!

and last, my husband has responded positively to gluten-free, he has been tired all his life and had gas and gut rot. He is becoming a whole new person and it is very exciting. His dad was like that his whole life so my husband thought he had to be too. His dad probably had a gluten/celiac deal too. Too bad he died of colon cancer at 62. Thankfullly my husband found out and can do something about it to positively affect his life before it was too late.

Mia

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I have gotten so much GREAT advice and/or information from the people on this forum for the past year that I can't even BEGIN to say what is the best . . . . The people I have met, the friends I have made -- they have been a Godsend. I can honestly say that I don't know what I would have done without them . . . and don't know what I would do without them now.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
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      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

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    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
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