Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think It's Sad When Pharmacists Can't Read Anymore...


Ashley

Recommended Posts

Ashley Enthusiast

I got placed on some antibiotics for swelling, mucus in the sinus (got circular flow in the left in frontal sinus, if it doesn't clear, more sinus surgery, yippee!!! <_< ) So, the doctor highly recommended I went on probiotics for the time I take it. Went to the pharmacy, got the 'scripts filled and I asked, just to be safe, if the product was gluten-free and explained what gluten was, what it was in ect. The lady goes asks this guy and comes back and says "There's whey in it, and it's from wheat." I really wanted to scream out "DUNCE!!!" So, my mom and I went back and forward with the lady until we said fine, just give us the stupid(that word not said but thought more than once) probiotic anyway.

The back reads: "Lactobacillus GG is grown on whey and will contain trace levels of (less than 15 ppm capsule) of casein and whey, which are proteins found in milk.

MILK!!! Grr...it gets so frustrating sometimes, because people can be so ignorant, so, there's probably been a bunch of times were I’ve gotten something with gluten or deprived of something that actually DIDN'T have gluten in it...

So, the moral is, better recheck it yourself. I'd be happy to read some the experiences of others with problems like this, a lot of them are funny because it really shows how people are really clueless! :lol:

-Ash


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I completely agree. Just good that you read the ingredients anyway. I am fortunate to have a pharmacist, who when she gets a prescripton in my name, immediately calls the company to make sure it is gluten-free/CF and then puts a note on it so if I come to pick it up when she is not working, then they know that it is gluten-free and I can have it. It is very helpful to make friends with a pharmacist and ask them to call the companies on the products you are not sure of.

mmaccartney Explorer

I typically go to a pharamacy at a loacl supermarket as the lead pharmacist is great! She will research the ingredients of a medicine for me and even still provides me the ingredients to double check!

Not all of the pharmacists there are good though. One guy was a particular ass. I told him that I couldn't have WRBO or milk and if the medicine contained it I could not have it. He said ok and filled it. When I came back I asked him again if the medicine had WRBO or milk. He responded with "I don't know, I have no way of telling." I said "Can I have the ingredients list then so that I can check?" he said "No, we don't have the ingredients." (I knew this was a lie, the lead Pharma checks every time and gives me the list!). I responded with "OK then, those items are poisonous to me, can I return the medicine if I find that it contains those items when I call the company?" he said "No, we cannot allow returns of medicine"

What an incosiderate jerk! Needless to say I left without the medicine (which he then had to account for somehow, and reverse the sale, etc!) and the very next day I contacted the lead pharmacist and told her all about it. She was quite angry to say the least!

plantime Contributor

I love my pharmacist and my little, hometown pharmacy. They check everything for me. Yes, it does cost me more than going to Walmart or Walgreens, but I am quite willing to pay extra for the help and service. My health is worth it!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.