Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think It's Sad When Pharmacists Can't Read Anymore...

Ashley

By Ashley
in Coping with Celiac Disease

Recommended Posts

Ashley Enthusiast
Ashley
Posted

I got placed on some antibiotics for swelling, mucus in the sinus (got circular flow in the left in frontal sinus, if it doesn't clear, more sinus surgery, yippee!!! <_< ) So, the doctor highly recommended I went on probiotics for the time I take it. Went to the pharmacy, got the 'scripts filled and I asked, just to be safe, if the product was gluten-free and explained what gluten was, what it was in ect. The lady goes asks this guy and comes back and says "There's whey in it, and it's from wheat." I really wanted to scream out "DUNCE!!!" So, my mom and I went back and forward with the lady until we said fine, just give us the stupid(that word not said but thought more than once) probiotic anyway.

The back reads: "Lactobacillus GG is grown on whey and will contain trace levels of (less than 15 ppm capsule) of casein and whey, which are proteins found in milk.

MILK!!! Grr...it gets so frustrating sometimes, because people can be so ignorant, so, there's probably been a bunch of times were I’ve gotten something with gluten or deprived of something that actually DIDN'T have gluten in it...

So, the moral is, better recheck it yourself. I'd be happy to read some the experiences of others with problems like this, a lot of them are funny because it really shows how people are really clueless! :lol:

-Ash

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

I completely agree. Just good that you read the ingredients anyway. I am fortunate to have a pharmacist, who when she gets a prescripton in my name, immediately calls the company to make sure it is gluten-free/CF and then puts a note on it so if I come to pick it up when she is not working, then they know that it is gluten-free and I can have it. It is very helpful to make friends with a pharmacist and ask them to call the companies on the products you are not sure of.

mmaccartney Explorer
mmaccartney
Posted

I typically go to a pharamacy at a loacl supermarket as the lead pharmacist is great! She will research the ingredients of a medicine for me and even still provides me the ingredients to double check!

Not all of the pharmacists there are good though. One guy was a particular ass. I told him that I couldn't have WRBO or milk and if the medicine contained it I could not have it. He said ok and filled it. When I came back I asked him again if the medicine had WRBO or milk. He responded with "I don't know, I have no way of telling." I said "Can I have the ingredients list then so that I can check?" he said "No, we don't have the ingredients." (I knew this was a lie, the lead Pharma checks every time and gives me the list!). I responded with "OK then, those items are poisonous to me, can I return the medicine if I find that it contains those items when I call the company?" he said "No, we cannot allow returns of medicine"

What an incosiderate jerk! Needless to say I left without the medicine (which he then had to account for somehow, and reverse the sale, etc!) and the very next day I contacted the lead pharmacist and told her all about it. She was quite angry to say the least!

plantime Contributor
plantime
Posted

I love my pharmacist and my little, hometown pharmacy. They check everything for me. Yes, it does cost me more than going to Walmart or Walgreens, but I am quite willing to pay extra for the help and service. My health is worth it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,220
    • Most Online (within 30 mins)
      7,748
    kimchi1
    Newest Member
    kimchi1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.