Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

mouse Enthusiast

I get off the computer for 3 hours and have to go back 4 pages to catch up again. :blink: Then I hit refresh so that I can read the posts I missed while I was playing catch up. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
jerseyangel Proficient
:lol: Yes, if you are going BACK it might be a good idea to leave word with someone.

Or drop gluten-free breadcrumbs so you can find your way out again ;)

dlp252 Apprentice
Donna - - why can't I be that motivated to make jewelry? :o Get on over here and let's have a jewelry party......I am too busy right now painting everything (BY MYSELF!!! :angry: lost my helpers so it's slow work) and then re-doing floors...ugh.....

I'm not that motivated, lol. I had to have something to do while I was watching 22 episodes of a set of TV series DVDs that a friend is lending me, lol. Painting (rooms) is not fun...painting pictures yes, painting rooms no and it takes a long time.

Does anyone remember the play, "Harvey"? It is a movie, too with Jimmy Stewart. There is a psychiatrist whose fantasy is to go to a grove of trees in Akron, Ohio, lie in the shade and have a lovely woman sit at his side and listen to all his life story and hold his hand and say, "Oh, you poor dear. Poor, poor dear." That is all he wants her to say! I think we need a hand holder like that in R'ville. A couple of them-one nice male and one nice female.

How about being the hand-holder for the guys penguin?! Sounds like that would balance out the jobs for you!! :)

Good idea! I heard once a long time ago that sometimes people just want someone to listen or to cry with them....handholder is a good job!

jerseyangel Proficient
I feel deprived, I only have two jobs :P

Don't forget that you're going back to school--you don't want to spread yourself too thin! :lol:

DingoGirl Enthusiast

Attn. R-ville detectives and scientists....need your help....

I am miserably sick this morning and didnt' eat anything questionable or new yesterday. My gluten reactions are almost exactly 12 hours later, and this definitely has all the symptoms of gluten reaction - - I am just posting here between horrible bouts of D :( and am near the toilet, looks like, for the next six hours. Last night about 10 I ate some steamed brocolli - and well-steamed, not mushy but cooked as uncooked broc. has always made me sick. Two hours before that was a cheese omelet. Save Mart chicken and fruit during the day - - I always eat that chicken (no ingredient change) and am fine. BLUE DIAMOND NUT THINS, maybe 12 or 13 or them, at 3 a.m. :ph34r: Have never had them before but my reaction to that, if any, would normally be this afternoon.

I have never had problems with veggies, and this poop has all the signs and miserable pain of glutening. Oh, sorry guys, but have to add that I got my period today too - - oh dear - - and have that misery on top of everything else..... :( LIke a whole-body cramp.

Anybody think this is from brocolli? I can't imagine that that would make me this sick. has never happened.

Looks like I won't get much done today.....will check the computer in between lying in fetal position and running to the toit-y...... :huh:

(p.s. HI Robbin! and yes, I do remember Harvey, we need that hand-holder in our town - I need him today and I need him to be beautiful and soothing and find me totally enchanting even in my sickness :P )

tiredofdoctors Enthusiast

Holy crap -- I leave to talk to my aunt who was unable to come into town for the wedding, and there's 5 more pages, I think . . . . .

Just for clarification: F I N E . . . . the F doesn't stand for "Frustrated" . . . . . . :lol::lol::ph34r:

Susie -- you are making me laugh . . . . it's pretty funny, too -- now everybody is starting to call you Susie!! Cool, huh? I like that . . . .

I laugh the whole time I read this thread . . . thank you guys for a GREAT laugh each day . . . !!!

BTW: Given my life history, I feel that I could be the stand-up comic. I have enough garbage that has happened to me that I could keep an audience in stitches just telling the stuff that has happened to me!! So, Physical Therapist, Assistant Corn Shucker and Stand Up Comic, maybe??? Oh, and Florist . . . I did all the flowers for the wedding . . . . You guys pick my jobs, OK???

mouse Enthusiast

Some people on this board have a problem with Blue Diamond because of cross contamination. Thank G__ that I can still eat them as I have not found any other cracker that does not have corn in it. Sorry that you are so sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Susan,

I've not tried them, but a lot of people on the board have reported that the Blue Diamond Thins made them sick. Looking at what you ate yesterday, I would guess that they are the culprit.

Hope this passes (sorry) soon!

Also, because your period is starting, this may be why the gluten symptoms started sooner--I've always had D aroud the time of my period starting. I think that's pretty common.

AndreaB Contributor
Attn. R-ville detectives and scientists....need your help....

BLUE DIAMOND NUT THINS, maybe 12 or 13 or them, at 3 a.m. :ph34r: Have never had them before but my reaction to that, if any, would normally be this afternoon.

Anybody think this is from brocolli? I can't imagine that that would make me this sick. has never happened.

If the nut thins are the only new thing you've eaten I would suspect them. Do you get more sensitive with your cycle? Could it be the nut thins earlier than normal?

I would try broccoli again when you feel better at the same time and see what happens. No more nut thins until you can rule in or out the nut thins.

Where's Annie, the therapuetic puppy?

dlp252 Apprentice

Susan- so sorry you are sick. Do you eat cheese omelets often? I think we all know that veggies CAN make some people sick here. Maybe it's just a combination of things + your period. I used to get horrible D with my periods every month. Hated it, but other than the usual misery that that time of month brings I didn't feel any worse usually.

Canadian Karen Community Regular
I LOVE the idea of the Altoid trophy!!!! I think it should be a statue of Candian karen holding a tin of Altoids :P:P:P:P:P

No way! I have already designed our trophy...... I posted it back on page, geez, I dunno, maybe 5,000 somewhere back there????? but here is the link again:

http://img.villagephotos.com/p/2005-12/111.../cityofrach.webp

Let me know if you approve....... ;)

Hugs.

Karen

Guest Robbin
:( Susan, omg, you have what is known as a TRIPLE WHAMMY. I would definitely suspect the nut thins, however, the time of the month makes you even more sensitive and broccoli is very irritating anyway. I had a bad time last week with the severe D from the combo of ham and corn meal (the whole southern nostalgia food kick) and the brain fog and bowels still are a bit funky. I did get relief by eating bananas and immodium and lots of fluids. I will pray for you today, my dear for a quick recovery from this. Also, am wondering if anyone you know is ill? Could be a virus too. Sometimes we forget that, but again that is unlikely with all the intolerances cropping up. Take care :) We need a sympathetic, gorgeous male to hold Suzie's hand! Wiping brow and offering sips of cool drinks are required as well. :D
penguin Community Regular
Vincent, perfect! Chelse, deliverer of the one-liners :lol:

Do I get a drum kit and laugh track? :P

Good googly moogly, what page was this on??? :D Did I miss a discussion about gluten-free BIG MACS, lol. :lol:

I forget where, but there's a celiac legend of there being gluten-free big macs in some scandanavian country...Norway maybe? Anyway, yes Virginia, there are gluten-free big macs somewhere in the world :)

BTW: Given my life history, I feel that I could be the stand-up comic. I have enough garbage that has happened to me that I could keep an audience in stitches just telling the stuff that has happened to me!! So, Physical Therapist, Assistant Corn Shucker and Stand Up Comic, maybe??? Oh, and Florist . . . I did all the flowers for the wedding . . . . You guys pick my jobs, OK???

I can be assistant florist...I did all of my own wedding flowers and the flowers for a friend.

My cake topper looked so good the picture is hanging up in the bake shop :P

I nominate you town story teller :)

christine 25 Newbie

Hi Everybody,

How is everyone feeling? Good or better I hope!

I had to call off work today.

I couldnt sleep last night, me teeth were throbbing and hurt so bad, jaw on the right side was making grating noises, I started getting shocks up the side of my face on the right side and a huge headache, but mostly its the tooth on the right back side, when I drank water or ate, the ice in the water,,,,just unbelieveable pain. I took 10 advil, and it didnt touch it.

I got 3 hours sleep.

Called the dentist this morning after arguing with my mom, he saw me in right away, I have to huge cavaties, literally holes in between the teeth in the back upper sides of my mouth, and food is getting caught in there and killing me.

He said that I need two more root cannals. :(

He gave me some celebrex, which I just took so I dont know if its going to help.

He knows I have arthritis in my jaw.

I think im going to stick to a pureed diet for a while, I can barely open my mouth.

Do you think that this all could be dental related? The TMJ will go away once I get my root canals I hope!!! I dont know much about teeth but this has been going on for about a year, day in and day out and its at its worst right now. Does anyone have TMJ or tooth problems that went away when they were fixed,,, ( you can tell I want reassurance:)0)

Maybe something I ate with gluten in it made it worse,,,,?

Cause I still get the puffiness and swelling in my face, but now its in my teeth, they are throbbing.

gonna curl up with a bag of frozen spinach and lay down for now.

C

DingoGirl Enthusiast

gluten-free big Macs - Finland, very celiac-friendly...yes you can have drums and laugh track penguin....

COLONel..... ha ha ha ha h a :lol: word origin is middle french or italian, from columns, as in soldiers lining up in, something like that....why is it pronounced ker-nal :huh:

Robbin - triple whammy - - OMG....where is that man to hold my hand, wipe my brow, cool drinks and reading me stories, hopefully a south'n accent - -

I think it was definitely the nuts thins....HELLO, they have a Celiac in their family, why would they do this to us? I thought their equipment was thoroughly cleaned - - - this D is NOT from a "dusting" of gluten - - this is MAJOR and very painful...ugh.......

Love you guys - - thanks for your support......Annie the therapy dog is right here, with me....soon I'm crawling into bed and there she will be - - she does hold hands all the time, BTW....

nikki-uk Enthusiast
Do I get a drum kit and laugh track? :P

I forget where, but there's a celiac legend of there being gluten-free big macs in some scandanavian country...Norway maybe? Anyway, yes Virginia, there are gluten-free big macs somewhere in the world :)

I think it's Finland.

They have a very high percentage of coeliacs.

Evening everyone.

Sorry for all who are feeling icky.

Good googly moogly,having trouble with my darn signature (see!I'm actually starting to sound like you guys)

How do you enlarge your letters (and possibly change colour)in your signature?

I've tried changing the size/font but it doesn't actually change it just lists in front what I chose.

For those of you that remember,hubby has had bad back pain lately.

He had an appt with his rheumatologist today.They couldn't actually find the cause (but were very thorough-sent him for x-rays and bloods,which took hours :rolleyes: )

X-rays were fine-but they did give him some super dooper strength painkillers so if nothing else that will see us through on our holiday.

Lynne,took me ages(my eyes are swimming) but read your wedding post-brilliiant-I love a wedding and all the funny little stories that go with it :D

Glad to see the post of village idiot has been filled by Rachel's not boss/friend Dave

Welcome aboard Dave!!

DingoGirl Enthusiast

Hi Nikki - - so sorry about your hubby - - is it Spain, where you're going? hopefully at least his drugs will take him to his magic place..... :lol: That was what I loved about my drugs after appendectomy, v. fun magic place from Darvocet.... :rolleyes:

dlp252 Apprentice

Wow Christina, I don't even know what to tell you, but I'm sorry you are feeling so badly!

Nikki - are you highlighting the text you want to change first? I had to highlight the text, then change size, then highlight again and change color.

Guest Robbin

Christine, Ten Advils?!! omg, you are way overdoing that my dear. I have had teeth problems with breaking and soft enamel for awhile now and it is probably due to lack of absorption of calcium. I use a mouth rinse that is supposed to help with enamel repair. You might want to check into getting a coating put on your teeth too after you get them taken care of. My kids have had this done and it makes a difference. Also, do you have a mouth guard of some sort to wear during sleep? Sometimes this helps keep your teeth from getting damage during the night from grinding. Some of the people on here have acupuncture treatments for various problems and I am going to try that for my back and neck problems-maybe that would help you.

Susan-Where is JR? :D Maybe some soothing songs would help! ok, maybe he isn't a good hand-holder to suggest right now :blink: sigh, he is pretty cute and sure knows how to melt a girls heart with song....

Nikki-I hope hubby feels better soon. Tell him we are sending hugs and prayers his way. You lucky girl, you!! Spain--hmmm. You are required to remember all good stories to tell us on your return.

nikki-uk Enthusiast
Hi Nikki - - so sorry about your hubby - - is it Spain, where you're going? hopefully at least his drugs will take him to his magic place..... :lol: That was what I loved about my drugs after appendectomy, v. fun magic place from Darvocet.... :rolleyes:

Yep,it's Tenerife (it's an island that belongs to Spain,but is off the coast of Africa)

Hubby is very content in his Oh so magical place now :lol:

Nikki - are you highlighting the text you want to change first? I had to highlight the text, then change size, then highlight again and change color.

Highlighting? How?

You need to speak v-e-r-y slowly and simply please Donna!! :lol:

Oh,nearly forgot,found this about Finland-sounds very Rachelville-like to me!

Open Original Shared Link

tiredofdoctors Enthusiast

I know about your eyes swimming . . . I had such a tough time deciding what to post . . . there were SO many funny things that happened . . . It was truly a joyful time . . . I can't believe how relaxed I was!! I still have a bajillion things that happened, though . . . .

Good googly moogly, it was so difficult . . . . . :huh:

AndreaB Contributor
For those of you that remember,hubby has had bad back pain lately.

He had an appt with his rheumatologist today.They couldn't actually find the cause (but were very thorough-sent him for x-rays and bloods,which took hours :rolleyes: )

X-rays were fine-but they did give him some super dooper strength painkillers so if nothing else that will see us through on our holiday.

Glad to see the post of village idiot has been filled by Rachel's not boss/friend Dave

Welcome aboard Dave!!

Nikki,

Will you get the blood results back before holiday? At least he has painkillers to take but that's still a bummer.

dlp252 Apprentice
You need to speak v-e-r-y slowly and simply please Donna!! :lol:

:lol: So sorry, lol. Okay, so at the beginning of the text you want to change click your mouse and hold the button (mouse button that is) whilst dragging the mouse across all the text you want to change (somehow that sounds confusing even to me, lol), then select the color you want...repeat the click-drag thing and then select the size (okay that just sounds weird, lol).

jerseyangel Proficient
Hubby is very content in his Oh so magical place now :lol:

Highlighting? How?

You need to speak v-e-r-y slowly and simply please Donna!! :lol:

Glad to hear that Terry is comfortable. At least now he can get some good rest.

Highlighting! I had forgotten about that, and really had a time adding my R'ville title a few days ago :D Just hold down the left side of the mouse over the line or part you want highlighted. Then add the size and color that you want.

Sorry Donna--I didn't see that you had re-posted! :ph34r:

nikki-uk Enthusiast
Nikki,

Will you get the blood results back before holiday? At least he has painkillers to take but that's still a bummer.

No <_< ,everything takes sooo long!!

The doc did say it might be a temporary side effect of another drug he takes to build his bones back up from Osteoporosis,so hopefully it will pass

:)

Good googly moogly,that man positively rattles he's on so many rx drugs!! :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    3. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    5. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,358
    • Most Online (within 30 mins)
      7,748

    Lorna Wynter
    Newest Member
    Lorna Wynter
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.