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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor
What?? :blink: what are you doign to your poor child? :lol: seriously, why is he eating oatmeal...did this come up before and I misssed it? highly possible... :blink:

I want to get him tested by enterolab. I don't know that he's gluten intolerant but I figured he was allergic since his eczema cleared up after I eliminated gluten and soy. The whole house is gluten free (except the baby oatmeal) and he will be raised that way. Maybe I'll just have gene testing done. The other two are already intolerant. I certainly don't want to try him on multigrain cereal. Mitch doesn't think it is a good idea either.


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Guest Robbin
Susan,

What is life outside of Rachelville. Unfortunately, I had to leave to take care of the kids today and cook dinner all by myself since hubby didn't get home in time. :(

Don't you feel sorry for me. :lol:

On a side note....It's too soon to tell but Seth seemed to be cranky afternoons on the 6 day oatmeal trial. He was back to his normal, happy self today. Me thinks the oatmeal is talking....but he didn't break out in eczema....maybe not enough gluten since his system had cleared it all out.

Yep, yep, yep.....Rachel got the job as Ice Cream Maker after all. :P

Celia, you are so funny...googly moogly girlfren' where are you hiding out? :P

Canadian Karen Community Regular

Geez, itsssssssssss harrrrrrrrd ttyping wwwwwwwwwwith your biiiiigggggggg toooesssssss wheeeeeeeeeeeen yyour in aaaaa sssstttttraaaaightjjjackeetttttttttttt. :angry:

TheDave Newbie
Robbin,

Dont be fooled by all the "wordage". ;)

Wordage huh slacker? I would have said vocabulary or extensive lexicon....

:PB)

Geez, itsssssssssss harrrrrrrrd ttyping wwwwwwwwwwith your biiiiigggggggg toooesssssss wheeeeeeeeeeeen yyour in aaaaa sssstttttraaaaightjjjackeetttttttttttt. :angry:

ROFL! excellent!

haha.....

DingoGirl Enthusiast

Um, can you imagine what our fellow R-villians will think when they innocently log on tomorrow, adn see the FULL MOON madnesss.....just pages and pages of nonsense...... :wacko::wacko::wacko:

Rachel--24 Collaborator
So it's like that around here huh? wow....I think I'm blushing Karen, what the hell did you do? haha....dirty dirty! :lol:

Yeah...watch out for that one...especially around the full moon. Things get a little crazy around here. :o

Karen is the queen of altoids...she rides a float in our parade and tosses out altoids to the crowd.

Altoids have become quite the naughty thing around here...they have caused quite a stir....on many occassions.

DingoGirl Enthusiast
Wordage huh slacker? I would have said vocabulary or extensive lexicon....

wordage is a word here - - see the small dictionary Julie posted many pages ago.... ha ha ha ha


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AndreaB Contributor
Yeah...watch out for that one...especially around the full moon. Things get a little crazy around here. :o

Karen is the queen of altoids...she rides a float in our parade and tosses out altoids to the crowd.

Altoids have become quite the naughty thing around here...they have caused quite a stir....on many occassions.

Yes, that's why Karen is the Town Counselor.

TheDave Newbie
Yeah...watch out for that one...especially around the full moon. Things get a little crazy around here. :o

Karen is the queen of altoids...she rides a float in our parade and tosses out altoids to the crowd.

Altoids have become quite the naughty thing around here...they have caused quite a stir....on many occassions.

Hmm, yes altoids could spice things up a bit..... whoooweee it feels so fresh! ahhhh!

I do like altoids though....throw some to me Karen!

Guest Robbin

Wordage huh slacker? I would have said vocabulary or extensive lexicon....

:PB)

ROFL! excellent!

AndreaB Contributor
Um, can you imagine what our fellow R-villians will think when they innocently log on tomorrow, adn see the FULL MOON madnesss.....just pages and pages of nonsense...... :wacko::wacko::wacko:

That's what they get for sleeping during the full moon. Doesn't everyone know to stay up late on the full moon especially. Karen needs some company. :rolleyes:

DingoGirl Enthusiast
Dave you are too fun to pick on :D

Yes, nice to have a Village Idiot to pick on...... :lol:

Canadian Karen Community Regular
Yes, that's why Karen is the Town Counselor.

Actually, to be more specific, the Town Marriage Counselor. I guarantee I can turn any marriage from dull and dreary into delicious delirium!

DingoGirl Enthusiast
That's what they get for sleeping during the full moon. Doesn't everyone know to stay up late on the full moon especially. Karen needs some company. :rolleyes:

how can she throw out the altoids if she is wearing her STRAIGHT JACKET

AndreaB Contributor
Hmm, yes altoids could spice things up a bit..... whoooweee it feels so fresh! ahhhh!

I do like altoids though....throw some to me Karen!

UUUMMMMMM. Dave, don't go there, it's the full moon remember. Karen is already in a straightjacket. Let's not tempt her too terribly much.

TheDave Newbie
Ok, he is the village idiot, geeeez, he doesn't even know what wordage is. I bet he never heard of being spinached, or even had a relevation, lol :D

Dave you are too fun to pick on :D

That's what I'm here for!

Rachel--24 Collaborator
Wordage huh slacker? I would have said vocabulary or extensive lexicon....

Yeah well here in Rachelville we say wordage :P

Canadian Karen Community Regular

OH NO! EVERYONE HEAD FOR THE HILLS!!!! MY PARTNER IN CRIME IS HERE NOW!

Lynne, I see you......... :rolleyes:

Oops! Better put my straightjacket back on! :ph34r:

AndreaB Contributor

irrevelant.

TheDave Newbie
UUUMMMMMM. Dave, don't go there, it's the full moon remember. Karen is already in a straightjacket. Let's not tempt her too terribly much.

T - rue

Rachel--24 Collaborator
I am way full of mucus now Susan :lol::lol:

ROFLMAO

:lol::lol::lol:

DingoGirl Enthusiast
Okay... mucus and tears clearing... Jonny Rivers

oh Dear GAAAAAAWD....him again.....that's what I get for bringing up

MY PAST

:ph34r::ph34r:

oh no....it's a full moon...and here comes LYnne..... :o

Guest Robbin
Yeah well here in Rachelville we say wordage :P
Rachel--24 Collaborator
UUUMMMMMM. Dave, don't go there, it's the full moon remember. Karen is already in a straightjacket. Let's not tempt her too terribly much.

:lol::lol:

Andrea....she has the best sense out of all of us.

She keeps us in-line...our Mother Hen. :D

DingoGirl Enthusiast

I can see you, Celia, squinting your eyes back there, all harsh and flinty......

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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