Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

dlp252 Apprentice
dlp252
Posted
Donna (or anyone who is interested):

a great list (and its very shocking!)-

Open Original Shared Link

Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted
Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.

I avoid obvious corn ... don't really think I have a problem, but I think that until I feel better it's a good idea for me to avoid major allergens. Hopefully, it won't develop into a problem!!! Yikes!

Laura, I thought of you when I ate my short grain brown rice last night .... you are the one who asked that of me, right?

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

My husband usually buys me a porterhouse on Friday ... then I eat the leftover steak with eggs and gluten-free toast on Saturday! YUM!! He's in Florida right now, so I guess I'll buy my own steak this week!

Are you intolerant to all carbs at this point?

dlp252 Apprentice
dlp252
Posted
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

Great minds think alike, lol...I also had steak, ribeye to be exact...also had corn which I know you can't have. I've been having steak for breakfast since Whole Foods has been sold out of my beloved Bumble Bars, lol. :lol:

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

-

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Carla, I sure hope so. But, if part of the problem is that I'm reacting to lectins, I'm not sure how that works....many people have lifelong intolerance to lectins. (Not trying to be pessimistic, just trying to be realistic!)

That's probably true, but it could be that those people never bother to go to the trouble to heal their gut. Let's think positively!!

jerseyangel Proficient
jerseyangel
Posted

I react to all the lectins, too--except potatoes, thankfully. I really have no idea how long it will be before I can eat any of them again. (or if) Some cause more severe reaction than others, some immediate, some delayed. That's why it's so hard to figure it all out.

I plan to go at least a year at my present diet. I know my sensitivites are due to leaky gut, and I want to give it enough time to heal. Sometimes though, I feel like I'm "flying by the seat of my pants" on this! I know that I do ok when I stick to meats as my only protein source--all of the plant sources give me problems. That's why I feel it's leaky gut--it's the proteins that leak out and cause reactions. I think..

CarlaB Enthusiast
CarlaB
Posted

I'm eating only meat and eggs as my protein, then just veggies. I do eat some potatoes, rice and gluten-free bread, but only twice a day (I know, it's better than nothing!!). Veggie sources of protein don't sit well with me either.

jerseyangel Proficient
jerseyangel
Posted

I can get away with rice--but not more than about once or twice a month. Any more often, and it starts to bother me. I wish I could eat eggs--but they make me terribly nauseous.

I usually just eat meat, fruit, veggies, almonds and potatoes. Oh, and some dark chocolate :ph34r:

Writing it down makes it seem very restrictive, but in reality, I manage to eat pretty well.

happygirl Collaborator
happygirl
Posted

x

AndreaB Contributor
AndreaB
Posted

Laura,

Thanks for the website. I've bookmarked it, but haven't looked at it yet. I'm not intolerant to corn but won't have the test results back on the others (except the baby) for a couple weeks yet. I also don't like the gmo corn and I assume that is what is used for all the derivatives. Grrrrr, maybe I'll have to study that list and see how much we can leave out. I do believe gmo stuff wrecks havoc with our systems. Could be part of the puzzle as to why so many intolerances develop, especially with leaky gut.

What do you guys think?

I have found that the veggie sources of protein have become more of a problem for me. I can tolerate a few beans/legumes but most are out.

happygirl Collaborator
happygirl
Posted

x

jerseyangel Proficient
jerseyangel
Posted
Ah, theories. One day the puzzle will be completed.

You said it, Laura! And sooner, rather than later would be nice :D

Mtndog Collaborator
Mtndog
Posted

I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

CarlaB Enthusiast
CarlaB
Posted
I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

Forty women is another place ... I don't think we've seen you there yet, have we Beverly?

eKatherine Apprentice
eKatherine
Posted
What is the problem with just posting a question if you can't figure this thread out? How hard is it to just ask? If you don't like the chit-chat, just ignore it.

No need to ask, there's nothing to figure out. Either it's on topic - some topic - or it's all over the place.

I had just been checking this thread out every month to see if it looks like it's on topic (anything to do with celiac). I read a page or two or three. Nope, just chit-chat, check in again in a month.

This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

AndreaB Contributor
AndreaB
Posted
This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

The posts Vincent was talking about were deleted. This thread has been one largely of support of whatever people have been going through. We've covered the gamut of corn, dairy, msg, auxigro, sulfur, lyme, mercury toxicitiy, water and filters, along with others I'm sure I'm forgetting. We've had chit chat and laughter in between to elevate some of the stress that people have been going through.

It would be nice if threads could be renamed, but once people jump in and see that this is an all inclusive "intolerant" thread, the ones that want to stay do. We welcome everybody that wants to try and figure out things based on the collective responses of others on this thread.

Is the topic dairy anymore. Not usually, but lots of us still love dairy even though we can't/don't have it anymore. :D

Simply-V Newbie
Simply-V
Posted

Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I may have my doc re-run the test for IgA and see. This is the only reference I've seen anywhere online a reference to IgA doing something other than gluten.

Anyway, I don't think I have problems with all lectin foods, but it does help fill in some blanks. I still eat most grains (cept corn) with no problems, potatoes, and tomatoes. Just everything else that I avoid: Dairy, legumes, peppers, corn.

Anyway, just thought I'd share my info.

AndreaB Contributor
AndreaB
Posted
Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I haven't looked at the page yet.....I will bookmark it for later though.

I wanted to comment on the white bean, soy and peanuts. I left my binder with my doctor by accident so I don't have ready reference. I am intolerant to the navy bean (does that count for the white bean?), soy bean, pinto bean and kidney bean. I tested ok for peanuts IgE/IgG but don't eat them since I don't want to develop a problem with them and I've read that soy or peanut intolerance will usually lead to becoming intolerant of the other.

lindalee Enthusiast
lindalee
Posted

She is also concerned with my mercury level, but even more so, my aluminum level (so much for all the great gluten-free uses of FOIL!! :blink: ).

CarlaB Enthusiast
CarlaB
Posted
Carla, I got sick the other night eating grilled fish wrapped in foil. I have been suspecting that foil... :blink: just saw your post.... maybe that aluminum is the problem. :ph34r:

That's interesting, depending on the fish, you may have gotten aluminum and mercury all in one meal!! I used to cover things with foil all the time to cook ... I stopped doing that.

happygirl Collaborator
happygirl
Posted

x

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.