Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

dlp252 Apprentice
dlp252
Posted
Donna (or anyone who is interested):

a great list (and its very shocking!)-

Open Original Shared Link

Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted
Thank you Laura! Mind boggling isn't it?! I think I've determined that corn isn't the problem (at least not in it's purest form) for me, but I've bookmarked the page just in case. I see many things on that list that DO bother me for some reason so it's good to have.

I avoid obvious corn ... don't really think I have a problem, but I think that until I feel better it's a good idea for me to avoid major allergens. Hopefully, it won't develop into a problem!!! Yikes!

Laura, I thought of you when I ate my short grain brown rice last night .... you are the one who asked that of me, right?

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

My husband usually buys me a porterhouse on Friday ... then I eat the leftover steak with eggs and gluten-free toast on Saturday! YUM!! He's in Florida right now, so I guess I'll buy my own steak this week!

Are you intolerant to all carbs at this point?

dlp252 Apprentice
dlp252
Posted
Yes I did. Thanks for the thought! I am really missing my carbs. I ate a steak for breakfast this morning (hey, I was hungry!)

Great minds think alike, lol...I also had steak, ribeye to be exact...also had corn which I know you can't have. I've been having steak for breakfast since Whole Foods has been sold out of my beloved Bumble Bars, lol. :lol:

happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted

-

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

x

CarlaB Enthusiast
CarlaB
Posted
Carla, I sure hope so. But, if part of the problem is that I'm reacting to lectins, I'm not sure how that works....many people have lifelong intolerance to lectins. (Not trying to be pessimistic, just trying to be realistic!)

That's probably true, but it could be that those people never bother to go to the trouble to heal their gut. Let's think positively!!

jerseyangel Proficient
jerseyangel
Posted

I react to all the lectins, too--except potatoes, thankfully. I really have no idea how long it will be before I can eat any of them again. (or if) Some cause more severe reaction than others, some immediate, some delayed. That's why it's so hard to figure it all out.

I plan to go at least a year at my present diet. I know my sensitivites are due to leaky gut, and I want to give it enough time to heal. Sometimes though, I feel like I'm "flying by the seat of my pants" on this! I know that I do ok when I stick to meats as my only protein source--all of the plant sources give me problems. That's why I feel it's leaky gut--it's the proteins that leak out and cause reactions. I think..

CarlaB Enthusiast
CarlaB
Posted

I'm eating only meat and eggs as my protein, then just veggies. I do eat some potatoes, rice and gluten-free bread, but only twice a day (I know, it's better than nothing!!). Veggie sources of protein don't sit well with me either.

jerseyangel Proficient
jerseyangel
Posted

I can get away with rice--but not more than about once or twice a month. Any more often, and it starts to bother me. I wish I could eat eggs--but they make me terribly nauseous.

I usually just eat meat, fruit, veggies, almonds and potatoes. Oh, and some dark chocolate :ph34r:

Writing it down makes it seem very restrictive, but in reality, I manage to eat pretty well.

happygirl Collaborator
happygirl
Posted

x

AndreaB Contributor
AndreaB
Posted

Laura,

Thanks for the website. I've bookmarked it, but haven't looked at it yet. I'm not intolerant to corn but won't have the test results back on the others (except the baby) for a couple weeks yet. I also don't like the gmo corn and I assume that is what is used for all the derivatives. Grrrrr, maybe I'll have to study that list and see how much we can leave out. I do believe gmo stuff wrecks havoc with our systems. Could be part of the puzzle as to why so many intolerances develop, especially with leaky gut.

What do you guys think?

I have found that the veggie sources of protein have become more of a problem for me. I can tolerate a few beans/legumes but most are out.

happygirl Collaborator
happygirl
Posted

x

jerseyangel Proficient
jerseyangel
Posted
Ah, theories. One day the puzzle will be completed.

You said it, Laura! And sooner, rather than later would be nice :D

Mtndog Collaborator
Mtndog
Posted

I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

CarlaB Enthusiast
CarlaB
Posted
I just wanted to say I really care about the people on this thread and I'm not going anywhere. Y'all should come visit the Tickle Me Elbow thread in Gab/Chat. It's ALL jokes ALL the time. Laughter IS the best medicine.

Rrachel- rest and take care of YOU!

Forty women is another place ... I don't think we've seen you there yet, have we Beverly?

eKatherine Apprentice
eKatherine
Posted
What is the problem with just posting a question if you can't figure this thread out? How hard is it to just ask? If you don't like the chit-chat, just ignore it.

No need to ask, there's nothing to figure out. Either it's on topic - some topic - or it's all over the place.

I had just been checking this thread out every month to see if it looks like it's on topic (anything to do with celiac). I read a page or two or three. Nope, just chit-chat, check in again in a month.

This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

AndreaB Contributor
AndreaB
Posted
This time I came in on the page where Vincent was complaining about being cut off while somebody needed support, and I couldn't figure out what was going on, so I went back 20 or 40 pages to see. I was horrified at what I read. :o:blink::unsure:

The posts Vincent was talking about were deleted. This thread has been one largely of support of whatever people have been going through. We've covered the gamut of corn, dairy, msg, auxigro, sulfur, lyme, mercury toxicitiy, water and filters, along with others I'm sure I'm forgetting. We've had chit chat and laughter in between to elevate some of the stress that people have been going through.

It would be nice if threads could be renamed, but once people jump in and see that this is an all inclusive "intolerant" thread, the ones that want to stay do. We welcome everybody that wants to try and figure out things based on the collective responses of others on this thread.

Is the topic dairy anymore. Not usually, but lots of us still love dairy even though we can't/don't have it anymore. :D

Simply-V Newbie
Simply-V
Posted

Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I may have my doc re-run the test for IgA and see. This is the only reference I've seen anywhere online a reference to IgA doing something other than gluten.

Anyway, I don't think I have problems with all lectin foods, but it does help fill in some blanks. I still eat most grains (cept corn) with no problems, potatoes, and tomatoes. Just everything else that I avoid: Dairy, legumes, peppers, corn.

Anyway, just thought I'd share my info.

AndreaB Contributor
AndreaB
Posted
Hmm Talking about lectins.. I found a page which talked about IgA involvement in binding lectins.

Open Original Shared Link

Got me to wondering if that isn't why my IgA was so high. Because when I was tested I was eating soy & peanuts (which I found out later are closely related to the white bean which I'm IgE to.)

I haven't looked at the page yet.....I will bookmark it for later though.

I wanted to comment on the white bean, soy and peanuts. I left my binder with my doctor by accident so I don't have ready reference. I am intolerant to the navy bean (does that count for the white bean?), soy bean, pinto bean and kidney bean. I tested ok for peanuts IgE/IgG but don't eat them since I don't want to develop a problem with them and I've read that soy or peanut intolerance will usually lead to becoming intolerant of the other.

lindalee Enthusiast
lindalee
Posted

She is also concerned with my mercury level, but even more so, my aluminum level (so much for all the great gluten-free uses of FOIL!! :blink: ).

CarlaB Enthusiast
CarlaB
Posted
Carla, I got sick the other night eating grilled fish wrapped in foil. I have been suspecting that foil... :blink: just saw your post.... maybe that aluminum is the problem. :ph34r:

That's interesting, depending on the fish, you may have gotten aluminum and mercury all in one meal!! I used to cover things with foil all the time to cook ... I stopped doing that.

happygirl Collaborator
happygirl
Posted

x

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748
    maltawildcat
    Newest Member
    maltawildcat
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanCel
      Celiac getting dentures

      By NanCel · Posted

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.