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Omg...i Might Be On To Something

Rachel--24

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AndreaB Contributor
AndreaB
Posted
Maybe you were brought here for a different reason ... maybe you will need to know in the future what a bulls-eye rash looks like ... hopefully so you can help someone -- a complete stranger rather than a friend of family member :P -- get treatment right away in an attempt to avoid chronic lyme.

I'm here for support too and I've made some good friends. :)

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CarlaB Enthusiast
CarlaB
Posted
That dosen't mean we all have to have the exact same illness. There's a lot more to us than that :D

Yeah, we're all hot babes with great hair, too!!! :rolleyes:

dlp252 Apprentice
dlp252
Posted
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

jerseyangel Proficient
jerseyangel
Posted
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Darn right B)

rinne Apprentice
rinne
Posted
:lol::lol:

Rinne....you know you wanna say it... :P

Two words..... Lyme Clan :ph34r:B)

I'm practicing restraint. :P:lol::lol::lol:

Carla, I have had deja vu experiences but not lately.

CarlaB Enthusiast
CarlaB
Posted
Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

Yeah, well, I look like Kramer in the morning.

Mtndog Collaborator
Mtndog
Posted

Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

So,...... I wanted to pop (or should I say poop in my case!) in and say hello and wish everyone peace love and wubs :wub::wub::wub:

I feel so grateful to have met such a group of amazing people and such an inspiration to fight. I hope you all have a great week. I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

happy Birthday to Seth and Andrea, special wishes to you. :wub:

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Green12 Enthusiast
Green12
Posted

Hi Bev, good to see you :) I was about to call for a Dingo rescue :lol: I haven't been able to keep up either, my brain has been all in a fog, nothing computes...

HAPPY BIRTHDAY SETH :wub:

Quick question, what test kit do I order from IGenX? Are there many to choose from? If someone has specifics regarding this I would so grateful for the info :)

...and I apologize in advance if this has been asked/covered already, I just don't want to go back and get lost :blink:

CarlaB Enthusiast
CarlaB
Posted

Julie, I got the complete Lyme Panel.

Green12 Enthusiast
Green12
Posted
Julie, I got the complete Lyme Panel.

Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

jerseyangel Proficient
jerseyangel
Posted

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

rinne Apprentice
rinne
Posted
Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

TriticusToxicum Explorer
TriticusToxicum
Posted
I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

I would have blamed my mojo as well - that is until Ms. Beverly from Beverly posted Open Original Shared Link on another thread. Now I'm REALLY CONCERNED about my mojo :o . If they've run off together I can only imagine...

AndreaB Contributor
AndreaB
Posted

Patti,

I think you have to have the paperwork from Igenix to send in.

GGGRRRR!!!

Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

TriticusToxicum Explorer
TriticusToxicum
Posted
Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

AndreaB Contributor
AndreaB
Posted
In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

I love surprises of this kind!

We'd love to see a picture after he/she is born.

jerseyangel Proficient
jerseyangel
Posted

Rinne,

The baby news is exciting! :D I love shopping for baby things--and I agree, this is going to be one beautiful child. :rolleyes:

Andrea,

I was afraid of that--I'll take it one step at a time. Thanks :)

I had my kids back in the dark ages--we never knew if we were having a boy or girl--it was just a nice surprise. (But, I "knew" they were both boys--I could feel it)

rinne Apprentice
rinne
Posted
Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

Julie, I think Bowen is a lab that is also considered reliable but I would want to check on that. Stephen Buhner, in "Healing Lyme" talks about the various tests and their weakness, it looks like there are new tests coming that are more reliable than the Western Blot. There is one that Bowen labs does now I think. He talks about Igenex as being an excellent lab and the importance of the quality of the lab work done. It is a little beyond my capacity for scientificness at the moment but basically Igenex pays close attention to detail and many other labs don't.

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

I don't know. My doctor's office took care of it all but then they use Igenex on a regular basis. Have you checked the Igenex site, maybe it says on there?

Green12 Enthusiast
Green12
Posted
I love surprises of this kind!

We'd love to see a picture after he/she is born.

rinne, congratulations on the grandbaby to be :) Very exciting!

Wanted to add that my thoughts and prayers are with Evie and her family.

AndreaB Contributor
AndreaB
Posted
Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

:lol: I figure someone would be willing to change seats so they won't have to kid sit. :)

dlp252 Apprentice
dlp252
Posted
I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

Ha, you said cyberically!! :lol:

Mtndog Collaborator
Mtndog
Posted
Ha, you said cyberically!! :lol:

I think it's like Siberiacally (like when you're really cold- you're Siberia cold!)

Rinne- Supercool about the baby! It's so cool it's Siberia cool.

Yes- Richard and i suspect our mojos have run away together (we think we were twins seperated at birth- I was adopted so it's possible). We suspect they have gone on a vacation somewhere tropical. Like this:

Open Original Shared Link

I hope they're having fun! I got soyed and then glutened (by body lotion which I read the ingredients on and realized once it was way too late and i had already racheled a bag of gluten-free breadsticks :angry: ). Soy + gluten=pain and the blues.

Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

CarlaB Enthusiast
CarlaB
Posted

For Igenex, if it's a lab that your doc doesn't normally use, you call them and order the kit for no charge. You take it to your doctor, then he/she takes the blood and sends it in. I would order the kit just to be sure.

Bev, it's our job to cheer YOU up!!! Just take another look at Richard's turkey ... it's really good for a laugh! Wouldn't it be funny to put foil over your turkey so that it looks like that on Thanksgiving!!! :lol:

dlp252 Apprentice
dlp252
Posted
Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

I still miss my dad after 10 years! You're entitled to feel blue! I always think of him still on his birthday, father's day, Christmas etc.

jerseyangel Proficient
jerseyangel
Posted

Donna and Bev--I'm so sorry that both of you are feeling blue :(

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      Blood tests low iGA 4 years later digestive issues

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      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

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