Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

AndreaB Contributor
Maybe you were brought here for a different reason ... maybe you will need to know in the future what a bulls-eye rash looks like ... hopefully so you can help someone -- a complete stranger rather than a friend of family member :P -- get treatment right away in an attempt to avoid chronic lyme.

I'm here for support too and I've made some good friends. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
That dosen't mean we all have to have the exact same illness. There's a lot more to us than that :D

Yeah, we're all hot babes with great hair, too!!! :rolleyes:

dlp252 Apprentice
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

jerseyangel Proficient
Yeah, we're all hot babes with great hair, too!!! :rolleyes:

Darn right B)

rinne Apprentice
:lol::lol:

Rinne....you know you wanna say it... :P

Two words..... Lyme Clan :ph34r:B)

I'm practicing restraint. :P:lol::lol::lol:

Carla, I have had deja vu experiences but not lately.

CarlaB Enthusiast
Okay, well some of us have more of one thing in common than another...you should have seen my hair on Saturday...frightful, lol! :lol:

Yeah, well, I look like Kramer in the morning.

Mtndog Collaborator

Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

So,...... I wanted to pop (or should I say poop in my case!) in and say hello and wish everyone peace love and wubs :wub::wub::wub:

I feel so grateful to have met such a group of amazing people and such an inspiration to fight. I hope you all have a great week. I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

happy Birthday to Seth and Andrea, special wishes to you. :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green12 Enthusiast

Hi Bev, good to see you :) I was about to call for a Dingo rescue :lol: I haven't been able to keep up either, my brain has been all in a fog, nothing computes...

HAPPY BIRTHDAY SETH :wub:

Quick question, what test kit do I order from IGenX? Are there many to choose from? If someone has specifics regarding this I would so grateful for the info :)

...and I apologize in advance if this has been asked/covered already, I just don't want to go back and get lost :blink:

CarlaB Enthusiast

Julie, I got the complete Lyme Panel.

Green12 Enthusiast
Julie, I got the complete Lyme Panel.

Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

jerseyangel Proficient

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

rinne Apprentice
Hi y'all- Drive by hello. I just haven't been able to keep up with the thread (tired- my mojo went wherever Richard's did- hope they're having fun!) But, I heard that you were wondering where I'd been (hope the dingos were not sent out) :ph34r:

I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

TriticusToxicum Explorer
I knew that Richard was a mischievious influence. :lol: I hope your mojo comes home. :)

I would have blamed my mojo as well - that is until Ms. Beverly from Beverly posted Open Original Shared Link on another thread. Now I'm REALLY CONCERNED about my mojo :o . If they've run off together I can only imagine...

AndreaB Contributor

Patti,

I think you have to have the paperwork from Igenix to send in.

GGGRRRR!!!

Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

TriticusToxicum Explorer
Just found out that we won't be all sitting together on our flights. One flight doesn't have any of us together. :angry:

Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

AndreaB Contributor
In answer to the question as to a girl or boy, they don't know and are looking forward to being surprised. I am thinking, of course, that this is going to be the cutest baby ever, he has red hair and she is Japanese. I keep wandering into baby shops and picking up sleepers and such and thinking a real baby is going to fit in these. :lol: I am so happy for them and for me too.

I love surprises of this kind!

We'd love to see a picture after he/she is born.

jerseyangel Proficient

Rinne,

The baby news is exciting! :D I love shopping for baby things--and I agree, this is going to be one beautiful child. :rolleyes:

Andrea,

I was afraid of that--I'll take it one step at a time. Thanks :)

I had my kids back in the dark ages--we never knew if we were having a boy or girl--it was just a nice surprise. (But, I "knew" they were both boys--I could feel it)

rinne Apprentice
Thanks so much Carla :) Always so helpful you are! And you deliver everything with a smile :lol:

Another quick question, does it absolutley positively 100% have to be IGenX???? Can other labs competently do the western blot testing?

Julie, I think Bowen is a lab that is also considered reliable but I would want to check on that. Stephen Buhner, in "Healing Lyme" talks about the various tests and their weakness, it looks like there are new tests coming that are more reliable than the Western Blot. There is one that Bowen labs does now I think. He talks about Igenex as being an excellent lab and the importance of the quality of the lab work done. It is a little beyond my capacity for scientificness at the moment but basically Igenex pays close attention to detail and many other labs don't.

Question about Igeneix--if a miracle occurs, and my new doctor will test me for Lyme, can she order the test from them--or does she just send the blood sample to them :blink:

I don't know. My doctor's office took care of it all but then they use Igenex on a regular basis. Have you checked the Igenex site, maybe it says on there?

Green12 Enthusiast
I love surprises of this kind!

We'd love to see a picture after he/she is born.

rinne, congratulations on the grandbaby to be :) Very exciting!

Wanted to add that my thoughts and prayers are with Evie and her family.

AndreaB Contributor
Sometimes it's more fun that way. Let somebody else watch the kids on the plane :P Maybe they can "help" the flight attendant :)

:lol: I figure someone would be willing to change seats so they won't have to kid sit. :)

dlp252 Apprentice
I am thankful to "know" all of you even if it is cyberically (is that a new word for the rachelville dictionary?) :P

Ha, you said cyberically!! :lol:

Mtndog Collaborator
Ha, you said cyberically!! :lol:

I think it's like Siberiacally (like when you're really cold- you're Siberia cold!)

Rinne- Supercool about the baby! It's so cool it's Siberia cool.

Yes- Richard and i suspect our mojos have run away together (we think we were twins seperated at birth- I was adopted so it's possible). We suspect they have gone on a vacation somewhere tropical. Like this:

Open Original Shared Link

I hope they're having fun! I got soyed and then glutened (by body lotion which I read the ingredients on and realized once it was way too late and i had already racheled a bag of gluten-free breadsticks :angry: ). Soy + gluten=pain and the blues.

Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

CarlaB Enthusiast

For Igenex, if it's a lab that your doc doesn't normally use, you call them and order the kit for no charge. You take it to your doctor, then he/she takes the blood and sends it in. I would order the kit just to be sure.

Bev, it's our job to cheer YOU up!!! Just take another look at Richard's turkey ... it's really good for a laugh! Wouldn't it be funny to put foil over your turkey so that it looks like that on Thanksgiving!!! :lol:

dlp252 Apprentice
Missing my mom this Thanksgiving too. Sorry I'm being a party pooper. I'll try to cheer up!

I still miss my dad after 10 years! You're entitled to feel blue! I always think of him still on his birthday, father's day, Christmas etc.

jerseyangel Proficient

Donna and Bev--I'm so sorry that both of you are feeling blue :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.