Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

dlp252 Apprentice
Speaking of mercury ... I take my temp. for NFP (natural family planning). This morning I was groggy and took it, then set the thermometer on my nightstand, but missed! It fell on the floor -- little balls of mercury EVERYWHERE! :blink: Rats. I have wood floors and it got in the cracks (it's a finished attic, so they're rough cut floor boards -- very old house). I had to vacuum it up, probably not the best method.

:o YIKES!!!! At least you didn't play with it! :lol: Every website I've visited lately said to educate children not to play with shiney silver metallic liquids, lol. Seriously though... :o I can't remember if any of those websites mentioned the CORRECT way to dispose of broken mercury thermometers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
:o YIKES!!!! At least you didn't play with it! :lol: Every website I've visited lately said to educate children not to play with shiney silver metallic liquids, lol. Seriously though... :o I can't remember if any of those websites mentioned the CORRECT way to dispose of broken mercury thermometers.

I put the thermometer in a ziploc bag, and changed the vacuum cleaner bag and put the old one in the garage. Since we're not supposed to own them, I guess they don't need to worry about how to dispose of them! I guess I could have taken it to the dentist office to get rid of it -- then it no longer would be poison, it would be a safe metal!! :lol:

miamia Rookie

ok Ladies-

so today I had all my blood work done- I think I may still ahve one drop left in me. I had to go to 2 labs at the first one I just had to fill a few vials no big deal. But at the second lab I had to fill 10 vials!!!!!! But at least its done and I will have the results in one week for some but 2 weeks for the ones that I am really curious about- coinfections, etc.

I swear I must have looked like a zombie when I walked out of the lab. I asked the lady if I should eat something right away. She was like yeah eat a cookie. - Really good advice for someone with gluten intolerance and candida!!

I am beat!!

Miamia

happygirl Collaborator

x

linds Apprentice

GERRRRR i am so frustrated so i feel like total crap again. Worse since i ate dinner and there was no gluten in it i am positive. I made soup. tinkyada, potatoes, celery, onion, carrots, turkey, and homemade turkey stock. This is driving me nuts!!!

CarlaB Enthusiast

Mia, sorry they took so much blood -- I hate that!! I guess that's what I get to look forward to when I go up to NY to see that Lyme doc in Jan.

Lindsay, sorry food is making you feel so bad. I know how you feel, I had a bout with that recently, but I had d with the pain. After a couple months of it, it gets really old!! Maybe sticking to meat and veggies and cutting out the potatoes and rice (pasta) might be even easier on your tummy for a while.

happygirl Collaborator

x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rinne Apprentice
GERRRRR i am so frustrated so i feel like total crap again. Worse since i ate dinner and there was no gluten in it i am positive. I made soup. tinkyada, potatoes, celery, onion, carrots, turkey, and homemade turkey stock. This is driving me nuts!!!

I hear you. I'd go with Carla's suggestion and stick with meat, fish, vegies and fruit. I went through a period last winter where even the shells of the green peas were hard on me because anything with a shell is harder to digest. I peeled apples, I avoided salads, they really hurt to eat. I looked up an ulcer diet and sort of followed it. I thought that I had problems with the Tinkyada because of cross contamination but now I know that it is rice that is the problem. Keeping a food journal and eating very simply does help.

Lindsay, sorry food is making you feel so bad. I know how you feel, I had a bout with that recently, but I had d with the pain. After a couple months of it, it gets really old!! Maybe sticking to meat and veggies and cutting out the potatoes and rice (pasta) might be even easier on your tummy for a while.

If you have the money to be tested I would follow up on a Lyme test through Igenex, it may not be Lyme but given their past suspicions and the problems you are now having there is that possibility. If you don't have the resources to do that right away going on an elimination diet may be the most helpful to get a handle on what you are sensitive to. The question is why now? Why these symptoms?

###

I don't think they know enough to be sure, it is usual for families to travel together and be exposed to the same risks. My sweetie seems to be fine, he is much the same person I married, he doesn't seem to have suffered any health problems as a result of being married to me. :lol:

Green12 Enthusiast
ok lyme ladies...so i'm reading about lyme 'potentially' being spread through um, 'relations.' what do yall know so far about this theory?

Laura

Laura, this worries me to no end, if it is a possibility. To think, if I do have lyme, that I am responsible for passing it to someone....

Mia Mia, omgosh sorry about your day at the lab(s), 10 or 11 vials?? That sounds brutal, er HEINOUS!!! It is all worth it if you get some answers from it, I will be thinking of you :)

Oh, and eat a cookie? :lol::lol: That isn't a very bright idea :lol::lol:

Linds, again I am so sorry about your food reactions. It all just really stinks. I would just suggest you keep at it, trying to figure out the offending food/foods. Maybe a couple days take out the potato, then another couple days take out the rice pasta, and so on. And did I read correctly you are just a couple months into gluten free? It does take some time for the body to adjust. I mentioned the sugar just because it seems to magnify things for me. These are my thoughts anyway.

I am experiencing such brain fog, like the last 3 weeks, I feel so out of it, so I apologize that I am not up on everyone's posts.

linds Apprentice

the thing is that i barely eat potatoes or rice (in any form). Maybe once a week if that before tonight it had been almost 2 weeks since i had ate either of these. I think i am going to make a doctors appt. with my gp for later this week. and make her at least to a stool sample test for whatever can be tested that way since they have never done that which baffles me. and also an h-pylori test which everyone asks me if i had done and they never did that either! my aunt who is a nurse was absolutely shocked they never did that one since at her clinic it would be the first thing they would test for.

rinne Apprentice

The h-pylori tests show that something like 80% of the population has the bacteria but only 15% get ulcers, why is that? There seems to be a trigger, what is it?

The Klinghardt protocol starts out with a salt and vitamin C treatment to clean out parasites and it does work. The salt/c has its' own action against the spirochetes (Lyme).

What kind of salt do you use? The best salt is organic and contains minerals, beware of some sea salt which may come from questionable waters.

I have heard people say they suffer up to two months from eating nightshades so even if it is only once a week the effect could be longer. Nightshades: potatoes, tomatoes,eggplant, tobacco, peppers are all inflammatory, they are not recommended for anyone with arthritis.

miamia Rookie
GERRRRR i am so frustrated so i feel like total crap again. Worse since i ate dinner and there was no gluten in it i am positive. I made soup. tinkyada, potatoes, celery, onion, carrots, turkey, and homemade turkey stock. This is driving me nuts!!!

Linds-

sorry you ar ehaving such a hard time I can completly realte sometimes I think my body just reacts to food in general- its horrible because I love food!!!! I found for me after a ton of elimination diets and so on that you ahve to figure out what works for your body even if it is not what seems like the what should. I definitly cannot do potatoes infact I think besides a small amount of carrots- cooked- root vegees seem to bother me. Brown rice - another thing I cannot tolerate- I do better with white as weird as that is I think becuase its stripped of all its nutrients which makes it good for you but harder to digest. I do better with millet than rice- it is one of the few grains I can tolerate. I know how frustrating it is to feel like you are eating all the right things and still getting a reaction- I can get really sick form anytrhing from a sweet potato to romaine lettuce- Sometimes it all seems like a bad joke.

Miamia

CarlaB Enthusiast
ok lyme ladies...so i'm reading about lyme 'potentially' being spread through um, 'relations.' what do yall know so far about this theory?

Laura

We've been married for 22 years and Adam has no signs of it ... as I said earlier, we use NFP, so there's nothing "protecting" him. ;)

happygirl Collaborator

x

CarlaB Enthusiast

-

happygirl Collaborator

x

CarlaB Enthusiast

-

rinne Apprentice
(yes, i like to blame men!!)

And who could blame you for that? :lol::ph34r:

I don't know, I'm going to go with my Lyme Clan theory. :P

Well, Adam is the only one who could have given it to me .... but whatever I have, I had it before he could have given it to me. :P So, this is one thing that isn't his fault! :lol: Maybe the only thing!! I could blame it on a man though ... my step-father used to remove the ticks with a cigarette, and that's a bit no-no.

Carla, you do bring an increasingly rare perspective. I could not say that of my husband nor could many say for sure anymore so that is very interesting and does lend credence to my very scientific theory. :lol:

As to the bit no no I am thinking you meant big no no but I actually read it as bit of a no no. :huh:

CarlaB Enthusiast
As to the bit no no I am thinking you meant big no no but I actually read it as bit of a no no. :huh:

You quoted me too quickly ... I edited "bit" to "big". :) It's so much harder to read the small print when you're typing that I always re-read once it's posted. You were just too quick!

I don't know, I'm going to go with my Lyme Clan theory. :P

and does lend credence to my very scientific theory. :lol:

The Lyme Clan Theory? You need to explain this theory to me better!! :lol: I was thinking before that you just thought that somehow we all got together because we all have or are likely to have Lyme. Is that the theory?

dlp252 Apprentice
I guess I could have taken it to the dentist office to get rid of it -- then it no longer would be poison, it would be a safe metal!! :lol:

:lol: They probably would have recycled it and used it in someone else's amalgams, lol. :lol:

But at the second lab I had to fill 10 vials!!!!!!

:o:o:o:o Sheesh, I nearly passed out after they took only 1 or 2 vials. I think I might not recover if they took 10! Even with the 1 or 2 vials I can feel the blood draining from my body...head down... I may have nightmares over this one, lol. :lol:

rinne Apprentice
The Lyme Clan Theory? You need to explain this theory to me better!! :lol: I was thinking before that you just thought that somehow we all got together because we all have or are likely to have Lyme. Is that the theory?

:lol: That's as scientific as it gets. :lol:

dlp252 Apprentice
GERRRRR i am so frustrated so i feel like total crap again. Worse since i ate dinner and there was no gluten in it i am positive. I made soup. tinkyada, potatoes, celery, onion, carrots, turkey, and homemade turkey stock. This is driving me nuts!!!

I think someone else mentioned easily digestable foods...a few months ago I tried the specific carbohydrate diet. I didn't notice a HUGE change, but my digestive system did seem to calm down a bit. They have you eat very easily digestible foods...it's a drag in some respects though cuz you can't have many processed foods at all, even things like ketchup etc. and no grains.

Here is a link to the "creator" of the diet: Open Original Shared Link and here is a link that lists some of the "Legal" foods Open Original Shared Link

miamia Rookie
:lol: They probably would have recycled it and used it in someone else's amalgams, lol. :lol:

:o:o:o:o Sheesh, I nearly passed out after they took only 1 or 2 vials. I think I might not recover if they took 10! Even with the 1 or 2 vials I can feel the blood draining from my body...head down... I may have nightmares over this one, lol. :lol:

donna-

it wasen't filling the viasl that was the scary part for me it was the bill they gave me after!!!

now that did give me nightmares

dlp252 Apprentice
I am experiencing such brain fog, like the last 3 weeks, I feel so out of it, so I apologize that I am not up on everyone's posts.

No need to keep up...we always come back around to something again anyway, lol. I just like to see your posts!

the thing is that i barely eat potatoes or rice (in any form). Maybe once a week if that before tonight it had been almost 2 weeks since i had ate either of these. I think i am going to make a doctors appt. with my gp for later this week. and make her at least to a stool sample test for whatever can be tested that way since they have never done that which baffles me. and also an h-pylori test which everyone asks me if i had done and they never did that either! my aunt who is a nurse was absolutely shocked they never did that one since at her clinic it would be the first thing they would test for.

Yes, I'm really shocked as well that they didn't suggest a stool test...this was one of the very first things that my regular doctor suggested back in February. They were looking for C.Diff and other parasites, etc. I had scopes done to check for colitis, etc. and for H.Pylori etc.

ETA: And, my new doctors wanted to do the stool test again because they're using a different lab...one that looks at the tests differently, so they're hoping to find something my regular doctor missed.

CarlaB Enthusiast
donna-

it wasen't filling the viasl that was the scary part for me it was the bill they gave me after!!!

now that did give me nightmares

Both would give me nightmares!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.