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Omg...i Might Be On To Something

Rachel--24

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CarlaB Enthusiast
CarlaB
Posted
Well i got in with my gp for an appointment tomorrow! Plus my mom is insisting she come with even though i am 21. She thinks i'm not forceful enough which is probably true. any ideas on what tests my gp should do?

If your doc doesn't use IGeneX, you need to call the lab and ask for a test kit to be mailed to you, then take it to your doctor. My doc said I had to go to the lab to be tested, I started crying (out of character for me), so she had her nurse take the blood to be sent in.

That is if you want to be tested for Lyme again.

I would ask for your records of your last Lyme test to see what lab was used and what the results really were.

If you're going in in order to be tested for Lyme, I would wait till you have the kit, but in the meantime ask for the records.

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Rachel--24 Collaborator
Rachel--24
Posted
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Well i got in with my gp for an appointment tomorrow! Plus my mom is insisting she come with even though i am 21. She thinks i'm not forceful enough which is probably true. any ideas on what tests my gp should do?

Was your gp ordering a stool test for parasites?? Or was that a different Dr.?? I forgot. :ph34r:

It would be good to be tested for Ghiardia and H. Pylori.

I think Ghiardia would cause lots of diarreah....I dont remember if you have this problem or not??

Is it Monday yet???

I'm super impatient for my Dr. appointment. :ph34r:

Plus my mom is insisting she come with even though i am 21.

Linds....I'm 35 and my mom still insists on doing ALOT of things for me. It doesnt change....your mom will always be your mom no matter how old you are. ;)

If anyone is looking for books on Lyme Disease.....I found these.

I think I might get the first 2 listed.

Open Original Shared Link

Oh....I forgot to tell you guys...

At my last Dr. appt. he told me that there are some support groups in my area....he said to let him know if I'm interested and he can give me the info. He said there are several to choose from.

I'm thinking it would be good to meet some other people in my area who are going through the same stuff....but I'm gonna wait until I get more facts about my diagnosis and treatment first.

I'm wondering....if California "doesnt" have Lyme...why are there so many Lyme Dr.'s here...and so many support groups....and so many PEOPLE who have it! :blink:

Mango04 Enthusiast
Mango04
Posted

Hi everyone...just popping in....and OMG I have a LOT of reading to do lol. I've seen quite a bit of really impressive Lyme scientificness around here lately. I popped in a couple weeks ago and I thought I needed some sort of Biology Phd or maybe a doctorate or something to understand what was going on :lol: You guys know your stuff. I have faith it will pay off.

I'll be home in a few weeks so hopefully I'll catch up sometime soon. Bye for now :wub::wub:

linds Apprentice
linds
Posted

yep the mayo is in southern minnesota. Actually one of my friends just got hired there today as an RN so she has a job waiting for her there when she graduates in may.

Lymetoo Contributor
Lymetoo
Posted
They ignore Lyme Disease....thats what my new Dr. told me.

He said I should be angry that this is going on...and that people are suffering needlessly.

Well yeah....I'm really angry about it now. The more I learn...the angrier I get. :angry:

Go read the article I just posted about the political mess we're in.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Go read the article I just posted about the political mess we're in.

I saw it...my Dr. told me about this at my last visit. He said as of right now its not a felony to provide more than 21 days of antibiotics....but it is REALLY REALLY frowned upon.

Its scary.

happygirl Collaborator
happygirl
Posted

there are three mayo clinics: minnesota, arizona, and florida.

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dlp252 Apprentice
dlp252
Posted
Donna, in Grand Cayman, go swim with the sting rays if you have the opportunity ... very cool!! If not, at least go snorkeling, it's KNOWN for the great scuba diving and snorkeling. I've also been snorkeling in Cozumel, but I think Grand Cayman was the better of the two places for it. There's not much else to see at Grand Cayman except for the beautiful beaches. And watch out, after sunset the mosquitos come out for their feast!! Hopefully, you'll be back on the ship for that!

Have a wonderful time!!

Disney is great, too. I love the Rockin' Roller Coaster at MGM, and the Tower of Terror -- I had to face my fear of elevators at the Tower of Terror, LOL.

Well, I actually don't know how to swim, lol. :lol::ph34r: I forget what we're doing in Grand Cayman and Cozumel, but we've been to both places and I'd almost rather stay on the ship and sleep in, lol. Not that I don't like either place, it's just that I'm so tired lately and I've already been there, and I'll probably be there again since almost every caribbean cruise goes there, lol. My friend is being really great about all my health problems and said if we have to cancel any of the excursions we can...I'm thinking I might.

Yep, Disney...LOVE the scarey roller coaster type things. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
there are three mayo clinics: minnesota, arizona, and florida.

Well the Mayo Clinic sucks for not acknowledging Lyme. :P

Same with Stanford here in Ca.

dlp252 Apprentice
dlp252
Posted
Well i got in with my gp for an appointment tomorrow! Plus my mom is insisting she come with even though i am 21. She thinks i'm not forceful enough which is probably true. any ideas on what tests my gp should do?

Definitely the whole-shebang stool testing thing...the one with all the vials, lol. It's icky to do, but that's where they look for all the parasites...I'm still waiting for mine to come back. In the one I had done in February, I also had to give them a sample (in a margerine-type container that they provided), but didn't have to do that for the one I just did.

I think I might get the first 2 listed.

Open Original Shared Link

Oh....I forgot to tell you guys...

At my last Dr. appt. he told me that there are some support groups in my area....he said to let him know if I'm interested and he can give me the info. He said there are several to choose from.

I'm thinking it would be good to meet some other people in my area who are going through the same stuff....but I'm gonna wait until I get more facts about my diagnosis and treatment first.

I'm wondering....if California "doesnt" have Lyme...why are there so many Lyme Dr.'s here...and so many support groups....and so many PEOPLE who have it! :blink:

I bookmarked the page here at home for future reference...and yep, makes you wonder why support groups and specialists would be needed in an area which supposedly doesn't have any Lyme! Also making mental (like that will do any good, lol) about support groups for future reference.

Hi everyone...just popping in....and OMG I have a LOT of reading to do lol. I've seen quite a bit of really impressive Lyme scientificness around here lately. I popped in a couple weeks ago and I thought I needed some sort of Biology Phd or maybe a doctorate or something to understand what was going on :lol: You guys know your stuff. I have faith it will pay off.

I'll be home in a few weeks so hopefully I'll catch up sometime soon. Bye for now :wub::wub:

Hi Mango!!! It'll be good to have you home, lol!

Oh, and about the mom thing, lol...I'm 51 and my mom still worries about me! It's true, a mom never stops worrying and wanting to do stuff for you.

Well, had my appointment with the mercury dentist today for my permanent crown for the last quandrant he did. I'm not having any more done until January...new insurance kicks in and I have a reloaded Flexible Spending Account, lol.

Oh, and Lymetoo, I saw your post on the "antibiotic" thread about herxing from antibiotics, and it made me think...I have a problem with a lot of antibiotics...nothing serious, but usually feel slightly nauseated, dizzy and most of the time get diarrhea...now I'm wondering if it isn't just a little herxing going on, lol. I haven't been tested for Lyme yet, but have TONS of the symptoms and have had some exposure to some of the areas where it is more prevelant.

happygirl Collaborator
happygirl
Posted

x

Green12 Enthusiast
Green12
Posted

Hi Mango! So good to see you :) It's so hard to believe your Australian adventure is coming to a close, where did the time go?? Looking forward to having you back and posting more :):)

Laura, I am so sorry about the glutening, but that is great news about the lyme specialist! Hope you recover quickly :)

Donna, your cruise does sound wonderful. Will you be taking any pictures??

AndreaB Contributor
AndreaB
Posted

Mango! Good to see you.....not that you'll necessarily see this. :P

I'm reading everything....just don't feel like commenting on a lot right now. Tired, headache and don't want to think that much. :ph34r:

DingoGirl Enthusiast
DingoGirl
Posted
I'm reading everything....just don't feel like commenting on a lot right now. Tired, headache and don't want to think that much. :ph34r:

Well Andrea I am right there with you! Me too. Reading but tired......and still without my mojo. :blink: I hope your headache leaves you soon.

MANGO!! Good to see you.

Laura.....very cute pic but so sorry you got glutened. It does suck, doesn't it?

donna! is it, two more days??? :rolleyes:

Hello and goodnight to everyone else. It's going to be 28 degrees here tonight, I am crawling into my heated bed with magazines and stupid TV - - - - well, you all know my evening routine. :) How sad, this is my favorite part of the day.

Love to you all......

oh and HI EVIE!!!! so good to see you back!! take care of yourself. :)

Green12 Enthusiast
Green12
Posted
It's going to be 28 degrees here tonight

It's going to be 7 degrees here, yikes!! Enjoy your mags and tv, and cozy warm bed with the girls :)

Andrea, sorry about the headache, rest up :)

DingoGirl Enthusiast
DingoGirl
Posted
It's going to be 7 degrees here, yikes!! Enjoy your mags and tv, and cozy warm bed with the girls :)

OMG SEVEN???? And I am whining about 28? :ph34r::huh: We just can't handle it here in California. We are shocked when the temp hits freezing.....big babies. :lol: OF course, they have to keep the oranges and other citrus warm with all kinds of methods....I do feel sorry for the farmers now. I once dated an orange farmer during the winter......he was a bit stressed. You know, a nice guy. Maybe I should call him...... :unsure: This was right before the Siege of Terror hit, in 2004......do you think he was the CAUSE of the siege? :huh::huh::lol:

Lymetoo Contributor
Lymetoo
Posted
Oh, and Lymetoo, I saw your post on the "antibiotic" thread about herxing from antibiotics, and it made me think...I have a problem with a lot of antibiotics...nothing serious, but usually feel slightly nauseated, dizzy and most of the time get diarrhea...now I'm wondering if it isn't just a little herxing going on, lol. I haven't been tested for Lyme yet, but have TONS of the symptoms and have had some exposure to some of the areas where it is more prevelant.

Ya never know. It MIGHT have been yeast rearing its ugly head, but could also be herxing.

linds Apprentice
linds
Posted
It's going to be 7 degrees here, yikes!! Enjoy your mags and tv, and cozy warm bed with the girls :)

Andrea, sorry about the headache, rest up :)

I wish it was going to be 7 here it is already -4 with a =15 windchill and its just supposed to be getting colder. I just want it to snow though!!! If its going to be cold there should at least be snow to have some fun in. :D

Lymetoo Contributor
Lymetoo
Posted
wanted to say hi and let you all know that i got another referral to a lyme specialist in my area.

What state are you in? I have a complete list of LLMD's. [well, as complete as it's going to get!! :rolleyes: ]

Lucky us. We're in for a nice ICE STORM tonight, followed by 6-12" of snow. It's the ice I'm worried about!! AARRGGGHHH!!!!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
OMG SEVEN???? And I am whining about 28? :ph34r::huh: We just can't handle it here in California. We are shocked when the temp hits freezing.....big babies. :lol:

OMG...I'm freezing. Its not 28 here....its somewhere in the 30's. I cant handle it. I miss my heated bed that I dont have anymore. :(

I'm hoping this will end soon....it seems much colder than normal winter temp. :huh:

Julie....7 degrees :blink: I think I would die.

I'm just reading along too. Too cold to really do much...I need to get into the bathtub.

Mango.....we'll all be glad to see you back home and posting more. We've missed you. :)

I'm looking forward to hearing more details about Australia...have you seen any koalas at all??

Laura,

Thats great about the Lyme Dr. I hope you can see him soon. :)

Sorry you got glutened though. Bummer. :(

Andrea....I'm tired too. Sorry you're not feeling good. I'm headed for a bath and then getting underneath all my covers and staying toasty till morning. :)

Night everone. :wub:

OMG....Linds and Lymetoo

ICE STORMS and negative temperatures...SNOW... :blink: ...its all too much for me. I'm getting colder just reading this stuff. What a baby I am... :P

miamia Rookie
miamia
Posted
What state are you in? I have a complete list of LLMD's. [well, as complete as it's going to get!! :rolleyes: ]

Lucky us. We're in for a nice ICE STORM tonight, followed by 6-12" of snow. It's the ice I'm worried about!! AARRGGGHHH!!!!

Lymetoo-I was just wondering a few things-

How long did you suffer from candida?

I Was also just curious before you were diagnosed for lyme what were your major complaints- major symptoms? I was also wondering how you are feeling now and what kind of diet you follow now

Thanks

Miamia

dlp252 Apprentice
dlp252
Posted

I am SOOO happy I have my heated mattress pad, lol, us wimpy Californians need stuff like that...can I just say that I am REALLY looking forward to the WARM Florida sun, lol. Okay, it may rain, but at least it will be warmer than here. :P

miamia Rookie
miamia
Posted
I am SOOO happy I have my heated mattress pad, lol, us wimpy Californians need stuff like that...can I just say that I am REALLY looking forward to the WARM Florida sun, lol. Okay, it may rain, but at least it will be warmer than here. :P

Oh Donna-

your leaving tomorrow you must be so excited!!! I wish I was going with you

dlp252 Apprentice
dlp252
Posted
Oh Donna-

your leaving tomorrow you must be so excited!!! I wish I was going with you

I am and I wish you were too!

CarlaB Enthusiast
CarlaB
Posted

Hello everyone!

Sorry you got glutened, Laura.

Donna, have a great time! Even though you can't swim, you can still go see the sting rays, you can stand in the water, it's not deep. Just be sure you wear a life jacket on the boat!!

Andrea, I guess it'll take a while for you to rest up from the trip. I remember when the kids were younger how much time it took to get rested up when you can't even sleep through the night. You will sleep again, I promise!! Once they're teenagers, you have to wake them up!!

It's warm here today, 66. A cold front is coming in though. This is unseasonably warm for us. We'll be in the 30's soon. Adam is my feet warmer. :) He loves the winter time because I sleep right next to him!

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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