Omg...i Might Be On To Something

[AndreaB]

Donna,

You can do it!!! I'll be waiting for an update tomorrow.

Patti,

Thanks for more potato info.

[Rachel--24]

Rachel,

Once you can tolerate more meats you can make your own broth. Won't be as good without the "no msg added" but it's healthier. uswellnessmeats sells beef bone to make beef broth. I still need to order some. I use chicken carcasses when we have whole chicken for chicken broth. Veggie broth would just be veggies you want in it. Usually onion, celery and carrot. I'm glad you found a broth you can have.

Andrea,

I cant have any broths made from meat or bones. I'm way too sensitive to the "free glutamates". Thats what "frees" up the glutamates for making MSG....boiling and cooking the proteins. I react to my own soup which is why I never make it. I can eat beef everyday...but not when its boiled and slow cooked in water for stew. Its not as bad a reaction as when msg is processed into a product like with the Imagine broth but I still react to it.

I had just *forgotten* all about MSG and glutamates (and my reactions)....was busy focusing on Lyme and Candida and the loss of ice cream.

I had BioSET tonight. Susan did my treatment...I talked to Anna a little before my treatment. She wants me on magnesium.....shes been saying this since I started going there. Awhile back she gave me some samples to try but I reacted.

It had Mannitol in it....I think thats a sugar??

It actually tasted sweet....all I know is I got an immediate reaction and didnt want to try it again.

She asked about it today and I told her I always react to the other ingredients in the supplements.

She said I have leaky gut and right now its like we're trying to put buckets of water into a ship with holes in it.

She said we need to work on the leaky gut and the candida situation and magnesium is important.

She brought me some that have *nothing* else in the ingredients.

It's free of *all* the bad stuff....unless I have problems with Vitamin C or magnesium I should be ok (fingers crossed). I'm gonna try it out tomorrow. They tested me for it and said its ok.

I asked her if other people have so much problems taking things??? She said "YEAH....some people do....the people with Lyme have alot of problems tolerating things."

I was like "Lyme??"

I told her it doesnt seem like Lyme could do this.....I always think its something caused by mercury. Cant it be???

She said "Nooo....not by itself....mercury doesnt cause this on its own."

She said what causes this is infections. So there's that word again.

She said the infections are the cause and I have infections.

So yeah...there is the candida and the Lyme.....(which I have conveniently put on the back burner lately).

Maybe I should just really put more effort into getting a clear answer about the Lyme.....or maybe I should just accept it???

So I have the Western Blots with *some* positive bands but not enough for a positive test. So its only "suspicious"...or eqivocal.

Then I have the IFA test which is very highly positive but not 100 % specific for Lyme. Its 82% specific for antibodies against Lyme.

Then there is BioSET tests which show a response to over 25 Lyme antigens.

Then there is Donna who had *no* response to any Lyme antigens in her BioSET test. I guess I was thinking that maybe BioSET is overly sensitive and just can pick up Lyme in people...even if its not a problem. But it didnt pick it up in Donna.

I was even considering *not* seeing the LLMD when she comes from Washington in March.....I had convinced myself that maybe Lyme is not a serious issue for me. So now I think maybe I need to think about this more.

Anyone wanna say what they would think if they were in my shoes....with these kind of test results??

Would you guys suspect Lyme??

Would you "mildly" suspect it....or "highly" suspect it....or not suspect it at all???

Yeah....I need help.

[Rachel--24]

My treatment tonight was for bile acids....bile that is suppossed to be made by the liver to process fats...or something like that?? I forgot already.

All I know is the bile acids are important in some way and Anna said she wanted to put some focus on this stuff and also my gall bladder because gall bladder gets affected by infections and leaky gut.

Hmmm...Maybe...the bile acids had something to do with the gall bladder and not the liver??

Anyone know about bile acids??? I will have to look it up later.

I will post more about the treatment tomorrow.

I'm going out tonight.....YAY!!

[AndreaB]

Andrea,

I cant have any broths made from meat or bones. I'm way too sensitive to the "free glutamates". Thats what "frees" up the glutamates for making MSG....boiling and cooking the proteins. I react to my own soup which is why I never make it. I can eat beef everyday...but not when its boiled and slow cooked in water for stew. Its not as bad a reaction as when msg is processed into a product like with the Imagine broth but I still react to it.

Hm, I don't think I knew that....or I had forgotten it. I made chicken broth this week and blended the chicken with it to try and get Micah to eat it. I used it in a rice casserole type dish. After I had leftovers of it I was a little lightheaded/dizzy. I wonder what that was. I don't usually react to msg that I know of. I cook the broth for a good portion of the day. Maybe I ought to not do that. Maybe I ought to stick to making vegetable broth. That sounds safer.

It sounds like the probability of lyme is greater than lesser.....does that make any sense?

[Judyin Philly]

Hi Friends.

I have been ck'ing this site and gaining so much info and trying so hard to get better.

here is a up date. Think you all knew I'd reach this point sometime soon well i did

hope you don't mind me doing a cut and paste from my journal in daily strength today.

i want you guys to know how much you've helped me even tho i don't post that offen i read it alot.

here goes...

OK I'm done with the whining and sick and tired or being sick and tired.

Called EnterolLabs just now and ordered the full pannel for $360.00 + the $20.00 shipping. Kathy at the office in Texas talked to me a long time and since i'd spent so much time filling out the info last nite right up to the 'click send' key..(just like Lollie) so she had me in the computer. I've done this 2 times before. So I just gave her my credit # over the phone and it's done.

Kathy spent a lot of time discussion and answering all the questions I had. Everyone of them..

Today with the ice every where and missing AM Chiro apt. then- no cancellation for a afternoon apt..I just am tired of putting my life on hold. No more..with knowledge comes power. RIGHT????I

It's obvious I can't get better on my own so pray I find the answers I need to finally get better..and info to take to the new GI for March 8th apt. I need support of not doing the gluten challenge.

thanks for always being there for me.

love you all.

JudY-

[diamondheart]

Can you guys remind me why green potatoes are bad for you? I forget what the green was. I want to say chlorophyl (sp?) .

I found this off the internet. Just do a search on "green potatoes toxins", and you'll find lots of stuff. I don't buy or eat green potatoes. I always store them in a paper bag in a cupboard.

Several instances of poisoning have been attributed to human consumption of "green" potatoes high in solanine. The toxic properties of green potatoes is not due to the green color, however, for the greening is due to chlorophyll which often accompanies the synthesis of the toxic sub- stance solanine, a glycoalkaloid. Glycoalkaloid synthesis increases when the tuber is exposed to stress conditions such as light, cutting, or bruising. Potato varieties differ widely in their glycoalkaloid content and some varieties have had to be taken off the market because their glycoalkaloid content exceeded the level considered safe for human consumption; a glycoalkaloid level above 20 milligrams per 100 grams of fresh weight is considered unsafe. The fruit of eggplant and the root and leaves of tomatoes also contain cholinesterase inhibitors.

Yeah...I have stared at the ingredients on the box soooo many times and I totally missed it. I forgot that "Natural flavors", "beef flavor", or any type of "flavor" usually means MSG.

I wasnt paying enough attention. I'm upset because I knew all of this and have posted several times about it...yet I've been getting my own self sick from it.

I was just staring at the boxes last week trying to decide which beef broth to buy. The vague ingredient "natural flavors" baffled me. I'll know now to steer clear - thanks !

He gave me some Chromium Piconolate(SP?) which is supposed to help with the sugar cravings, which is one reason I haven't been able to stick with it. He said that if I can just get past that initial craving period I should be okay and I tend to agree...the chromium should help with the cravings.

I give my cat chromium picolinate for his diabetes. It's supposed to help him absorb his insulin. We have to give him insulin shots twice a day!

I cant have any broths made from meat or bones. I'm way too sensitive to the "free glutamates". Thats what "frees" up the glutamates for making MSG....boiling and cooking the proteins.

Hmmm, maybe that's why I had a problem with the last batch of chicken bone broth I made. It seemed to upset my intestines .

Then there is Donna who had *no* response to any Lyme antigens in her BioSET test.

Anyone wanna say what they would think if they were in my shoes....with these kind of test results??

Would you guys suspect Lyme??

Would you "mildly" suspect it....or "highly" suspect it....or not suspect it at all???

I didn't respond to Lyme either when I was tested. Not by the "official" BioSET panel, but basically the same thing. I don't know what to tell you. It seems like it's difficult to diagnose chronic lyme, but probably seeing an expert is best.

No more..with knowledge comes power. RIGHT????

Right on Sistah! You go girl!!

Claire

[AndreaB]

Thanks for the info on the green potatoes Claire.

Rachel,

I forgot to say "have a good time tonight".

Judy,

Love to see you post over here. Go get em!

[dlp252]

I don't know Rachel, your diagnosis of Lyme seems pretty solid to me! But, I thought mercury COULD cause a lot of the problems you're having with food and environmental things...at least that's what I've been reading and Dr. Adams said it can cause problems like that...but maybe in the end it's not the actual mercury, but the candida it causes that causes the reactions. I think maybe my reactions to things aren't as severe as yours because I don't have the Lyme part of the equation...I have the candida issue, but that's all I'm battling...that and the mercury. You've got the mercury, lyme AND candida to fight.

Judy - I agree...YOU GO GIRL! Good for you!

Ha, I've had two dogs that had diabetes that I had to give shots daily too.

Yes, a few years ago I was looking into different supplements and chromium pic. came up a few times...for weight loss and for something to do with sugar...I've forgotten now. I just took my first one, so we'll see if I can resist buying that stupid crave brownie I've been thinking about all week.

I forgot one of the happiest parts of my appointment yesterday...Dr. Rick said that I can soon start backing off some of the supplements they have me on. He said we'll continue with the Support Adrenals, Calcium and a multivitamin. Yay, I get to stop taking the drops and the stupid alcohol that's in them!

[CarlaB]

Hm, I don't think I knew that....or I had forgotten it. I made chicken broth this week and blended the chicken with it to try and get Micah to eat it. I used it in a rice casserole type dish. After I had leftovers of it I was a little lightheaded/dizzy. I wonder what that was. I don't usually react to msg that I know of. I cook the broth for a good portion of the day. Maybe I ought to not do that. Maybe I ought to stick to making vegetable broth. That sounds safer.

Andrea, are you allergic to mold? Leftovers grow mold rather quickly.

Rachel, I think Lyme is a possibility because you have some of the symptoms. You don't have the joint pain, muscle aches, or fatigue (that I'm aware of anyway), so I think it could go either way. I'd see the Lyme doc. Don't rule it out until you see an expert. I can't really make a call ... I think it could go either way for you.

[CarlaB]

Judy, I'm glad you're taking control of your health situation!! Keep us posted!

[AndreaB]

I just took my first one, so we'll see if I can resist buying that stupid crave brownie I've been thinking about all week.

I forgot one of the happiest parts of my appointment yesterday...Dr. Rick said that I can soon start backing off some of the supplements they have me on. He said we'll continue with the Support Adrenals, Calcium and a multivitamin. Yay, I get to stop taking the drops and the stupid alcohol that's in them!

You can resist! Find something to do that will totally take your mind off of it.

Yay for cutting down on supplements!

Andrea, are you allergic to mold? Leftovers grow mold rather quickly.

I don't usually have a problem with leftovers so don't think mold is a problem. Who knows though.

[Rachel--24]

It's obvious I can't get better on my own so pray I find the answers I need to finally get better..and info to take to the new GI for March 8th apt. I need support of not doing the gluten challenge.

JudY-

Judy,

Good for you! Taking charge of your health is a huge step in the right direction. Like the others have said...YOU GO GIRL!

Question about the gluten challenge and Enterolab testing.....I had thought you tested positive for Celiac already?? Am I wrong??

[Judyin Philly]

HI RACHEL

YES THE CELIAC PANEL DID SHOW A SLIGHT ELEVATION..AND THEN RETESTING THE PANEL 3 MONTHS AFTER gluten-free THE NUMBERS WERE HIGHER THEN THE FIRST ONE.

ENTEROL LAB GAL SAID THAT CAN BE A NORNAL THING THEY SEE IT ALOT.

I POST MY NUMBERS HERE ONCE IF I FIND THEM I'LL DO FOR YOU TO SEE...

MY DR DIDN'T THINK NUMBERS SHOWED ''''REAL CELIAC''' BUT THE gluten-free DIET SURE PROVED IT TO ME..

I WILL NEVER EAT GLUTEN AGAIN REGUARDS OF WHAT ANY TEST SHOWS.

J

[Rachel--24]

I found this off the internet. Just do a search on "green potatoes toxins", and you'll find lots of stuff. I don't buy or eat green potatoes.

Thanks Claire....I had always thought that the green potatoes were toxic and I store them in the dark. When I worked in the produce dept. for several years....whenever the store closed (which was only like twice a year) we would cover the potatoes with black garbage bags to "protect" them.

I had a potato question last week but never asked it. I'm eating potatoes without problems.... one grew those "sprouted" things. Are those the "eyes"???

Anyways, I cut those out and ate the potato. I got a very bad reaction. I asked my mom about the sprouted things....she said she thinks it happens when the potato is old.

Does this mean the potato was bad....even though I cut those out?? Now I will not eat one if it shows any signs of "sprouting".

I forgot to say "have a good time tonight".

Thanks Andrea...I did.

My friend says I'm not taking care of my car like I should.

Today we are going to get some things taken care of....like changing wiper blades....stuff like that. Last night was raining and my windsheild wasnt too clear.

I don't know Rachel, your diagnosis of Lyme seems pretty solid to me! But, I thought mercury COULD cause a lot of the problems you're having with food and environmental things...at least that's what I've been reading and Dr. Adams said it can cause problems like that...but maybe in the end it's not the actual mercury, but the candida it causes that causes the reactions.

Yeah...I think that with mercury toxicity there is usually infections involved.....mainly candida. I think this is the main reason we get so toxic to begin with...because the infection itself creates too many problems as far as detoxification goes. Also this is why most people with Lyme have high levels of mercury and other heavy metals. Lyme interferes with the body's ability to detox.

Rachel, I think Lyme is a possibility because you have some of the symptoms. You don't have the joint pain, muscle aches, or fatigue (that I'm aware of anyway), so I think it could go either way. I'd see the Lyme doc. Don't rule it out until you see an expert. I can't really make a call ... I think it could go either way for you.

Carla,

I had all the symptoms in the worst way....when I was very sick and unable to work. Its improved soooo much though. My joint pain is improved like 99%. I dont have fatigue that bad anymore either. The only thing is that I cannot stay up too late.

Last night around 2 a.m. I started feeling overly tired and then I start to feel more symptomatic. Its been like that since I first got sick..my body gets wiped out really bad if I try to stay up 24 hrs. without sleep. I start feeling like I drank alcohol and my eyes get blurry too.

I still have muscle pain....mainly in my neck and shoulders. That part has never went away completely but I always think its due to imflammation from all of the food and environmental sensitivities. It gets worse and spreads to other areas of my body if I eat the wrong things....like that "bad" potato.

I'm still recovering from eating the Imagine beef broth...the muscles in my back were burning and feeling numb yesterday.

I dont know what the LLMD from Washington can tell me about my test results that my regular LLMD hasnt told me already but I think I should see her anyway. I guess I can look at it as a second opinion.

I guess I just feel that since she's Dr. Klinghardts partner and Lyme is obviously their focus...of course she will say I have it because of my positive bands and BioSET results.

Dr. Harris at IgeniX said I need more testing to rule Lyme in 100%.

I guess where there is smoke...there is usually fire. This is probably how the LLMD's look at it since Lyme testing is so difficult and unreliable. They probably just start treating it when they see that there is smoke.

I think I am really setting off "smoke" at this point.

Do you think that since my symptoms have improved so much with diet changes that the Lyme isnt too bad yet??

Sometimes I'll stop and say to myself "Wow....its so hard to believe all this is really going on....that I'm really SICK."

Yesterday I was working VERY hard at work. I do alot of very heavy lifting and I work fast when I need to. There are actually alot of guys twice my size who cannot do the work.

I'm only about 105 lbs. but I have ALOT of strength. I've always been able to accomplish alot as far as physcial labor. I built my scrapbook area in my house on my own..with no help. I think about these things and thats why its hard for me to believe I have Lyme Disease (and all this other stuff).

When I was hardly able to walk and slept up to 15 hours a day it would have been very easy to believe.....but those days are over. I have energy now. Back then I would have believed anything....including cancer or brain tumor. I felt I was dying.

Last night my friend said I look totally healthy.

[CarlaB]

Rachel, my Lyme went symptomless three times, so I think your diet and rest could have made you feel better when you really have Lyme. Your diet and lifestyle is so complicated right now, and that's certainly not normal. I have a lot of the pain you describe ... it's the worst in my shoulders, neck and back ... achey like I have the flu. My joint pain almost completely went away on the gluten-free diet, though it flares up once in a while, but never as bad as it was.

I know that when I had no symptoms I always did better when I was very busy. I had the energy and could more work than most. I also had trouble getting up in the morning, but once I was up, I was busy, busy, busy. I'm starting to think that those of us who are chronically ill and have the ambition to do so start getting very busy so that we can live off our stress hormones. I think that's how we end up with adrenal fatigue ... well, constant infection plays into that, too.

What you're living with affects your life in a significant way, so if it is Lyme, I think it needs to be addressed to make your life better. Looking back, I don't think I was ever completely without symptoms, I think I just found ways to overcome them -- staying busy, eating right, exercise, etc.

The reason I went onto pharmaceutical treatments instead of the natural stuff is because I think all I can do naturally is diminish the symptoms ... I know that some of the coinfections can be completely treated and I think my immune system will better be able to fight off the borrelia without all the coinfections. I also think that I'm so bad this time that I need some extra help.

The LLMD's realize that eventually our immune system needs to be able to control the disease, and I know that mine is very into holistic care. I read a quote of his that said if he could treat Lyme naturally and without antibiotics, he would. He has an alternative type care as part of his business, and judging by the supplements he sold me I'd say he's really into supplementation and natural health care. I asked him if he had Lyme and he said he used to.

I know you'll keep looking until you find out for sure what's wrong, and I think you should, even if your symptoms become manageable. I'd rather have treated this correctly much earlier, before I was as disabled by fatigue as I am now. I know that even with antibiotics, stress can set it off again, but I can't help but think that it's good to eliminate the babesia.

I'd really want to hear another LLMD's opinion on your health. I think yours is taking very good care of you, but they all have a different style, so I'd want to talk to another one since you're still looking for answers. I bet an LLMD who prefers pharmaceutical care would put you onto antibiotics for a month, then retest two weeks after that ... I've heard that method can trigger a postive test in someone who has Lyme. I'd want to know for sure, so I would think it would be worth the antibiotic challenge, but that's something you would need to decide for yourself. If it is Lyme, it really needs to be addressed. The natural stuff your'e doing is good, but if you're not getting to the cause, then you won't fully get better.

I've read that messing with your mercury toxicity can affect Lyme ... I can't remember where I read that, but it might be worth pursuing. It had something to do with the fact that they used to use mercury as a medical treatment. Some of it binds to the Lyme bacteria? ... it was something like that ... I'm sure you'll find the scientificness!

[Rachel--24]

Your diet and lifestyle is so complicated right now, and that's certainly not normal.

Yeah....aint that the truth!!

Thats why I trip out sometimes....my life is SOO comlpicated with this stuff and yet I'm running around and *appear* to be healthy...but I'm SOOO far from healthy that it boggles my mind I can even *do* these things.

I also had trouble getting up in the morning, but once I was up, I was busy, busy, busy.

Yeah...getting up is NEVER easy for me. I feel worst in the morning but once I get myself going I usually feel better.

What you're living with affects your life in a significant way, so if it is Lyme, I think it needs to be addressed to make your life better.

Yup...I havent had a "normal" day in 4 years. My life isnt going to be normal again until this is fixed.

I'd really want to hear another LLMD's opinion on your health. I think yours is taking very good care of you, but they all have a different style, so I'd want to talk to another one since you're still looking for answers. I bet an LLMD who prefers pharmaceutical care would put you onto antibiotics for a month, then retest two weeks after that ... I've heard that method can trigger a postive test in someone who has Lyme. I'd want to know for sure, so I would think it would be worth the antibiotic challenge, but that's something you would need to decide for yourself. If it is Lyme, it really needs to be addressed. The natural stuff your'e doing is good, but if you're not getting to the cause, then you won't fully get better.

My LLMD wont try to fight Lyme using only natural ways...I think he believes antibiotics are a necessity but he wont have me taking them until I'm less toxic from the other factors.....mainly the candida. I think he feels antibiotics will backfire on me right now.

The LLMD from Washington is a naturopath and I dont think she focuses on antibiotics.....thats my impression anyways. I wont know for sure until I see her.

The other LLMD I can see is Dr. Greene....shes in the same office with my current LLMD.

She is one of the most well-known and respected LLMD in my area.

I think she is more aggressive with treatment than my current LLMD is...he is more conservative with antibiotics and looks at all of the issues surrounding Lyme.

I might schedule to see her...I'm thinking about it. I probably would have done this already except shes in the same practice. Is this betrayal??

I like my Dr. and I dont want to switch...I just want input from more sources about my test results and how to proceed.

Dr. Harris at IgeniX had talked to me about my current Dr. and Dr. Greene having very different styles.

I still have the kit he gave me for one of the tests but he recommended an antibiotic challenge first. I think it would be a waste to take it w/out doing a challenge.

I've read that messing with your mercury toxicity can affect Lyme ... I can't remember where I read that, but it might be worth pursuing.

Yeah...its true. Lyme and mercury affect each other. Both my Dr. and Anna have talked to me about this and explained that it makes things more difficult for me.

Lyme and mercury work synergistically in the body. I'm pretty sure candida works synergistically with mercury as well.

Stupid bugs.

[CarlaB]

If your doc and the other doc used similar natural means, then I'd make and appt. with the other doctor in your doctor's office. It's not betrayal, it's a second opinion. Plus, you're going in the same office, so it's obviously someone your doc respects. Does your doctor know you're planning on seeing the other one when she comes into town? If so, just tell your doc you'd rather see the other doctor in his office instead of her.

With candida already, I can see how they would consider you to be too toxic since antibiotics will only make it worse. Hopefully, the Nystatin and diet will help quickly. On the other hand, my doctor didn't even ask if I had candida, he put me on the meds and Nystatin. He's testing me for heavy metals ... among other things ... so I have the orange jug for a six hour collection ... and the spit jars for adrenals .

Even the antibiotic treatment is SLOW! I don't notice a difference yet ... not that I expected to. I had a little more energy today than normal ... I helped the kids clean the house!! It's MUCH cleaner than it normally is!!

[Rachel--24]

I'm so sad right now I could cry.

I need to vent.

My friend got me a jacket for Xmas. I had to exchange it for a different size and the jacket was almost $300.

I loved the jacket. It was big a big warm North Face jacket. It was only a couple weeks ago that she gave it to me....so a late Xmas present.

Anyways I left it at BioSET last night and I called and the girl said she didnt see it but will call if it turns up. Soooo....since its not like BioSET is swarming with people in and out and it was only last night that I was there...I'm really bummed about this.

I dont know how I'll feel about going there again since I spend alot of money there and if I cant get my jacket back I'll be P.O'd.

My mom says I can get the jacket replaced...they probably still have them but I'm really really upset. I might go get a new one later but I'm waiting to see if the girl calls back first....but I doubt she will.

She said there was patients in the room and she couldnt get a good look...but the jacket cant be missed...its pretty big and puffy.

[dlp252]

Ah Rachel...I'm so sorry about the jacket! You'd hope people would be honest about finding it. I, of course, didn't see anything out in the waiting room today, but my appointment was at 1:00, so I'm sure they would have put it somewhere else by then. I wouldn't count on the girl to call you, lol. She doesn't seem very motivated to me...just my mean humble opinion. I'd still check next time you're in just to make sure no one forgot...it's also possible someone else saw it and put it somewhere before you called the receptionist.

I also have a theory why you have energy and don't look sick...it's like what Dr. Rick was telling me about taking stressors off the body. If you can reduce the stress load to a certain level, the body can do what it's supposed to do. You've taken a WHOLE LOTTA BUNCHES of stressors off your body over the last few months (and years from what you've said here), so your body can get down to the task of dealing with the other stuff.

My appointment was sort of interesting I guess, lol. We did the B Vitamins and Folate. As usual I had a large glass full of vials. I sort of knew this would happen, cuz I've never really been able to take B Vitamins...well at least not in the last 10 years or so. Lots of things came up that it affects too. One interesting thing that popped up was "person, place or thing". I asked what the heck that meant, and she said I am reacting to a person, place or thing...um, we were doing B Vitamins and folate, lol. So, does someone I know take a bunch of B vitamins. :lol: I told her it's got to be my house, cuz I'm not the worlds best housekeeper, but do dust mites have B Vitamins or folate???

Anyway, my ileocecal(SP??) valve came up AGAIN....so far it's shown up at every single appointment for whatever they're testing/treating me for. I guess this is the valve that sits at the end of the small intestine and the beginning of the large intestine. She said my large intestine is okay, but it's the valve...so I'll have to do some reasearch on that on Monday. Whatever it is, everything is affecting it.

My energy level was MUCH lower than it's ever been. I only got up to 23 or so. Last week it was 36. I don't feel like I have less energy, but I guess my body does.

[jerseyangel]

Oh Rachel That is awful. I'll hold out hope that she calls, but you know people sometimes.

It's hard to believe that she didn't see the jacket--they aren't normally part of exam rooms.

I truly hope that you get it back. I would feel bad, too. And ticked.

[dlp252]

Oh also, bug bite and injections came up again!!!! Not sure how that relates to B vitamins or folate either. I'm confused, lol.

I also took in 4 new supplements I'm taking...all were okay except for one which is a natural anti-inflammatory that I bought at HN to try to get off ADVIL, which I've been having to take because of my jaw. She said not to take the natural one at all, and next week to bring the advil.

Oh, and I didn't buy the brownie. Didn't buy ANY sugar...not even fruit. I may be climbing the walls tomorrow, but so far today okay. I DO need to take some pectasol (to bind with the mercury that may have been released Wednesday), and I usually blend it with a little frozen fruit, so not sure what I'll do with it now.

[Judyin Philly]

RACHEL

SO SORRY ABOUT YOUR JACKET.

DID YOU HANG IT IN THE WAITING ROOM?

SEEMS THEY KNOW WHO HAD SCHEDULED APTS AFTER YOU.

IS THIS A BUSY..IN AND OUT OFFICE OR JUST SMALL NUMBERS OF PEOPLE?

DID THE WAITING ROOM HAVE MORE THAN JUST YOUR DR OR OTHERS TOO?

IS THIS WOMAN WHO LOOKING 'YOUR SIZE'?????

LET'S JUST HOPE YOU GET IT BACK.

HUGS

JUDY

[AndreaB]

Rachel that's awful! I do hope the jacket got put somewhere. That office can't be that busy.

Donna,

Interesting about the people, place and thing. I don't understand that one little tiny bit.

Good girl and not getting the brownie!!!

Don't know what to do about the stuff you normally take fruit with.

[miamia]

Hi everyone-

I have not been posting as much but i have been reading. ITs sounds like everyone is busy in treatment modes.

Donna-

don't you love it when they tell you to take less supplements!!

Rachel-

sorry about the jacket- this year I bought a big puffy northface too it is like my baby- it is so warm so I know how you feel!! I am sorry and I hope you find it. I completly know how you feel about the lyme isssue. I just wish it wasen;t so hard to get a definite diagnosis!! I guess in both our cases if we have it we have for a long time and that makes it that much harder to diagnose.

I'm still doing the antibiotic shots I just finished week 4 , I may start an antifungal with it becasue I am still pretty uncomfortable. My docotr and I are scared it has started to affect the candida despite me taking it through a shot.

Rachel its great that you cut out the ice cream I feeel stupid that I still eat things that I know feed the candida but it is so hard for me to find foods my body will tolerate and I am so underweight I feel like I don't have that many options. I do ok with breakfast and lunch but I always have some sort of bready thing with dinner. It just seems like my body does best when I eat a balance of carbs/protein and vegees - like I need all 3 too much of anyone makes me really sick.

I will post more later but I just wanted to check in.

Miamia

[jerseyangel]

Miamia!

I've been wondering how you were doing

I'm sorry to hear you're still uncomfortable--hopefully it will get easier for you soon.

Thanks for checking in--take care