Omg...i Might Be On To Something

[christine 25]

Hey everyone. How is it going?

Has anyone ever heard of Cavitations before?

I have been reading about them,,, because I have been having a presistant sour/bitter taste in my mouth where I had a root canal and crown placed for several months now. There is no pain yet, but I have jaw pressure.

here is some info I read about it, that makes me want to go get checked out. I dont know if I have any but I think I'm going to get an exam, by Dr. Shankland, lucky for me he lives in Columbus, OH where I live. He wrote this:

Systemic Problems Associated With NICO Lesions

The results of recent research of Dr. Boyd Haley (Chairman, Department of Chemistry, University of Kentucky) show that ALL cavitation tissue samples he has tested contain toxins, which significantly inhibit one or more of the five basic body enzyme systems necessary in the production of energy. These toxins, which are most likely metabolic waste products of anaerobic bacteria (bacteria which don't live in oxygen), may produce significant systemic effects as well as play an important role in localized disease processes which negatively affect the blood supply in the jawbone. There are indications that when these toxins combine with certain chemicals or heavy metals (for example, mercury), much more potent toxins may form.

The results of research in Germany indicate the jawbone may be a holding tank for chemicals and heavy metals, especially at the wisdom tooth sites. Clinical experience indicates it is sometimes difficult for some patients to successfully detoxify mercury from the body until both the bone cavitations AND mercury fillings are removed.

Open Original Shared Link

[CarlaB]

Donna- thank you so much for all the links! Those were VERY interesting to read. Now you, carla and rachel (and potentially andrea) have mercury problems because of your fillings?

I had my fillings out 16 years ago and did a chelation therapy. It's possible I didn't get it all out. Or maybe it's just from fish, pollution, environmental toxins, etc.

[CarlaB]

Lately I've been struggling with the idea of sending her to school, but they'd eat her alive. I'll deal with whatever I have to, just going through a rough time right now. If we have to do school all year round we will. I've already stretched 1st grade to 1 1/2 years. We have next week off so that will give both of us a break. I just need to let her work at her pace and deal with it. It's hard when I'm thinking we need more structured times. She goes quickly when I leave her alone and let her take whatever breaks she needs to give her hand a break. School takes all day that way but she does get her work done.

Sorry you're down.

Actually, she'd do fine in school ... it would be harder on you than on her! My kids adjusted very easily. I had to sit with my kids the whole time they did their school work. I spent a lot of time on the computer to keep myself busy while I watched them work.

Could you be trying to accomplish too much? Some programs are much, much more rigorous than they need to be.

[dlp252]

Christine - I have heard about cavitations mostly from reading the mercury boards, and I think we've briefly discussed them here (oh about a 100 pages or so ago, lol)...unfortunately not much of what I read stayed with me...I know they're bad or at least CAN be bad. I have had two root canals done...the first one in 1996 and the second one this last October...they're the prime suspects in my case, but so far I haven't noticed anything wrong. The metallic taste I had in my mouth seemed to go away when I had my amalgams out.

[diamondheart]

Quick update on my latest Bioset files. I saw Dr. F yesterday and dairy is still a loser for me . He checked all his Bioset vials, and thought maybe I could have goat cheese once in a while. It's weird, because he thought this was the one food I would have a deep allergy to. He cleared it for me previously, and that's when I started eating kefir made from milk everyday. Eventually, I developed a sensitivity to it again after a couple of months. He also cleared me for gluten, but I've been too afraid to eat it. I'm afraid that I would just sensitize to it again after eating it for a while. I guess I have to be thankful that I can eat some soy, and nuts again. I also eat corn occassionally. The gluten and the dairy are still out.

We are going to give the dairy clearings a rest for now. I was really hoping to eat dairy again, but it doesn't look like I'm going to be able to . That means no chocolate either as most of it has dairy .

Claire

[dlp252]

Oh Claire! I'm with you with the dairy. I bought a small container of plain goat milk yogurt on Saturday...it's still in my refrigerator...I'm afraid, lol. I think I miss that the most...I just love yogurt in the morning for breakfast.

There is some dairy free chocolate, but it's not easy to find.

[AndreaB]

Has anyone ever heard of Cavitations before?

Heard of them.....they are very bad. Hoping I don't have any problems because I really don't have the money to pursue it. Although, the dentist I'll be seeing will probably tell me what needs to be done and what is the priority.

Could you be trying to accomplish too much? Some programs are much, much more rigorous than they need to be.

This program is advanced which is why I spread it out so much.

She got her work done all on her own. If I go through my part with her earlier in the day then she can work at whatever pace she wants to after that. I think I will start working it that way.

I went out and got some work done outside. I feel a little better now that I've got some sun.

[AndreaB]

Oh Claire! I'm with you with the dairy. I bought a small container of plain goat milk yogurt on Saturday...it's still in my refrigerator...I'm afraid, lol. I think I miss that the most...I just love yogurt in the morning for breakfast.

There is some dairy free chocolate, but it's not easy to find.

I happen to think enjoy life chocolate chips are great!

[NoGluGirl]

Dear Carla,

I should probably try that solution. I am allergic to dyes, and Gatorade definitely has them. It is so hard to avoid dyes. They are in everything! It can get really frustrating. Thanks for the info.

Dear Claire,

I have had ultrasounds before. I had cysts previously on my ovaries. The Mayan massage sounds good! I would rather take the time to do it than end up with more problems! Where do you get castor oil packs? Do you make them yourself?

As far as the chocolate goes, The Chocolate Emporium has gluten-free, casein-free goodies. They also have soy-free chocolate chips. It is good stuff! I got their cake mixes, and they are perfect!

You should give them a go! Go to www.choclat.com for the treats!

Dear Christine,

I have heard some scary stuff about cavitations as well. I am scared, because I need to get my wisdom teeth out. They are causing trouble. I am not in a good situation with these things. They are causing migraines.

Sincerely,

NoGluGirl

[rinne]

.....

Everything I do is pretty inconvenient nowadays....take away my microwave and you may as well shoot me.

I think if you investigated microwaves you might be thinking about them the way you are now thinking about your pots and pans.

Sorry, I'm just having a down time right now too.

.....

Sending hugs, I hope you are feeling better now.

Dear Rinne,

Thanks for the salt info. I needed that. I wondered if there was anything more affordable. It is so difficult to afford stuff. Unless we win the lotto soon, or business really picks up for me, nothing much is going to get going.

Sincerely,

Jin

Salt/C is a pretty cheap treatment for Lyme and I know it made a big difference in my energy levels, it got me up and moving last summer. Have you checked out the Lyme Strategies site?

.......

It's gotten better but she's the same way with clothes. Very sensitive to the way they feel on her body. It Is a symptom of ADHD

......

I have this, I can't stand the way clothes feel against my body, if I could wear mumus all the time I would, as it is I often spend a good part of the day in my nightgown topped off with a variety of sweaters. My latest favourite is a pink peach scoop neck, three quarter length sleeves, and very sparkly large rhinestone buttons. I consider myself glamourously gluten free.

Wow--I just took the test in the link that Mango put up. I scored 25--anything over 14 means sensitive.

Me too.

I think it's more like spontaneous combustion!

Claire

.......

We are going to give the dairy clearings a rest for now. I was really hoping to eat dairy again, but it doesn't look like I'm going to be able to . That means no chocolate either as most of it has dairy.

Claire

Claire can you eat dairy free chocolate made in a factory that also makes milk chocolate? Anyone else? I feel very stupid about this but are there people who react to even traces of dairy as we do to traces of gluten?

[AndreaB]

I think if you investigated microwaves you might be thinking about them the way you are now thinking about your pots and pans.

Yep, them microwaves are bad, bad, bad.....

I consider myself glamourously gluten free.

I'm doing a bit better thanks.

Rachel,

How are you doing? I think you know to what I am refering.

[Clark Bent as Stupor-Man]

I really need to go back and look for that one post of Rachel's I'm thinking of.

don't know if this is the post you're referring to, but I think it might be:

Open Original Shared Link

halfway down the page (her post at Feb 18 2007, 01:01 AM) is info on mercury toxicity from a lecture by Klinghardt

[AndreaB]

don't know if this is the post you're referring to, but I think it might be:

Thanks Charlie. That is a good one. I've got it copied over now.

I did find the other one I was looking for. I really need to learn to do quicker searches.

[DingoGirl]

OMG - - I have been reading and reading and READING and I am still one day (not sure how many pages) behind.....

but wanted to say a quick HALLOOOO to all my friends.

I will forget EVERYTHING - - will reply tomorrow.

Laura - - I am both excited and slightly devastated at your appointment - as I am sure you are. Is it

F#($*#& Babs? and also waht else? I hope you're feeling better soon.....

Andrea - - much craftiness!!! Where do you find the time/energy??? I am amazed.

Donna - - - I am telling you, take DRUGS for sleep! I say, Lunesta or Ambien - - safe and gentle and non-addicting and just for a short time (much harsher drugs needed for yours truly).

Rinne - something you said cracked me up - - was it self-immolate? I use that frequently in sentences, if you can imagine - -

Jin - yes!! Help is there for you!! IT is here in California, why can't it happen where you are (Indiana, I believe?)......

Mia - - - your little cookies - - I hope they will help fatten you up and give you energy. And I am glad you can get things done in the morning - - DEFINITELY relax at night and DO NOT feel guilty!

Rachel - OMG - - the sprinkler heads - - I have destroyed several of mine - - holy Lord. Stupid lawn mowing

Patti - - halloooooo!!!!!!!!!!!!!

Um, you sillies, you did FORGET one important word - - or shall I say,

YOU DINGO'D IT!!!

as in, I dingo'd all of what I have just read in the last 15 minutes...ha ha!!

HEINOUS - - will come up wiht definition later. HARRUMPH!!!!

HI Bev!!!!!

Did I miss anyone? oh I am sure I did....Charlie? hallooo!!!

And who else??? Has Carla posted? And halloooooooo Claire!

Well love and big hugs to all of you. I will have to catch up on yesterday, and today, and then tomorrow, when it is tomorrow, and then it will be two yesterdays and a today to read.

nighty'night!!!!

and oh dear God, I think I will WALK OUT of my job tomorrow, if even a single person gives me the slightest sideways look........it is OVER AND OUT for the Dingo.......

[AndreaB]

OMG - - I have been reading and reading and READING and I am still one day (not sure how many pages) behind.....

Can't leave this place for too long. Although some days are very quiet.

Um, you sillies, you did FORGET one important word - - or shall I say,

YOU DINGO'D IT!!!

as in, I dingo'd all of what I have just read in the last 15 minutes...ha ha!!

HEINOUS - - will come up wiht definition later. HARRUMPH!!!!

How in the world did we dingo that!!!!

and oh dear God, I think I will WALK OUT of my job tomorrow, if even a single person gives me the slightest sideways look........it is OVER AND OUT for the Dingo.......

I truly hope all goes well tomorrow. I'll be thinking of you.

[AndreaB]

Andrea - - much craftiness!!! Where do you find the time/energy??? I am amazed.

How 'bout if I don't clean the house. Don't do much of that anyway. When it's nice I prefer to tackle the weed hill. The weed hill covers an semi above ground septic I think. The tanks are under ground but something is above ground. It's just one mass of weeds on three hills......horsetail or snake grass....whatever you want to call it.

That stuff is HEINOUS!!!! That doesn't include the current septic that is covered in weeds as well. At least that is level ground and no horsetail. The mounds keep me busy all summer.

[Rachel--24]

Rachel,

How are you doing? I think you know to what I am refering.

Andrea,

I'm ok.

I can handle critisism....it was just kind of not making sense to me...thats all. I'm moved on now...said what I needed to say.

I rarely post outside this thread anymore and this is exactly why.

What I'm really bummed about is the pots and pans issue. I was reading about teflon...

In two to five minutes on a conventional stovetop, cookware coated with Teflon and other non-stick surfaces can exceed temperatures at which the coating breaks apart and emits toxic particles and gases linked to hundreds, perhaps thousands, of pet bird deaths and an unknown number of human illnesses each year, according to tests commissioned by Environmental Working Group (EWG).

"In retrospect, this may seem like one of the biggest, if not the biggest, mistakes the chemical industry has ever made," said Jane Houlihan, vice president for research at the Environmental Working Group, an activist organization.

In new tests conducted by a university food safety professor, a generic non-stick frying pan preheated on a conventional, electric stovetop burner reached 736

[AndreaB]

I rarely post outside this thread anymore and this is exactly why.

What I'm really bummed about is the pots and pans issue. I was reading about teflon...

So yeah...I'm upset that I didnt do something sooner and I'm worried about the whole thing and if its made things worse for me.

Stupid Teflon.

I've just started venturing out again after totally avoiding it for the last 3-5 months.

I don't like controversy.

You always make valid, though provoking posts and I think most people see it that way.

As far as the teflon..... I knew it was bad but didn't realize it got so hot. I was told to never cook with it over a medium heat.

It probably hasn't helped but I don't know how much worse it would have made things. The thing is that you've learned about it and are doing something about it now. We can't live with "I wish I'd known sooner". I tell myself that frequently but it doesn't do anything but bring us down. We've all been learning a lot this last year (or longer) about our health and you can only be better for it.

Hope you have a good night's sleep and we'll see you tomorrow.

[miamia]

Andrea-

I felt like poo last night so I coulden;t post- but I am so sorry to hear you are having such a rough time. You have such a busy life I'm sure it must get really overwhelming. MY sister has two kids and while they are the best things that ever happened to her it is also a handful and they don't have food intolerances!!!!

I wish there was some way we on th eoh my god thread could pool together and send you to some exotic island for a rest!! you deserve it.

Rachel-

I am lucky in a way when I still lived at home when I was younger we had birds and my mom did a lot of research on pans so I knew all that info and only use the safe ones. But it is pretty scary the stuff about non stick pans and so on. I know my sister still uses them and me and mom always try to get her to switch- shes a stubborn lady though.

I don't know what happened yesturday that was bad but I hope you are feeeling better now!!

[miamia]

OMG - - I have been reading and reading and READING and I am still one day (not sure how many pages) behind.....

but wanted to say a quick HALLOOOO to all my friends.

I will forget EVERYTHING - - will reply tomorrow.

Laura - - I am both excited and slightly devastated at your appointment - as I am sure you are. Is it

F#($*#& Babs? and also waht else? I hope you're feeling better soon.....

Andrea - - much craftiness!!! Where do you find the time/energy??? I am amazed.

Donna - - - I am telling you, take DRUGS for sleep! I say, Lunesta or Ambien - - safe and gentle and non-addicting and just for a short time (much harsher drugs needed for yours truly).

Rinne - something you said cracked me up - - was it self-immolate? I use that frequently in sentences, if you can imagine - -

Jin - yes!! Help is there for you!! IT is here in California, why can't it happen where you are (Indiana, I believe?)......

Mia - - - your little cookies - - I hope they will help fatten you up and give you energy. And I am glad you can get things done in the morning - - DEFINITELY relax at night and DO NOT feel guilty!

Rachel - OMG - - the sprinkler heads - - I have destroyed several of mine - - holy Lord. Stupid lawn mowing

Patti - - halloooooo!!!!!!!!!!!!!

Um, you sillies, you did FORGET one important word - - or shall I say,

YOU DINGO'D IT!!!

as in, I dingo'd all of what I have just read in the last 15 minutes...ha ha!!

HEINOUS - - will come up wiht definition later. HARRUMPH!!!!

HI Bev!!!!!

Did I miss anyone? oh I am sure I did....Charlie? hallooo!!!

And who else??? Has Carla posted? And halloooooooo Claire!

Well love and big hugs to all of you. I will have to catch up on yesterday, and today, and then tomorrow, when it is tomorrow, and then it will be two yesterdays and a today to read.

nighty'night!!!!

and oh dear God, I think I will WALK OUT of my job tomorrow, if even a single person gives me the slightest sideways look........it is OVER AND OUT for the Dingo.......

Susan-

nice job replying to everyone- perhaps dingo'd it refers to consuming large amounts of info at once and actually processing and reacting to it in a coherant way. For us brain fog victims this is a very impressive feat!!!

[miamia]

Jin, my doctor told me that if you are hyperthyroid, you don't want to be giving someone more thyroid hormones! But, if you are hypothyroid, Armour Thyroid is pretty good and better than the synthetic stuff.

Ultrasounds aren't the most fun procedure in the world, but I've had worse procedures! If you PM me your address, I can send you some information on how to do Mayan abdominal massage. They will help with getting more blood flow to your reproductive organs and can help keep your uterus and ovaries healthy. It doesn't cost anything! You can also do castor oil packs yourself, and you only have to pay for the castor oil. It's very healing for the abdomen, just time consuming.

Recipes please! I'm a fan of cranial-sacral too.

I think it's more like spontaneous combustion!

Claire

Whats the MAyan abdominal massage?

[CarlaB]

Rachel, be excited that you found out about the pots and pans! This may open up new food possibilities for you!

I've been reading about the Questran my doc has me taking. It's interesting stuff. It binds to the bile in the colon and prevents the toxins from being reabsorbed by the liver. This way you eliminate the toxins instead of just constantly reabsorbing them. I Googled "questran toxins" and found information on this.

It used to be used primarily for lowering cholesterol.

I've stayed away from that other thread. I bring up other illnesses, Lyme included, when I think appropriate. I do NOT bring it up all the time ... only when someone's not improving completely on the gluten-free diet and has what I would call "classic Lyme" symptoms. I've noticed that other non-Lymies sometimes bring up Lyme, too. I think in some cases we'd be doing a person a disservice if we didn't bring it up.

I've had too much brain fog to participate in that particular discussion though. Adam, Chloe and I all came home from NY with a bad head cold. At least I know my immune system is working ... I got sick! At first I thought it might be some kind of allergies because the airplane had a hard time with the pressure. My ears were popping more than usual and my water bottle and Mepron bottle had all the air sucked out, worse than normal. I thought maybe there was mold on the plane or something, but now I'm thinking it's more like a virus.

[dlp252]

Claire can you eat dairy free chocolate made in a factory that also makes milk chocolate? Anyone else? I feel very stupid about this but are there people who react to even traces of dairy as we do to traces of gluten?

I think I can eat traces of it without reacting...not sure what it's doing to my insides though...but I actually have to eat a decent quantity to get reactions. However, small amounts of it will build up...for instance, if I have a little piece of chocolate everyday...I seem to start getting symptoms by the end of the week. That's regular milk chocolate. If I eat large quantities, well, I react pretty quickly...within a day or two.

Donna - - - I am telling you, take DRUGS for sleep! I say, Lunesta or Ambien - - safe and gentle and non-addicting and just for a short time (much harsher drugs needed for yours truly).

Drugs it is. I've slept slightly better in the last two nights, but not nearly well enough to catch up. I'll start asking my doctors what they think.

How 'bout if I don't clean the house. Don't do much of that anyway.

Ha, Saturday I went shopping at Target...bought some cleaning stuff and a couple of tee-shirts. They put the cleaning stuff in a separate bag, which I didn't realize. I just walked off with the one with my tee-shirts in it. Fortunately I had to wait for my mom and aunt, so I was waiting by the door--there is always a security guard there. He had been chatting with me when the lady who rang me up came over with the second bag. So he says..."good thing you got it before you got all the way home" and I said "oh, it's only cleaning supplies, I wouldn't have missed that for months" :lol:

I can handle critisism....it was just kind of not making sense to me...thats all. I'm moved on now...said what I needed to say.

I rarely post outside this thread anymore and this is exactly why.

I didn't understand the critisim in the first place. I almost went back to reread what you had posted because I didn't think you meant at all what she said from what I remembered. I almost posted that, but then I thought it would just prolong it.

I've been reading about the Questran my doc has me taking. It's interesting stuff. It binds to the bile in the colon and prevents the toxins from being reabsorbed by the liver. This way you eliminate the toxins instead of just constantly reabsorbing them. I Googled "questran toxins" and found information on this.

It used to be used primarily for lowering cholesterol.

Sounds like interesting stuff.

[CarlaB]

I didn't understand the critisim in the first place. I almost went back to reread what you had posted because I didn't think you meant at all what she said from what I remembered. I almost posted that, but then I thought it would just prolong it.

I think that the person who jumped on you has really healed on the gluten-free diet. She has completely healed of many of the symptoms that many of us also have, but in our case, they've not gone away. I think she's very frustrated when someone suggests she's a 'lesser celiac' because her celiac tests came out negative. I know you didn't imply she was a 'lesser celiac' and neither have I, but I think she sometimes take it that way when we mention that our intolerance is likely from another disease/toxicity.

She has gotten better. There are people who truly have a gluten intolerance and who test negative for celiac and get completely better gluten-free. I wish I fell into that category. I tried to force myself into that category for a long time.

I don't think celiac is a lesser disease than Lyme, but I do think celiac is much easier to treat and there's not the danger of relapse. I know that in the beginning celiacs and Lymies present many of the same symptoms and at the same level of illness.

I think it's good for you, Rachel, to post outside this thread, don't let one person stop you. She is very valuable to this forum because she has gotten better on the gluten-free diet and tested negative for celiac. You and I are valuable because the gluten-free diet helps us, but our intolerance is likely from something else. Both types of people add to the forum, both types show that not all gluten intolerant people test positive for celiac disease and not all gluten intolerant people get completely better on the gluten-free diet.

Many people come here because their symptoms are similar to celiac symptoms. There are other diseases, like Lyme, that have similar symptoms. I think it's entirely appropriate in some circumstances to bring up these other diseases because in some cases, people are wanting to look for all their options, yet because it's a celiac forum, I'll mention Lyme, but when additional questions come up about it, I try to keep that talk in PM's.

I also find it interesting that I read about gluten intolerance DAILY on the Lymenet forum. I think that shows how gluten intolerance can be a result of Lyme Disease and why we get so many people here who have Lyme. This is ONE type of gluten intolerant person ... the other person is a different type of gluten intolerant person. We all belong here, in my opinion (of course, the final determination is with the admin).

[CarlaB]

Sounds like interesting stuff.

My chelator is very interesting, too. Open Original Shared Link. I have to wait a couple weeks to start it though as my LLMD wants me to ease into the amoxy first, over a period of four days ... and I haven't even bought it yet. I'm taking a "rest" day ... this head cold is killig me.