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Omg...i Might Be On To Something

Rachel--24

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tom Contributor
tom
Posted
I'll be able to be like Tom and get online anywhere on my phone!!! Adam got me an iPhone. B)

Whooooooooooaaaaaaaaaaaaaa!

The comm'ls are certainly impressive!

You'll be so psyched the 1st time you're in a store and think "I should look up this product/ingredient/whatever when I get home" then realize u can do it immed!!!

Or leaving somewhere at rush hour and getting traffic/accident info real-time w/ 1 click on a bkmrk.

Or or or . . . . . . .gazillion examples! :)

I'd like to hear your opinion on the 'virtual keybd' once u get a little used to it.

I'm very wary (finding it scary) to carry a keybd w/ nary a key.

:P

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tabasco32 Apprentice
tabasco32
Posted

Andrea

I really wish I could go. I feel I need to as this is getting worse. Maybe it was the L-Glutamine or the whey protein. I don't know what would mobilize the toxins anyway. It seems like everything moves them around.

DO you know if castor oil packs will mobilize them as well? I really don't have anymore money. I do have an appointment on july5 with Dr. Elizabeth but might need to cancel.

What should I do till then?

I'm so afraid that I have a lot of anxiety now. I can't even think right.

SO rachel are you still going to take charcoal if you can't detox the mercury? When is your laser treatment anyways?

miamia Rookie
miamia
Posted

hey all

does anyone know when people posted about their metal toxicity results-I am scared to go back

CarlaB Enthusiast
CarlaB
Posted
Whooooooooooaaaaaaaaaaaaaa!

The comm'ls are certainly impressive!

You'll be so psyched the 1st time you're in a store and think "I should look up this product/ingredient/whatever when I get home" then realize u can do it immed!!!

Or leaving somewhere at rush hour and getting traffic/accident info real-time w/ 1 click on a bkmrk.

Or or or . . . . . . .gazillion examples! :)

I'd like to hear your opinion on the 'virtual keybd' once u get a little used to it.

I'm very wary (finding it scary) to carry a keybd w/ nary a key.

:P

If you go to an AT&T store, they have display models that you can thoroughly check out. I liked it a lot better than Adam's old Trio (which he hates). The keypad didn't seem that difficult, but my fingernails have gotten so long that it was kind of hard for me to use. Adam and the man in the store did not have the same problem as I did ... but I'll let you know.

Miamia, I don't know if anyone posted them ... I got a 12 on lead with a reference range of 4 being okay. I got a 4.1 on mercury with a 4 being okay.

I got my copy of the stool test today. Overgrowth of klebsiella and citrobacter. No E. Coli or Bifidobacterium, which is BAD. None at all.

I had no parasites, which is good. Very low yeast, just a 1 with 4 being bad. It is NOT candida, just yeast. I guess they didn't do a candida test.

I've been reading online about this stuff and many of my symptoms point to this problem. It seems very strange that the GI didn't pick up on this.

tabasco32 Apprentice
tabasco32
Posted

Hi mia

I got 24 with 2 being normal.

happygirl Collaborator
happygirl
Posted

just saying hello :) :) :)

and the camry is now mine. a wonderful addition to the family ;)

AndreaB Contributor
AndreaB
Posted
DO you know if castor oil packs will mobilize them as well? I really don't have anymore money. I do have an appointment on july5 with Dr. Elizabeth but might need to cancel.

What should I do till then?

We are going up on the 5th! What time is your appointment. Ours is at 11:30. Please don't cancel. Will your dad take care of it? I really think she'll be able to help you.

hey all

does anyone know when people posted about their metal toxicity results-I am scared to go back

I posted Donna and my hair analysis, but there isn't anything together for the challenges. You've got lots of responses for those already.

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tom Contributor
tom
Posted
Dear Andrea,

Yes, food families are a strange thing! Beets and quinoa are in the same group! :o

I remember 1st seeing the lists, prob a candida book. Sooooooo strange! Wish I remembered which I thought was the funniest/strangest.

I even had half a nerve to draw a little chalk outline where she was squished, . . .

:lol:

Dear tom,

Did you have a nice flight back to Phoenix? Flying can be a big pain. If you are organized, it helps. How long is a flight from Phoenix to San Jose? I have never flown, but I think I would like it better than driving.

Phx->SJ ~1:50

Flight sure started weird. I was 14D(aisle) & asked if there was a closer-to-front aisle available. Guy got me 4C and printed it up.

I get to 4C and there's a woman there and HER boarding pass stub is IDENTICAL to mine!! Weren't computers supposed to prevent this?

Plenty empty so I sat couple rows back.

Did I post about the incredible kids on the way to SJ? I brought a book, newspaper, mp3s but was too busy yappin' w/ a 14 & 15 yr old instead! The 14 yr old girl had written a book!! Her brother was quite accomplished also. Laughin & talking interesting things the whole way. The boy actually told ME things about space travel I hadn't know (or hadn't remembered - and I almost majored in astronomy!)

dlp252 Apprentice
dlp252
Posted
And as u all may have inferred, my SJ trip was spectacular!

Definitely moving back. But maybe a month in Portland 1st. (Don't tell my sister yet! hehe :) )

Well, very cool!

hey all

does anyone know when people posted about their metal toxicity results-I am scared to go back

I posted mine somewhere around the 3rd week of May...I think my appointment was the 22nd or 23rd, so it would have been the day or two after that. I'll look and repost.

I got my copy of the stool test today. Overgrowth of klebsiella and citrobacter. No E. Coli or Bifidobacterium, which is BAD. None at all.

I had no parasites, which is good. Very low yeast, just a 1 with 4 being bad. It is NOT candida, just yeast. I guess they didn't do a candida test.

I've been reading online about this stuff and many of my symptoms point to this problem. It seems very strange that the GI didn't pick up on this.

I'm not surprised, my GI didn't find the HPylori or the Klebsiella either. I'm glad it's pretty good news though...why don't they test for candida? None of my doctors have tested for candida...I don't get it, lol.

and the camry is now mine. a wonderful addition to the family ;)

Congratulations on your new addition!!! :lol:

Did I post about the incredible kids on the way to SJ? I brought a book, newspaper, mp3s but was too busy yappin' w/ a 14 & 15 yr old instead! The 14 yr old girl had written a book!! Her brother was quite accomplished also. Laughin & talking interesting things the whole way. The boy actually told ME things about space travel I hadn't know (or hadn't remembered - and I almost majored in astronomy!)

I never sit next to anyone interesting...I can meet and talk to the most interesting people in waiting rooms, but not on flights where it would be more appropriate, lol.

dlp252 Apprentice
dlp252
Posted

Oh heck, I'm just going to retype my metals report, lol...can't go back any more! :lol: This report shows everything except silver as being below the reference range, but my doctor thinks this is just because my body is not able to release it. This was hair analysis and because I dye my hair this was the unmentionable hair, lol...that is less accurate than regular hair. I think at some point he'll do a challenge, but we're not ready to chelate yet so no point in doing it yet. My total toxic representation was mentioned in the report, but there was no score attached to it...the doctor had it X'd though, but I can't remember what he said about it--it was below the 68th percentile though...have no idea what that means. More off balance were my essential elements scores.

Aluminum 2.5 (<12)

Antimony 0.011 (<0.060)

Arsenic 0.020 (<0.090)

Beryllim <0.01 (0.020)

Bismuth 0.15 (2.0)

Cadmium 0.033 (<.10)

Lead 0.02 (<1.0)

Mercury 0.14 (<1.1)

Platinum <0.003 (<0.005)

Thallium <0.001 (<0.010)

Thorium <0.001 (<0.005)

Uranium 0.044 (0.060)

Nickel 0.23 (<0.40)

Silver 0.18 (0.10)

Tin 0.05 (<0.30)

Titanium 0.71 (<1.0)

tabasco32 Apprentice
tabasco32
Posted

Andrea

It was actually today. I forget about it. I thought it was on the 5. They forgave me and will not charge me the absent fee. I resheduled for next wednesday at 2:30. I am crying and begging my father to take me. HE says that might be too much for him. It will be about seven hundred for the tickets and 260 to see elizabeth. Yeah about 1000 green ones. I want to go sooo bad.

I hurt more everyday.

He says he is going to look for a doctor closer to home that deals with mercury toxicity. But what can they do?

Mtndog Collaborator
Mtndog
Posted

hi y'all! Just wanted to pop in.

You know what, just cuz I wanna from now on I'm going to poop in cuz it cracks me up :ph34r::lol:

OK- pooping in to say hello. I love all the new pics- the Glamour Shots are crazy!!!!!!!!!! Everyone looks DIVINE in them.

Andrea- If I dingo'd it I'm sorry but how is Seth doing?

Lisa- I'm so sorry you are getting sicker and sicker. Just make sure your doctor knows that you can't have ANYTHING with gluten right now. A bug warm hug for you!

Susie- I met a dingo at the dog park! I spotted her from a mile away...she looked so much like your girls. She was so cute. Her name was Luna and it was instant puppy love with Angus. Made me wish WE could meet at the dog park :wub: :wub:

My HERXATION HIDEOSA is ovah! Amen! I couldn't even sleep in our bed Thursday night- had to sleep on the couch. Yuck a dookie! Glad that one is over.

Oh and I lied- it was my TtG IgA that was elevated. It was a 20 in February of 2005 and is now down to a 2! That with the gene and the dietary response makes me a confirmed Silly Yak. I think the Lyme triggered it and then kept me from getting better. So all you non-Celiac but gluten intolerant- you can have my Big mac and eat it too! I'll settle for chocolate ice cream with gluten-free hot fudge and 900 Reese's pb cups!

CarlaB Enthusiast
CarlaB
Posted
A bug warm hug for you!

:lol::lol: Bugs aren't on your mind are they?

Glad herxing is over for now. :) Adam moves from the bed for me when I'm herxing. :wub: It's the first sign a herx is coming on ... wearing earplugs helps a lot though, so maybe one day per month he ends up moving somewhere else ... before earplugs it was the whole herx.

tom Contributor
tom
Posted
Cool fact: the first bristled toothbrushes were made in China and arrived in Europe during the 1600s.

Whoa! Wonder what a pre-bristle tooth-uhhh-wiper? (Not BRUSH!!) was like.

So much of the history we learn in the West is overly eurocentric. Greeks like to claim the birth of civilization, but weren't the Chinese at *least* as advanced back then? Annnnnnnnd they knew enough to grow rice instead of that evil wheat :lol: LOL!!!!!!

AndreaB Contributor
AndreaB
Posted
The guys had stepped away from the grill and a bird swooped down and grabbed, struggled w/ the size of, but got away w/ a HUGE sausage!!

I think he was hero to the whole flock after *that* move!!! :lol:

:lol::lol::lol:

Andrea- If I dingo'd it I'm sorry but how is Seth doing?

You didn't dingo it, I dingo replying to it. :D

He's doing good. Doesn't look too bad. We did put some ice on it yesterday after it happened. He wasn't too thrilled with that.

Bummer about the 5th Lisa. It would have been cool if you were up there around when we were. I make all my appointments for late morning so I can get out of the area before 2. That's when traffice gets real bad and I don't relish a super long drive home. It's about 2 1/2 hours as is with no traffic problems.

I do hope you'll be able to get up here next week.

tabasco32 Apprentice
tabasco32
Posted

Does anybody know how to calm down the inflammation in the intestines. ANything to take?

I am crying I am in so much pain in my intestines my mom is massaging them. but they still hurt and are inflammed. MY doctor gave me black currant oil for the pain but I don't know if that will help.

tom Contributor
tom
Posted
You know what, just cuz I wanna from now on I'm going to poop in cuz it cracks me up :ph34r::lol:

OK- pooping in to say hello. I love all the new pics- the Glamour Shots are crazy!!!!!!!!!! Everyone looks DIVINE in them.

Lisa- I'm so sorry you are getting sicker and sicker. Just make sure your doctor knows that you can't have ANYTHING with gluten right now. A bug warm hug for you!

. . . . . . . My HERXATION HIDEOSA is ovah! Amen!

Ok then Bev, a quick poop-thru response for u! :o

Crackin me up too!

U sure sound a ton better! (Yay ovah!)

But ixnay on the ugbay ughays!!!!

Lisa!!!!!

Leeeeeeeeeeeeee-saaaaaaaaaaaaa!!! Whaetgerm in something? I haven't read all the pages so I'm assuming others have commented on this. (Am I guessing wrong? Can wheatgerm actually be ok for u?)

Lisa - I am far more familiar than I'm comfortable talking about that feeling of struggling to keep hope alive.

You've only seen post-recovery tom.

I only . . . .ONLY! . . . made it here by refusing to give up.

It took me a while, but u CAN do it too, and I hope it doesn't take as long.

Be Strong Lisa.

You can and u will.

[Edited out the more melodramatic parts - I don't wanna see 'em]

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
It was actually today. I forget about it. I thought it was on the 5. They forgave me and will not charge me the absent fee. I resheduled for next wednesday at 2:30. I am crying and begging my father to take me. HE says that might be too much for him. It will be about seven hundred for the tickets and 260 to see elizabeth. Yeah about 1000 green ones. I want to go sooo bad.

I hurt more everyday.

He says he is going to look for a doctor closer to home that deals with mercury toxicity. But what can they do?

Lisa,

This is my advice to you. I would not spend $1000 to go up there for one ART session. First of all this is an illness thats going to take some time and $$ to recover from. Spending alot of money for one session isnt gonna do a whole lot to change your situation right now.

I agree with your dad on finding a GOOD Dr. close to home. Rememeber....you need your Dad's help....spending $1000 to see one Dr. (whos not in your area) for one ART session is not what you need right now.

If your dad is going to spend the money I think it should be on getting the best Dr. to help you get through these amalgam removals.

If you had alot of money to spend I would say go ahead and get the ART so you can get a better idea of what supplements to take. This is not the case though...you dont have alot of money and you already KNOW that you're toxic from mercury. You need to get the fillings out first and you need the BEST Dr. you can find in your area...or at least in the Bay Area.

I think ART will be alot more beneficial once the removals are done and you can focus on getting yourself detoxed. Right now you're so toxic and STILL getting mercury from the fillings....things are gonna constantly change in your body especially while you're still in this situation and still getting exposure from the amalgams.

Even if you fly to Washington and get tested for some supplements and you test fine for them today...it doesnt mean that 3 days from now you wont develop a problem with them. Its not gonna put you in a different situation than what you're in right now. In my opinion its not worth it to spend that much money right now.

The best thing to come out of it will be that you'll be able to find out what other issues you have....like Lyme...or other infections. I think you can do all of this with ART later on...after the fillings are out. Even if you find out a bunch of stuff...the priority is still the same...get the fillings out first. No matter what else might show up...nothing is going to take precedence over getting the amalgams removed.

Thats my opinion. Do ART after you've gotten your fillings removed...right now have your dad help you find the best Dr. you can get in this area....thats what you need more than anything right now. An experienced Dr. who's dealt with patients who are highly toxic....and highly sensitive.

I promise you that if you can be strong and get yourself through this process I will do everything in my power to try to get you an ART session in this area.....I will pay for it myself. I just think its best to get a good Dr. here and to get the fillings out while under the care of a knowledgeable Dr.

ART can give you some answers but its not going to get you through these removals better than an experienced Dr. can.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Does anybody know how to calm down the inflammation in the intestines. ANything to take?

I am crying I am in so much pain in my intestines my mom is massaging them. but they still hurt and are inflammed. MY doctor gave me black currant oil for the pain but I don't know if that will help.

Are you getting worse pains now that you're taking new supplements??

It seemed like you were feeling a little better before adding in the new supplements your Dr. gave you. Nobody can guess as to what you're going to react to.

I would not touch black currant oil....I dont even know what it is but I know I wont touch it. Maybe it'll be different for you but for me...I do NOT handle supplements well at all. I feel better not taking alot of things.

I dont take anything to relieve symptoms...I dont take anything to "soothe" me....I only take the very few things which are essential. My thyroid meds, some detox support, my Lyme treatment, my B12 shots, minerals, nystatin and whey protein.

This is only recently...since I've been going to BioSET and ART...before that I *ONLY* took my thyroid meds....nothing else. I felt alot better not taking anything...I always got worse trying to take random things.

You *are* going to have to take a few things to get you through the rest of the removals. You need a Dr. to put you on the things which are essential to help your body cope with the removals. I wouldnt consider black currant oil to be essential and its just another thing you're probably going to react to.

Dont put extra stress on your body by taking a bunch of different things. If your new Dr. doesnt realize how sensitive you are and that you cant tolerate these things...find another Dr. who *does* understand this and has dealt with patients like you before.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Be Strong Lisa.

You can and u will.

Ditto! :)

tabasco32 Apprentice
tabasco32
Posted
Dont put extra stress on your body by taking a bunch of different things. If your new Dr. doesnt realize how sensitive you are and that you cant tolerate these things...find another Dr. who *does* understand this and has dealt with patients like you before.

Rachel do you mean having these almagams are making me sicker everyday?Do I need to take them out and fast? But I am sooo weak to have 6 more taken out of me. Fresno has no doctors who specialize in this. I wish they would just pull them out.

CarlaB Enthusiast
CarlaB
Posted
It took me a while, but u CAN do it too, and I hope it doesn't take as long.

Be Strong Lisa.

You can and u will.

Yes, hang in there, Lisa. It's hard. I was in a decline for four years before I got diagnosed last December. When I started feeling better, people here even noticed a difference in my posts. It's hard and it takes time.

Like Tom said, you do face death and the struggle to keep hope alive. There were plenty of days I would have rather died than continue the fight. I don't believe in taking one's own life, so that never was even a thought, but there were days I'd rather die than live.

As always, I look at the bright side ... I'm no longer afraid of death. ;) I'm finally getting better after a long road. Even this is difficult ... today I'm fine, but in another week and a half I'll be herxing again.

You'll have ups and downs. This is the low for you ... keep working on detoxing, keeping the bowels moving, eat some protein when you can (filets sound like a good idea, but eat some fruits or veggies if you can tolerate them for some fiber). You need to get the fillings out and get detoxing.

I promise you that if you can be strong and get yourself through this process I will do everything in my power to try to get you an ART session in this area.....I will pay for it myself. I just think its best to get a good Dr. here and to get the fillings out while under the care of a knowledgeable Dr.

ART can give you some answers but its not going to get you through these removals better than an experienced Dr. can.

Good advice ... all of it, I cut it for the sake of saving space.

tabasco32 Apprentice
tabasco32
Posted
Yes, hang in there, Lisa. It's hard. I was in a decline for four years before I got diagnosed last December. When I started feeling better, people here even noticed a difference in my posts. It's hard and it takes time.

Like Tom said, you do face death and the struggle to keep hope alive. There were plenty of days I would have rather died than continue the fight. I don't believe in taking one's own life, so that never was even a thought, but there were days I'd rather die than live.

As always, I look at the bright side ... I'm no longer afraid of death. ;) I'm finally getting better after a long road. Even this is difficult ... today I'm fine, but in another week and a half I'll be herxing again.

You'll have ups and downs. This is the low for you ... keep working on detoxing, keeping the bowels moving, eat some protein when you can (filets sound like a good idea, but eat some fruits or veggies if you can tolerate them for some fiber). You need to get the fillings out and get detoxing.

Good advice ... all of it, I cut it for the sake of saving space.

What type of doctor. Is there a name for a doctor like this. What are they called?

AndreaB Contributor
AndreaB
Posted

How far is Fresno from LA?

That doctor down there would be closer and has also studied Klinghardt protocols.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel do you mean having these almagams are making me sicker everyday?Do I need to take them out and fast? But I am sooo weak to have 6 more taken out of me. Fresno has no doctors who specialize in this. I wish they would just pull them out.

Lisa,

I'm going to pm you the name of a dentist I've seen. He's not the one that removed my amalgams but he's good...and he knows alot about this stuff. I was referred to him last year to check for possible infections/cavitations.

I asked Scott...he suggested the dentist....that you might call him and he might be able to refer a good Dr. You might have to travel to the Bay Area but it would be worth it if the Dr. is really experienced.

I would call and explain how sick you are...in the process of removals, chemically sensitive and needing a good Dr. to help you. Hopefully he can recommend someone for you.

I'll pm you the info. after I eat dinner and look for his card somewhere in my mess. :rolleyes:

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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