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Omg...i Might Be On To Something


Rachel--24

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Rachel--24 Collaborator
In the past 2 years we have also not done anything to prevent pregnancy. Then a month and a half on this protocol and I'm pregnant?? I thought this was pretty wild.

Wow...I agree that its pretty wild. :o

I had mentioned your situation to my friend...and actually the first thing she said was "She got pregnant because she removed her fillings and mercury was getting shifted". :blink:

She said it just like that...very "matter of factly".

She made some other comments about that but I couldnt retain everything....stuff about mercury and the reproductive organs.

I had no idea that you had been trying and were not successful. Of course it could easily be explained by your supplements too. I just kind of got blown away by what she said and then now reading your post. :unsure:

Anyways, her advice was to "follow the advice of a medical Dr."

She did mention chlorella as being safe. I think she was saying that so much mercury is excreted through breast milk (very toxic) but when enough chlorella is taken the milk can actually turn green....and when its tested it is CLEAN.

I'm pretty sure thats what she said but I was trying to retain alot of info. at once. Luckily, I'm not too brainfogged these days. :)


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Rachel--24 Collaborator

Well...I got kind of lost in the thread....jumping around and not necessarily in any particular order. :P

I just wanted to say CONGRATULATIONS to Rinne for her HUGE accomplishment (which I know from personal experience is NOT an easy thing to do)!!

Rinne.....I'm super excited for you and I know you will continue to feel better after having made this big step. :D

OK...I'm sure I missed other important stuff but I'm too tired now.

Patti....me thinks the caffeine is wearing me out. :lol:

Oh....if anyone wants to be truelly amazed by recent events that have occured....check out my last post in the oxalate thread. :D

tom Contributor
I am taking up golf and reclaiming my body.

Whoaaaa that's great!

And a yippee for the holiday world too. :)

. . . . . the monsters I have. :P

:lol: I bet they're lil darlin's.

And I've been meaning to see my sister in Portland . . . . ..

Of course, had to take care o' bidness in SJ 1st. But any day now I'll have a ticket to PDX. How far are ya? 2.5hrs maybe? Heehee

I can actually study and REMEMBER the info I studied! That's HUGE for me!

Love the sound of THIS!

. . . I need something to help me wake up as I almost fall asleep while on the freeway to school! Any ideas?

I've seen a report that claimed the heat of a drink is part of the wake-up call. Maybe hot thin soup or just broth?

. . . I'm really excited . . . .

:) :) yay! :):)

Green12 Enthusiast

So I had an appt tonight with the Body Scan (similar to ASYRA, different software) and I am a little discouraged :(

My toxic burden is big time viris, fungis, parasites and 8 out of the 10 lymphs are blocked.

I had been on protocols for all of this stuff for several years, but took a break for the past 5 years, it looks like I pretty much have to start all over and from square one :( .

An interesting factoid is the last 3 scans I have done lyme comes up at the top :blink:

Is this laser thing anything like a cold laser?

Rachel, I like the sound of your plans, and you post them with such enthusiasm too- that's a good sign!

I saw what you did today in the oxalate thread :lol: You've come such a long way, you must post the picture capturing this momentous occasion! Who would have thought last year at this time that you would be able to eat chips and salsa normally, very exciting :D

Ami, congratulations (officially) :)

Kassandra- blueberries? :lol::lol: Well that might explain it.

I know I missed a lot of other posts, must go back and get caught up.

miamia Rookie
So I had an appt tonight with the Body Scan (similar to ASYRA, different software) and I am a little discouraged :(

My toxic burden is big time viris, fungis, parasites and 8 out of the 10 lymphs are blocked.

I had been on protocols for all of this stuff for several years, but took a break for the past 5 years, it looks like I pretty much have to start all over and from square one :( .

An interesting factoid is the last 3 scans I have done lyme comes up at the top :blink:

Is this laser thing anything like a cold laser?

Rachel, I like the sound of your plans, and you post them with such enthusiasm too- that's a good sign!

I saw what you did today in the oxalate thread :lol: You've come such a long way, you must post the picture capturing this momentous occasion! Who would have thought last year at this time that you would be able to eat chips and salsa normally, very exciting :D

Ami, congratulations (officially) :)

Kassandra- blueberries? :lol::lol: Well that might explain it.

I know I missed a lot of other posts, must go back and get caught up.

Julie-

I really feel for you, when i had the muscle testing done my toxic burden was so high, parasites, yeast etc where stilll such big issues I felt like these are things i have been battling for so long. So what is your plan now that you have had the scan done?

I had another ionic foot bath done and there was alot of oil that was released which usually means the lymphs are under alot of stress so looks like we have this in common as well. I am going to look into lymphatic drainage massage. HAve you ever done or thought of doing this?

Keep me posted

Miamia

tom Contributor

Mornin' Donna!! :lol:

(WhF better not be open @6:15!) :unsure:

dlp252 Apprentice

Hello to all...I'm having such a hard time keeping up these days...I've been eating chocolate. :ph34r:

I wake up @ 6:30 a LOT more often than you think! :blink:

Do NOT tell me WhF opens @6! :D

WF opens at 8:00, lol. Totally within the realm of possibility, but I'm fast...if you blink you may not see me. :lol:


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Judyin Philly Enthusiast
Julie-

I am going to look into lymphatic drainage massage. HAve you ever done or thought of doing this?

Keep me posted Miamia

I'VE HAD THIS MIAMIA.........IT WAS AND IS WHEN ALLOWED TO DO $$ WISE AND REFERAL WISE.

I HAVE ALOT OF LINKS BUT I'D GO TO GOOGLE AND TYPE IT IN AND THEN DO A LOCAL SEARCH FOR THOSE CERTIFIED IN YOUR AREA AND UNDER YOUR INSURANCE IF YOU HAVE SOME.

MAKE SURE IT'S A REPUTABLE CERTIFIED PT..................THAT'S THE KEY

I HAD TO 'FIRE' ONE AS SHE WAS A 'DOLT' SO SEARCHED FOR MONTHS AND FOUND ONE IN MY INSURANCE.

GOOD LUCK ..........PM ME IF I CAN BE OF ANY FURTHER HELP.

OR I CAN SEND SOME LINKS BY PM...........LET ME KNOW WHERE YOU LIVE OK.

I'LL CK NOW BUT ALWAYS LOSE MY POSTS WHEN I GO SOMEWHERE TO CK SOMETHING AND COME BACK.

HANG IN THERE YOU AND JULIEM..........I'M SO FAR BEHIND HERE

LOVE YOU ALL

JUDY

CarlaB Enthusiast

Ami, didn't you say you started thyroid? After my experience teaching NFP, which was often helping people interpret charts to get pregnant, I'd say it was getting your thyroid up that pushed you over the edge. Taking the other stressors off your body, including getting the amalgams out, but equally important any change in diet, would have also helped. The people I worked with who were able to get pregnant with our low-tech methods, it usually was that simple -- diet, supplements, thyroid. It raises your temps and increases your luteal phase. :) But, yeah, no surprise here. :)

Rachel, I did understand it was different than LED ... but I'm thinking it would be a start for me. :) It's pretty cheap, and it's got to be a help, especially if G. likes it so well. If it does nothing, well, I'm *only* out 200 bucks. I've spent more than that on nothing before! :P

Donna, back away from the chocolate, you have a cruise to feel good for!

tom Contributor

<squinting> hey look! Over in Produce! Isn't that .. <blink> :blink: huh? Where'd she go? :blink: <blink>

Could've sworn I saw Donna over there . .. . . guess not . .. . .

tom Contributor
Hello to all...I'm having such a hard time keeping up these days...I've been eating chocolate. :ph34r:

WF opens at 8:00, lol. Totally within the realm of possibility, but I'm fast...if you blink you may not see me. :lol:

Chocolate!? :o:blink: (dang! blinked already!) Even if we're just talking WhF, there are too many parts of the store w/ chocolate!! And it might be 1 out 3 stores overall have chocolate!

Hardware stores have candy bars! I bet that "Nothing but Toe-Socks" store @Pier39 has toe-shaped chocolate!

I WAS pretty big on chocolate (very regularly buying multiple bags when on sale and often getting the huge 8oz bars & finishing them the day they're bought), but is it really better than a clearer brain?

Hey!! 17 days? 16? The cruisin' countdown is on! (Uhhhh is it mexico or carribbean? I should remember this.)

dlp252 Apprentice
Donna, back away from the chocolate, you have a cruise to feel good for!

Yeah, not to mention the extra 10 pounds I'm carrying now that I wanted to make a dent in BEFORE I went. :(

<squinting> hey look! Over in Produce! Isn't that .. <blink> :blink: huh? Where'd she go? :blink: <blink>

Could've sworn I saw Donna over there . .. . . guess not . .. . .

:lol: That's about right.

...but is it really better than a clearer brain?

Keep saying the same thing to myself...! :P

Hey!! 17 days? 16? The cruisin' countdown is on! (Uhhhh is it mexico or carribbean? I should remember this.)

Mexico...Mazatlan, Puerta Vallarta and Cabo San Lucas... :P (Almost have my friend convinced to do an ATV ride through the desert.)

Green12 Enthusiast
Eucalyptus oil. Put about 10-15 drops in your shower (just drop it onto the floor and let the steam activate the scent) or enhale straight from the bottle lol throughout the morning. :rolleyes: I dunno, works for me :):rolleyes:

I really pop in at the most random times :rolleyes:

YAY Mango posted :lol:

This is a really good tip, I wonder if you can do this with different essential oils, like I am thinking relaxing calming oil of lavendar?? I might have to try it, see what happens.

Mia, you are such a sweatheart :wub:. Looks like we are in the same boat.

I am going to go to someone new, have a bunch of tests run, she does ART and the body scan as well, and then she'll put me on a protocol to address what all comes up. I am hoping I can get in next week.

I have not had lymphatic massage, although it comes highly recommended. If you go get one, let me know how it goes.

The ionic foot bath sounds interesting, do you think it makes a difference?

Hi Judy, I've been trying to keep up with what's going on with you in the oxalate thread, I hope all is well.

I hate to be a task master but I just wanted to mention we need to stay on topic as much as possible because the threat hangs over us everyday to be moved into the gab section, something I would hate to see happen.

rinne Apprentice
That's all! Wow, that's not long!

I'm excited about the prospect too. Of course she may not like me as well once she meets the monsters I have.

:blink: They are adorable and I am sure only mildly monstrous. :lol: Seriously andrea, we can see from their photos what sweet children they are, I am sure that has everything to do with you who also has a very sweet countenance. :)

Hi, another drive-by, but I'll be catching up soon.

This was posted by our favorite alternative expert over on LN .... it's an at home laser detox kit that's useful for anyone. /www.andreannarainville.com/

.......

And, as an added bonus, the poster said it got rid of her age spots ... important to those of us who are slightly vain.

But what about those with serious vanity issues? :lol: Thanks for the link Carla, I hope this herx passes quickly.

...

I really pop in at the most random times :rolleyes:

Hi Meredith, so nice to see you and I wonder how we can pose more questions that encourage you to stop by? How's life and where are you now? Travel plans? :)

...

I just wanted to say CONGRATULATIONS to Rinne for her HUGE accomplishment (which I know from personal experience is NOT an easy thing to do)!!

........

Oh....if anyone wants to be truelly amazed by recent events that have occured....check out my last post in the oxalate thread.

Thanks so much Rachel. :)

I know that in the past every time I quit, and I did quit, I felt deprived but now I feel liberated. I know I have not lost anything of value, instead I feel I have emerged into a brighter day. :D

I am having the occasional twitch but I just think of the tobacco companies as the lying, scheming monsters that they are and I say, " I am free, I am free, I am free at last, yahoo!!!!"

I will check out the oxalate thread, what is this about corn chips and salsa? :o

So I had an appt tonight with the Body Scan (similar to ASYRA, different software) and I am a little discouraged :(

My toxic burden is big time viris, fungis, parasites and 8 out of the 10 lymphs are blocked.

I had been on protocols for all of this stuff for several years, but took a break for the past 5 years, it looks like I pretty much have to start all over and from square one :( .

......

Julie, not great news but I suspect with the right supports now you may be able to move through this more quickly than you might think, at least I am very hopeful for you. :wub:

I think the lymphatic massage is a great idea. It is something that I thought of doing, apparently in my city of over a half million people there is one person who does it but I just never got it together to do that. I did spend time bouncing on the exercise ball which is helpful with the lymphatic system.

......

Donna, back away from the chocolate, you have a cruise to feel good for!

Yes Donna, step away from the chocolate. :P

Actually, I would say step away from bad chocolate and find some great organic semi or bitter sweet chocolate and eat only a little. :o

Ami, congratulations, how wonderful. :)

Just think, Rachelville's first baby. :)

Hi Patti, Hi Tom, Hi to everyone. :)

covsooze Enthusiast

Tom, it's a shame you can't spy on me or my personal shopper aka DH to stop me buying chocolate :rolleyes: Yes, Donna, I've been overloading on it too. Really bad news, I know.... <sigh> Haven't had any today though and plan to keep it that way. Carla posting about choclate containing lead has kinda put me off for now anyways.

Ami, congratulations on your pregnancy :lol: Since my miscarriages, I've been in touch with a charity here in the Uk called Foresight that promotes healthy eating, nutritional advice, and detoxing from heavy metals, and their research shows that all these things have a huge impact of fertility and miscarriage rates. I hope it's OK to post a link to their site here, seeing as it's a not-for-profit charity. There's loads of really good research papers there. And the interesting thing is that it's all a collection of info from mainstream research. When will mainstream drs sit up and take notice??

Open Original Shared Link

Susie

PS everyone should take a look at their papers on metals, vitamins etc, not just those of us wanting babies. The info is very helpful.

AndreaB Contributor
Andrea, I was thinking it might be a good alternative for you since it's only $200 and you use it whenever you want. Since you already know what needs to be done, you could work on it with this with your whole family. I was also thinking it might be good for me and my family since we don't have this available and are already spending a fortune on medical treatment (and college). It's better than the alternative of doing nothing. :)

Actually Dr E had considered me buying a laser and doing the LED's myself to save money but she would have had to run it by Dr. Cowden and I wasn't comfortable doing that. She worked with us though. Now we won't have the money to continue with the whole supplement regime so she wants me to email her before we need to order anything again so she can figure out what we can cut back on. Most of the stuff we have will last another 2 months.

So, I think I want to call IGeneX and get the kit mailed to me so we can just take it with us to the Dr. so he has no excuse to not order it.

I am actually starting to feel better, more energy, etc. except today! lol! I have been taking Salmon Oil and it makes SUCH a difference. I can actually study and REMEMBER the info I studied! That's HUGE for me! Last year I couldn't ever remember anything.

Good idea about IgeneX. Like Carla (or was it Rachel) said post again on LN with looking for a doctor who does a natural protocol.

Yay on the fish oil helping!

They did another test to confirm that I'm indeed pregnant. He said that at this stage of pregnancy it is so protected and there was only a short amount of time that metals would have been mobilized that he's confident no harm has been done.

That's great news!

Eucalyptus oil. Put about 10-15 drops in your shower (just drop it onto the floor and let the steam activate the scent) or enhale straight from the bottle lol throughout the morning. :rolleyes: I dunno, works for me :):rolleyes:

I really pop in at the most random times :rolleyes:

We do love when you do pop in though. :D

Either way I'd want to go up to WA and get seen about once a month. I just have to figure out cost....whos easier to schedule with and things like that. I still dont know how many more weeks until I see Amy again.

Amy can be booked up but once you get in and schedule stuff it would be easier......depends on whether she has conferences/training things she's going to as well.

I think either one would be good to see. I'd just have to get the address of Andreanna's business so I could meet you up there.

And I've been meaning to see my sister in Portland . . . . ..

Of course, had to take care o' bidness in SJ 1st. But any day now I'll have a ticket to PDX. How far are ya? 2.5hrs maybe? Heehee

We are 1/2 hour from the border so it depends on where she is in Portland.

So I had an appt tonight with the Body Scan (similar to ASYRA, different software) and I am a little discouraged :(

My toxic burden is big time viris, fungis, parasites and 8 out of the 10 lymphs are blocked.

I'm sorry you have to start over again. :(

I think ART/ASYRA would be beneficial as well. Didn't you say you were going to check that out. Cold Laser and LED are different. Someone who knows cold laser can pick up the LED quickly though.

LED would probably help with some of what you're dealing with.

Rachel--24 Collaborator
Amy can be booked up but once you get in and schedule stuff it would be easier......depends on whether she has conferences/training things she's going to as well.

I think Andreanna probably travels a bit more than Amy...I still gotta figure that stuff out. If I continue with Amy I would just try to schedule everything in advance....I dont think it would be too difficult. I wouldnt want to wait until I'm there to schedule...I would probably wanna work it out in advance to see if its doable. I'm already a patient so she doesnt have to start fresh with me....which is good.

I'm gonna call her and she what she thinks about it. :)

Rachel--24 Collaborator
I hate to be a task master but I just wanted to mention we need to stay on topic as much as possible because the threat hangs over us everyday to be moved into the gab section, something I would hate to see happen.

Good point Julie. I dont want the thread to be moved again either...I dont think it would serve the same purpose in gab/chat. I dont wanna be a task master either but at the same time I'm also not feeling like fighting the same fight over again.

If others here feel the same way about keeping the thread where it can be of most benefit....please try to keep in mind that we are monitored and try to stay on topic as much as possible. :)

CarlaB Enthusiast
Actually, I would say step away from bad chocolate and find some great organic semi or bitter sweet chocolate and eat only a little. :o

If only you could have nut butter ... my fudge is healthy ... NOTHING at all bad in it!

Andrea, Andreanna emailed me back and said it is essential to have someone trained to do the detox part, but that the laser she sells is good for balancing, scars, etc.

Rinne, okay, a lot vain ... I mean, fair skin, tan legs? Am I ready to get these brown spots cleared? YES! And as G. said on LN, it's from the skin not detoxing ... and they have gotten worse with abx treatment ... or is it just age? I've already written up the order and have giving it to Adam to fax ... but he's not going into the office today ... stayed home because of my herx. :)

Rachel--24 Collaborator
PS everyone should take a look at their papers on metals, vitamins etc, not just those of us wanting babies. The info is very helpful.

Thanks Susie! :)

I'm one who is still hoping to have babies. I'm extra motivated to clean up my body and I think in the end....if I'm blessed with kids I will be VERY glad I had to go through all this to get there.

I think of this illness as a huge blessing....with regards to having children in the future. :)

Rachel--24 Collaborator
Andrea, Andreanna emailed me back and said it is essential to have someone trained to do the detox part, but that the laser she sells is good for balancing, scars, etc.

Yeah...thats my understanding as well. The major stuff gets done in the office by a trained practitioner...the "at home" laser is good for all sorts of other things. :)

CarlaB Enthusiast

Rachel, are you kidding? When this is over, you're going to be the cleanest person on the PLANET! Having a baby will be easy ... just find that man!

tom Contributor
(Almost have my friend convinced to do an ATV ride through the desert.)

Drug & kidnap her if necessary! It'll be fun AND enlightening to get that sort of view of a desert.

Uh-oh off-topic? Or touting the general therapeutic value of a great adventure out-of-doors?

And c'mon . . .. . .if it didn't get moved while dingy was top poster of the day, how can it get moved now?

Rachel--24 Collaborator

As far as chocolate goes....does it really have lead in it?? :huh:

If so...I'm getting my fair share of it as we speak. :P

I've probably went through about 8 bags of chocolate in the past week. :ph34r:

I dont really know whats going on with my body but it seems as if things are continuing to improve. Yes, I ate normal food with everyone else two days in a row. :o

I'm not pushing my luck but it was a really good feeling. :)

Green12 Enthusiast
Julie, not great news but I suspect with the right supports now you may be able to move through this more quickly than you might think, at least I am very hopeful for you. :wub:

Actually, I would say step away from bad chocolate and find some great organic semi or bitter sweet chocolate and eat only a little. :o

Thanks Donna, right back at ya :wub:

I think that with my diet changes in place and the fact that my bowels are moving (which they weren't for years) things might fall into place as I start back up with the protocol.

Are you ok with nuts at all? Lara Bars have a chocolate line, with cocoa mass. Tastes just like chocolate candy and might satisfy your chocolate craving, but there are nuts and dried fruit mixed in.

A Native American healer I saw suggested I take bitter chocolate (no sugar, no dairy) and grate it, add to boiling water to make kind of like a "hot chocolate", maybe add in some honey or agave syrup if you are ok with that to sweeten it up a little.

It was to treat constipation (chocolate makes the bowels move, cinnamon is binding), but it also might fill the chocolate void.

Susie- I'll take a look at the link, thanks for posting :)

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      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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