Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

.....and I'm not done yet. Theres still lots to go on and on about. :D

Be back later. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
Green12 Enthusiast
Green12
Posted

I also have terrible brain fog right now, I don't know what is going on.

I can't remember what I posted last and to who, what I read and what I need to post......my brain is totally glazed over :blink::blink:

Birdy, I think I read about your appt last, sounds like you are in really good hands and all things are being addressed. Very excited for you!

You and TS please keep us posted as things progress.

Tabasco, great news about your weight gain. SOrry you feel like death, that is NOT good.

Carla, how did the orange juice jug thing go yeaterday? And don't you leave for Naples soon? You lucky duck :)

Donna, I also have a lot of neck and shoulder pain, always have since I was in my teens.

Sherry, I think it was you who asked about the epsom salt baths, I haven't done one in while and I wasn't sure about the exact recipe...I was actually asking Donna and Carla advice as well. I still haven't figured out if epsom salts or baking soda is better to use?

Ok, attention all my insomniacs!!!!! :lol:

I was channel surfing the other day and I came across this infomercial advertising some new book about 500 or something natural cures and at that exact moment they were discussing insomnia.

Get this, the "cure" for that is chopping up an onion and putting it in a glass jar (I'm not sure if you cover it or not, but I assume you do) before you go to sleep you are supposed to take a huge sniff of the onion :lol: .

They swear it works. Anyone want to test this out??? :lol:

CarlaB Enthusiast
CarlaB
Posted
Is there any evidence of the body being able to heal itself and/or fight off bacteria/parasites without the use of drugs and or herbs?

I have had a relatively good day and a half. Less pain, less regurgitation, but much more gas and bloating (still pain when I eat).

If I keep on keepin on, is there a chance with good nutrition/sleep/hydration my body can fix whatever no doctor can figure out what's wrong?

Does that make any sense?

I had good sleep, exercise, nutrition, supplements, etc. for years. I was known as a health nut. I did live relatively healthy until four years ago, so it helped. However, once your body is overwhelmed, it needs additional help. I couldn't get better on my own.

In my case, it wasn't just addressing detoxification of toxins, I also have had to address the bacteria/parasites with herbs and antibiotics.

It is possible to overcome everyday stresses on the body and let it heal itself, but once you reach a certain point of illness it seems that it takes more to regain health.

Rachel, it's good to see you're coming back to the land of the living ... or should I say the land of the mentally awake? LOL

Donna, great to have you back! Haven't had a chance to look at the pics yet.

I just had a conference at Chloe's school. The teachers have seen a HUGE difference in her THIS year ... different teachers than last year, so we're not even comparing to last year. They've seen her change in the couple months of school this year. She's doing great and requires less and less intervention. YAY!

AndreaB Contributor
AndreaB
Posted
Yeah...especially with me running my mouth. :P

Heck....you guys think I have alot to say in my posts!! Just wait till you hear me on the phone. :lol:

Andrea can confirm this I'm sure. B)

I had one person tell me that after getting to know me and after being around many mercury toxic people over the years...theres just no doubt. :huh:

She said mercury toxic people tend to go on...and on...and on...and on. So yeah thats me. I think she was saying I talk too much. :lol:

Yep, you do like to talk. That's ok though, because I like to listen. :D

You mean you haven't always talked this much?

Kristina,

As far as the body healing itself I have to agree that it can given time. You would need to work on alkalizing your body since parasites like acidic bodies. I have a parasite that came up on ASYRA testing but I'm not on anything in particular for it that I know of......unless Pau d'Arco works on those. None of my family has been put on a special diet for anything at this point so I assume we don't have bad cases of candida and such......just supplementation to build the body up.

Kassandra,

Hope your phone calls accomplish something today.

CarlaB Enthusiast
CarlaB
Posted

Julie, I'm not trying it. B)

It was recommended on LN to take both Epsom Salts and Baking Soda together in a bath.

Orange jug went fine .... almost filled it up completely! :o It was a six hour test ... waiting now for it to be picked up.

I leave for Naples in the morning!

AndreaB Contributor
AndreaB
Posted
Ok, attention all my insomniacs!!!!! :lol:

I was channel surfing the other day and I came across this infomercial advertising some new book about 500 or something natural cures and at that exact moment they were discussing insomnia.

Get this, the "cure" for that is chopping up an onion and putting it in a glass jar (I'm not sure if you cover it or not, but I assume you do) before you go to sleep you are supposed to take a huge sniff of the onion :lol: .

They swear it works. Anyone want to test this out??? :lol:

I don't think I want to try that. :ph34r: I don't like raw onion.

I also agree with Carla that if the body is too overwhelmed with health issues that it's going to need more serious help in getting better.

Have a fun trip Carla!!:D

AndreaB Contributor
AndreaB
Posted

I thought this was an intersting tidbit. It's from NewsMax.

A massive pesticide-resistant fungus known as
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Green12 Enthusiast
Green12
Posted
I just had a conference at Chloe's school. The teachers have seen a HUGE difference in her THIS year ... different teachers than last year, so we're not even comparing to last year. They've seen her change in the couple months of school this year. She's doing great and requires less and less intervention. YAY!

Excellent news Carla :D Tell Chloe she's done such a good job with all of this and give her my best.

Just wanted to weigh in on the body healing itself question melmak posed.

I guess I have mixed feelings about this.

I tend to think it can depend on when you address the situation, I think as more time goes by it becomes more difficult, not necessarily impossible, but a lot more complicated. So if you can get after it early on in the game I think you are better off.

I agree with Rachel that our bodies are smart and has the amazing ability of healing itself, but there are so many factors involved (genetic, environmental, etc.) and a lot of unknown.

I think great things can be accomplished by simply making diet changes, clean living, exercise, meditation/positive thinking, detoxing, things like that will clear out a lot of offenders and body stressors, but additional help/assistance/support might be needed.

confusedks Enthusiast
confusedks
Posted

Julie,

That onion idea sounds like it would make me cry (onions are so strong...my eyes water). And, I don't think I need ANY help sleeping! That is not my problem at all!

Carla,

HAVE FUNNN!!!!!!!!!!!!!!!!!!!!! Congrats for Chloe! I am very excited for her.

Andrea,

Thanks. I am just about to start!

Everyone,

So since I am no longer waking up at 5 am to get to school I actually made my bed for the first time in months today!!! I am so proud of myself. :rolleyes:

But, then I got in the shower, and washed my face with my face wash. Then I guess I meant to look for my exfoliant, but instead I took my bodywash and washed my face AGAIN!!! Lyme brain! :huh: It was funny though!

Kassandra

CarlaB Enthusiast
CarlaB
Posted

Kassandra, congrats on making the bed! Seems silly, I know, but the day I started making mine again was a big day.

melmak5 Contributor
melmak5
Posted

Thanks Carla - I guess my dreams of spontaneous regeneration are dashed... for now.

This damn doctor still has not graced me with a phone call. Its infuriating.

Someone mentioned early maybe teflon. Good idea, but I don't use the stuff, nor plastic utensils.

Its gotta be something. I feel like I should buy Sherlock Holmes hats for everyone in this thread.

CarlaB Enthusiast
CarlaB
Posted
Its gotta be something. I feel like I should buy Sherlock Holmes hats for everyone in this thread.

GREAT, I'll take a pink one!

melmak5 Contributor
melmak5
Posted

So... my GI still hasn't called me back and her assistant said she is in procedures all day and that I am "on her desk with a large stack of charts for her to get to"

So I called my primary care back. Apparently my primary care doctor is now not returning until February?!

So I might have exaggerated a little, but I got an appointment for tomorrow morning. (I have an HTML class all day, so I don't have to worry about work)

I didn't really lie, I said "it hurts when I eat." (Which it most certainly does)

And when he said "do you need to be seen sooner than February?"

I said "yes."

When he said, "do you need to be seen sooner than next week?"

I said "yes"

So that is my lie. I did say that I had a barium swallow and my anatomy is fine...

ShadowSwallow Newbie
ShadowSwallow
Posted

Carla,

Thanks for even more clarification. :D The doctor's not only competent, but he's so nice, too! :D At this point Mom doesn't feel that I'm not up to the antibiotics, I have numerous GI problems (seeing a pediatric GI specialist next week, too) and other unrelated parasites. She wants to work the the naturopath to get me fixed up a bit so that I can handle the treatment, and 3 months seems like a good time frame... except for the patience part. :rolleyes:

That's awesome about Cloe's progress! I must be so exciting for her as well! Have a wonderful trip!

Donna,

Thanks for the encouragement! The Dr's happy with Labcorp, and I'm ok with it for most things, except for all the Lyme stuff. I suppose I'm probably being a bit overzealous... part of a sligthly paranoid personality. :rolleyes: That's wonderful that you're reaching the point where you can start treatment!

I was shocked that she gave me her number, too! I hope those injections help with your back/neck/shoulder pain. Have you every heard of ortho-bionomy? I've been seeing an ortho-bionomist for a few months and she's helped me improve in leaps in bounds. Of course she does have her limitations, my neck and shoulders especially are still sore and she's unable to fix that. Another suspicion of Lyme there.... <_<

Sherry,

As far as baths go making sure to drink a lot of wateris something I've found very important. I usually ended up drinking about 32 oz. during an hour-long bath. But that is quite a bit.

Andrea,

I hope that chlorella works for T and that you and Mitch are able to stay on the drops.

Julie,

Thank you! Wow, I don't think I'd try that anytime soon! Usually when I chop onions I end up getting an adrenaline rush by trying to get it over with and into the pan before my eyes start stinging. :P

Kassandra,

That's happened to me so many times! I'll forget if I've washed my hair yet, or reach for the conditioner and discover that I've just used the shampoo again! It's so funny!

Kristina,

I hope your appointment goes well, and congratulations on getting in so soon. For any "normal" person, if they were having the problems you are they wouldn't put up with a whole week's wait.

~ Birdy

tabasco32 Apprentice
tabasco32
Posted

when you are taking a binder like chlorella how do you really, really know if it's working or not?

My poop looks metallic or opaque looking. Is this normal? Also it gives me head pressure when it's floating in the bowl.

When I sweat I can scrape nasty thick whitish green stuff from my face and body. It's really grimmy.

I wonder if these are toxins.

HOw is everyone today? :)

Andrea I can't really do organic ice cream because of the gums they put in it like carob bean gum or guar gum and stuff.

CarlaB Enthusiast
CarlaB
Posted

Birdy, I just bought Humaworm online for parasites in the GI tract. Looks like good stuff and several people on Lymenet were talking about its success. Since I know for sure I have Klebiella, Citrobacter, and Babesia, I figure there are others there as well, so I'm giving it a try. It's herbal. I also take a lot of probiotics.

Lisa, I'm doing pretty well today, how are you feeling? It sounds like toxins to me!

dlp252 Apprentice
dlp252
Posted
Sherry, I think it was you who asked about the epsom salt baths, I haven't done one in while and I wasn't sure about the exact recipe...I was actually asking Donna and Carla advice as well. I still haven't figured out if epsom salts or baking soda is better to use?

...

Get this, the "cure" for that is chopping up an onion and putting it in a glass jar (I'm not sure if you cover it or not, but I assume you do) before you go to sleep you are supposed to take a huge sniff of the onion :lol: .

They swear it works. Anyone want to test this out??? :lol:

Um, no, I don't think I'll be trying the onion thing anytime soon. Cruises work for me. :lol:

I've always just taken epsom salt baths, but recently saw the epsom salt/baking soda combo suggested. When I told my massage therapist, her exact words were "wow, that's a strong bath", lol. She is the one who told me the epsom salts were mainly for pain, and that the baking soda was mainly for detox. But I can definitely tell you that the epsom salts alone felt like they were detoxing too.

Donna, great to have you back! Haven't had a chance to look at the pics yet.

I just had a conference at Chloe's school. The teachers have seen a HUGE difference in her THIS year ... different teachers than last year, so we're not even comparing to last year. They've seen her change in the couple months of school this year. She's doing great and requires less and less intervention. YAY!

The pictures are best viewed on a fast slideshow, lol. :lol: :lol:

That is such fantastic news about Chloe!!!!

So since I am no longer waking up at 5 am to get to school I actually made my bed for the first time in months today!!! I am so proud of myself. :rolleyes:

Kassandra, congrats on making the bed! Seems silly, I know, but the day I started making mine again was a big day.

:o Yikes...I ALWAYS make my bed (such as it is...just a comforter and some blankets so they mostly just get pulled up a bit)...but lately I've been going off to work without so much as a thought to straightening it. :ph34r:

Its gotta be something. I feel like I should buy Sherlock Holmes hats for everyone in this thread.

Carla wants pink and I think lime green or purple is my color of choice, lol.

I was shocked that she gave me her number, too! I hope those injections help with your back/neck/shoulder pain. Have you every heard of ortho-bionomy? I've been seeing an ortho-bionomist for a few months and she's helped me improve in leaps in bounds. Of course she does have her limitations, my neck and shoulders especially are still sore and she's unable to fix that. Another suspicion of Lyme there.... <_<

Yes, my LLMD was surprises that no doctor had given me the diagnosis of fibromyalgia. He did because I DO have it, but we're both sure it's caused either by the Lyme, the mold toxicity or the metals toxicity. That would explain why nothing we've tried so far has taken the pain away completely. It's lessened but not gone. The injections did help with most areas except the neck. The pain in my shoulders was reduced quite a bit, but I do still have sore spots. I've not heard of the ortho-bionomy...will ahve to do some searching on that, but like you I suspect it won't change a lot until I address the lyme, and I can't do that until I address the mold and maybe the metals, lol.

Green12 Enthusiast
Green12
Posted

You guys are scared of smelling a little raw onion :lol::lol::lol:

I just bought Humaworm online for parasites in the GI tract. Looks like good stuff and several people on Lymenet were talking about its success. Since I know for sure I have Klebiella, Citrobacter, and Babesia.....

Carla, I have klebsiella too. I would love to know where you got this supplement, would you mind pming, or e-mailing me the website??

So when I have an really bad angioedema outbreak I have the regular angioedema wheels all over my body but then I have all these large red spots in the shape of a bullseye or multiple rings, anyone have any thoughts about this? Could it be a lyme rash or some kind of parasite rash?

Has anybody heard of anything like this talked about around the lyme message boards?

CarlaB Enthusiast
CarlaB
Posted

Julie, it's just humaworm.com.

I took oregano oil, plant tannins (www.intensivenutrition.com), and uva ursi for the klebsiella and it helped a lot.

I don't know about the rash .... I have heard of people getting bullseye rashes when they herx.

Green12 Enthusiast
Green12
Posted
Julie, it's just humaworm.com.

Thanks so much Carla, I just ordered some! A bottle for me and one for my mom.

I am going to try this and see if it makes a difference, one girl wrote a testimonial about it helping her angioedema :o

It's a very informative website too.

mftnchn Explorer
mftnchn
Posted
Yep me too. Mine doesn't EVER go away though. :(

At this point, yes, but before I was like Donna, it was pretty constant. I didn't realize I was in so much pain until it went away.

Prior to lyme treatment this was constant for me too. It was especially bad at night. I was living on 4 aspirin every four hours. Maybe that is why it is so hard now, to have it again after being free of it for several years. :ph34r:

Right now isn't the worst I've had. The worst is when there is a burning buzzing pain in addition to the "hurt" pain. That's the 9-10 for me!!

It may not be that you're not eliminating well, it may be that you are producing more toxins that you are able to eliminate .... keep detoxing!! :)

Hmm, if I am not eliminating well how best do I detox?

mftnchn Explorer
mftnchn
Posted
The Lyme brain is really embarrassing too. I can make things sound better online too! LOL! :lol:

Yeah, phone calls and in person is more scary because of that! LOL

AndreaB Contributor
AndreaB
Posted
Its gotta be something. I feel like I should buy Sherlock Holmes hats for everyone in this thread.

I don't like hats, but my hubby would probably like blue. :lol:

So I might have exaggerated a little, but I got an appointment for tomorrow morning.

We'll be waiting for an update. :)

Thank you! Wow, I don't think I'd try that anytime soon! Usually when I chop onions I end up getting an adrenaline rush by trying to get it over with and into the pan before my eyes start stinging. :P

That's like me if I use fresh onion......except I'm not fast enough. I always have hubby cut onions if he's home. :P

I don't know about the rash .... I have heard of people getting bullseye rashes when they herx.

I don't know about the rashes either Julie, but I've often wondered if your outbreaks are somehow tied in with the lyme cycle or something like that.

mftnchn Explorer
mftnchn
Posted

Donna, thanks for the info about epsom and soda. I would try the plain epsom if I could but don't have a tub at home.

For hat color--I'll take the mauve!!

mftnchn Explorer
mftnchn
Posted

YAY on the good report re Chloe from her teachers!

Julie, I'd try the onion--but my insomnia has been much better the last couple of months. Hardly using ambien now. So I don't have to do the onion thing, whew!

Lisa, I don't know, but it does sound toxic. I think that you are eliminating is a good thing though.

Andrea, I hope the phone consult is helpful in determining a course of action.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.