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Omg...i Might Be On To Something

Rachel--24

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mftnchn Explorer
mftnchn
Posted

I'm reading along but too busy to reply too much.

New development is that my hubby left this morning with one of our visitors who just arrived (counselor) to go to the disaster site for several days. He'll be able to assess if I am needed and whether the situation will be okay for me to go. Yay! I feel better about this. Also that we can offer more immediate help this way.

Sherry

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AndreaB Contributor
AndreaB
Posted
So far so good still....still no signs of serious herxing. Yay!

Yay! :D

New development is that my hubby left this morning with one of our visitors who just arrived (counselor) to go to the disaster site for several days. He'll be able to assess if I am needed and whether the situation will be okay for me to go. Yay! I feel better about this. Also that we can offer more immediate help this way.

That's great! I'll be looking for updates. :)

Carla,

That's great that you can site read and that you are good at covering up mistakes.

Glad to hear the meds are doing good for you.

confusedks Enthusiast
confusedks
Posted

Donna,

Do the think thin bars have soy in them? I used to LOVE those! :P

ShadowSwallow Newbie
ShadowSwallow
Posted

Donna,

Sorry you're not sleeping, but I'm glad you're not herxing badly from the meds!

Carla,

That's great the meds are working out!!! :D :D

Everyone,

I'm doing better today, but I think yesterday was mainly a cold. I have a sore throat now. :(

Birdy

confusedks Enthusiast
confusedks
Posted

Donna,

When you do your B12 shots (or when you DID), do you feel better on those days? I don't know if it was coincidental, but I felt a lot better today...it was a B12 day. Hmm...

mftnchn Explorer
mftnchn
Posted

Kassandra,

I notice improvement on my B12 and Meyer's B shot day. Now I am cutting back slightly on the dosages because I seem to get keyed up and wanted to see if that was the reason. Not sure still, if so, it is not hitting until several hours after the shots.

I suspect that something I am taking or eating is behind this being hit by tension at times.

Sherry

mftnchn Explorer
mftnchn
Posted

Donna I am thrilled things are moving foward and watching for your updates.

Carla, that's great you are feeling better again. Sure convinces us that we are infected when we respond like this to abx, right?

Kassandra, I am still hoping for info on iron...., glad you are feeling better.

Birdy, hope your cold is better soon.

Rachel, hope these IVs go well and make a huge difference this time.

Andrea, thanks for the supportive words. I'll keep you updated.

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CarlaB Enthusiast
CarlaB
Posted
Carla, that's great you are feeling better again. Sure convinces us that we are infected when we respond like this to abx, right?

Yes!

miamia Rookie
miamia
Posted

Donna-

I had the same reaction as rachel I was ok with the DMPS it was the minerals and such that killed me.

Oh I really doubt you go to bed earlier than me.

Wow, BRAVE soul! :lol: Course, at least you can sight read!!! :P My good friend Becky had to do that today too because she practiced the wrong song. :lol: :lol: She has to play keyboard for the first service.

Yeah, your sleep pattern sounds almost exactly like mine, but I start waking up at 1:00. I probably go to bed a little earlier than you do though. :P

The Think Thin bars are pretty good. They've got lots of good ingredients even spirulina I think (hence the green in the name, lol). They are gluten and dairy free, but I think they are produced in a factory that produces gluten items. Still, if you're eating what you've been eating, I think that would be okay. :lol: I put cashew butter on them. Yummm.

Yeah, I was pretty sure that the DMPS was good for you, but the minerals weren't, but I couldn't remember for sure. I'm thinking I'm going to feel fine...I'm trying to decide if I want to make an appointment to get new tires on Saturday. :lol:

miamia Rookie
miamia
Posted

is anyone still doing enemas?

CarlaB Enthusiast
CarlaB
Posted
is anyone still doing enemas?

Yes. :ph34r:

mftnchn Explorer
mftnchn
Posted
is anyone still doing enemas?

Yep, every day. It's my detox lifeline. After the natural bm in the morning...

Sherry

dlp252 Apprentice
dlp252
Posted
Donna,

Do the think thin bars have soy in them? I used to LOVE those! :P

Hum, I can't remember. I used to eat them too, but haven't in a while.

Donna,

When you do your B12 shots (or when you DID), do you feel better on those days? I don't know if it was coincidental, but I felt a lot better today...it was a B12 day. Hmm...

It's funny because it wasn't a huge noticable difference, but there was a difference on shot days. I just seemed to be happier, more cheerful...cracking myself up kind of thing. :lol: I haven't seen my LLMD yet (he's the one who wanted me to do them), but the other doctor I saw last week said that I could stop them if I wanted. She told me about a patient of hers who can tell when it's time to get a shot, so I'm thinking yeah, it would make us feel better. Remember my crazy happy posts on the EM thread, lol...that was on a shot day! :lol: :lol:

dlp252 Apprentice
dlp252
Posted

Yay, just called the pharmacy and they said the amphotericin was fine for a couple of days without refrigeration. They put that sticker on the bottle so we'll refrigerate it when we get it.

Three whole days now and still no herxing from the Tindamax, but I AM seeing signs that the antifungal is working. :lol::ph34r:

AndreaB Contributor
AndreaB
Posted

Good news all around Donna. :)

I'm still reading right along. Not much happening over here......aside from colds.

miamia Rookie
miamia
Posted
Yep, every day. It's my detox lifeline. After the natural bm in the morning...

Sherry

can i just ask you how long does the whole enema procedure usually take you

confusedks Enthusiast
confusedks
Posted

Sherry...I will get you the iron info you asked for. I keep forgetting, and right now I have to run out the door for an appt. (The one I overslept for last week, LOL! except I woke up on time! :) )

CarlaB Enthusiast
CarlaB
Posted
can i just ask you how long does the whole enema procedure usually take you

I make the coffee the night before so I don't have to wait for it to cool, but you may want to put it in a sink of warm water to heat it back up a little prior to using it.

It takes about a half hour, including preparing the enema bag, cleaning the bathroom floor (before, not after :lol: ), retaining for 15 min., etc.

dlp252 Apprentice
dlp252
Posted
... cleaning the bathroom floor (before, not after :lol: )

:lol: Another good reason no ecoffee for me, lol. If I had to clean the bathroom floor FIRST, well, let's just say that's not going to happen. :lol: (Besides, couldn't lay down on the floor if I wanted to--it's not big enough. :P

CarlaB Enthusiast
CarlaB
Posted
:lol: Another good reason no ecoffee for me, lol. If I had to clean the bathroom floor FIRST, well, let's just say that's not going to happen. :lol: (Besides, couldn't lay down on the floor if I wanted to--it's not big enough. :P

I'm a clean freak ... of course, Lyme has made it so I'm not nearly so bad .... but, I don't like lying down on the bathroom floor when it has hair all over it ... your floor might not be as bad as mine since you don't share your bathroom with a man! :lol: I then use a towel on the clean floor for comfort. :)

And, you don't have to clean it afterward .... it's just not messy like that. :P And when you're cleaning it daily, it's never a big chore anyway.

Okay, herx kicked in. God must have wanted me to play at the funeral this morning because I took two Advil with my thyroid meds, and felt FINE. Last night I started having neck/shoulder/upper back pain. This morning it hurt, so I took the Advil. As soon as I got back from the funeral, I lied down on the bed and haven't been able to hardly more. I took a Vicodin I've been saving for a time like this .... it's barely making a dent in the pain. :(

I was feeling so much better on the new meds. :) This is my "day four flare" but it's day five .... my monthly flare is due about the 30th. After that, I'm planning on being able to play racquetball again. B)

Green12 Enthusiast
Green12
Posted

Hi guys, I am so far behind I am just going to jump right in.

Things have been a little crazy with me since I have gotten my LEAP test back, I've had to totally rehaul my diet. It's an interesting test and I am still learning about it and familiarizing myself with it as I read through the huge amount of info I got back with my results. My Dr has had a lot of success with it, especially with his patients that have multiple food/chemical reactivity.

Basically you get back a list of your red foods (highest reactivity), yellow foods (moderate activity), and green foods (no reactivity). You have to completely avoid your red and yellow foods/substances because these are the things that are causing your immune system to fire, and over fire.

This works in phases, you take everything out and reintroduce your green foods a little at a time in 5 day increments, then after 5 phases or 25 days, you do a 3 day rotation diet with the foods from the first 5 phases. All of this is to allow for the immune system to calm down and then strengthen.

I actually still have a lot to choose from to eat, but also a lot that I can't eat. I am encouraged since my Dr has had so many patients turn around their food issues with it, and I feel I have nothing to lose so I am going to give it a try. The first phase has been the hardest, but I have one more day and then I am on to phase 2.

I also had and ASYRA and LED treatment done yesterday. We cleared sulpher, which my practitioner thinks that is going to make a significant difference for me.

And that about summarizes it. I hope everyone is well, I've thought about you lots :)

Guest LittleMissAllergy
Guest LittleMissAllergy
Posted

OMG

This is insanely ironic.

Yesterday my doctor suggested a coffee enema because he thinks im having gall bladder issues, so my mom went out to buy a bag. We're kind of apprehensive to do it, and we're actually having some PHYSICAL issues being successful. SO AKWARD. lol. So we've been researching on how to do it, then i come here, and boom...you're talking about it!

CarlaB Enthusiast
CarlaB
Posted

Oh, yes, many of us have been doing them a long time.

Here's my recipe --

1 quart purified water

4 tbsp. organic coffee with caffeine

I boil the water, pour it on the coffee in a french press, stir. After at least three minutes, I push down the plunger.

COOL the coffee. It's most comfortable if it's warm like you would have baby's formula.

You might want to start with a weaker coffee and build up to 4 tbsp.

Put it in the enema bag, hang the bag on the doorknob. You will want a lubricant to help insert the tip. Let the coffee go in ..... at first you may do half at a time. Hold for 15 min. (if you can). I find the more toxic I am, the less time I can hold it.

I lie on the bathroom floor with a radio and a clock on a towel. :) I've read it's best to lay on your right side.

I also like to use Preparation H wipes .... they are witch hazel as opposed to all the chemicals that the others have. You don't have to have hemorrhoids to use them. :)

dlp252 Apprentice
dlp252
Posted
I also had and ASYRA and LED treatment done yesterday. We cleared sulpher, which my practitioner thinks that is going to make a significant difference for me.

And that about summarizes it. I hope everyone is well, I've thought about you lots :)

Very exciting report! :) I'm thinking the sulphur pathway will make a difference too! I was getting a little worried about you!

This is insanely ironic.

Yep, we talk about all kinds of stuff here and it almost always comes at a good time. :P

AndreaB Contributor
AndreaB
Posted

Julie,

That LEAP does sound like a lot to learn, aside from diet adjustments. Yay for almost being on phase 2. :D

Was that the sulpha group you had done? That's usually the first one recommended. Sulpha/Sulfer is a big one.

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