Omg...i Might Be On To Something

[lynne1978]

Sounds like BioSET. That was pretty accurate for me on the foods. I tried doing an elimination diet, but couldn't finish because I never got to a point where I wasn't reacting, so I had the BioSET done which gave me a starting point. Turns out that the based foods on the elimination diet were mostly foods that showed up in BioSET as reactive. Once I cut those out, I had my base diet, then I started introducing stuff in a little at a time using the BioSET results as a guideline for which foods to add when.

The two things that really stand out for me are the soya and the sausages. The soya in general just isn't good, and the sausages may contain spices and even though they are gluten free, the spices can still bother. I react to some spice, but not all. The other thing is potato croquettes...how are they made...does it have dairy in it? That could be another issue. The other thing you might look into is grains in general...I have a hard time with most grains, but I can do a little bit of rice if I don't have too much.

Thanks I was thinking about getting something like it done again. The potato croquettes are just potatoes and oil, no dairy, and I have had them in the past and been ok with them. The sausages had:

Pork

Rice

Peas

sweetcorn

turnip

onion

potato starch

salt

beef collagen casing

sugar

onion (twice?!?!)

coriander

thyme

any thoughts on that lot LOL

[elisabet]

Heres my update.

I have nothing new to report as far as testing (cuz I've been neglecting this), no new treatments....no appts till my phone consult on the 9th.

Only new thing is that I went through my trial size mineral supplements and now I've ordered everything since I didnt have ANY problems with this brand! YAY....this is like a mini miracle.

Thank God there are some companies that are totally hypoallergenic and pure. It doesnt seem like I'll need to go back to the dreaded mineral IV's.

I just hope they are being absorbed.

I'm still doing fun things that I've missed out on the past 5 years. Last night I went to Great America (amusement park). It was fun....the only bad part was that it was COLD.

Where did our 100 degree weather go?? It was actually probably not as cold as I *thought* it was....because most people were in shorts...but STILL...it was nowhere near what we were having last week. I would have preferred some serious heat.

I only went on a couple rides....none of the big ones. I'm not really into stuff that spins you around...they make me sick...even before all of these health issues.

I couldnt believe the freakin admission though...OMG...$65 to get in...AND I couldnt even bring my food.

I knew I wouldnt be able to bring my stuff in without a medical note ( I need to get one of these!) but I figured I could go out to my car if I wanted....BUT NO....they wouldnt even allow people to leave and re-enter.

Anyways....it all worked out. I had no choice but to eat cheese pizza, pretzel and nachos.

Amazingly...I only got some very minor symptoms from the pizza (i ate 2 slices) and the pretzel and nachos didnt affect me.

Hi Racehel

It is so wonderful to hear these good news.

I have to sak again,which brand calcium do you use and which mineral?

thanks aagain

[Rachel--24]

Hi Racehel

It is so wonderful to hear these good news.

I have to sak again,which brand calcium do you use and which mineral?

thanks aagain

Everything I'm taking is from Kirkman's Labs.

I do have a pretty good brand of calcium and magnesium but I feel I do even better on Kirkman supplements.

I only take the ones which are from their hypoallergenic line...none of the liquids.

I'm waiting for my next shipment. I'll be taking:

Calcium

Magnesium

Zinc

Chromium

Folinic w/ B12

Molybdenum

The only mineral I take which is not from Kirkman is selenium. I take a liquid form which is the purest available....its from Allergy Research Group.

[CarlaB]

On the ecoffee question -- ONLY use CAFFEINATED, ORGANIC coffee. Do not use instant, decaf, or non-organic. Also, use purified water.

The first few times I did the ecoffee I felt a little worse for a little while afterward, presumably from stirring up toxins.

It sounds like the Biaxin may be what's causing the herx since it's happening on the days you're taking two.

I'm having trouble ramping up on Zith, which is in the same drug family as Biaxin. If I start taking two pills per day, within two days, I feel bad. It is a tough drug. Maybe just stick with the one per day till you feel better, or if you are feeling especially bad, go a day without taking it at all.

Drink lots of water.

I don't know the part the ecoffee is playing in this .... but since it was decaf and not organic, maybe it's made things worse ... I really don't know.

The recipe is 1 quart of purified water, brew the coffee using 4 tbsp. caffeinated, organic coffee. Only use stainless steel, glass, or enamel for the brewing process (I use a stainless teapot and a glass french press).

I hope you feel better soon.

[confused]

Since we are talking about ecoffee's. i have an question. I do not do well with caffeine at all. It makes me all jittery and weak. Would i have the same reaction with an ecoffee? Im still scared to do them, i just wanted to know in case i ever get brave lol

paula

[confusedks]

Since we are talking about ecoffee's. i have an question. I do not do well with caffeine at all. It makes me all jittery and weak. Would i have the same reaction with an ecoffee? Im still scared to do them, i just wanted to know in case i ever get brave lol

paula

I don't do well with caffeine either, BUT I started with a really small amount of coffee and I never have gotten shakey or jittery. It's never been a problem. I don't think it would be a big deal if you were went up to the full 4 tbsp. of coffee and got shaky, so cut back.

I haven't worked up to a full dose, but I was at 3.5 tbsp last time I did one, and I was fine. (I'm SUPER sensitive, so if I was okay with it...you should be fine.)

[CarlaB]

I've never had the caffeine reaction to ecoffee. I would definitely get a reaction from a quart of regular coffee the traditional way, but I'm not really oversensitive to caffeine. I'd start with a small amount, maybe a tbsp. then work up as you know you tolerate it.

[ShadowSwallow]

Candice,

I've never done e-coffee, but I hope you start herxing less soon!

Everyone,

Tomorrow starts my second week of Doxy, and it's going very well. I didn't herx much, probably because now's the time I typically feel fantastic, and today I was able to start and finish a sewing project as well as go to church for the first time in over a month!

[Guest LittleMissAllergy]

I just gave it another shot. Thanks for the advice Carla- I took it to heart when trying again. My mom went out and bought regular organic coffee and brewed it for me, and we filled an 8 oz. fleet bottle and I did about 5 oz (couldn't squeeze out the rest). It made my heart feel racy, but I don't think it was the caffeine. I think it was just the whole process. But my stomach is really upset again It might have helped the pain I have in my left side though?

I'm sorry to hear that you're having the same trouble with the Zith Carla. What are your herxes like? I posted on a lyme board about my Biaxin herx and a woman replied and she called my herx "severe" and thought that I should definitely stop the Biaxin. Do people not get this sick when herxing? Hmmph.

[Guest LittleMissAllergy]

Candice,

I've never done e-coffee, but I hope you start herxing less soon!

Everyone,

Tomorrow starts my second week of Doxy, and it's going very well. I didn't herx much, probably because now's the time I typically feel fantastic, and today I was able to start and finish a sewing project as well as go to church for the first time in over a month!

Thank you! You're so sweet

I'm glad doxy is going well for you! That's my second drug in the line up I'm also glad that you have a fantastic point in your day!

[Guest LittleMissAllergy]

Sorry to post three times in a row but I just visited a post on another board that I wrote on and I think you might have posted on it too Carla...thank you (and that's embarrassing if it wasn't you, but it sounded like you!)

You're always such a comfort regardless, Carla Thank you!

[Rachel--24]

I posted on a lyme board about my Biaxin herx and a woman replied and she called my herx "severe" and thought that I should definitely stop the Biaxin. Do people not get this sick when herxing?

People do get sick when herxing. A "herx" reaction is an indication that you're stirring up more toxins than you are capable of excreting. The symptoms are caused by toxins circulating through your system. Its basically an overload of toxins that are overwhelming your system.

I know that some Dr.'s are quite aggressive with antibiotics but in my opinion regardless the treatment...a herx is a herx...and if your body is not able to deal with the amount of toxins you're stirring up the stress placed on your organs is great. The herx reaction you described means that your body is under ALOT of stress.

The treatment may be effective at killing bugs but if at the same time you are placing your immune system under severe stress....what are you really gaining??

None of my Dr.'s push forward with any treatment that puts the body under that much stress. Its slow and steady all the way.

I dont know that you should stop treatment but what you're doing might be too much for you at this time.

[Rachel--24]

Another thought.....are you taking any type of toxin binder??

If you're not...I would recommend taking something to help absorb and eliminate those toxins. It can make a big difference as far as the Herx goes.

When you kill bugs you are also releasing metals into your system. If you're not doing anything to keep them from circulating you can be suffering severe symptoms from the mobilization of metals.

[mftnchn]

Since we are talking about ecoffee's. i have an question. I do not do well with caffeine at all. It makes me all jittery and weak. Would i have the same reaction with an ecoffee?

Paula, I do notice a little impact of the caffeine if I do the ecoffee late in the day, otherwise, not a problem. Might be it is not really absorbed much into the bloodstream?? I don't drink caffeinated drinks--I do have problems from those.

Sherry

[mftnchn]

On the ecoffee question -- ONLY use CAFFEINATED, ORGANIC coffee. Do not use instant, decaf, or non-organic. Also, use purified water.

The first few times I did the ecoffee I felt a little worse for a little while afterward, presumably from stirring up toxins.

Yes, I wonder if it is the instant decaffeinated that wasn't good for you. Also given the small amount you used, and the impacted stool, I would guess that you didn't get a lot of impact from that ecoffee.

If you were anxious about doing it and tensing up, it could have created some nausea as well.

I think I'd try again, could you get an enema bag to try? It would be a LOT easier than what you were trying. I use a "fountain" type enema bag but they are harder to find in the stores than the multi-use type bags (hot water bottle/d%$#@#$/enema bag combos).

I am so sorry you are feeling so badly. I agree with drinking lots of purified water. Carla, would the lemon water help her perhaps?

Sherry

[mftnchn]

Thanks I was thinking about getting something like it done again. The potato croquettes are just potatoes and oil, no dairy, and I have had them in the past and been ok with them. The sausages had:

Pork

Rice

Peas

sweetcorn

turnip

onion

potato starch

salt

beef collagen casing

sugar

onion (twice?!?!)

coriander

thyme

any thoughts on that lot LOL

Lynne,

My thought would be checking what oil is on the potatos, if soy, I'd avoid it for now. The sweetcorn would be my second question. If that doesn't work, try keeping out the potatos and reducing/eliminating the rice. I know that really restricts you, but what you want is a baseline where you are okay. Then from there, try adding one organic food at a time every 4 days or so monitoring for symptoms. Hopefully you'll be able to successfully increase.

The other thing to be aware of, is apparently some people react to combinations of foods but not so much to individual foods.

Sherry

[CarlaB]

Sorry to post three times in a row but I just visited a post on another board that I wrote on and I think you might have posted on it too Carla...thank you (and that's embarrassing if it wasn't you, but it sounded like you!)

You're always such a comfort regardless, Carla Thank you!

Yes, that was me. I tried to post so that you would know it was. I guess it worked.

I have an LLMD who is aggressive and has me do things to help herxes, but does not have me slow down on treatment. I have had to back off just a couple times because it was too much, but I didn't stop completely.

I think I'd try again, could you get an enema bag to try? It would be a LOT easier than what you were trying. I use a "fountain" type enema bag but they are harder to find in the stores than the multi-use type bags (hot water bottle/d%$#@#$/enema bag combos).

I agree. Plus then you can use more of the coffee.

Carla, would the lemon water help her perhaps?

Sherry

I think it probably would.

[aprilh]

Hi Everyone! I pop in every couple of days and try to catch up. I haven't had much to add, but I have been trying to keep up.

I can't sleep. I took a protease enzyme about an hour before bed and for some reason this always affects my sleep. Not sure why??? I have been doing a lot of research on enzymes and it seems to me that its very important to supplement these for people whose bodies are under a lot of chronic sickness or who have a lot of gastrointestinal issues. They can help with digestion, inflammation, all kinds of things!

For a while I was taking a digestive enzyme that had protease, amalyse, lipase, cellulase, ect in it and I felt so much better. Then I went to the ND and told her I felt better on digestive enzymes. She gave me something called Digestease. It has betaine, pepsin, and HCI (i think thats the ingredients). Anyway, that didn't work as well for me. My energy went down and has been down since. So, I thought I would start experimenting and researching.

should avoid chocolate and wheat! (not sure how he knew that tho!) SO apparently I should be off wheat/dairy/chocolate/MSG/aspartame/milk. Phew!

Those are some of the top reactive foods so I would say that the testing is probably right. I have always had good luck with muscle testing and it seems to fit what foods I usually react to.

TMI alert:

ecoffee question.

So I finally figured it out last night. I got a regular fleet "extra" bottle (holds like 8 oz. of liquid) and dumped it out and filled it with warm caffeine free instant coffee (next time im asking my mom for caffeinated). I accidentally squeezed the air out of the tip though before I used it so it didnt function properly so I only got about half in. I still held the 4 oz though, and it seemed to work a *little* and it got out a tiny bit of what seemed like impacted stool. Okay, that's enough for the yucky details...I'll get to my question. I had HORRIBLE nausea afterward, for HOURS into the night. I did it around 9:00 and I felt like vomiting until 3:00 in the morning. Is this normal?

I think Carla answered this already but definately get organic regular coffee. I use the $5.00 enema/d%$#@#$/hot/cold pack bag thingy. Bought it at Walmart. You could probably find it at Walgreens or any similar type store.

Definately make sure you do not make it in non-stick type cookware because these put off toxins. Stainless steel is best. I use the french press method to strain out the grounds.

You might go slow with this because it sounds like your body is severely overwhelmed. Start with a small amount of coffee (more purified water) and move up. Make sure you try to excrete all that you put in.

Have you tried epsom salt baths? I found that this helped me the most when I was circulating toxins that I couldn't rid of any other way. At some point I was taking 2 per day.

Candice,

I've never done e-coffee, but I hope you start herxing less soon!

Everyone,

Tomorrow starts my second week of Doxy, and it's going very well. I didn't herx much, probably because now's the time I typically feel fantastic, and today I was able to start and finish a sewing project as well as go to church for the first time in over a month!

That's great that you felt so good. Hope you continue to only improve from here!

I just gave it another shot. Thanks for the advice Carla- I took it to heart when trying again. My mom went out and bought regular organic coffee and brewed it for me, and we filled an 8 oz. fleet bottle and I did about 5 oz (couldn't squeeze out the rest). It made my heart feel racy, but I don't think it was the caffeine. I think it was just the whole process. But my stomach is really upset again It might have helped the pain I have in my left side though?

I'm sorry to hear that you're having the same trouble with the Zith Carla. What are your herxes like? I posted on a lyme board about my Biaxin herx and a woman replied and she called my herx "severe" and thought that I should definitely stop the Biaxin. Do people not get this sick when herxing? Hmmph.

Have you tried fresh Lemon water? It is good for the liver and kidneys. I sometimes drink dandelion tea for the liver.

People do get sick when herxing. A "herx" reaction is an indication that you're stirring up more toxins than you are capable of excreting. The symptoms are caused by toxins circulating through your system. Its basically an overload of toxins that are overwhelming your system.

I know that some Dr.'s are quite aggressive with antibiotics but in my opinion regardless the treatment...a herx is a herx...and if your body is not able to deal with the amount of toxins you're stirring up the stress placed on your organs is great. The herx reaction you described means that your body is under ALOT of stress.

The treatment may be effective at killing bugs but if at the same time you are placing your immune system under severe stress....what are you really gaining??

None of my Dr.'s push forward with any treatment that puts the body under that much stress. Its slow and steady all the way.

I dont know that you should stop treatment but what you're doing might be too much for you at this time.

Littlemiss,

I agree with Rachel. It's important to also focus on ridding all the toxins. I used to take activated charcoal every night before bed sometimes along with apple pectin. Both are binders and they help bind with the toxins for elimination. I found this to be extremely helpful for me.

Have you had your thyroid checked? Last summer around this time, I tried to detox metals on my own without a good plan of action. What happened is I dug up more toxins than my body could effectively get rid of. It seemed to go straight to my thyroid and I had pain in my throat area. I also felt like I could barely move and hardly get out of bed. Every step was forced. Seriously I thought I might just die in my sleep. I immediately started supplementing with Lugol's Iodine, taking epsom salt baths and activated charcoal for my binder.

My theory is that I stirred up metals - more than my liver, kidneys and intestines could handle. Of course I became constipated which is the worst thing that could happen, so I probably reabsorbed anything that I "almost" go rid of. Anyway, I think the metals went straight to my thyroid and displaced the iodine there. I did some research and found that metals and toxins can mess with the thyroid. It took me a couple of weeks to pull out of the hole I put myself in. But most definately the iodine, epsom salt baths, and charcoal was a life saver!

Still dealing with the liver issues all of this caused.....but its not so bad as the other!

[confusedks]

I'm really bummed...I was getting all ready for a class at the gym tomorrow morning and got my swim suit all packed, and towel ready, clothes planned out, then I realized...It's Memorial Day...they're CLOSED!

The first time I have enough energy to go to the gym and actually work out (not just drive there and drive home as my work out ) and it's closed. Sigh. Murphy's Law!

[AndreaB]

I didn't herx much, probably because now's the time I typically feel fantastic, and today I was able to start and finish a sewing project as well as go to church for the first time in over a month!

Great news Birdy!

Kassandra,

Sorry about the gym. I thought they were open every day for some reason.

[mftnchn]

I just gave it another shot. Thanks for the advice Carla- I took it to heart when trying again. My mom went out and bought regular organic coffee and brewed it for me, and we filled an 8 oz. fleet bottle and I did about 5 oz (couldn't squeeze out the rest). It made my heart feel racy, but I don't think it was the caffeine. I think it was just the whole process. But my stomach is really upset again It might have helped the pain I have in my left side though?

I second all the comments about detox methods, finding some that work for you and using more when you need them is so helpful.

About the ecoffee and nausea, it is possible that they are related. The ecoffee stimulates the liver to excrete the bile (and toxins), and that's going to go into the digestive system. Also it is going to stimulate some degree of peristalsis in the intestine, and that could be a bit upsetting to the stomach.

I would think it would be temporary though.

When I really am more toxic, the ecoffee is harder to retain and I also feel a little weak and spacy afterward for awhile. I drink some purified water and rest for a half hour to an hour if I need to. Usually I eventually feel better and clearer headed, and a sense of being relieved--I think it is due to getting rid of toxins.

If you have a regular problem with constipation, that might be important to address.

One other comment, it is important to take some supplements that help protect the liver while you are on the antibiotics. Does you doctor have you on something?

Hope you feel better soon.

Sherry

[miamia]

TMI alert:

ecoffee question.

So I finally figured it out last night. I got a regular fleet "extra" bottle (holds like 8 oz. of liquid) and dumped it out and filled it with warm caffeine free instant coffee (next time im asking my mom for caffeinated). I accidentally squeezed the air out of the tip though before I used it so it didnt function properly so I only got about half in. I still held the 4 oz though, and it seemed to work a *little* and it got out a tiny bit of what seemed like impacted stool. Okay, that's enough for the yucky details...I'll get to my question. I had HORRIBLE nausea afterward, for HOURS into the night. I did it around 9:00 and I felt like vomiting until 3:00 in the morning. Is this normal?

I also had another question. My doctor said that I can "pulse" the Biaxin because I was herxing so badly, so I did. I started taking one on one day and two on another, and I started to come out of the herx and feel okay! But then I took one dose two days in a row, then ramped back up to two, and then yesterday rolled around and I was sicker than i'd ever been in my life. I'm so terrified...I didn't even get to take any Biaxin. That's what prompted doing the ecoffee. I just didn't know what to do. I wanted to go to the ER, I felt THAT horrible, but my mom told me no. I couldn't breathe, my heart was palpitating, my right side AND my left side hurt in my ribcage (and it still does this morning!) and worst of all- I had this really scary neck/jaw pain and pressure, and pulsating and pain in my lymph and thyroid area that made me feel like I was going to pass out.

Anyone ever experience ANY of that? Why did it happen if I didn't take any Biaxin? Do I take Biaxin today? I know you're not all doctors but this is such a terrifying position to be in...not being able to contact my LLMD until Tuesday...and the conventional doctors that I have don't even know what's going on, they wouldn't know what to do with me.

Sorry to post all of that here and totally dump this on you guys...but I've never been so sick, or scared.

I hope you all are well...and doing better than I am at the moment.

for me i haave reaized enemas are not the answer they leave me nauseaus too. I think my system is just too sensitive or soemthing the weird thing is i do colonics but I cannot do an enema.

[confused]

Kassandra,

Im sorry about the gym, things like that always happen to me, but more when it comes to shopping. I really have to feel good to go shop and it is always on sundays morning were the stores i like to shop at are closed lol.

Everyone.

Im back to havind weird BM's again. I had almost convinced myself to start humaworm, but starting tommorow i have so much i have to do for the next 8 weeks with the kids and sports lol. Does anyones know of an parasite or even colon cleanse that is safe and only last like 3 days lol.

paula

[rinne]

Just a quick hello.

I am still working 10 to 12 hours every day and I am doing better all the time, my stamina has returned and I am feeling fine.

The only thing I have been taking other than my vitamin B and magnesium etc. is St. John's Wort tea and that seems to have taken away the last of the stomach pain. It is used for the treatment of ulcers, I decided to take it when I realized that like my father, who had ulcers that were worse in spring and fall, I too had worse pain in the spring and fall.

I think ulcers arrive when there is any serious digestive issue. Studies have shown that, don't quote me , about 85% percent of the population have the h-pylori (spelling?) bacteria but only about 15% of the population gets ulcers.

My digestion is working, I have energy and I am feeling happy.

I am slowly introducing new items to the menu, sweet potato fries with chilpotle mayo, a guacamole burger (I made myself one using a gluten free scone and it was sooooo good) and the rinne bars of course.

I think of you all with wishes for healing and joy.

[confused]

Rinne,

Glad things are going great for you. I am going to look into that tea. I was diagnosed with an ulcer back in college, but never really took anything for it lol, I just tried not to eat spicy food or stress alot lol.

paula