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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor

Kassandra,

Hope you can find something that will work.....both for your hair and the protein powder.

I wash my hair about 3x a week. It does much better that way. I had really oily hair too but now it's only that bad (which used to be daily) every 2-3 days.


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confusedks Enthusiast

Carla,

When you order stuff from Nutramedix how long does it take for you to get it? I know we're far away from each other, but I was just wondering.

I want my stuff to get here so I can start detoxing! I am feeling yucky/toxic...awaiting my herx. Sigh.

CarlaB Enthusiast

I get mine from my doctor, Kassandra. I ordered once from Nutramedix, but don't remember how long it took. Try drinking some lemon water. :)

confusedks Enthusiast
I get mine from my doctor, Kassandra. I ordered once from Nutramedix, but don't remember how long it took. Try drinking some lemon water. :)

Oh. Thanks...I will drink some lemon water.

Green12 Enthusiast

Kass, Metagenics makes some rice protein based protein powders. I haven't had them in a long time though, and I know since then they have added many flavor varieties and I'm sure their formual has changed over the years.

I think they also have a lot of added ingredients- but since it is professional grade company product they are good quality ingredients, just not maybe ingredients you can tolerate.

My favorite protein powder that I have ever had was soy based, unfortunately :( Darn that soy!

Just a tip I meant to mention earlier before about castor oil, for those of you who are doing the castor oil packs, baking soda and water will remove the castor oil from your skin after you are done.

I just sprinkled some baking soda on a washcloth and then ran it under the faucet a little bit until it made a thin paste to wipe off the area I had the pack on, then I got in the shower to rinse off.

Castor oil is amazing stuff, but if you get it on your clothes and etc, it does not come out!

tabasco32 Apprentice

Hey Juliem that organic chocolate is not a whole foods brand. It is from Lake Champlian or something like that.

Hey Carla you look GREAT!

CarlaB Enthusiast
Hey Carla you look GREAT!

Thanks. :)

My daughter took this picture of me today. See the ends of my hair? I still have about three inches of bad ends from all the breakage when I was sick. I'm getting my hair cut in two weeks ... I think I'll have her take an inch off, maybe two.


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aprilh Apprentice
Regarding the dandruff, didn't Rachel post some scientificness way back, I mean way back, in the thread that said dandruff was a yeast/candida condition of the scalp????? I could have sworn reading something to that effect....

This is what I have found to be true for me. I have heard of soaking the scalp with monistat....my dad actually tried it. Nizoral shampoo works, too. Sometimes I rinse my hair and scalp with apple cider vinegar (organic). Lots of probiotics and antifungals work from the inside out.

aprilh Apprentice

Hi Everyone!

I got my daughters blood test results today. Her iron was very low, her saturation was very low, her white blood cell count was down, red blood cell count was a bit low. This could be due to her just getting over a virus so we'll recheck that in a few weeks. Also, her neutrophils (msp?) was low. Not sure what thats about.

Poor thing! I wish all this iron I have been giving her would finally work! wonder if she's not absorbing it or if the dosage is too low.

April

PS: Kassandra - i sent labs by email.

Talking about hair....I just made big 'ol boo boo with mine :( . I tried to color it myself and now I look like orange glo! My big attempt to save money - sheesh!

Green12 Enthusiast
Hey Juliem that organic chocolate is not a whole foods brand. It is from Lake Champlian or something like that.

Thanks Lisa! I'll look for it tomorrow, I always like to have a little chocolate for Valentine's Day :D

How are you feeling? How are all the treatments going?

I got my daughters blood test results today. Her iron was very low, her saturation was very low, her white blood cell count was down, red blood cell count was a bit low. This could be due to her just getting over a virus so we'll recheck that in a few weeks. Also, her neutrophils (msp?) was low. Not sure what thats about.

Poor thing! I wish all this iron I have been giving her would finally work! wonder if she's not absorbing it or if the dosage is too low.

April, I believe neutrophils are a type of white blood cell (a measurement of white blood cell function), and if they are low it can indicate a higher risk of infection.

Is she currently under somenone's care that can interpret the test results and sort all this out for you?

aprilh Apprentice

My ND helped me decipher the test results. We have a couple of theories.

1) lead is displacing iron. I am thinking that it could be possible that the pipes in school could have lead being the reason that she has problems mid-year. Want to order lead test from www.leadtesting.org for $28 and sneak and test the school water

2) recent growth spurt took all the amount of iron she barely had

3) lyme or other infection causing the imbalance. Will find out more tomorrow when I go to the LLMD for my test results.

4) mold exposure can cause the body to "throw" iron. How can I get mold plates put in school?

OR could it just be her? Seems she has always been on the low side even as a toddler.

I definately have some investigating to do.

Right now I am researching the best way to juice/cook/replenish her iron stores so she can feel better. Then I can focus on determining the cause.

I am considering starting her back on her slow chelation protocol we did over the summer to hopefully pull some lead out of the tissues and allow some iron to get in the tissues. Seems she did very well with that last summer. If that works then I will know it was more about the metals.

NoGluGirl Contributor

Dear Everyone,

I just got caught up on my reading. Everyone should have received an e-mail or PM who had posted up until page 1820. The pages after that will be covered in my column soon. It may take a bit. Right now, I am going to go upstairs and take my tapping notes.

Sincerely,

Jin

confusedks Enthusiast

April,

I got your email. I will reply soon. I was looking over my results to have some sort of comparison. The thing I was going to suggest was a growth spurt. I noticed that my WBC went from 3.6 to 5.something in 2 weeks from Iron IV's. Then two weeks later, it dropped down to 3.6! :o I obviously have a lot going on, such as Lyme, etc. but it must have had something to do with the Iron IV's.

I am going to mention it to my LLMD next time I see him. I had blood drawn today, so we'll see what my WBC comes back as. It must not be too low otherwise my LLMD would have said something.

dlp252 Apprentice

Carla, meant to say how much I love your new avatar!

My favorite protein powder that I have ever had was soy based, unfortunately :( Darn that soy!

Mine too! Stupid soy! :angry:

aprilh Apprentice

Thanks Kassandra. I just talked to the pediatrician and he is going to call in a prescription strength iron for me so maybe her pain will go away. He said its wierd that her ferritin is there but the body is not using it for some reason. He suggested that maybe we see a hematologist, but will they consider the lead and other metals and the "maybe" lyme? I don't know.

tabasco32 Apprentice

Happy Valentines Day Girls :wub::wub:

Don't eat too much chocolate now.

Lisa

confusedks Enthusiast
Thanks Kassandra. I just talked to the pediatrician and he is going to call in a prescription strength iron for me so maybe her pain will go away. He said its wierd that her ferritin is there but the body is not using it for some reason. He suggested that maybe we see a hematologist, but will they consider the lead and other metals and the "maybe" lyme? I don't know.

I was going to say you should probably see a hematologist. It is strange that her ferritin is doing fine, but other numbers are off.

HAPPY VALENTINE'S DAY!!!

Green12 Enthusiast
My ND helped me decipher the test results. We have a couple of theories.

I definately have some investigating to do.

I wish I had more knowledge to share :(

I just hope you can find some answers April.

Carla, meant to say how much I love your new avatar!

Mine too! Stupid soy! :angry:

Ditto, love your new avatar Carla, you look pretty in pink!

Soy. If I could eat soy I think I would have it made :lol: There would be so much to eat.

Happy Valentine's Day to everyone!!

dlp252 Apprentice
Don't eat too much chocolate now.

TOO LATE!!!!!! :lol:

HAPPY VALENTINES DAY TO EVERYONE!

CarlaB Enthusiast
Carla, meant to say how much I love your new avatar!

Thank you. :D Can't wait to get my haircut though ....

Happy Valentines Day Girls :wub::wub:

Don't eat too much chocolate now.

Lisa

Happy Valentine's Day to all of you!!! :wub:

Ditto, love your new avatar Carla, you look pretty in pink!

Thanks.

Green12 Enthusiast

I have been sweating profusely the last few days. It's worse when I am sleeping, I wake up soaked in the middle of the night.

This has happened in the past during my periods, just not every one. I had always read it was the estrogen/liver thing which might make sense since I have liver issues and am currently detosxing the liver.

Anybody have any input on this?

CarlaB Enthusiast

Sounds like babesia, Julie.

tabasco32 Apprentice

TOO LATE!!!!!! :lol:

/\

l

l

l

BRAT! ;) Donna, bad girl bad!

I Don't think my brother will have a good valentines day today. He went to the dentist and they say he has a bad tooth abcess or something like that. His face was swollen last night. I guess one to many hershey's bars.

aprilh Apprentice
I have been sweating profusely the last few days. It's worse when I am sleeping, I wake up soaked in the middle of the night.

This has happened in the past during my periods, just not every one. I had always read it was the estrogen/liver thing which might make sense since I have liver issues and am currently detosxing the liver.

Anybody have any input on this?

I have heard this about the liver also. Don't kjnow much about babesia though.

miamia Rookie

Happy Valentines Day!!!!!!

I know i have not posted in a while but i've been reading i will try to post an update tomorrow but i have to get some shut eye now

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    • lmemsm
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    • knitty kitty
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    • Dora77
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First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
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