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Rachel--24

Omg...i Might Be On To Something

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How funny! I will try something else I think. Because I will forget NOT to take more magnsium next to the Ztih--which is a big no no! ;)

I think I'll try Mangosteen, once Carla tells us what it is! :lol:;)

Oh, didn't know you can't take mag with Zith, I wonder why?

Yes, we will have to wait until Carla gets back from work to tell us about the Mangosteen juice!

In the meantime, here are other things in my "C" aresenal :lol: :

Are you still drinking lots of lemon juice in water? Lemon juice stimulates peristalsis. If you warm the water and kind of make lemon tea, it's good to drink it like that throughout the day.

Green tea, the caffeine in it.

Chocolate, again the caffeine. This was recommended to me by a Native American medicine woman, you get 100% chocolate block, no sugar or dairy is in it (whole foods has this) and you grate a little and put into a mug and then poor hot water over it to make tea. You can add a little agave nectar, honey, stevia, etc to sweeten to taste.

Senna Leaf tea, you can buy already made up in tea bags, or as a bulk herb and make tea by using a medicine ball (this is the way I did it).

alright, well, I figure I may as well get around to asking a few of the things I wanted to bring up when I posted a bit a month ago...

I don't react well to activated charcoal, leaves me more fatigued though I haven't tried it in a year and a half (also didn't test well for it during the bio-energetic testing I had done)... probably also isn't practical for me as the longest I ever really go between meals is 3 hours in the evening... so anyone have any suggestions for an alternative binding agent that's used for similar applications, say upon the feeling of reacting to a food or whatnot...

lastly, anyone with very restrictive diets have any recommendations for foods to try and gain weight? I'm back to pretty much a meats and veggies diet (well, basically the same diet I've been on for a while minus potato chips) and am trying to find alternative foods I can add in, at least here or there if not more regularly, that I won't react to (or will minimally react to) and that have a bit of calories... I tried sunflower butter once as an alternative to the nut butters but didn't seem to do well at all with that.. don't do great with cashews either... got some hemp milk I may try mixed with a low sugar fruit and maybe something else to boost the calorie total but could use some ideas if you guys have any...

Hey Charlie! Good to see you.

Rachel had posted a list of toxic binders a while back, apple pectin I know is one in addition to the charcoal.

I went back and found the list:

Cholestyramine

Fiber (non-psyllium)

Modifilan

Apple pectin

Butyrate

Bentonite

Activated Charcoal

If I remember correctly apple pectin was the weakest of the binders, so if you had difficulty with other things maybe the apple pectin would be a good one for you to start with?

Can you ask your Doc about when to take it around your eating schedule?

What kinds of foods can you tolerate? Are you ok with avocadoes? Raw veggies? Potatoes? Smoothies?

I am thinking bumping up your smoothies with more calories and fat.

What about Carla's "fudge"?

I used to get night 'flop' sweat too - hate that slimy feeling :blink: ! And the post-sweat claminess is almost as bad as the sauna during :( . My theory for me, is it was that my hormones amplified whatever else physical was happening. Both during cycle & also at/right after ovulation. Once I cut out gluten & soy (my triggers-as of yet I seem to be food-based as opposed to other more complicated health issues), the sweats pretty much disappeared (my OBGYN did check, I wasn't yet menopausal or pre-meno). My cramps (which sometimes came with vomiting) also are much less after cutting out the dietary triggers :) Heat, sweat...any nightshade sensitivities? :unsure:

Hi babysteps, I do think my hormonal fluctuations are connected here. It's not every have this sweating phenomenon, it's worse at times and then other times I don't experience it at all.

I have a lot of thoughts as to possibilities but I am not entirely sure. I think it is curious I just did some castor oil packs around the time of ovulation and I am wondering if that broke some things up and now possibly I am detoxing that.

I definitely agree that food triggers can play a part too, soy, dairy, gluten.

Omgsh...my insurance company said we have met our "maximum" for drug coverage! They're DONE paying for ANY meds for the year of 2008! Holy %*^$....it's only February!!! AHHHHHHH! :(:angry:

:o

I am so sorry to hear this :(

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Julie,

I get night sweats occassionaly...for me they are totally related to my diet....same as the numb hands, etc. I used to get drenching sweats nearly every night up until I changed my diet....now when I get them they are mild in comparison to what I used to experience.

Ok...I just slept for 20 hours straight! :blink:

I didnt go to work today because I was too busy sleeping. :P

The reason is that I didnt go home for lunch yesterday. First I ate 2 cookies and some type of bread....then my boss ordered pizza! :o

So I stayed and ate 4 big slices of pizza. :ph34r:

I was still waiting for the Ketotifen to arrive so I knew I would pay for my induldgence...but OMG....it was sooooo good! :D

I think my blood pressure drops pretty quickly from the release of histamine. I got really cold, pale, tired, extremely thirsty, slightly blurred vision and trouble concentrating. I was pretty much out of it....totally pizza drugged. :P

these are the symptoms for the drop in blood pressure...I trhink I posted them before.

low blood pressure can also signal an underlying problem, especially when it drops suddenly or is accompanied by signs and symptoms such as:

Dizziness or lightheadedness

Fainting (syncope)

Lack of concentration

Blurred vision

Nausea

Cold, clammy, pale skin

Rapid, shallow breathing

Fatigue

Depression

Thirst

Whenever this happens I get the strongest craving for soda! I wanted a sprite really bad...I ended up dreaming about it! :rolleyes:

The last time this happened at work I must have been really fantasizing about soda because when I picked up my water and drank some I was actually shocked because I had been expecting carbonation! I truelly *thought* I was drinking soda. :huh:

I could barely keep my eyes open the last couple hours of work yesterday. As soon as I got home I took a hot bath and then slept for 20 hours. I was pretty out of it...I couldnt even talk on the phone. :(

I did wake up in the middle of the night freezing with wet hair and clothes...the first nightsweat I've had in awhile.

My Ketotifen showed up yesterday...of course its too late now as far as the pizza invasion my body has been dealing with. :P

So now I'm back on it. :)

I have 3 months worth of pills...now I get to see exactly how well this works for me.

Last week was my 9th IV DMPS....I'm still in my second round of treatment. The nurse told me that the levels can suddenly go way up once things start shifting and the DMPS starts getting to the intracellular mercury.

Me and some of the other patients in the IV room have had discussions about mercury and its relationship with Lyme...throwing out the various "theories". For the most part I think its becoming more widely accepted that mercury is definately a huge factor in chronic Lyme Disease.

A couple weeks back there was a pyient who came in for bloodwork. I could hear her talking with the nurse. She had been completely free of her Lyme symptoms for more than a year....eventually little by little the symptoms retrurned and now she was back to her LLMD for more treatment.

I think relapse is almost inevitable when all the focus is on killing bugs...w/out addressing the metals and detoxification. I strongly believe this is what allows the bugs to take over in the first place...without the toxic burden from metals the immune system would handle these infections much easier.

I will have my next provoked urine challenge in about 4 weeks.

Sherry,

I meant to comment about your oral chelation and the results of your urine test. Have you been supplementing all of the minerals throughout your treatment? This is one of the most important things during chelation. If you dont have sufficient minerals in your body...you cannot detox the metals. The body does better with toxic metals than with no metals at all.

If everything you've been taking has been oral it might be that you will do better with IV...especially if you're having absorption issues.

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Aw Patti, I'm sorry to hear about Allo!

Donna, what is the status of your protocol? Are you completely on hold with everything until you get the mold situation in your home dealt with?

Pretty much on hold, although last visit my doctor said we may do a provoked challenge for metals on my next visit (or at least talk about it). My next visit is MONDAY, lol, so I'm hoping with the news of my refinance he might do the challenge.

also, is anyone here taking (or has taken) MB12? I know it's extensively mentioned on lyme net and autism message boards, and I'm inclined to think it would be beneficial for me to try it to aid in addressing the cognitive symptoms... after I learn a bit more about it, I plan to discuss it with my LLMD next appt and see about getting a prescription for it...

Charlie, can you do fats? I add fat to stuff...like olive oil, coconut oil, avocado, etc. That would bring up the calories.

I have taken methyl B-12 in tablet form, and for the last month or so by injection (which now I'm giving myself). My cognitive functions have improved, but it's nearly impossible for me to tell from what, lol.

Omgsh...my insurance company said we have met our "maximum" for drug coverage! They're DONE paying for ANY meds for the year of 2008! Holy %*^$....it's only February!!! AHHHHHHH! :(:angry:

I HATE when stuff like this happens! Sheesh!

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Patti,

I'm sorry about Allo. :( I guess I didn't realize he was that old.....I was thinking more around 12 for some reason.

Kassandra,

That stinks! I hope you and your mom can figure something out.

Rachel,

20 hours! :o You must have really needed that sleep.

I don't remember if I was going to comment on anything else.

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What exactly is Mangosteen juice? Sounds interesting.
Juice from a mangosteen, LOL. :lol: :lol: Seriously, it's some kind of "super-fruit" .... but I don't know much about it except that there were people talking about it on LN. I thought it would be good to add to smoothies, but I really don't need help in this particular area!

Omgsh...my insurance company said we have met our "maximum" for drug coverage! They're DONE paying for ANY meds for the year of 2008! Holy %*^$....it's only February!!! AHHHHHHH! :(:angry:

:o :o :o :o

I wasn't working today .... my dad is in town for the weekend so I had to pick him up from the airport. Morgan is home, too, so I probably won't be on much.

Kassandra, GREAT picture!!!!

Minerals can't be taken near abx .... but it's more important when you're taking something in the tetracycline family .... but they recommend not taking minerals near any abx as it can affect absorption.

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A Rachel sighting!!!!!! Thanks for the update.

Pretty much on hold, although last visit my doctor said we may do a provoked challenge for metals on my next visit (or at least talk about it). My next visit is MONDAY, lol, so I'm hoping with the news of my refinance he might do the challenge.

Oooh, sounds potentially exciting :lol: Keep us posted.

My thoughts were the same for Charlie, upping the fats which ups the calories.

You can make a big salad (if you can tolerate raw veggies) and mash avocadoes blended with olive oil and seasoning for a dressing.

Flax oil, or other oils, nut butters in smoothies.

Juice from a mangosteen, LOL. :lol: :lol: Seriously, it's some kind of "super-fruit" .... but I don't know much about it except that there were people talking about it on LN.

I wasn't working today .... my dad is in town for the weekend so I had to pick him up from the airport. Morgan is home, too, so I probably won't be on much.

I'll look up the mangosteen juice. I've never heard of that fruit, but there are so many exotic fruits, and other produce native to different areas out there, that we never hear about.

Say hi to Morgan!!!!! And enjoy your visit with your dad :)

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Julie...you got Lame Advertised...lol. :lol: The links don't work.

:lol::lol::lol:

Shoot! They were really informative links too, I don't know how to do that tiny url thing Donna does......

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I tried Mangosteen juice last year, but it was before I gave up soy :ph34r: , so it's no surprise that it didn't seem to do much.

It was actually sold at Costco! :o

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They were really informative links too, I don't know how to do that tiny url thing Donna does......

Shoot...my bookmark is at work, but I think it's tinyurl.com...you just copy the link that you want to shorten (or avoid lame adv) go to tinyurl...paste the link into the top box and hit whatever button it says to hit to shorten the link...your tiny url comes up then you just copy that and paste it into your post.

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Yeah, I think you definitely got good genes, lol. I started going grey in my 30s...I

Well I wouldn't want to mislead, LOL. I'm not totally without gray...just a little sprinkling though and not that noticeable. My hair is a gray brown to begin with so it blends in ok so far.

I'm grateful because I would look absolutely horrid with black hair and that is the only dye anyone in China would know how to do, LOL!

Sherry

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I may look into this! Since I have started taking the Calcium/Magnesium and Melatonin at night I have been SO constipated! I thought Calcium/Mag was supposed to help with C!? :blink:

<_<

Calcium constipates, mag helps with constipation according to my understanding.

Kassandra I love your picture!

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I completely understand the feelings of being overwhelmed, worrying about what is the right thing to do, especially when we are given conflicting advice as to treatment, especially when the road has been long and so much money has already gone out, there is an urgency and desperation to get it right.

Julie, this is exactly it. I've been having a rough couple of days.

How funny! I will try something else I think. Because I will forget NOT to take more magnsium next to the Ztih--which is a big no no! ;)

Wow, I didn't know that either. I think sometimes I have been taking them together. Well maybe I knew it at one point LOL. These days I give a caveat to everything I say I never knew.

I don't react well to activated charcoal, so anyone have any suggestions for an alternative binding agent that's used for similar applications, say upon the feeling of reacting to a food or whatnot...

also, is anyone here taking (or has taken) MB12? I know it's extensively mentioned on lyme net and autism message boards, and I'm inclined to think it would be beneficial for me to try it to aid in addressing the cognitive symptoms... after I learn a bit more about it, I plan to discuss it with my LLMD next appt and see about getting a prescription for it...

If you are having an allergic reaction to food, try a little baking soda in water, my allergist has me use that. Alka seltzer gold is what he has in the office and offers if we have a reaction while testing.

Also, vitamin C, you can really push up the dose unless it gives you the big D. My allergist told me I can take 2000mg, and if the symptoms return in 3-4 hours, repeat it again.

The only other thing I can think of for binder is chlorella or spirulena.

I am taking MB12; I tried three weeks of it and then switched to the other form because I thought it might be bothering me as I was ill during the three weeks. Yesterday ART said that the MB12 tested much better. I took it today and cognitive symptoms are much better than yesterday. However, I have so much going on that I can't say for sure.

Sherry

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Omgsh...my insurance company said we have met our "maximum" for drug coverage! They're DONE paying for ANY meds for the year of 2008! Holy %*^$....it's only February!!! AHHHHHHH! :(:angry:

That's horrible! I hope there is nothing in fine print...what's happening with the lawyers?

Rachel, sure hope the ketotifen helps.

A couple weeks back there was a pyient who came in for bloodwork. I could hear her talking with the nurse. She had been completely free of her Lyme symptoms for more than a year....eventually little by little the symptoms retrurned and now she was back to her LLMD for more treatment.

I think relapse is almost inevitable when all the focus is on killing bugs...w/out addressing the metals and detoxification. I strongly believe this is what allows the bugs to take over in the first place...without the toxic burden from metals the immune system would handle these infections much easier.

Of course this is my concern. Dr. E said she can't tell from my results if I am moving it out and my lowered level is truly lower. She wants my LLMD's opinion.

Sherry,

I meant to comment about your oral chelation and the results of your urine test. Have you been supplementing all of the minerals throughout your treatment? This is one of the most important things during chelation. If you dont have sufficient minerals in your body...you cannot detox the metals. The body does better with toxic metals than with no metals at all.

If everything you've been taking has been oral it might be that you will do better with IV...especially if you're having absorption issues.

Yes, I have been faithfully taking a mineral supplement and also extra magnesium (lots) in my buffered C. Of course when I am in China the IV hasn't been an option, but obviously I am not absorbing well as so many things are low. It isn't just minerals, but amino acids and vitamins as well.

Right now I am doing IV's and I'll be having one pretty much every week while I am here. I am still trying to figure out what I'll be having but last week it was EDTA and glutathione and something else.

My LLMD is talking about my going back with some intermuscular stuff, that would be something I could manage to give myself. Getting someone to give me IV's over there might work but would be a major hassle.

Sherry

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Patti,

I'm sorry about Allo. :( I guess I didn't realize he was that old.....I was thinking more around 12 for some reason.

Thanks, Andrea :) Gosh--I haven't talked to you in forever! How is everything?

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Sherry,

I know my allergist was talking about doing a transdermal DMPS and transdermal mineral cream with me for chelation depending on my results from the IV. I haven't researched it, but it's a though.

Kassandra,

You look FABULOUS in your picture!!! :D :D :D

Jin,

I'm pretty sure the nausea was either a herx or candidia dying... I need to get working on getting off sugar. :( I've been really, really bad about that lately. Our allergist (who does BioSet, LED, chelation, etc) has to close down his practice March 7th, so for my last EAV I'm going to ask to have that tested along with the limited Cowden Protocol.

How's your makeover coming along?

Everyone,

I'm completely knocked out today... I was out for about 8hrs, and I still have homework to do ahh!!! :rolleyes:

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Charlie,

I did M-B12 self administered shots last year but I discontinued since I wasnt noticing any benefit.

I'm pretty sure I'm having problems with histamine build up and I learned that b12 increases histamine so I'm definately avoiding it. Folic acid is another one that I've avoided for the same reason....but that one really gives me noticeable worsening of symptoms. I'm pretty sure its the main reason I've never tolerated the multi vitamins....especially the B's.

Patti...sorry to hear that Allo isnt feeling well. :(

I hope your prayers bring you some answers...its tough...our "babies" really do become part of the family. Hope everything else is going well for you! :)

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Sherry,

I know my allergist was talking about doing a transdermal DMPS and transdermal mineral cream with me for chelation depending on my results from the IV. I haven't researched it, but it's a though.

I did that initially, my LLMD prefers transdermal DMPS over the oral form. The problem is it isn't stable beyond 3 months and I couldn't take it with me overseas for longer periods.

If the minerals would work, that would be great. I'll ask about that, thanks.

Sherry

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Sherry,

I know my allergist was talking about doing a transdermal DMPS and transdermal mineral cream with me for chelation depending on my results from the IV. I haven't researched it, but it's a though.

I've researched transdermal DMPS a bit. My Dr. had wanted me to start with transdermal but I opted for IV instead. TD-DMPS is effective and will move mercury out....however its slower than other methods. My naturopath (Dr. Amy) finds one brand of TD-DMPS to be far more effective than others she's used. I think I have it written down somewhere if anyones interested.

Dr. Amy had recommended I continue with the IV DMPS...adding in TD-DMPS on the weekends that I am not doing IV. It doesnt look like my MD is gonna go for that but I havent discussed it with him yet. One of the nurses told me she cant see him going with 2 methods at once...shes never seen him doing more than one at a time because it might overwhelm my system.

I have to get more info. from Amy when I see her next...she does things more along the lines of how Dr. K. gets it done. I think they like to have a more consistent pull of metals (to tolerance) rather than sudden "bursts" with long breaks in-between.

For now I continue to do fine with the IV DMPS.

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A Rachel sighting!!!!!! Thanks for the update.

Julie,

I went back to my posts in early Jan....I wasnt posting a ton but I was posting. I totally became unfocused right when I went off the Ketotifen and started the Alinia. I had been doing fairly well with foods up until that point....but I didnt know and I continued to eat those same foods without the Keto.

I couldnt understand why I was suddenly getting worse. :unsure:

Its been almost a month since I stopped taking Keto and I missed 2 1/2 days of work...after eating foods I shouldnt have been eating. :ph34r:

I think this is alot to do with my lack of posting along with getting "side-tracked". My brain cant handle alot of things going on when I'm constantly "drugged" by bad foods....so I was only able to focus on the fun stuff. :P

I definately wasnt having this problem while on the Keto which leads me to believe that my brainfog is totally related to the rise of histamine and not candida. I didnt have trouble with concentration while I was on the Keto...and I was eating gluten, dairy, sugar, etc.

I've been totally off the gluten-free diet since Xmas and I actually think its one of the things I'm tolerating pretty well. I find myself buying more and more "wheaty" foods instead of the alternatives. I only tolerate unbleached wheat though....so I'm still limited because most foods containing wheat are bleached and enriched. I dont tolerate enriched either.

I've made a couple mistakes by not reading labels carefully enough and I paid for it...especially with the enriched stuff.

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I recall that Lymetoo was pretty big on mangosteen juice. She really raved about how much it had helped her.

Just goes to show how different we are....because I'm sure it would probably kill me! :lol:

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