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Omg...i Might Be On To Something

Rachel--24

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CarlaB Enthusiast
CarlaB
Posted

Good morning everyone! I felt good all day yesterday and feel good this morning, too, except that I'm tired as I didn't sleep well last night.

I had that tequila and tonic two nights ago .... since the fatigue was gone the next day, I had some tonic water last night, too, but without the tequila. ;)

Kassandra, I hope things start looking up for you soon.

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confused Community Regular
confused
Posted

Ok i woke up with major malabsorption going on. Now my stomacj is in major pain and my Bm is yellow. What can be causing this. I did google it and it shows things like bacteria and giardia. All i know is im in major pain. Im thinking it might be time to do an full stool panel.

dlp252 Apprentice
dlp252
Posted

Well I slept better last night, lol. Actually napped on the couch too. I hardly ever sleep good after napping.

I've been having terrible ear pain when I swallow for the last two days. Yesterday I finally took Tylenol all day and that seems to have knocked it back a bit.

Donna, good luck with the surgery!

...

I can't believe I go to Germany one week from today!! Woohoo! I don't know if you've been keeping up on LN .... the chatter about the Bionic is high ... it's the most read thread right now. I'm so excited since the lady who went over is now Lyme free.

Thanks! I haven't posted much about it, but I'm excited for your trip to Germany! I haven't been to LN in a long time so haven't seen the thread. Someone PM'd me over there, so I popped over to answer that, but didn't look at any threads.

Just to update everyone...my ferritin and iron is really low again, my hematologist called and told me I need Iron IV's this coming week (he wanted to do it last week, but I said no.) This is the one that 3 out of 4 patients go into anaphylactic shock. his nurse told me last year that 3 patients they gave it to almost didn't make it downstairs and next door to the ER because their reactions were so severe. She said they literally were giving them shots of epinepherine in the elevator so they'd make it to the ER.

...

So, that's whats been going on! Fun stuff for sure!!! :rolleyes:

Yeah, that's definitely scarey stuff!!!

Donna, sounds like further food restrictions will be quite an adjustment. Why can this cause diabetes? With fat and carb restriction it will be challenging.

They'll be rerouting the pancreatic and bile ducts and taking a chunk out of my duodenum. He MAY take out the gallbladder if he sees any evidence of stones, and if they have to do the more drastic surgery, he'll definitely be removing the gallbladder, and possibly parts of my pancreas and stomach, etc. Any one of those things can mess with the bile/enzyme/processing stuff.

Ok i woke up with major malabsorption going on. Now my stomacj is in major pain and my Bm is yellow. What can be causing this. I did google it and it shows things like bacteria and giardia. All i know is im in major pain. Im thinking it might be time to do an full stool panel.

I think a full stook panel sounds like a really good plan!

confused Community Regular
confused
Posted

Donna,

Do you get an surgery date this week?

I am ordering an full panel test today. I have to figure this out. I think i was actually healthier when i ate gluten lol.

paula

heading back to the sofa to watch football

dlp252 Apprentice
dlp252
Posted
Do you get an surgery date this week?

They didn't say, but I suspect that I will by the end of the week. I left there around 3:30, so they probably didn't get an answer from the scheduling department even if they did call Friday. I figure they'll probably call tomorrow to schedule and I'll probably hear on Tuesday or Wednesday...but that's all MY guess, lol.

CarlaB Enthusiast
CarlaB
Posted
Thanks! I haven't posted much about it, but I'm excited for your trip to Germany! I haven't been to LN in a long time so haven't seen the thread. Someone PM'd me over there, so I popped over to answer that, but didn't look at any threads.

Thanks. There was an old thread resurrected and you had posted on that thread. Someone asked you a question and I mentioned that you didn't post there anymore, so I'd bet that PM was regarding amalgams, LOL!

I am very excited about Germany! Less than a week away! I guess if this Bionic works I might get to meet many of you ..... I'm sure you'll want to visit when I'm healthy ;) The Bionic is supposed to be good at moving out metals and other toxins, in addition to getting the Lyme.

This is very odd ... I've been feeling good lately (past two days) unless I EAT. When I eat it's not digestive issues, it's pain ... not in my stomach, but my back and shoulders. Why? I don't get it?

I am feeling better though and have gained back three pounds. I have not been eating more or less than before, the weight has come back just the same way it went away ... for absolutely no reason at all. I must be moving out the mold toxins to be feeling better. I'm not on the cholestyramine, it was killing me. I've been taking zeolite and chlorella.

mftnchn Explorer
mftnchn
Posted
I've been having terrible ear pain when I swallow for the last two days. Yesterday I finally took Tylenol all day and that seems to have knocked it back a bit.

They'll be rerouting the pancreatic and bile ducts and taking a chunk out of my duodenum. He MAY take out the gallbladder if he sees any evidence of stones, and if they have to do the more drastic surgery, he'll definitely be removing the gallbladder, and possibly parts of my pancreas and stomach, etc. Any one of those things can mess with the bile/enzyme/processing stuff.

Can you take an antihistamine? That sounds like some inflammation in the Eustachian tube...

:o Talk about scarey! My goodness. Donna I can see why this has captured your full attention lately. I will be hoping with you for the lesser invasive procedure.

Sherry

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mftnchn Explorer
mftnchn
Posted
I am very excited about Germany! Less than a week away! I guess if this Bionic works I might get to meet many of you ..... I'm sure you'll want to visit when I'm healthy ;) The Bionic is supposed to be good at moving out metals and other toxins, in addition to getting the Lyme.

This is very odd ... I've been feeling good lately (past two days) unless I EAT. When I eat it's not digestive issues, it's pain ... not in my stomach, but my back and shoulders. Why? I don't get it?

I am feeling better though and have gained back three pounds. I have not been eating more or less than before, the weight has come back just the same way it went away ... for absolutely no reason at all. I must be moving out the mold toxins to be feeling better. I'm not on the cholestyramine, it was killing me. I've been taking zeolite and chlorella.

Carla, that sounds good about the weight readjusting. Probably all of this is just detoxifying. Very weird about the pain in back and shoulders when you eat. I haven't a clue about that one unless it is referred pain?

I am really hoping the Bionic will be the answer for you and for many of us too.

CarlaB Enthusiast
CarlaB
Posted

Yeah, I don't know what it's all about ..... but it's normal pain for me, just odd it's only after I eat. Maybe I'm doing okay until I need energy to digest???

mftnchn Explorer
mftnchn
Posted

I wondered that too. Hmm, bile release with foods? Take more binders 1/2 hour before a meal?

CarlaB Enthusiast
CarlaB
Posted

What's that mean? Bile release? I mean, I know what bile is, but how would it cause pain? :) Toxins being released?

aprilh Apprentice
aprilh
Posted
This is very odd ... I've been feeling good lately (past two days) unless I EAT. When I eat it's not digestive issues, it's pain ... not in my stomach, but my back and shoulders. Why? I don't get it?

Carla,

I get the neck and back pain when I eat sometimes. Sometimes I think its *what* i eat, then other times I think its that my digestion is stressed even though I do not get the *normal* type symptoms. I have had the pain in the neck and back then it moved down to the intestines - and went away in the back (if that makes sense). So, I figured out it really was pain coming from digestion.

OR it could be you are moving things around when you eat - moving toxins through and that's why you feel it then.

Try seeing if there is certain food thats causing it or if its at every meal.

mftnchn Explorer
mftnchn
Posted

Open Original Shared Link

Wow, I am only taking 200 mg IM of glutathione a week. I am going to ask my LLMD about taking extra doses when I feel symptomatic.

confused Community Regular
confused
Posted

Sherry,

Is there an scd diet without dairy? I thoughti seens someone talk about it, but i cant think now were i seen it posted lol.

Everyone,

I ordered an complete stool test. It was my birthday present to myself lol. I figured i would be doing it right around my birthday next week lol. This pain is really really bad, I think giving birth was so much less painful.

paula

CarlaB Enthusiast
CarlaB
Posted

Thanks, April. I don't think it's any particular food, I get this way if I eat any solid food. Mine doesn't move like yours does. If I eat a smoothie (even if I take supps with it) I'm okay. If it's anything solid, I get the pain.

I get it if I eat a piece of toast (Ezekiel Bread), so I was thinking, gluten since I've had that problem before ... but when I eat a berry stella at Starbucks, no pain. But pretty much any food gives me the pain .... other than the berry stella, rofl.

aprilh Apprentice
aprilh
Posted
Sherry,

Is there an scd diet without dairy? I thoughti seens someone talk about it, but i cant think now were i seen it posted lol.

Everyone,

I ordered an complete stool test. It was my birthday present to myself lol. I figured i would be doing it right around my birthday next week lol. This pain is really really bad, I think giving birth was so much less painful.

paula

Paula,

The diet is highly specific to what each person can tolerate. The premise is when you heal enough to eat certain foods, then those foods are on the *okay* list because they don't hender digestion. Some people start very slow with minimal foods and slowly add things in.

I have been 95% no dairy for 2 years so I am used to eating that way. When I started the SCD the only dairy I would eat was the homemade yogurt. I haven't been completely strict on myself *yet*. I will be more into it when my son starts it with me. I just wanted to get the idea down before starting him on it.

So, if dairy is a problem right now, you can tailor it to your body type and do it without. Just start with the foods you "know" are okay for you.

mftnchn Explorer
mftnchn
Posted

Well, I just haven't found the culprit in terms of the return of symptoms for me, although I do think the almonds (the ones with stuff added) are a problem. I seem to be detoxing too, with a rash like acne but not quite the same, fatigue and fogginess. Not sure exactly what is going on, unless it is mold related. So I am going back to eating my moderate SCD approach. There is obvious GI symptoms in terms of constipation or abnormal BMs. Some bloating but that has been the case all along.

I also don't seem to have much response to taking more mag and C like I used to. :( I'm going to push it up a bit more and see what happens. I do have a liquid mineral mix I haven't been using so I think I'll add it in just in case the DMPS is getting rid of more than I am supplementing.

The symptoms typically aren't severe but the fatigue/fog has been bad enough to disrupt work a couple of days.

CarlaB Enthusiast
CarlaB
Posted

Sherry that is exactly the rash I would get. It's clearing up more now every day. I had it when I first was sick, then it went away a while. A few months ago it came back. I changed shampoos, etc. wondering what could be causing it. Finally, when I got rid of the bed, it started to clear up. I just have a few bumps left. They almost seem like pimples, but can't be popped.

AndreaB Contributor
AndreaB
Posted

Carla,

Can't wait to read about your trip. You'll let us know where you're blogging right? I don't know what to say about your pain though.

Paula,

Hope the stool test gives you some answers. :(

Donna,

I'm hoping for the absolute best, easiest scenario for you.

Sherry,

I'm wondering about mold with you too. Maybe if you're moving metals out some mold is being disturbed. I don't know what the mold shots have in them or what they do though......

CarlaB Enthusiast
CarlaB
Posted

I'll be sure to let you know, Andrea, I haven't decided where to keep the blog yet. I'm thinking about myspace, but I may also put it at a blog spot so people who don't have a myspace can get to it .... also so I can post where it is publicly.

I'm feeling pretty good again today. I've been off meds since getting rid of the bed, except for trying to get back on them for a few days. I should be going downhill as I haven't even been taking herbs and normally I'd start feeling bad by now, especially off babesia meds.

I have a head cold ... Adam has it, too. I'm constantly blowing my nose. Normally, my symptoms would flare during a cold especially off meds. I have had a couple times on meds when I was feeling good that my symptoms didn't flare, but I think it's significant that I'm off meds and herbs, have a cold and my symptoms are not flaring.

Even if I weren't going to Germany, I think that at this point, I would be taking only herbs. I just think I'm getting better. About 80-85% yesterday. I took two Advil late in the afternoon (after eating) .... but that's a significant improvement from taking Norco regularly ... plus, I usually take three Advil.

Well, I'll be busy today! I'm going to the gym, then getting cleaned up and spending the afternoon with Adam. :)

I guess I'd feel really good if I didn't have this cold!

mftnchn Explorer
mftnchn
Posted
Sherry,

Is there an scd diet without dairy? I thoughti seens someone talk about it, but i cant think now were i seen it posted lol.

Everyone,

I ordered an complete stool test. It was my birthday present to myself lol. I figured i would be doing it right around my birthday next week lol. This pain is really really bad, I think giving birth was so much less painful.

paula

Paula, check out www.pecanbread.com Many of the autistic kids are not able to eat dairy so the site has a lot of options for that.

Sherry

confused Community Regular
confused
Posted

Thanks sherry, I think i better wait til after I do the stool test and then start the diet.

Carla.,

Glad you are feeling better.

Andrea,

I hope i get some answers to. Last night my mom threatned to check me into the hospital til they can tell me why I am so sick. I was like im not going to an medical hospital, they will kill me lol

paula

going back to bed

dlp252 Apprentice
dlp252
Posted

Uggg, another sleepless night...or rather, slept okay until 2:00 then NOT, lol.

Thanks. There was an old thread resurrected and you had posted on that thread. Someone asked you a question and I mentioned that you didn't post there anymore, so I'd bet that PM was regarding amalgams, LOL!

I am very excited about Germany! Less than a week away! I guess if this Bionic works I might get to meet many of you ..... I'm sure you'll want to visit when I'm healthy ;) The Bionic is supposed to be good at moving out metals and other toxins, in addition to getting the Lyme.

Yes, it must be, lol. They asked about binders. Heck, if I have any body parts left after surgery I'd come, lol! :lol:

Can you take an antihistamine? That sounds like some inflammation in the Eustachian tube...

Hum, I guess I need to get some antihistamine...dumped my whole bottle on the floor of the airplane on my last trip to Las Vegas, lol. Yeah, funny thing is, I can almost predict when I am going to get it. I ate a whole lot of chocolate last week that had dairy, and I'm pretty sure that did it. It seems to happen any time I eat too much chocolate with dairy. I think my ear is my current "weak" spot.

I'm hoping for the absolute best, easiest scenario for you.

Thanks! :)

mftnchn Explorer
mftnchn
Posted
Sherry that is exactly the rash I would get. They almost seem like pimples, but can't be popped.

Yep exactly like that. I had it last year for awhile, and then again this summer when I first did SCD, and now again.

Andrea, I have been having the same thought. My mold shots are a tiny amount of the mold mixture, so it is like a mold exposure. This is the season that I have trouble with mold. And then suddenly the shot was too much so like an overload.

Another thing is that I would have had a greatly increased mold exposure and pollution exposure for the 2-3 years before my tick bite and my allergies were worsening along that time as well because that is when I moved to Asia to a very damp hot climate. I lived in that climate for more than 20 years and I know that the mold impacted me. So maybe I am finally detoxing? Maybe I couldn't detox before but things are opening up?

Do you think the mold could so upset my digestion though?

CarlaB Enthusiast
CarlaB
Posted
Do you think the mold could so upset my digestion though?

I was free from any digestive symptoms until I got rid of the mattress a couple weeks ago, so I do think mold detox can cause severe digestive issues. I still am feeling sick whenever I eat solid food. I think I'm going to have to go back to smoothies, lattes, etc.

Also, from what I've read, if you're mold toxic, mold allergy shots can be counter-productive. If you already have mold toxins in your system the allergy shots can be harmful. Open Original Shared Link

If you go to the bottom of that page, there is a return to menu option .... it's kinda hard to figure out where "home" is at that website.

Mold toxicity is often the end result with constant exposure to mold of a toxic substance. A common misconception among allergists who are untrained in this type of toxicity levels in humans, which is technically not their area of expertise unless they have trained specifically in environmental medicine with their background in immunology, is to do general allergen testing. Most tests usually result in an unequivocal result, a 2+ or less. This induces some physicians to order allergy shots, regardless. These shots are absolutely worthless (and could possibly be harmful) to a person who has been heavily exposed to these mycotoxins as they are already in a state of toxicity. If anything, this could exacerbate the problem. Because many doctors are not trained in this field, they may try to "guess" at a diagnosis.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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