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Omg...i Might Be On To Something


Rachel--24

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CarlaB Enthusiast

Very interesting, Rachel. I have a lot of that. I have a Rolex I bought with money I saved babysitting and some that I got for high school graduation. I bought it in 1982 and have been wearing it ever since (it ended up being a good investment :lol: ). I stopped wearing it a couple months ago because it bugs me. Morgan was flabbergasted when I told her. She couldn't believe I had worn it that long and don't wear it anymore. Jewelry seems like it's choking me sometimes. Sometimes the kids grab me to hug me and it hurts.

Sounds REALLY bug me. So do lights. I wear sunglasses even when it's cloudy, but not all the time, some days it's worse than others. I can't sleep if any light is on ... if the cordless phone's light, or the computer charger, etc. I've learned to tolerate the air cleaner's light because the sound helps. I get completely blinded when cars have their bright lights on ... even if it's daytime.

It's good knowing this stuff is "normal."


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AndreaB Contributor
Ok So I had my docotr appt. and my lyme c6 peptide test came back positive- my doc says he had stopped giving this test because it almost always seemed to come back negative he was really suprised. So as of now the plan is that I have started (as of tonight )this meiciene for my motility issues. Starting next tuesday I am going to go into him 2 times a week for antibiotic shots- because he dosen't think I will be able to handle antibiotics orally- and than I will after two sessions do this urine test for lyme.

Ok there is more to write but that is a quick recap

Miamia

Miamia,

Rachel's already answered you and she's knows far more than I do. I haven't done one ounce of research. Sounds pretty positive combined with your Igenix test though.

I haven't had a cold or virus (that I know of) for 2 years now. Of course, now that I've put that in writing, I'll get sick tomorrow!!

:lol::lol:

I hope not. :)

Carla,

I hope you start turning the corner to feeling better soon. Is any of this part of detoxing/herxing or just normal part of lyme?

miamia Rookie
Miamia...yeah...the main problem with this test is that its not sensitive enough. Its only about 50% sensitive so that means there are ALOT of false negatives.

You have a positive! I will have to do some research to see how "specific" this test is for Lyme but I'm thinking that since you are positive, this combined with your Igenix Western Blot results plus your symptoms pretty much means Lyme Disease.

The urine tests also has alot of false negatives so even if you get a negative on that it wouldnt mean much since you already seem to have a pretty clear picture. I'm gonna look further into the c6 peptide test but I think at this point you dont need more testing. Is your Dr. not ready to diagnose you yet?

Rachel-

Thanks for the volonteering your research talents!! My doctor and I both feel if I have lyme I have had it for along time and thats probably making it that much harder to diagnose. I think he feels like there are many docs who would say I definitly had it and both he and I are in the same boat of thinking its highly probable but not 100% sure becasue is it that or some other bacterial infection? So we are going to start treating it with the antibiotics. I have so many other factors coming into play right now- the bad candida, the poor motility, etc- obviosly all of these things could have started with lyme.

One of the other major things is he knows I don't have alot of money and he thinks the only antibiotics I will baable totake are these injections and they are really expensive the only way they are covered at all is if you have a diagnosis- medically- as in by a test- f-ing insurance companies!! So he really wants me to be covered so he is trying to get me to test positive on a test that they will recognize.

honestly I was so overwhelmed at my last appt. It was the day after xmas and there was so much info I felt just overwhelmed. I am still waiting for one more set of results from igenix that should be in either late this week or early next week and than I go into him on tuesday for the first injection and I will get to talk to him more then.

Miamia

miamia Rookie
Funny about the egg sandwhiches!! :lol:

For some reason New Years doesnt get to me too much even though January was also the month that I got really sick. I was developing symptoms for a few months prior to that but got hit hard in January. I just go to bed early on New Years and by the time I wake up its all over with and I'm like...."Who cares?" :P

Xmas is really hard though. :(

I'm thinking to do this this year just rent when harry met sally (my favorite new years movie) and go to bed at like 10 -

miamia Rookie
Actually my babesia showed up in BioSET...and I also had other alternative medicine type testing done where babesia showed up.

You asked if I thought the BioSET was "right on the money"...and i've had some experiences where it really has been. It's always done wonders for my allergy with dairy, but as for the actual testing and what it finds...I feel that it's very accurate for it's readings on my Candida...and it also found H Pylori, which was found in my blood tests. One time it also showed up that there was a problem with my tonsils, and it was completely accurate because I had a sore throat that day.

Thanks for all the information on Babesia! So you think you all have it too? My biggest symptom out of all the symptoms that I have in general is severe constipation (I know, T.M.I. right? haha. but im so used to talking about it by now.) does anyone suffer from that? If I don't take high doses of magnesium-oxide, I don't go for about 2 weeks, maybe even three if it's really bad. What your guys' worst symptoms? You guys say that you think you might have Babesia too...what kind of symptoms make you think that? I get the headaches, the night sweats, the fatigue...then randomly I'll get spurts of diarreah.

This would be lovely dinner conversation, wouldn't it?

I have had alot of problems with constipation. Luckily alot of it has cleared up but it is still an issue for me. Its crazy though now if I don't go for one day I really feel it- like get so uncomfortable I can't sit still and my stomach gets so bloated.

My worst symptoms- pain when eating, weight loss, extreme bloating, loss of appetite, trouble breathing (the inability to take a complete breath), sensitivity to noise,light and smells, major food -major, major food sensitivities, bad brain fog- bad brain fog!- oh god this list is starting to depress me I have to stop

Miamia

dlp252 Apprentice
Oh my goodness, this board is HUGE. haha...well I was ever so kindly invited by Carla to join because she informed me that lyme disease is a popular topic on this board. But anywayyyys...it looks like everyone is talking about the holidays right now...I hope everyone is having a good time, it sure sounds like you are. :)

Hello and welcome!!!

dlp252 Apprentice
Donna.....that was one HECK of a good pie! I dont know if its just cause I havent had any in so long.....but MAN....I think that little gluten-free $10 pie was the BEST I've ever had!! :D

Of course it would have been even better with cool whip. I wonder if I can just bring a tub of cool whip to Bioset and have the Voo-Doo lady "de-sensitize" me. :lol::lol:

I think I might have to write to Whole Foods to MAKE SURE that they always have that pie available during the holidays....or even all year would be great! B)

I cant believe I didnt get any bad reactions though....maybe the Bioset is helping?? As far as stuff in foods....I've only been treated for molds and phenolics so far. The phenolics panel was pretty big though....alot of the chemical type stuff in foods. Who knows...maybe it helped some. :huh:

I'm looking forward to getting into foods next week! WOO-HOO!

I miss eggs. My mom was making egg sandwiches this morning. Holy Cow....I miss those!! I LOVE eggs like that...english muffins are the best. Do they make any gluten-free english muffins yet??? :unsure:

Emotionally....I didnt do too well through the holiday. :(

Lots of tears and lonliness and just missing life the way it used to be. I didnt go to work yesterday or today because the sadness brought me down and I didnt feel good. :(

I had those balls of stress in my stomach again but its better now...I'm going to work tomorrow.

Its crazy cause I do all this stuff to keep myself feeling good. Avoid all these foods, dont drink alcohol, avoid chemicals....then I keep someone in my life who is more toxic to me than all that stuff put together. :blink:

I decided not to do that to myself anymore...No more toxic people in my life. This is the same person who got me in this mess to begin with....causing me so much stress. Its my New Years resolution to just focus on me....and getting better. :)

...

Donna, are you feeling better??

That pie WAS good...I looked for one last year and they didn't have one, so I was really excited when I saw it. Heck $10 is nothing when we're talking pumpkin pie, lol, it was worth every CENT! :D

I'll bet the BioSET IS working! I find it amazing that you didn't react! That's pretty exciting!

I always tend to reflect more at the holidays...you're right, toxic people have to go. I felt like work was VERY toxic for a couple of years, but it's calming down now for me.


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dlp252 Apprentice
Rachel- I noticed you said that you've started Bioset treatments! I'm so excited for you because I've been doing it for a couple months now and it helps SO MUCH! I can eat dairy right after my treatments (which I usually can't eat), and a couple of other things that im usually sensitive too, but unfortunately it doesnt clear up my gluten problem, and unfortunately people with lyme disease get re-sensitized quickly.

That's exciting, lol!!! I'm going to start BioSET in about a week and a half! I go next Saturday for my initial appointment!

dlp252 Apprentice
Do you guys feel like you're immune system is over active too....and you dont catch colds?? Obviously my immune sytem has freaked out on me and is fighting everything in sight (or out of sight) so this is a good sign?? :huh:

I've had two doctors tell me mine is overactive! And, I DO feel sick most of the time, but usually don't get colds. Whatever I've got now is what I usually get...not a cold, but something like it.

dlp252 Apprentice
For some reason New Years doesnt get to me too much even though January was also the month that I got really sick. I was developing symptoms for a few months prior to that but got hit hard in January. I just go to bed early on New Years and by the time I wake up its all over with and I'm like...."Who cares?" :P

Ditto! If I'm feeling particularly festive, I stay up until 9:00 New Years Eve, but otherwise, it's bed at 8:00! :lol: :lol: :ph34r:

dlp252 Apprentice
Very interesting, Rachel. I have a lot of that. I have a Rolex I bought with money I saved babysitting and some that I got for high school graduation. I bought it in 1982 and have been wearing it ever since (it ended up being a good investment :lol: ). I stopped wearing it a couple months ago because it bugs me. Morgan was flabbergasted when I told her. She couldn't believe I had worn it that long and don't wear it anymore. Jewelry seems like it's choking me sometimes. Sometimes the kids grab me to hug me and it hurts.

Sounds REALLY bug me. So do lights. I wear sunglasses even when it's cloudy, but not all the time, some days it's worse than others. I can't sleep if any light is on ... if the cordless phone's light, or the computer charger, etc. I've learned to tolerate the air cleaner's light because the sound helps. I get completely blinded when cars have their bright lights on ... even if it's daytime.

Ditto! I don't wear jewelry much for the same reason and I also wear sunglasses when it's overcast! Cars with bright lights really hurt!

Anonymousgurl Contributor
I have had alot of problems with constipation. Luckily alot of it has cleared up but it is still an issue for me. Its crazy though now if I don't go for one day I really feel it- like get so uncomfortable I can't sit still and my stomach gets so bloated.

Miamia and Rachel- Isn't the constipation HORRIBLE?? you described it perfectly Miamia...my stomach actually VISUALLY extends when I dont go. I think it's because I have trouble keeping on weight so I have to eat 2500 calories a day, and that's a ton of food because everything I eat is low calorie because I have such bad food sensitivities. SO when I dont go to the bathroom and get all that food out, my stomach extends and it's just so uncomfortable! Ironically I'm having this issue right now. It's weird...my constipation got worse after going gluten free! No diarreah now...JUST constipation. I'm gettin sick of it. Anyone have any constipation advice? haha...

I was also wondering if anyone thought that bloating might go along with Babesia or co-infections? because I wake up with a very tiny stomach since im underweight...and then by the end of the day it starts looking pretty round!

Dlp- Thanks for the welcome :) And good luck on your BioSET, I'm excited for you! keep us updated! Do you have pretty bad food sensitivities?

dlp252 Apprentice
Dlp- Thanks for the welcome :) And good luck on your BioSET, I'm excited for you! keep us updated! Do you have pretty bad food sensitivities?

My reactions to foods aren't as severe as most on this thread, but I suspect food plays some part in why I don't feel well most of the time. I have diarrhea most of the time, so can't offer any help on the constipation issue. I do have times where I won't go for a couple of days...when that happens I do something really odd, lol. I have an exercise ball...you know, one of those really big balls that people sit on to do sit ups, etc. When I have constipation, I drape myself (as in very relaxed) over it face down and kind of massage the tummy area. It also helps to relieve the "tightness" in the lower back area. Weird, but it seems to help me anyway.

miamia Rookie
Miamia and Rachel- Isn't the constipation HORRIBLE?? you described it perfectly Miamia...my stomach actually VISUALLY extends when I dont go. I think it's because I have trouble keeping on weight so I have to eat 2500 calories a day, and that's a ton of food because everything I eat is low calorie because I have such bad food sensitivities. SO when I dont go to the bathroom and get all that food out, my stomach extends and it's just so uncomfortable! Ironically I'm having this issue right now. It's weird...my constipation got worse after going gluten free! No diarreah now...JUST constipation. I'm gettin sick of it. Anyone have any constipation advice? haha...

I was also wondering if anyone thought that bloating might go along with Babesia or co-infections? because I wake up with a very tiny stomach since im underweight...and then by the end of the day it starts looking pretty round!

Dlp- Thanks for the welcome :) And good luck on your BioSET, I'm excited for you! keep us updated! Do you have pretty bad food sensitivities?

I am exactly like this - so thin and have to eat as much as I can so if I don't go its really painful- because I am always eating more than I am hungry for. I have afew things that help I will list them all later. Magnesium gives me a bit of diaheria and makes me feel like crap so I don't take it. But you totally described me about the food sensitivities and having to eat more and not being able to getting it out and that it has gotten worse since being gluten free.

Miamia

AndreaB Contributor
I always tend to reflect more at the holidays...you're right, toxic people have to go. I felt like work was VERY toxic for a couple of years, but it's calming down now for me.

I'm glad work has settled down Donna. Have you got that brief done or does it get finished today? Missed seeing you pop in here the last couple days. :)

That's exciting, lol!!! I'm going to start BioSET in about a week and a half! I go next Saturday for my initial appointment!

I can't wait!!! Am looking forward to more updates from bioset for you. How are the meds going? Seems like you've gotten used to them.

Miamia,

Hang in there. You are starting to get the answers you need. I hear you about money, we can only do what we are able. Hopefully a short antibiotic challenge will get these guys moving again. Didn't Rachel or Rhonda say you had to wait 2 weeks (or was it longer) before retesting after an antibiotic challenge?

AndreaB Contributor

Grr. Came back with an error and I resent and it posted twice......obviously edited. :)

dlp252 Apprentice
I'm glad work has settled down Donna. Have you got that brief done or does it get finished today? Missed seeing you pop in here the last couple days. :)

I can't wait!!! Am looking forward to more updates from bioset for you. How are the meds going? Seems like you've gotten used to them.

I got a break on Tuesday and they had our other local office work on it since I was so sick. I saw it yesterday, but it really wasn't bad. They have to file it with the court today, so I'm not sure if I'll see it or not. Darned thing is 150 pages, lol. I'll probably see it at least once today for last minute revisions.

The meds seem okay. The only thing I'm having a problem with now is the Pepto Bismol. That stuff is wretched, lol. My throat doesn't want to swallow the pills! I really have to concentrate when I try to swallow them, lol. And, I'm waking up in the middle of the night with the most awful taste in my mouth and throat. But, I'm not feeling as queasy or light-headed as when I first started all the meds. Some of that may be just that I'm not as sick as I was then.

CarlaB Enthusiast
Carla,

I hope you start turning the corner to feeling better soon. Is any of this part of detoxing/herxing or just normal part of lyme?

I really don't know. I'm doing so many things that could be causing herxing, or it could just be the Lyme.

DingoGirl Enthusiast

Whew! Just KIND OF caught up! I am so behind. Working has been interfering with my fun and play time in life - harumph! :angry::P But I missed you guys.....wow Rachel, you've been eating pumpkin pie, and ONE potato chip? how are you feelign now?

Miamia - I hope you're feeling better......this season can be hard on everyone...I sailed through beautifullly this year but have had SO many tough Christmas years....I do hope you're feeling better soon.

Carla - - did you get a laptop? is that new? yeah, just stay in bed, and come out for food occasionally!

Andrea - good deal on the tree (Rachel's mom's was even better, holy cow!).

Donna - nice to see you! Glad work has calmed down.

Hello to everybody else. Welcome peacenlove! sounds like you've found the right place. :)

I am just so wishing for great health and well-being to all of you/us in 2007. (I know, premature but who knows when I"ll catch up again). :huh: My resolution is to finish painting my house, and get all closets/cupboards/drawers really organized - and stay that way. :ph34r: Kinda hard for me, I clean up my creative bombs/messes quickly sometimes and just throw things in drawers and boxes. Must fully organize now that I have energy.

Well, must get ready for work. Had several wonderful gluten-free meals at friends'/family's over the holiday, it was wonderful, they just simplified and followed my instructions and it worked so well. Brought me much joy. Tonight, Christmas dinner at my mom's with my slacker family. Oh, for Christmas day, my brother's family - - - holy Lord, some of them were in pj's, all had colds, hanging out in separate rooms (for the first part), doing their own things and hardly conversing (until I livened things up) - YAWN. <_< they were exhausted and spent - - bizarre but not totally out of character. Next year, I will go to the REALLY FUN places with lively banter and exuberance and Christmas spirit. :D

Wub you guys.......see ya!

CarlaB Enthusiast

Susan, I got my laptop a year ago when we knew we were moving out of our house and I would be living in a small place with Morgan till she graduated. We got a laptop for me so that the kids could have a computer in Ohio with Adam and I could have a portable one so I could leave the apt. and sit at Starbucks with it. I could also take it back and forth between Ohio and Indiana.

I love it! I love being able to take it with me. Morgan had her wisdom teeth pulled this morning, so I brought my computer along and balanced the past three months of checks!

Rachel--24 Collaborator
Didn't Rachel or Rhonda say you had to wait 2 weeks (or was it longer) before retesting after an antibiotic challenge?

Yeah.....but that is for the Western Blot. Miamia is doing the urine test I believe. There are no antibodies involved in the urine test.

Rachel--24 Collaborator
One of the other major things is he knows I don't have alot of money and he thinks the only antibiotics I will baable totake are these injections and they are really expensive the only way they are covered at all is if you have a diagnosis- medically- as in by a test- f-ing insurance companies!! So he really wants me to be covered so he is trying to get me to test positive on a test that they will recognize.

That makes sense. I think for IV antibiotics or anything like that...they really want to see a positive test. I dont think that you're hard to diagnose....you had alot of bands show up in your Western Blots and you had a positive c6 peptide test... apparantly its difficult to test positive with that one. I would bet money if you redid the Western Blots after antibiotcs...you would be VERY positive.

The whole process of getting diagnosed is a drag for all of us. :(

Rachel--24 Collaborator
That pie WAS good...I looked for one last year and they didn't have one, so I was really excited when I saw it. Heck $10 is nothing when we're talking pumpkin pie, lol, it was worth every CENT! :D

It SURE was!! I just finished it off today. Yeah....its pretty darned unbelievable that I didnt react to it. :huh:

Another Xmas miracle is the fact that I didnt Rachel the little pie on the first night. :lol:

I made it laaaaaaast. If they still have any I'll buy another one. Holidays arent over yet right?? There is still New Years....so there *may* still be PIE. :o

I hope you're seeing Anna for your your BioSET testing...she's the best one there. I cant wait to hear how it goes for you. :)

AndreaB Contributor
I am just so wishing for great health and well-being to all of you/us in 2007. (I know, premature but who knows when I"ll catch up again). :huh: My resolution is to finish painting my house, and get all closets/cupboards/drawers really organized - and stay that way. :ph34r: Kinda hard for me, I clean up my creative bombs/messes quickly sometimes and just throw things in drawers and boxes. Must fully organize now that I have energy.

Well, must get ready for work. Had several wonderful gluten-free meals at friends'/family's over the holiday, it was wonderful, they just simplified and followed my instructions and it worked so well. Brought me much joy.

Wub you guys.......see ya!

Good to see you Susan! :)

Glad your holidays went well and you are sounding so up. :) Work definately interferes with playing on the computer (or elsewhere), but unfortunately is a necessity in life.

dlp252 Apprentice
It SURE was!! I just finished it off today. Yeah....its pretty darned unbelievable that I didnt react to it. :huh:

Another Xmas miracle is the fact that I didnt Rachel the little pie on the first night. :lol:

I made it laaaaaaast. If they still have any I'll buy another one. Holidays arent over yet right?? There is still New Years....so there *may* still be PIE. :o

I hope you're seeing Anna for your your BioSET testing...she's the best one there. I cant wait to hear how it goes for you. :)

I Rachelled my pie for you, lol. But, I'm thinking of getting another pie myself, lol. Crazy! I'm going on a Saturday...I think you said she might not work on Saturdays. I'm hoping she ALWAYS does the initial testing no matter what day it comes on...but maybe wishful thinking. I'm really hoping they can clear dairy, lol. I miss that more than gluten! And, then I could eat as many pumpkin pies as I want, lol.

Speaking of BioSET, do they give you any kind of printout of what they find? I don't know how I'll remember everything.

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Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
    • lmemsm
      I've been making a lot of black bean brownies lately because it's one of the few gluten free dessert recipes that actually tastes palatable.  I've also seen chocolate cake recipes with black beans.  Someone mentioned a cookie recipe using lentils in place of flour.  Just wondering if anyone's run across any tried and true recipes using beans, lentils or peas for desserts?  I've seen a lot of recipes for garbanzo flour but I'm allergic to garbanzo beans/chickpeas.  Was wondering if adzuki or pinto beans might be useful in replacing some or all of the flour in baking.  Since gluten free flours can be crumbly was hoping the beans might help produce a better, less crumbly consistency.  Any recommendations for recipes?  Thanks.
    • lmemsm
      I've seen a lot of recipes for chia pudding, so I decided to make some with chia, water, cocoa and honey.  Didn't like the taste, so I added ground sunflower and ground pumpkin seed to it.  It tasted okay, but came out more like frosting that pudding.  I used to make pudding with tapioca starch, milk powder, water and sugar.  It came out very good but I haven't figured out what to use to replace the milk powder to make it dairy free.  Most starches will work in place of tapioca starch but quantity varies depending on the type of starch.  If I didn't add enough starch to get a pudding consistency, I'd add gelatin as well to fix it.  Avocado and cocoa makes a good dessert with a pudding like consistency.  Unfortunately, I have a bad reaction to avocados.
    • lmemsm
      Seems like when I find a gluten free product I like, the producer stops manufacturing it and then I have trouble finding a new gluten free source for it.  What's worse, I've been contacting companies to ask if their products are gluten free and they don't even bother to respond.  So, it's making it very hard to find safe replacements.  I was buying teff flour at nuts.com and they no longer carry it.  I noticed Naturevibe has teff and soy flour.  However, I can't get a response as to whether their flours are safe for someone with celiac.  Can't get a response from Aldi if their peas are safe for someone with celiac either.  I know Bob's Red Mill has teff flour but was hoping to get a large quantity.  I've been using up the 20 ounce Bob's Red Mill teff flour too quickly.  Does anyone know of a good source for teff or soy flour?  Any recommendations where to get gluten free beans, peas or lentils?  I found some packages of gluten free beans at Sprouts but not much variety.  I've also been looking for lentil elbow macaroni and it seems like no one is making that now that Tolerant was bought out.  Any suggestions for safe sources for these types of ingredients.  Thanks.
    • chrish42
      All I can say is this site is great!
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