Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

CarlaB Enthusiast
Wow, not sure about the discharge and why you'd get it from veggies...maybe the carrots have too much sugar for you... :unsure:

Fresh juice is very cleansing. My husband's uncle, who is an alcoholic but wasn't drinking at the time, would get intoxicated from it. He said it gave him more of a buzz than alcohol! :lol: Obviously, it was cleansing something out of him!

Anyway, I bet it's cleaning you out a bit. If you get mucus vaginally and in the nose, it sounds as if you have too much mucus in your system, which happens. I'd avoid dairy if you aren't already, but keep drinking the juice! Avoid as many toxins and processed foods as you can.

Rachel -- :lol::lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
Ha, be thankful it wasn't LAST summer...there'd have been 40 pages of posts in your 2 days, lol. :lol:

Good point Donna. Couldn't even leave for a couple hours last summer or you'd be 5 pages behind. Poor Rachel couldn't keep up. :lol:

Thanks for the memories Rachel. :lol::lol:

Julie will try and stop by to say "hi" but she's been super busy. If not, this is her "hi" to everyone.

Rachel--24 Collaborator
Julie will try and stop by to say "hi" but she's been super busy. If not, this is her "hi" to everyone.

Tell Julie "Hi" from me. :D

Tell her we miss her....we love her...wish her the best.....hope she is doing well....and all that good stuff. ;)

I was having fun reading her posts last night.....the town "greeter"....waving to evryone from the Rachlville float....wearing her Tiara and spreading cheer to all the Rachelvillians (and visitors). :lol:

Too funny!! :lol::lol:

There will be more silliness coming soon... :P

Rachel--24 Collaborator
Fresh juice is very cleansing. My husband's uncle, who is an alcoholic but wasn't drinking at the time, would get intoxicated from it. He said it gave him more of a buzz than alcohol! :lol: Obviously, it was cleansing something out of him!

I think if you get "immediate" type reactions from them...its probably not due to cleansing. For me....I'm not cleansing anything....I'm pretty much suffering from reactions if I drink fresh juice. :(

I'm not sure if she was saying shes getting the discharge fairly quickly or if its delayed?? If shes not eating other foods like starches, fruits, sugar, etc.....and shes *just* drinking the veggies....then it could be a cleansing effect....but not if she feels it immediately....that would be more of a reaction I would think.

CarlaB Enthusiast
I think if you get "immediate" type reactions from them...its probably not due to cleansing. For me....I'm not cleansing anything....I'm pretty much suffering from reactions if I drink fresh juice. :(

I'm not sure if she was saying shes getting the discharge fairly quickly or if its delayed?? If shes not eating other foods like starches, fruits, sugar, etc.....and shes *just* drinking the veggies....then it could be a cleansing effect....but not if she feels it immediately....that would be more of a reaction I would think.

Good points.

Lisa, were you using organic fruit and veggies for your juice? If you think about how concentrated the food becomes in juice form, the bad stuff becomes just as concentrated.

rinne Apprentice
Today was a rough day ... I wasn't around the board much.

Sorry you had a rough day.

Update on the fungus that was growing in one of our checkstands at work. :unsure:

A guy came in and cleaned it up a few weeks back. He did it over 3 days....had to cut into the checkstand and cut out the wood where the stuff was growing. He told my co-worker that it wasnt mold cuz mold spreads and this stuff was in one area....but had grown really thick and tall. I guess maybe it was about 5 or 6 inches high. :blink:

He said it was some sludgey slimey stuff....he had no idea what it was.

Today we had a safety meeting at work and I asked what the heck that stuff was....did we ever find out?? :huh:

They said it was a fungus for sure. Some fungus that grows on dairy or something. :unsure:

So some milk or other dairy product must have leaked into the checkstand and the stuff grew on it?? I dunno but it was stinky. <_<

It didnt smell like mold....it smelled like something died.....doesnt mold smell like mold or "musky" or something?? :huh:

Anyways they said I cant use it as an excuse to go home sick...cuz of it being a "dairy mold" and coming from something in my own dept. They said I'm immune to dairy molds cuz of constant exposure. :rolleyes:

:rolleyes: No kidding.

Thanks for the Rachelville quotes. I loved this one:

Posted by Mango04

So in the spirit of Rachelville, this has nothing to do with what's being talked about.

ROTFLMAO

Yep, my Chinese Restaurant in Rachelville is going to be called The Silver Dragon. We have all kinds of great stuff. The purple glittery bats love hot sour soup! You have to watch them! Since I am their caretaker, I need to make sure they never get loose! Otherwise, I have to make a lot more!

I honked to one of the geese and he honked back! :P He confirmed that no Auxigro crap has been brought to town. He said the cattle have been fitted with bags like the horses to catch their manure. We do not have to worry about them taking flopsies on our gardens!

In other Rachelville news, I am also the District Attorney. I prosecuted Gluten, Inc. We won a settlement of $36 Million. Our President testified on our behalf, and that convinced the jury our town deserves compensation. ;)

NoGluGirl, I'm impressed by the skills you bring to Rachelville, bravo on the $36 million dollar settlement, any plans for it?

CarlaB Enthusiast
Sorry you had a rough day.

Thank you. Today is very bad, too. Yesterday was worse though ... I couldn't even open my eyes yesterday to post on the forum! :o

I wondered what was wrong, then I realized that it's been a month since my herx, which means another is due ... <_< Herxes are hard to differentiate from normal right now because normal is bad, too, but with herxes I'm much weaker and have more neurological symptoms -- Lyme rage, poor Adam, the man's on his way to being a saint! :P

They say after each herx you feel a bit better than before the herx ... let's hope for that!! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor
They say after each herx you feel a bit better than before the herx ... let's hope for that!! :rolleyes:

I do hope that this one won't be so bad and that with each one you do feel a bit better. :unsure:

Is it due to die off that there aren't as many to die, or grow, or spread toxins, or whatever?

diamondheart Newbie
How do you get treated if he doesnt have your blood?? :huh:

I thought it was a necessary part of the process?? I've never had any testing or treatments without my blood being on the plate and then in the glass. It was the first thing they ever did before I even met with Anna.

My blood is in a vial and its always there....I didnt think they could do the testing and stuff without it?? :unsure:

I think Dr. F bases his treatments off my electro-magnetic field, as he tests me with this electrical machine. Don't ask me how it works. I hated physics.

Claire

CarlaB Enthusiast

After each die-off the overall bacterial load is somewhat lowered, so each month is supposed to get a little better until I'm feeling good between herxes.

Last month I was on one fewer antibiotics ... this month's is MUCH worse. Since I'm on three different antibiotics, we're getting the Lyme in all three of its forms now. The bacteria tends to change to hide, this month there was no hiding for it.

diamondheart Newbie
Posted by Camille'sBigSister

Rachel, no matter what we call your string - book, cult, slumber party, soap opera - it's always gonna be OMG!!! As in OMG, they're all crazy.

I always say, if you can't beat um, join um :wacko: .

Claire

diamondheart Newbie
The woman told my mom that I probably have AIDS because that affects the immune system. :rolleyes:

OMG...people are so ignorant sometimes. They have no idea what they're talking about. I've been tested for AIDS (which by the way is easy to determine)....I am low-risk for AIDS, I dont have the symptoms of AIDS...and oh yeah....my immune system works fine...I dont even catch a cold.

But yeah....I must have AIDS. :rolleyes:

I know this for certain because the brilliant GI Dr. sent me for an AIDS test instead of running any kinds of tests to find out why I was having FOOD INTOLERANCE and WEIGHT LOSS. :angry:

Yeah...I'm sure food intolerance is a definate sign of AIDS. :rolleyes:

OMG! I had something similar happen to me. Last summer when my GP was trying to help me figure out what was causing my abdominal pain, she wanted me to take an AIDS test! I was thinking :rolleyes: , ok I'll do your stupid AIDS test, but I DO NOT have AIDS! Then, after that brilliant idea, I noticed she never even tested me for candida. I got fed up, and found Dr. F.

How annoying :angry: !

Claire

jerseyangel Proficient
After each die-off the overall bacterial load is somewhat lowered, so each month is supposed to get a little better until I'm feeling good between herxes.

Last month I was on one fewer antibiotics ... this month's is MUCH worse. Since I'm on three different antibiotics, we're getting the Lyme in all three of its forms now. The bacteria tends to change to hide, this month there was no hiding for it.

The bacteria is putting up a nasty fight, but you will overcome it! I hope it happens sooner rather than later :)

CarlaB Enthusiast
The bacteria is putting up a nasty fight, but you will overcome it! I hope it happens sooner rather than later :)

Thanks. Yesterday it was winning the fight ... today I am. ;) I just need to keep my organs of elimination in good shape so that I can keep up with all the meds! I'm due to have my bloodwork done this week, but have been too weak to go in for it.

diamondheart Newbie
skimming this page, did I just read something about purple glittery bats? :P

You guys have purple glittery bats here? Whatever you all are on, I want some! Unless you are just smoking spinach. I'm sorry but that's just too weird :blink: .

Claire

AndreaB Contributor
Thanks. Yesterday it was winning the fight ... today I am. ;) I just need to keep my organs of elimination in good shape so that I can keep up with all the meds! I'm due to have my bloodwork done this week, but have been too weak to go in for it.

I do hope you feel better after this herx. :(

What will the blood work tell you?

AndreaB Contributor
You guys have purple glittery bats here? Whatever you all are on, I want some! Unless you are just smoking spinach. I'm sorry but that's just too weird :blink: .

:lol::lol:

Someone had a not so pleasant experience with bats if I remember correctly. These were made to be friendly and colorful. You'd have to visit the first few pages of the Rachelville 2 thread to read more about the bats. :)

CarlaB Enthusiast
You guys have purple glittery bats here? Whatever you all are on, I want some! Unless you are just smoking spinach. I'm sorry but that's just too weird :blink: .

Claire

The bats eat the insects! We made them pretty bats!

We don't smoke spinach, we put it in gluten-free brownies and eat it! :lol::lol:

AndreaB Contributor
I hope it happens sooner rather than later :)

In the spirit of off topicness......now's my adopted kitty. :)

CarlaB Enthusiast
What will the blood work tell you?

They do a bunch of tests ... a complete blood count, plus they test the liver enzymes. I consider that keeping my liver in good shape is going to be key to recovery. If I have to stop the meds for my liver, it will slow things down.

That's one reason I try to take saunas daily.

Mango04 Enthusiast

funniest thing ever:

so I started eating veggies and got worse cuz they sprayed Auxigro chemicals on my yams (bastards!)

:lol: :lol:

Not that it's funny that you got worse of course...but :lol: something about that sentence is just so amusing!

Forget about compiling all the useful information here (not that anyone was gonna do that anyway LOL) This funny stuff almost serves a much better purpose :P

jerseyangel Proficient
We don't smoke spinach, we put it in gluten-free brownies and eat it! :lol::lol:

Or we freeze it and use it for our sore muscles. Not good if done in bed, though :lol:

In the spirit of off topicness......now's my adopted kitty. :)

He's doing quite well for himself :D I have some windows open today, and he's really enjoying napping in front of one.

They do a bunch of tests ... a complete blood count, plus they test the liver enzymes. I consider that keeping my liver in good shape is going to be key to recovery. If I have to stop the meds for my liver, it will slow things down.

That's one reason I try to take saunas daily.

Yes, since the liver has to process all the meds, it's important to monitor the function to stay on top of things. Sounds like you have all the bases covered.

CarlaB Enthusiast
Yes, since the liver has to process all the meds, it's important to monitor the function to stay on top of things. Sounds like you have all the bases covered.

Fortunately my doc prefers holistic medicine, so I'm on all kinds of detox support. To give you an idea, between the meds, probiotics, and supplements, I take 52 pills per day!! He's on top of it all!

jerseyangel Proficient
I take 52 pills per day!!

:o

tabasco32 Apprentice

hi girls and thanks for your comments.

The veggies are organic from whole foods. The reaction is within seconds of drinking the juice. Same when I use to but not no more eat honey. I think maybe the juice is to concentrated into sugar? Should I water it down or something. Also I don't drink milk at all and my runny nose comes on right away with fatty foods llike eggs, almonds, avacado, coconut oil, and spices. Is my body rejecting fat or something as I keep losing weight. I also still feel very hungry after I eat. If I smell sweets or food my energy level drops and I feel heavy and week and this is right after I eat. I don't know what I ate last night but this morning I had bubble guts real bad and fatty stool. I took spirulina, chorella, magnesium citrate, walgreens milk of magnesia, sunflowe seed from davids, and gluten free oat meal which never caused me a problem. I wonder if this is just a real bad case of leaky gut or candida sepsis. I wonder how long I can live on chicken soup with frozen veggies if I eat it for breakfast lunch and dinner. Anyways girls have a good day. I am going to the beach right now to meditate.

Lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,297
    • Most Online (within 30 mins)
      7,748

    JRGOODRIDGE18
    Newest Member
    JRGOODRIDGE18
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lmemsm
      This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free.  I have allergic reactions to some toothpastes so some of the toothpastes in health food stores are usually safer for me. They're typically gluten free as well. Spices can contain cross-contamination from gluten.  There are a few lists online of spices that are safe for celiacs.  I also grow my own herbs and use them in place of store bought when I can.  I think Badia lists their spices as gluten free and Spice Lab has some gluten free too. Knitty Kitty has a great point about nutritional deficiencies and B vitamins.  I got a lot of aches and pains when I got off gluten.  I tried to replace wheat with other healthy grains like teff, buckwheat and sorghum.  Limiting one's diet too much and not getting enough vitamins, can make someone feel worse.  A lot of the gluten free foods in the stores are made with lower quality ingredients than the wheat varieties.  I try to replace all my foods with homemade options.  Then I know the quality of the ingredients and which vitamins I may be high or low in.  Probiotics or prebiotics can help with bathroom issues.  Better to get them in foods if possible and not pill form.  My doctors keep recommending magnesium too.  It's not supposed to be taken alone, but they don't seem to care about that.  It's easy for vitamin D to be low too.  That was another thing doctors told me to take.  Unfortunately, they didn't monitor it and it went too high.  Again, better from natural sources like food and sunlight.  However, supplementing can help if you're not getting enough.  Some sources say to take D with K2.  You may want to have iodine levels checked.  If you add iodine, make sure to get sufficient selenium for thyroid.  You can get iodine naturally in most seaweed.  Nori may also be one of the few non-animal sources for B12.  Brazil nuts are a good source of selenium and you only need a few a day to meet RDA.  Some brands of nuts specifically say gluten free.  Unfortunately, there are issues with Brazil nut production and they're much harder to find this year. The more you can vary your diet the better.  One study said aim for at least 30 different foods in a week.  You might want to try kiwi fruit.  There were some studies that said eating kiwi improved mood.  It also has a covering which most people don't eat, so that should protect what's inside from contamination. I've limited my diet quite a bit over the years because of migraines, so I know how uncomfortable it can be finding safe foods.  However, I'm afraid limiting diets like that may actually be causing more harm than good.  It's something I'm trying to work on.  I keep trying to expand the number of foods I eat and my recipe repertoire.  I made a list of brands of foods that I've found that are gluten free so I have a guide when I'm shopping.  
    • knitty kitty
      Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease.  My doctors didn't recognize nutritional deficiencies either.  I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having.   Poor absorption of essential nutrients is caused by the damage done to the intestines by Celiac Disease.  The gluten free diet can be low in essential nutrients, so supplementing to boost your absorption is beneficial.  New symptoms can develop or worsen as one becomes more and more deficient.   There's eight essential B vitamins that our bodies cannot make, so they must come from our food and supplements.  These eight B vitamins work together, like instruments in an orchestra.  They need to be supplemented together with essential minerals like magnesium.   Deficiencies in the B vitamins can have overlapping symptoms.  Some symptoms can be traced to specific B vitamins.  OCD can be traced to low Pyridoxine Vitamin B 6.  Yes, I had OCD and washed my hands until my skin cracked and bled.  ADHD symptoms can be traced to low Thiamine Vitamin B 1.  ADHD is something one is born with.  People who are born with ADHD have a metabolic problem with getting sufficient thiamine into their brain cells.  People who develop symptoms of ADHD later in life are more likely to be low in Thiamine.  The same symptoms appear if one is not getting sufficient thiamine from the diet.  Yes, I developed symptoms of ADHD.  These symptoms improved and disappeared after supplementing with Thiamine and the other essential nutrients. I was diagnosed with Type Two Diabetes.  99% of diabetics of both types are deficient in Thiamine because our kidneys don't re-absorb thiamine properly.  Thiamine is needed to make insulin and digestive enzymes in the pancreas.  Poor digestion (floating, undigested stools) can result with insufficient pancreatic enzymes.  The gall bladder (upper right quadrant) needs thiamine to make and release bile which also helps with digestion.  Constipation is also a symptom of Thiamine and magnesium deficiencies.  The thyroid is another organ that uses lots of Thiamine, too.  Low thyroid hormones can be due to insufficient thiamine, selenium, iron, and iodine.  Swelling of hands, face and feet are also symptoms of thiamine insufficiency.   Our bodies use thiamine to make energy so organs and tissues can function.  Thiamine cannot be stored longer than three weeks.  If our stores are not replenished every day, we can run out of Thiamine quickly.  If we do get some thiamine from our diet, symptoms can wax and wane mysteriously, because a twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function and symptoms.  Thiamine interacts with all the other vitamins in some way.  Many other vitamins and their metabolic processes won't work without thiamine.  In Celiac Disease you are apt to be low in all the essential nutrients, not just thiamine, but thiamine deficiency symptoms may appear first. Talk to your dietician about eating a nutritionally dense gluten free diet.  Keep in mind that processed gluten free foods do not contain sufficient vitamins to be useful.  Processed gluten free foods are filled with saturated fats and excess fiber (that could explain your constipation).  Dairy products, milk and cheese can cause problems because Casein, the protein in dairy, causes the same autoimmune reaction that gluten does in some.  Your current restricted diet is dangerous to your health.  I followed the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  It's a Paleo diet that promotes intestinal healing.   Discuss with your doctors about correcting nutritional deficiencies as soon as possible.   Interesting reading... https://pubmed.ncbi.nlm.nih.gov/34165060/ https://pubmed.ncbi.nlm.nih.gov/21816221/#:~:text=Lipid-soluble thiamin precursors can,and attention deficit%2Fhyperactivity disorder.
    • max it
    • cristiana
      My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of gastrointestinal bloating/discomfort? I distinctly remember really hurting a rib over forty years ago when I misjudged a wall and thought it was just behind me but in fact it wasn't.  I fell badly against the wall and I think I cracked a rib then.  For some strange reason I didn't tell anyone but I think had I gone to hospital an X-ray would have revealed a fracture. I think that rib has not been right since and I am sure that bloating makes it worse, as well as heavy lifting.
    • Dora77
      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health Problems • Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds. Been ongoing for a year now. First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
×
×
  • Create New...