Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

miamia Rookie

Rachel-

thank you so much- one for the update on bioset and 2 for your concern for my situation. I definitly agree with everything you said about one doctor not neccesarily being enough. There is an acupuncturist my doc really wants me to see he specializes in motility issues -which are a huge problem for me. I would write more about my tuesday appt. But I am going to wait until tonight because I ahve my last shot today and I will have a chance to talk to my doc again and probably have more to say.

I was thinking about bioset or soem other treatment and thats why I wanted your opinion I definilty don't look at it as magic at this point I don't think any one trewatment is the answer for me- like you I just have too much going on for one thing to be the answer for me. My body is in a cycle that is very -for lack of a better word - MEAN!!! I have these terrible motility issues so my food can't move properly and then stays in my gut which is leaky so I get candida - and no treatment will help because I still ahve the motility issues. I Know these are just a few of my problems- but they are key. I think I want to focus on the motility issues right now- acupuncture, certain massage and possibly bioset or some other treatment can all be helpful in clearing pathways and opening things up to help me move things better (Plus with none of these treatments do I have to ingest anything.) So these are all things I am going to look into right now.

I really appreciate your concern for me. I can't tell you how much it means it is hard because while I ahve some friends who are so understandidng- most of them seem to just be completly unable to and have kind of left me feeling very isolated. I feel blessed thought to have all of you here and my family who are so supportive. I will write more tonight. thank you again for everything.

Miamia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
dlp252 Apprentice

Mia, we'll be patient just a little longer then, lol, but still anxious to hear.

I ended up going home early yesterday and was really glad I did. Towards afternoon I was so tired I wouldn't have been able to function at work. My bowels were so noisy that I'm sure they could hear them in the next office, lol. I was even able to take a nap for about 30 minutes...unfortunately it was too close to my dental appointment time, so I had to wake myself up with a jolt. :lol:

Speaking of my dental appointment...I was expecting a torture session because I put off having my teeth cleaned while I was having my amalgams removed and I'm someone who really has to go every 4-6 months because of build-up. I had plenty of build-up, but the cleaning wasn't nearly as bad as my past cleanings. My teeth weren't as sensitive!! Could that be because the amalgams are gone? She actually said that sometimes people with composites are more sensitive, but I didn't seem to be. I had SOME sensitive spots, but it really didn't seem as bad as all my other recent cleanings. Now, this is a different hygenist...this is the one that works with the dentist who removed my amalgams, so I guess it could also be the person...but I was kind of shocked, lol.

And back to the bowels, lol...I'm thinking it is one of the supplements I'm taking...that or the :ph34r:peanut butter :ph34r: I've been eating. Or, may it really is just a bug, but I feel fine otherwise. Anyway, I get to test the theories today because I am not taking any supplements today or tomorrow in preparation for ART.

AndreaB Contributor
I feel blessed thought to have all of you here and my family who are so supportive. I will write more tonight. thank you again for everything.

:wub: back at you. We'll look forward to your update. It seems bioset could help with clearing pathways for you. ART would help prioritize. I know alot depends on funds as well. Hope the acupuncture goes well if you decide to go with that as well.

And back to the bowels, lol...I'm thinking it is one of the supplements I'm taking...that or the :ph34r:peanut butter :ph34r: I've been eating. Or, may it really is just a bug, but I feel fine otherwise. Anyway, I get to test the theories today because I am not taking any supplements today or tomorrow in preparation for ART.

I vote for the peanut butter. I thought you didn't do well with nuts. :unsure:

jerseyangel Proficient

Donna,

You may be becoming intolerant to legumes :ph34r: I hate to say it, but that's what happened to me, and I felt much better off the peanut butter--and I love peanut butter :(

After I stopped the PB, other legumes began to cause symptoms (or maybe I was just noticing them more), so I stopped all of them.

On the upside, I've found an almond butter that I can eat! :P

tabasco32 Apprentice

Alright so today I woke up about 10:00 a.m. or so and I urinated first and then took

the DMPS. So I will see how I feel throughout the day. I am really more worried about

it affecting my bladder which I hope it doesn't. I will let you know how I do on the test.

I have to urinate in the container for the next 6 hours. With all the urine I do in that time I

have to place some of it in a alhambra gallon container. Girls so far I don't feel so good.

I don't know if it's anxiety or hunger or the pill. I will keep up updated but I'm sure

I'll be o.k.

lisa

AndreaB Contributor
Girls so far I don't feel so good.

I don't know if it's anxiety or hunger or the pill. I will keep up updated but I'm sure

I'll be o.k.

Lisa,

Please update us frequently on how you are doing. Was it DMPS and not DMSO or DMSA?

dlp252 Apprentice
I vote for the peanut butter. I thought you didn't do well with nuts. :unsure:

Donna,

You may be becoming intolerant to legumes :ph34r: I hate to say it, but that's what happened to me, and I felt much better off the peanut butter--and I love peanut butter :(

After I stopped the PB, other legumes began to cause symptoms (or maybe I was just noticing them more), so I stopped all of them.

On the upside, I've found an almond butter that I can eat! :P

The only nuts which tested okay for me were walnuts, but truly I think all nuts are not so good recently. But I just need something else besides beef, turkey and veggies, and nuts have a lot of the good fats.

I WAS cheating with almond butter, and told Anna that and she said it wasn't such a bad cheat. My body may not like it, but at least it doesn't have mold issues, etc. If I have to cheat I guess it's better to do almond butter.

I also just saw my boss in the hallway...she was out sick yesterday too and asked what I had...we basically had the same thing--really bad D--so there MAY be something going around here too.

It could also be the supplements because so far today I'm okay. I had PB last night--same as every other day since Friday or so, so if it were that, you'd think I would be in the bathroom this morning again. Maybe it's the combination of PB, supplements and a bug, lol.

Alright so today I woke up about 10:00 a.m. or so and I urinated first and then took

the DMPS. So I will see how I feel throughout the day. I am really more worried about

it affecting my bladder which I hope it doesn't. I will let you know how I do on the test.

I have to urinate in the container for the next 6 hours. With all the urine I do in that time I

have to place some of it in a alhambra gallon container. Girls so far I don't feel so good.

I don't know if it's anxiety or hunger or the pill. I will keep up updated but I'm sure

I'll be o.k.

I hope that bad feeling passes quickly! Can you eat during the test? I know if I get too hungry I feel bad all over...that's one reason why I eat so often (which would be easier if I could eat more things, lol).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Donna--

This time of year, it could very well be a virus. Especially since your boss had it, too. Those things are so contageous.

Hope it's not the PB :D

So, almond butter dosen't have mold issues? That's good, as I now eat lots of it :P

AndreaB Contributor

Patti,

Have I told you have much I love my spring kitty. :D

Saved that one over too. :)

jerseyangel Proficient
Patti,

Have I told you have much I love my spring kitty. :D

Saved that one over too. :)

Thanks, Andrea :D

dlp252 Apprentice
So, almond butter dosen't have mold issues? That's good, as I now eat lots of it :P

I think all nuts have some mold, but almonds are one of the lower ones I guess.

Have I told you have much I love my spring kitty. :D

Me too. Love that new spring kitty, lol.

jerseyangel Proficient
Love that new spring kitty, lol.

The funny thing is, I went out to photograph my daffodils to change up my avatar a little bit. Mark brough Allo out and set him in the garden--I was able to get 2 pictures before he ran back in the house.

I thought that one came out really good, so I used it. The little hambone got in the avatar again :lol:

My flowers do look nice, though....really :D

dlp252 Apprentice
My flowers do look nice, though....really :D

Yes, they accessorize Allo quite nicely. :lol:

AndreaB Contributor
Yes, they accessorize Allo quite nicely. :lol:

Yes, I agree. Those flowers are very pretty with him.

I assume he's an indoor kitty. Watch out though, when we let our kitty out that looked similar to him she became more of an outdoor cat. Course, he's older....she was just about 6 mos - 1 year old.

jerseyangel Proficient

Andrea,

Yes, he's strictly an indoor cat. After Mark carried him out, he couldn't get back to the house fast enough!

He's also a scaredy cat :lol:

Rachel--24 Collaborator

Ooooooh....I see Mango!!

Happy belated Birthday Meredith!!! :):)

I think I missed it yesterday?? :huh:

I think Mango turned 26. :D

Rachel--24 Collaborator
He's also a scaredy cat :lol:

Love the new pic....OMG soooo cute!! :)

My kitty is indoor too. He sometimes ventures out about two steps but then gets nervous and runs back in. :lol:

jerseyangel Proficient

Happy, happy birthday, Mango! :D

I hope it was wonderful!!!!

How did I miss that :unsure:

jerseyangel Proficient
Love the new pic....OMG soooo cute!! :)

My kitty is indoor too. He sometimes ventures out about two steps but then gets nervous and runs back in. :lol:

Thanks!

Sometime you should post a picture of your kitty--I'd love to see him :)

AndreaB Contributor

Happy Birthday Mango!!!

I don't venture out of this thread very often.....hope it was a great one. :)

AndreaB Contributor
Thanks!

Sometime you should post a picture of your kitty--I'd love to see him :)

Me too. :)

Rachel--24 Collaborator
that or the :ph34r:peanut butter :ph34r: I've been eating.

:o:o

Peanut Butter is evil. I dont like it anymore. :(

Well....ok :rolleyes: ...when I think of having it with some jelly on Wonderbread...then yeah...peanut butter....mmmm....yummy. :D

Donna...arent you sensitive to molds??? I thought you were?? :unsure:

For me peanut butter has probably been the worst thing....its been disastrous every time I tried it.

I'm really bad for molds though...remember...the only person worse then me was that really sick girl who came in from Canada. :(

So yeah...I'm the second worst now. :rolleyes:

I had read that organic PB is more moldy than something like JIF. Also the most moldy peanut butter is the kind you make fresh....in the store. Whole Foods has that kind but I never tried it...Thank God. :o

I was trying to eat the organic stuff (before I found out they were worse) and OMG...one time I swear...everything like *exploded* inside of me. :blink:

I got horrible reflux on the spot and I thought my head might explode too. Not alot of things give me too much GI distress...but the peanut butter sure did.

I thought I might throw up....I dont ever throw up...but that peanut butter did me in. This was before BioSET so I didnt know for sure about the molds but I was kind of wondering after that happened. <_<

I think it could be the mold....you obviously dont get as severe a reaction as I get.....but I would think you would still get some "issues" from it.

I might be permanantly traumatized from my last peanut butter indulgence.

Rachel--24 Collaborator
I think all nuts have some mold, but almonds are one of the lower ones I guess.

Yeah...they all have mold. I cant have any of the nut butters....peanut butter is by far the worst though....then probably cashew butter. I used to get sick from almond butter too but it would take a day or so to start feeling it.

I tried nuts in the shell....out of the shell....organic...conventional...and yup...they all have mold. Walnuts are pretty bad too. :(

My face and tongue starts getting "prickly" feelings when I eat something moldy....so I pretty much know my "mold reaction" now. I can officially "detect" mold with one small sample. YAY for me...."Rachel...the official "Mold Buster". :rolleyes:

Rachel--24 Collaborator
Alright so today I woke up about 10:00 a.m. or so and I urinated first and then took

the DMPS.

I thought it was DMSO?? :unsure:

Hopefully everything went ok and you're feeling a little better....and now the test is behind you. One more thing out of the way. ;)

Keep us posted ok.

Rachel--24 Collaborator
I really appreciate your concern for me. I can't tell you how much it means it is hard because while I ahve some friends who are so understandidng- most of them seem to just be completly unable to and have kind of left me feeling very isolated. I feel blessed thought to have all of you here and my family who are so supportive. I will write more tonight. thank you again for everything.

I feel blessed too. :)

Its kind of a "lonely" illness...cuz noone can really relate and we cant partake in all of the "normal" activities....like eating and drinking. :(

Its nice that we have the people who DO understand (and I'm grateful that my list of understanding people is longer than the other list :) ) and of course...the support from all you guys....that goes without saying. :wub:

I'm looking forward to hearing how things went with your Dr. :)

Off to BioSet now....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748

    Chloelouise04
    Newest Member
    Chloelouise04
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.