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Omg...i Might Be On To Something

Rachel--24

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rinne Apprentice
rinne
Posted
...

And yes, that car is mine as of Friday afternoon. I'm buying it in PA and I'm heading home tonight to get it. 2007 Toyota Camry, white....with a sunroof, 6 celiac disease changer....I'm excited, needless to say :)

Ooh la la, very nice. I had been wondering whether or not it was your new car or your wishing for a new car. :)

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AndreaB Contributor
AndreaB
Posted
And yes, that car is mine as of Friday afternoon. I'm buying it in PA and I'm heading home tonight to get it. 2007 Toyota Camry, white....with a sunroof, 6 celiac disease changer....I'm excited, needless to say :)

Yay for you!!!!

My mom has a camry. She loves it. :D

CarlaB Enthusiast
CarlaB
Posted

Nice car, Laura!!! When you get it, you'll have to post a picture of you with the car!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
its approaching 400,000 views, not posts ;). We are at 19,426 posts. I knew something was off if Rachel hadn't posted the majority ;)

:lol::lol:

I was kind of shocked myself. :huh:

I was thinking I'd barely been contributing :unsure: .....was gonna have to start posting more often! :lol:

And yes, that car is mine as of Friday afternoon. I'm buying it in PA and I'm heading home tonight to get it. 2007 Toyota Camry, white....with a sunroof, 6 celiac disease changer....I'm excited, needless to say :)

AWESOME!!

Congrats on the new Camry....very exciting!! :D

tom Contributor
tom
Posted
Have a great holiday.

Just be aware that many people will look at you very oddly when you start talking about the dingos and the spinaching and the ..... :lol::lol::lol:

Thx!! It seems 100% likely it'll be great. I'm wearing the sort of smile usually reserved for the kids running from a restroom where they've just lit and deposited a cherry bomb, or other small explosive. :) :) :)

And ya, LMAO, I may just let slip a "oops I was almost racheling those cashews" !!

:lol: :lol:

At airport now yay!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Yes, my shoulder is doing quite well, I still can't seem to do weighted exercise without pain, and there are certain ways I move it that causes pain, but overall I have almost full function. At least I can dress myself, shower, and drive now. :P

I just wanted to say, don't push it on the weighted exercise. My experience was that every time I tried to do weighted exercise, I lost range of motion, especially if I wasn't having a physical therapist stretch the shoulder three times a week.

I am just now, a full year after surgery starting weighted exercise--with 1-pound weights and only one close-to-the-body exercise!

Anything that puts your arm away from your body and uses weights is going to put major stress on the shoulder. At least, that's what my current PT said. The one that loaded me up on weights ended up separating my AC joint.

I've had very good luck with swimming as long as I start out with very little without too much stretch.

It's very tricky finding a good PT, too. THere is no one set protocol, and they all have different beliefs.

I gotta get back to reading this thread--I'm so far behind, I'm never gonna catch up!

jerseyangel Proficient
jerseyangel
Posted
And yes, that car is mine as of Friday afternoon. I'm buying it in PA and I'm heading home tonight to get it. 2007 Toyota Camry, white....with a sunroof, 6 celiac disease changer....I'm excited, needless to say :)

It's beautiful, Laura :D Congratulations!

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UR Groovy Explorer
UR Groovy
Posted
Kat, smoking less must be agreeing with you ... you wrote out your whole name!! :lol:

Sounds like you've come up with a good plan.

I'm tellin' you man, don't let that sort of thing fool you. It wasn't two hours later (just in case you didn't notice), after thinking about the effort that went into doing that, I decided to put it in my signature - in a sincere effort to avoid ever having to undertake that daunting task again.

Whew !

tom Contributor
tom
Posted
I'm telling you, only one day on Cipro and my stomach feels better than it has in four years. Is this possible??

Wow!! :blink:

Faaaaaaan-Tastic!!! :)

I guess the proof is in the pudding(-filled MagicBullet)!!

tom Contributor
tom
Posted
Kat, smoking less must be agreeing with you ... you wrote out your whole name!! :lol:

Heyyyyy! Now even if I write "K", will I be thinking "k not too lazy after all?" ?

Hmmmmmmm :lol::)

UR Groovy Explorer
UR Groovy
Posted
Heyyyyy! Now even if I write "K", will I be thinking "k not too lazy after all?" ?

Hmmmmmmm :lol::)

Look Up Tom ^^ two posts. You'll find that nothing has changed

k

Mtndog Collaborator
Mtndog
Posted

Tom- It's NOt crazy to talk about a virtual town because (most) real towns don't have the love, support and understanding that rachelville does! :wub: Now go have FUN!

I mean really-what town can you talk about alternative uses for coffee? I just told my sister about the coffee and she LHAO. We were dying (I was exaplining the "mishap"). She told me I really should not stick things up my scat zone as it would be VERy difficult to explain at the ER :lol: :lol: :lol:

Rachel- Ditto on what you said about all the toxins and children. And then we top it off by treating the symptoms, not the cause. It scares me.

I just read the water report for our town and the lead content is 15 (ppb I think) when the acceptable amount is zero!!!!!!!!!! That in itself was a huge wake up call.

fajitas- HUG AWAY!!!!! And right back at ya! :wub:

Carla- I take theralac too. I did a month of it before starting abx. Glad her headaches are better- that's great! Tell her to hang in there. Yeah on the Cipro!!!!!!

rachel- thank you SO much for that info from your doctor's presentation- EXCELLENT!

Laura- Yeah on the car!!!!!!!

It's a big yeah!!!!

has anyone SusieQ today?

I do have some good news. Yesterday was a 5+5 (you can do the math :D ). Totally asymptomatic. :rolleyes: I've been on the abx and supllement for three weeks as of today. I am floored. I'm thrilled but it makes me wonder if I need a higher dose :ph34r:

I'm due for my next herx on the 4th of July- that will be one heck of a fireworks display if it's as bad as the first one.

Should I be worried that I am already seeing major improvement?

what if I don't herx (no-it's not that I want to but I know it's part of the process)? Should I be concerned?

tom Contributor
tom
Posted
Look Up Tom ^^ two posts. You'll find that nothing has changed

k

Hehe 'k, K.

Did I miss a story on your avatar?

Meant to tell mine already. Wish I knew something besides . . . . . . .uhhhh I like it & grabbed it online somewhere yrs ago.

Not much huh. I do wish he had tenor, not alto (or is that the old C-melody sax? Unknown w/out knowing size of mr. cool cat).

But now attempting to change my av temporarily.

Ran into a bit of a stumble in my 'perfect day'. :blink:

Original plane died or is wounded. :(

Sent to diff terminal (happily not thru security again, requiring new water toss & repurchase) and now they want volunteers to wait 1/2 a day to go, because replacement plane is smaller.

But ole tom's smilin' thru it ALL!!! :):)

AndreaB Contributor
AndreaB
Posted
I'm tellin' you man, don't let that sort of thing fool you. It wasn't two hours later (just in case you didn't notice), after thinking about the effort that went into doing that, I decided to put it in my signature - in a sincere effort to avoid ever having to undertake that daunting task again.

Whew !

:lol::P:lol:

I just read the water report for our town and the lead content is 15 (ppb I think) when the acceptable amount is zero!!!!!!!!!! That in itself was a huge wake up call.

I don't remember if you drink your water or not, but you may need some chelation down the road! :blink::huh:

I don't know about the herxes/lack of so I'll defer that to someone else.

SusieQ is doing good right now and taking it easy.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I do have some good news. Yesterday was a 5+5 (you can do the math :D ). Totally asymptomatic. :rolleyes: I've been on the abx and supllement for three weeks as of today. I am floored. I'm thrilled but it makes me wonder if I need a higher dose :ph34r:

5+5=10 (Didnt even have to bust out the calculator :D )

GREAT NEWS Bev!!! :D

I hope you stay feeling this way......heck....you DESERVE lots of 5+5 days....to make up for all the ones that shoulda been 10's!! :)

I'm due for my next herx on the 4th of July- that will be one heck of a fireworks display if it's as bad as the first one.

Should I be worried that I am already seeing major improvement?

what if I don't herx (no-it's not that I want to but I know it's part of the process)? Should I be concerned?

Why be worried about improvement....ENJOY it!!! ;)

I dont think you should be concerned about not herxing....not everyone goes through horrible herxes. It could be a very good sign that you're body is able to rid itself of the toxins. It could be a good sign that you dont have a bunch of metals getting released when you're killing the bugs.

The coffee e's and the supplements could be helping you alot as far as detoxing. When we feel sick its always because of the toxins...so if you're getting rid of them you wont be feeling so bad...I would take it as a good sign. ;)

You could check with your Dr...see what he/she thinks. For some reason I'm thinking yours is a she...am I right??

CarlaB Enthusiast
CarlaB
Posted
I do have some good news. Yesterday was a 5+5 (you can do the math :D ). Totally asymptomatic. :rolleyes: I've been on the abx and supllement for three weeks as of today. I am floored. I'm thrilled but it makes me wonder if I need a higher dose :ph34r:

I'm due for my next herx on the 4th of July- that will be one heck of a fireworks display if it's as bad as the first one.

Should I be worried that I am already seeing major improvement?

what if I don't herx (no-it's not that I want to but I know it's part of the process)? Should I be concerned?

YAY! on the great day!!!

I would worry about nothing ... if you have a great day, enjoy it. Improvement is a sign that you are improving. On good days, it's hard to imagine you will feel bad again (it's easy to forget the pain :D ), but they will come soon enough.

My ups and downs are severe. Don't worry about the herxes either ... improvement of symptoms is our goal.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I don't remember if you drink your water or not, but you may need some chelation down the road! :blink::huh:

Andrea...I only used tap water before I got sick...guess that could be where alot of lead and other bad stuff came from. :(

I didnt really drink water much because I pretty much lived off soda :rolleyes: ...but I did use ice cubes in everything....and I cooked with tap water. BOO-HOO

I saw something a few days back about some town banning bottled water....only tap water is allowed. :o

I hope nothing like that happens here...that would be a HUGE heinosity. But then again the plastics are a heinosity as well. :(

Mtndog Collaborator
Mtndog
Posted

Thanks everyone! :wub: :wub: :wub:

yeah- the tap water thing freaked me out. I drink it but through a Brita filter (not that's great either). I would never drink straight tap water anywhere! I boil it for iced tea etc but I don't know how much that helps. <_<

It's sad when you can't even trust water- the most essential thing to life.

Oh-my LLMD is a guy but his nurse is female and she is a hoot and FULL of info!

AndreaB Contributor
AndreaB
Posted
Andrea...I only used tap water before I got sick...guess that could be where alot of lead and other bad stuff came from. :(

I didnt really drink water much because I pretty much lived off soda :rolleyes: ...but I did use ice cubes in everything....and I cooked with tap water. BOO-HOO

I saw something a few days back about some town banning bottled water....only tap water is allowed. :o

I hope nothing like that happens here...that would be a HUGE heinosity. But then again the plastics are a heinosity as well. :(

I grew up in Olympia WA and they still have good water.....no fluoride either. The artesian well is there, not sure I even know where it is though, but I saw it mentioned on Dr. Elizabeth's site somewhere.

The year here before the kitchen filter could have messed us up. Brita doesn't filter fluoride.

rinne Apprentice
rinne
Posted
I'm tellin' you man, don't let that sort of thing fool you. It wasn't two hours later (just in case you didn't notice), after thinking about the effort that went into doing that, I decided to put it in my signature - in a sincere effort to avoid ever having to undertake that daunting task again.

Whew !

:lol::lol::lol:

Bev, glad you are having a 5+5 day, I must not be be because I missed it. :ph34r::lol:

...

SusieQ is doing good right now and taking it easy.

Thanks for the update Andrea.

Well, I managed to write two checks and now if I can find some blank cheques I'll write another one. :rolleyes: I am not good with these kinds of tasks and tend to procrastinate.

We had some work done on our bathroom recently and I got a phone call from the company letting us know that the cheque was invalid because the right amount was written out but the numbers were wrong. I freely admitted to the woman I was more than capable of doing that. :o

They sent the cheque back and it was my sweetie. :lol::lol::lol:

marfa62 Newbie
marfa62
Posted

Rachel, just for the fun of it, go do a google search and fine the Food and Drug web site that lists the content of various soaps, cleaning supplies etc.

Then do another google serch and look up sulpher.

There is corn starch in confectionary sugar and there is sulpher in constarch. Since you got an allery to heavy metals and I bet some problems with iodine, sulpher may be lurking in the backround.

When I was first diagnosied with celiac, I was making corn starch puddings with fruit juice and it was killing me. Soaps were burning my skin. Cranberries , dates and raisins especially white raisins made me ill. I had to stay clear of all iodines in salt and sulpher which is every where. It could be the corn, but before you starve to death, do a little research.

So it could be corn, or it could be the sulpher in the corn products. Get thee. to a nutritionist who knows food products. Someone who is older and been around grocery stores for a long time.

good luck. M

AndreaB Contributor
AndreaB
Posted
We had some work done on our bathroom recently and I got a phone call from the company letting us know that the cheque was invalid because the right amount was written out but the numbers were wrong. I freely admitted to the woman I was more than capable of doing that. :o

They sent the cheque back and it was my sweetie. :lol::lol::lol:

Oops! :lol::lol::lol:

UR Groovy Explorer
UR Groovy
Posted
I do have some good news. Yesterday was a 5+5 (you can do the math :D ). Totally asymptomatic.

Yaay - I don't know what it means, but totally asymptomatic has to be good.

Did I miss a story on your avatar?

Well, I've been thinking: What I really need is an avatar that says "ME".

It's entitled "another attempt gone bad". It's very appropriate, actually. Waikiki surf lessons October 2006.

I've decided that when we do it this year, I'll be stronger - faster ( :lol::lol: - Freudian slip - I just edited this, because I realized I typed fater - irony)- more agile. SO, in yet another attempt to accomplish things of this nature, I've been doing something about it. I've pulled out that Kick-Punch-Crunch DVD & I'm going to do it ! Really, I am.

I saw something a few days back about some town banning bottled water....only tap water is allowed. :o

:o

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So it could be corn, or it could be the sulpher in the corn products. Get thee. to a nutritionist who knows food products.

Thanks....I think you may have been reading from the first post on this thread?? :)

I guess its been about 15 months since I started wondering about corn. That got ruled out and I did figure out about sulfur/sulfites some time early last year. I studied the heck out of sulfites....they're in everything. :blink:

I wasnt doing well with foods high in sulfur either. I since got diagnosed with the mercury toxicity (which I had suspected for a few years). I've had difficulities with my livers sulfation detox pathway...thanks to the mercury. :angry:

I'm not detoxing the mercury...have had all kinds of troubles with sulfur which is improving in recent months.

I only eat a handful of foods....done with all the elimination diets last year. I dont worry too much about the food intolerance anymore....its just the way it is until I can rid myself of the mercury. A nutritionist wont do a whole for me at this point but I've got some excellent specialists helping me in getting my detox pathways to start functioning again.

Then we'll be working on getting all these heavy metals and other toxins out. :)

Someone who is older and been around grocery stores for a long time.

Well I've got over 17 years in the grocery business....do I qualify?? :P:D

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
It could be the corn, but before you starve to death, do a little research.

I have to admit...this sentence totally cracked me up. :lol::lol:

Holy Heck....more research?? :lol:

.....and after all this....I'm still eating 5 foods. WTH?? :rolleyes:

I guess I cant really say I'm starving though. :P

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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