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Omg...i Might Be On To Something


Rachel--24

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tom Contributor
:lol::lol:

:o:o

:D:D

Hey Andrea, is it staying superhot in SW WA?

And weren't u going somewhere? Was that PDX or did my cousin Ann say that? She's in Spokane.


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AndreaB Contributor
Want some feedback. OK- technically, I am lactose intolerant according to the test. But the test gives you like 10x the amount of lactose you would eat in a day, so uhm...who wouldn't be? So I completely cut dairy out and I noticed no difference. Not even less C. :(

I don't know what to do...it's not like i want a bowl of ice cream but some cheese on things would be good. What do y'all think?

Certainly wouldn't hurt to try but I'd wait until you are completely over a herx before trying it so you know if you have a reaction to it.

Hey Andrea, is it staying superhot in SW WA?

And weren't u going somewhere? Was that PDX or did my cousin Ann say that? She's in Spokane.

Super hot is over. Down to the mid 80's tomorrow and then upper 70's to lower 80's.

Nope, we aren't going anywhere. A church friend went down there yesterday to pick up someone.

tom Contributor
Want some feedback. OK- technically, I am lactose intolerant according to the test. But the test gives you like 10x the amount of lactose you would eat in a day, so uhm...who wouldn't be? So I completely cut dairy out and I noticed no difference. Not even less C. :(

I don't know what to do...it's not like i want a bowl of ice cream but some cheese on things would be good. What do y'all think?

Hey! I've heard so many ppl say I have what they have, I can't resist this - have u tried cutting out SOY???? :lol::P

Mmmm cheese as an ingredient may be the only thing I really miss.

Looked long & hard at some goat cheese today.

Have u considered trying goat cheese? I've had a spectacular gouda before. And the softer ones are *allegedly* very good.

tom Contributor
My herx is over. when I have a herx I have these two songs in my head. One is the Grateful Dead. I think it's called Uncle John's Band. The lines are "The First Days are the hardest days, don't you worry anymore" but I always sing "The first herx is the hardest herx" :huh:

And then when it's over I walk around humming some 80's song from Survivor called TheSearch is over only I sing "The herx is over"

Omg earlier I was reading too fast in the store to catch all this.

Yay herx done!!

And couldn't the herx songs be considered theme songs of sorts?

diamondheart Newbie
My herx is over. when I have a herx I have these two songs in my head. One is the Grateful Dead. I think it's called Uncle John's Band. The lines are "The First Days are the hardest days, don't you worry anymore" but I always sing "The first herx is the hardest herx" :huh:

Cuz when life looks at easy street, there is danger at your door!

Think this through with me...

Let me know your mind.

Waa-whoa, what I want to know-o-o is are you kind :wub: ?

Want some feedback. OK- technically, I am lactose intolerant according to the test. But the test gives you like 10x the amount of lactose you would eat in a day, so uhm...who wouldn't be? So I completely cut dairy out and I noticed no difference. Not even less C. :(

I don't know what to do...it's not like i want a bowl of ice cream but some cheese on things would be good. What do y'all think?

Dairy is super hard to give up. I think that lactose may be causing other health problems that you might not necessarily see in your stools. For example, it could be more of an effect on your immune system. For me, one of the first things I noticed with giving up dairy was that my sinuses cleared up. I don't eat dairy more for my reproductive health, though I'm sure it affects my immune system.

I could go on and on about dairy. Dairy is loaded with hormones, even if it's organic. When you take milk from a lactating cow, you are going to have estrogen and progesterone in your dairy products. DH and I did research on this on the web, and found papers that showed estrogen in dairy products from Spain. They don't use bovine growth hormone in Europe. However, hormones like estrogen and progesterone are not regulated for dairy cattle. In order to get your cows to produce milk 24/7, you have to give them hormones! In my opinion, that can't be healthy.

Then, there is the whole evolutionary picture. Many people did not evolve with dairy in their diets, and so they don't have the enzymes to break it down. I think there are only a few people, like the Swiss and I can't remember who else, who have been eating dairy for so long they did develop the enzymes to break it down. My acupuncturist told me that as an Italian, I can tolerate goat dairy a little better, but mostly, dairy is a loser for me. I miss cheese the most. As with anything, if you give it up long enough, you get used to it.

I once had a piece of pizza after giving up gluten and dairy for a long time. I didn't even think it was that good.

You could try taking digestive enzymes to digest the lactose if only lactose is the problem. Plus, hard cheeses don't have lactose in them. So maybe you can have some cheese. I think you have to stay away from the soft cheeses, like cream cheese and cottage cheese. For me, it's another protein in the dairy that isn't lactose or casein that I don't seem to tolerate.

Claire

Mtndog Collaborator
I could go on and on about dairy. Dairy is loaded with hormones, even if it's organic. When you take milk from a lactating cow, you are going to have estrogen and progesterone in your dairy products. DH and I did research on this on the web, and found papers that showed estrogen in dairy products from Spain. They don't use bovine growth hormone in Europe. However, hormones like estrogen and progesterone are not regulated for dairy cattle. In order to get your cows to produce milk 24/7, you have to give them hormones! In my opinion, that can't be healthy.

Then, there is the whole evolutionary picture. Many people did not evolve with dairy in their diets, and so they don't have the enzymes to break it down. I think there are only a few people, like the Swiss and I can't remember who else, who have been eating dairy for so long they did develop the enzymes to break it down. My acupuncturist told me that as an Italian, I can tolerate goat dairy a little better, but mostly, dairy is a loser for me. I miss cheese the most. As with anything, if you give it up long enough, you get used to it.

I once had a piece of pizza after giving up gluten and dairy for a long time. I didn't even think it was that good.

You could try taking digestive enzymes to digest the lactose if only lactose is the problem. Plus, hard cheeses don't have lactose in them. So maybe you can have some cheese. I think you have to stay away from the soft cheeses, like cream cheese and cottage cheese. For me, it's another protein in the dairy that isn't lactose or casein that I don't seem to tolerate.

Claire

EEK! Eek on the estrogen as mine is SKY high! Yeah- I was completely dairy free since April and noticed nothing different :( Actually the only cheeses I want are the hard- parm, asiago. But I think they are moldier.

Oh Tom- I am OBSESSIVELY soy and legume free. have been for quite some time. Won't even touch soy lecithin which is supposed to be benign. SOY STINKS!

NoGluGirl Contributor

Dear Patti,

I hope Dad gets another job soon, too! :( I am so worried right now. We appreciate your prayers! Technical work like troubleshooting, software, and hardware and tech systems management are primary talents. There are a few people that can be pursued as job leads, but there is no telling if anything will come of those.

I watch television, but more than basic cable. We have Digital Cable. I hope we do not have to give it up. We can tape two programs at once. I love all kinds of shows. I do not watch a ton of t.v. more than once or twice a week. Once in a while I just veg-out, but not often.

Dear tom,

I hope you win the Powerball, too! Who knows? It can happen! :) Thinking positive really is important. Many people are so negative. According to that book, "The Secret", that is what gets you what you want. The law of attraction is basically what it is.

ROTFLMAO! :lol: The alien babies are not allowed to be emperor here! No way! The yeast certainly is red kryptonite!

Green kryptonite for gluten seems fitting, too. This is so hilarious! I love it!

The lodge you provided the link for seems really nice. Guitar camp would be fun! I am sure your brother would have enjoyed that place! You said he had a cabin. I bet it was very peaceful there.

Yes, the cake lust is difficult to manage! Maybe I will get to eat one this week. I know I should not feed the yeast, though. At this point, I am afraid of not being able to afford any food! I am afraid I will have more food allergies developing if I do not do the rotation diet. I am not sure I can afford to do one at the moment, though.

The idea of a tick in the food still does not bother me. If it has enough icing on it, I think I would still be able to eat it! :lol: Icing is so good! There was a bakery here that used to make the best homemade cakes and icing! Franklin Pastries was owned by a man and his family. He finally retired, because he did not have much of a life.

Flutes are something I certainly have always been interested in. Playing them is something I never got the chance to try. Maybe someday! It would be fun! The least expensive flutes are at pawn shops most likely, but the quality would likely be poor. I would rather spend more and go to a music store.

Dear Bev,

I think you are sweet too! :wub: Thanks for posting those lyrics! I do not know the tune. However, I am sure I can hunt that up! I know a lot of 80s music, but am not sure if I ever have heard this one. Some of my favorite 80s songs include "The Lady In Red" by Chris DeBurg, "I Wanna Dance With Somebody" by Whitney Houston, "Sarah", "Maneater", "If I Could Turn Back Time", "All My Life", and so many more! I also love the 60s, and The Grateful Dead!

I am so glad the herx is over! That is wonderful news! Do you have any plans for this week? I am hoping to get out just to get out for once! Maybe I will actually have fun, who knows?

Dear Andrea,

T is having trouble with cherries and granola? That is terrible! Hopefully that will not last long. Do you suppose that it has to do with the supplements she is taking? If she is chelating, that might be causing the sensitivities.

Poor Seth! He just cannot get a break! Apparently, neither can you! Whatever the kids are suffering with, you must suffer as well. :( Those teeth can really be bothersome. Isn't there something that can be done to ease the soreness?

Dad is worried but relieved. I am just plain stressed! The more he is home, the more I have to clean! I am busy enough! My mother, naturally, thinks of herself as always. :rolleyes:

The staff should have let you know sooner. No wonder Dr. E was angry! Who would not be? These people need to do their jobs. If not, they need to find someone who will! At the very least, they should reimburse you for the gas money.

Dear Donna,

Those shaky spells are scary. Blood sugar tends to be better once you have eaten. Your glucose might not have been the problem if it did not improve upon eating. My glucose was even low shortly after eating in the past. This concerns me.

I watch quite a bit of t.v. somedays. Other times, I do not. Most of the time, I am studying or doing housework, or something else. Working on getting my business going is also important. I am done allowing everyone else's petty little stupid desires get in the way!

Dear Claire,

I hope to win the lottery, because it would be nice to get out of here! Dad lost his job suddenly. He got three weeks of vacation pay. That was better than nothing. Still, it was a lousy way to be done.

The tooth will probably feel better in a week. It can take a bit of time to get used to. My root canal was not bad last year. I am worried about it, though. I may need two more. These teeth look bad, and I think I may have to get them extracted instead. I worry a bone infection may be a problem.

Dear Carla,

I have an Irish Whistle. I have had it for a while. I play on it when I can. There is a wooden flute I got from someplace. I cannot recall where. It is been since I was very young.

The flutes must be more complicated than some people say. I think the people who said that had never played one.

They played other instruments most likely. That is my guess, anyway. One day, I hope to have a real silver or silver-plated flute!

Dear Alison,

Have you spoken to Rachel? Have you seen here anywhere? I am concerned. She has not PMed me or anything. Her feelings are probably very hurt.

Dear Lisa,

Oh no! You got moldened again? I got peanut buttered this morning! I was sick. I am better than I was. I over did it. I was doing fine, but then I had to push it!

Sincerely,

Jin


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AndreaB Contributor
T is having trouble with cherries and granola? That is terrible! Hopefully that will not last long. Do you suppose that it has to do with the supplements she is taking? If she is chelating, that might be causing the sensitivities.

T has had problems with the granola before we started with treatments. Sometimes she just likes to try it again. It is a more recent problem though. I think they changed the "formula" since they are improved. I don't have an old box so I can't compare but I'm wondering if it's caramel color. As far as cherries she really hasn't had those. She tried one last year and didn't like it. These were bing cherries and she thought they were great.

Those teeth can really be bothersome. Isn't there something that can be done to ease the soreness?

The tooth has broken through it just needs to finish coming through. He also like to sleep with one pacifier in his mouth and two in his hands. If he loses some and can't find any he gets upset, then I get up and look for them for him. He's in my room so it's not a huge problem aside from waking me up. :rolleyes:

Dad is worried but relieved. I am just plain stressed! The more he is home, the more I have to clean! I am busy enough! My mother, naturally, thinks of herself as always. :rolleyes:

He got three weeks of vacation pay. That was better than nothing. Still, it was a lousy way to be done.

Sounds like his job may not have been the best if he's relieved. It is nice that he got some vacation pay anyway. I do hope he gets something lined up quickly. My hubby was off of work for 8 months when T was little. We had just gotten our last unemployment check when he got another job. A lot of the situation with us was being Sabbathkeepers though. The trucking industry works every day. His current job is a Monday-Friday job.

jerseyangel Proficient

Hi Bev--My opinion is that if you want, you could try a little bit of the cheese and see how it affects you. The way I understand lactose intolerance, some people do fine on small amounts. I've also read how it helps to eat the cheese (or whatever) with other foods, not alone.

I don't eat dairy, and haven't since about a year before I went gluten-free. To this day, I don't know if I'm lactose intolerant, casein intolerant or both, but I noticed a change in my sinus problems and most noticeably--my face is so much less red and puffy. Honestly, my whole face changed after I gave up dairy.

jerseyangel Proficient

Jin--To set your mind at ease, Rachel is doing fine--really :)

tom Contributor
.......I don't eat dairy, and haven't since about a year before I went gluten-free. To this day, I don't know if I'm lactose intolerant, casein intolerant or both, .....

Mornin' Patti!

I can't say I'm positive which or both affects me either.

I lean towards casein being at least a bigger issue, but not sure whether it's just from seeinf so much Gluten-free Casein-free talk, or that the molecular mimicry makes sense or what.

And of course, maybe lactose WAS also a problem while the secretion spot tips-of-villi were still non-functional.

No hurry to check. (Mmmmmm cheeeeeeeese) <stop that>

Bev - as far as the mold side of things (just turn it over lol j/k) what I'd read makes sense. It's that the aged ones (yes, your favs) are the ones to worry about.

Fresh cheeses - as in, not aged - can be fine. Mozzarella is one. Ummmmm can't think of others yet.

Mornin' Carla!

The reduced # of indiv posters feels weird. Rachel! Rinne! Susie! Whoever I dingo'd right now! Come back!!

(Seemed way too much ME yesterday, %wise - ack!)

tom Contributor
. . . .Dairy is super hard to give up. . . . . .

Hi Claire!

I found coffee hardest to give up, by far.

But the impact of giving up dairy is certainly greater. Too many dishes go better w/ cheese!!

And I'm back on coffee. <where's that slightly embarrassed emoticon?>

I used to call it "coffee surrender" when on the 4th day of C, I'd give up and have some. Ahhhhh problem solved. Then no more coff for couple wks, or 1 wk, or (ack!) sometimes just 4 days.

Did go a few months w/ no coffee before the "surrenders" began tho.

Whatever harm that occasional coffee did just seemed too worth it, considering my leaky-gut situation back then, and that literal crappier and crappier feeling during C. Blechhh I hate those thoughts and the inevitable visualizaton of crap gettin to bloodstream and brain. <shudder>

Hi Bev! I bet I should've known you're off soy too. D'oh!

It does count as a legume? If so I never remember that because my ND pushed soymilk while telling me legumes were off-limits.

tom Contributor

Omg this new study looks like it shows why docs used to say "he'll grow out of it" re: celiac kids!!

https://www.celiac.com/st_prod.html?p_prodid=1491

CarlaB Enthusiast

Jin, I hope your dad finds work soon!

Bev, I wanted to say that though I agree with everything Claire said about dairy, I do consume it. I do not drink a glass of milk because it's good for me :) , but I do have lattes and use heavy whipping cream (whipped) on berries. I also eat some cheese.

It's my understanding that many celiacs are lactose intolerant, but that the lactose intolerance is temporary. Since the main problem with lactose intolerance is discomfort rather than real damage, I see no harm in trying it.

I tested with Enterolab as being casein intolerant. I went off dairy for 6 months and it made no difference whatsoever in my health. My sinuses actually cleared when I went gluten-free.

I added dairy back in with no negative effects. I tend to think that my bacterial problems -- both Lyme and the intestinal bacterial overgrowth, were probably causing the heavy immune reaction in my gut causing Enterolab to be positive. That's just my personal theory.

Tom, you can always use coffee in the alternative way to help with c! It's actually healthy that way. I do have a latte almost every day. Funny thing though, the first couple days of herxing, I don't want it.

Andrea, I hope the teething calms down soon. I know my kids were happiest nursing when they were teething .... it was the only way any of us got any sleep. I was one of those naughty moms who slept with their babies ... we ALL slept!!

Claire and Bev, I take Xymogen DIMension 3 for estrogen dominance. My LLMD started me on it. I think it's just all around good for everyone.

tom Contributor
I watch television, but more than basic cable. We have Digital Cable. I hope we do not have to give it up. We can tape two programs at once. I love all kinds of shows. I do not watch a ton of t.v. more than once or twice a week. Once in a while I just veg-out, but not often.

<tom's envious of those w/ DVR!>

Have u seen that Dead Like Me we were talking about?

I'm am SO sure you'd LOVE it!!

For a while it was weekly reruns, but recently just the 2 marathons.

the humor is right up your alley, I'm tellin' ya!! :)

Dear tom,

I hope you win the Powerball, too! Who knows? It can happen! :)

Bah didn't happen. The lottery gods didn't agree w/ me on an R'ville Health Fund. :angry:

Oh well, no more until jackpot $200mil.

ROTFLMAO! :lol: The alien babies are not allowed to be emperor here! No way! The yeast certainly is red kryptonite!

Green kryptonite for gluten seems fitting, too. This is so hilarious! I love it!

Not HERE!!! That was "alternate universe Rachelville" !! :P (LehcaRburg?)

The lodge you provided the link for seems really nice. Guitar camp would be fun! I am sure your brother would have enjoyed that place! You said he had a cabin. I bet it was very peaceful there.

Hehe Big Sur might've been too crowded and not remote enough for him, tho it sure is for the rest of us. Even their regular residence was more remote than the main Big Sur area, pastoral as it is.

Ohhhh his cabin was(is?) nice. Summer awesome but 2 1/2 hr hike from dirt road. Winter u could use snowmachine (snowmobile to us) and be there in 20min, cuz all the impassable 4-8ft tall "devil-somethin' " brush is encased in 10ft of snow!

Ugh wrenched my back once trying to help w/ coffin-sized piece of ice we'd cut out of "his" lake. Too insane that one day I'm using ultra-hightech multiple 1/4mil$ machines to figure out chip problems and 2 days later I'm using a 100yr old 6ft saw to cut lake ice for the icehouse. (The ice will actually last all year in one of those. No power of any sort req'd)

Yes, the cake lust is difficult to manage! Maybe I will get to eat one this week. I know I should not feed the yeast, though.

Bah u don't want any cake that'll feed the beast!!

The idea of a tick in the food still does not bother me. If it has enough icing on it, I think I would still be able to eat it! :lol: Icing is so good!

Icing? In Soup?

*NO SOUP FOR YOU!!*

(No yeasty tick-cake either! No Tikamisu!)

No one remembers movie Papillon? Steve McQueen? Dustin Hoffman in maybe 1st huge role after The Graduate?

Now seriously - has anyone heard from Rinne??

She's not another "comes & goes" poster is she? :huh:

AndreaB Contributor

Morning everyone! :)

Seth slept through the night last night......yay!!!

Our new neighbor stopped by last night to see if everything was ok since the children hadn't been out playing in the evenings. We told him it had been too hot. It's funny that he's already gotten used to a routine with them. :)

Jin, to reiterate Patti, Rachel is fine.

Tom, I've pm'd Rinne. She hasn't been on since Monday morning. Sometimes she comes and goes but she's usually on every couple days. I hope she's ok too.

Mia, How are you doing?

The one main thing I miss with dairy is the cheese. It's even harder for us now as we can't even use cashews to make our cashew cheese since they bother Talitha and Seth. I just want to get through treatments with everyone NOW so we can have some more variety again. Everyone is quite bored with our meal selections. The children want cheese to. If we were to get any it would be the 100% grass fed cow cheese from uswellnessmeats. Very expensive though.

With the talk about hormones even in organic milk along with talking to my church friend the other day got me thinking. She was saying the whey is not good for you. The person who went to China to study out all the different eating habits between cultures there (I think Collins is the last name, book The China Study) had found that whey was linked with various cancers. If all milk has hormones to keep the cows milking more then it would make sense that the whey wouldn't necessariy be good for you.

I know it's part of the detox/chelation protocol so it must have some good properties. Doesn't sound like it would necessarily be good long term, but I haven't looked into it. I told my church friend that I've come to believe that no one thing is good for everyone, or bad for everyone. Each person's genetics seems to play a large part in what happens as far as their health as well.

My church has always focused on health and although I've only been a member for 10 years I had agreed with a lot of what they promoted. Now I'm not so sure since different diets are better for different people. The author of the book says that a whole foods diet is best. I've got to agree with that. I hadn't looked at it because I thought it promoted a vegan diet. I might just have to look into this book at some point. No time right now.

CarlaB Enthusiast

Andrea, I wonder if they differentiated between denatured and undenatured whey in the study.

AndreaB Contributor
Andrea, I wonder if they differentiated between denatured and undenatured whey in the study.

I mentioned that the stuff that wasn't remnants of the cheese making industry should be good too. She said it was a study done in China. I don't know the details as I haven't read the book. This person studied all parts of Chinese culture, cities to farms/rural areas.

jerseyangel Proficient
Mornin' Patti!

I can't say I'm positive which or both affects me either.

I lean towards casein being at least a bigger issue, but not sure whether it's just from seeinf so much Gluten-free Casein-free talk, or that the molecular mimicry makes sense or what.

And of course, maybe lactose WAS also a problem while the secretion spot tips-of-villi were still non-functional.

Hi Tom,

I suspect I have a casein problem--I'm sure I have a very leaky gut from years of undiagnosed Celiac, many, many rounds of antibiotics and the steroids--both oral and injected <_< . All of my problem foods are those that contain both proteins and carbs.

I suppose it dosen't matter either way, cuz I'm not going back to it. My villi are most likely healed (no follow-up biopsy, but antibodies are normal as of last month), so perhaps lactose isn't a problem anymore.

Like you said, I'm not checkin' :D

On a more serious note, I would like to offer my late condolences to you for your brother. He sounds like a great guy. I'm sure this time of year is very difficult for you. I don't always have the time to read every single post, and when I do go back, I end up missing some.

jerseyangel Proficient
Seth slept through the night last night......yay!!!

That's good to hear--for both of you! :D

diamondheart Newbie
Claire and Bev, I take Xymogen DIMension 3 for estrogen dominance. My LLMD started me on it. I think it's just all around good for everyone.

Hi Carla,

You know what? My estrogen problems cleared up. I'm not really sure why. It may have had something to do with having my fibroids removed and all the changes I made in my diet. I did so many things, I don't know which one it was, or maybe it was all of them. My estrogen used to be high, but now it's ok. Maybe on the low side, if anything, because sometimes I still get hot flashes. It also could be because I improved my egg quality. I was told by a couple of doctors that high estrogen is a sign of poor egg quality, which happens as you get older. Isn't perimenopause fun - not!!

Claire

Fiddle-Faddle Community Regular

***NEWS FLASH***

My husband took the bug (who is STILL alive and kicking) to the entomologist, who thought it might be a tick til he got it under the microscope.

IT'S A BLACK COCCINEAL BEETLE.

IT'S NOT A TICK!!!!!!!! :):):):)

I looked up 5 different links about coccineal beetles, and they all said that they don't bite. WRONG. :ph34r:

AndreaB Contributor

Great news Alison! :D

jerseyangel Proficient

Yes, that is good news!

DingoGirl Enthusiast
I looked up 5 different links about coccineal beetles, and they all said that they don't bite. WRONG. :ph34r:

Um, well, THAT is because, let's face it, the coccineal beetles had never encountered the lovely decolletage and hidden under-the-bra spot of miss Alison Fiddle-Faddle Celiac.

:lol::ph34r:

(I'm sorry, I couldn't resist).

But GOOD NEWS!!!

Hi everybody! a drive-by.....I am SO far behind!

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    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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