Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gallbladder Removal/potential Infertility


Guest BERNESES

Recommended Posts

Guest BERNESES

:(:(:(:(

all in one day. So I am going to have my gall bladder removed. Great! That would have been enough to find out in one day.

But then I had my OB/GYN appointment because I haven't gotten a real period since January (just when my husband and I decided to start trying). Turns out when they tested my hormone levels back in the fall, my estrogen was off the charts (above 83 is considered high, mine was over 200) meaning my eggs may be harder to fertilize. So, I'm doing another hormone test next week and then we start talking about fertility treatments.

I think I'm going to cry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



penguin Community Regular

:( I'm sorry you're going through so much right now. It just plain sucks.

Well, the gallbladder thing should make you feel better, right? So that will be good, even though the procedure is certainly no fun.

And about the estrogen thing, maybe the tests next week will show they've gone down. I'll say a prayer for you, I know it must be hard....

Try to feel better! :)

Guest BERNESES

Thanks chelsE- You're a sweetie. I just feel so bummed out- more about the fertility thing than anything else. you know, it's like, I feel like my body just never obeys me!

jerseyangel Proficient

B--This is not fair :( Good that you're going to get the gallbladder taken care of once and for all. Hopefully, you'll feel better--no more nausea. As far as the hormone level--could be a temporary thing, I will say a prayer for you. Keep your chin up--the Lord really does work in mysterious ways!

Green12 Enthusiast
Thanks chelsE- You're a sweetie. I just feel so bummed out- more about the fertility thing than anything else. you know, it's like, I feel like my body just never obeys me!

I'm very sorry about your news. I understand about the fertility issue, not knowing if it's a possibility. There are so many things that can be done these days and miracles do happen. Just try to keep your chin up!

Guest BERNESES

I know- it'll be fine eventually. It was just that I got the two whammies right in a row.

And actually, there is a funny part to this story. Last night at dinner, my DH aand I were discussing what we would want to do if this was the case. He asked me if I wwould consider in-vitro and I was like "NO!" because for some reason, I thought it meant his sperm fertilizing someone else's egg (surrogate mom). Have no idea why that bothers me but it does? :blink: Anyway, doing some online research I found out what it really was and I was like "Oh, duh, I'd do that!" And I'm adopted so I have always really wanted to adopt as well.

The other thing is that when they did my hormone test (long story) it was back in September and I still was not feeling well so maybe things will have settled.

At any rate, thanks for all your kind words. They mean a lot.

jaten Enthusiast

You've got a friend.....

My gall bladder has to go, too. I've been referred to a surgeon who I'll see Mon. @ 3:00

I'm sorry about the fertility problems. As the others have said, try not to despair too much. It must be difficult, but modern medicine and prayer can do wonders.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StrongerToday Enthusiast

{{{{{{{{{{HUG}}}}}}}}}}}

Moongirl Community Regular

u gotta take one day at a time, i posted this somewhere else for someone about the gall bladder problem....just some advice i was giving out, maybe you could use it....

I had my gall bladder taken out 5 years ago, my GI thinks thats what triggered my Celiac's, anywho, dont worry its sounds worse then it is, if your getting it done laproscopic u will heal a lot faster, you will be sore so make sure u take those pain killers, it will feel like u just did 1000 sit ups. Heres a helpful hint when u feel strong enough get up and walk around the house a little it actually feels good. i remember they used some type of gas to expand my abdomen area, and they said it will dissolve away on its own but u can help it along faster if u walk around. it feels like a little gas pocket moving around, when u lie down it goes up to ur shoulder, doesnt hurt, but its not comfortable. also if ur watching something funny on tv, make sure u have a pillow on ur belly and put pressure on it, laughing as fun as it is, will make ur muscles ache. But believe me if ur gall bladder is giving u problems, u will feel 100 times better after its out!!!

wishing u a speedy recovery

ravenwoodglass Mentor
:(:(:(:(

all in one day. So I am going to have my gall bladder removed. Great! That would have been enough to find out in one day.

But then I had my OB/GYN appointment because I haven't gotten a real period since January (just when my husband and I decided to start trying). Turns out when they tested my hormone levels back in the fall, my estrogen was off the charts (above 83 is considered high, mine was over 200) meaning my eggs may be harder to fertilize. So, I'm doing another hormone test next week and then we start talking about fertility treatments.

I think I'm going to cry.

I feel so bad for you. I hope you at least get some relief after the gallbladder removal is over with. I am so sorry about the infertility issue, I know how hard that is. Hugs and best wishes.

TCA Contributor

Bless your heart, you'll be in my prayers. Who knows, though. Your hormone levels may have leveled out now that you're feeling better. I was told that I might not be able to concieve and I did twice on birth control!!! :blink: They're little unplanned blessings. Since then I have found out that the pill is often not effective for celiacs... :huh: Gotta love that malabsorption! I do hope the surgery goes well. Remember, "all things work together for good....." Rom. 8:28

Canadian Karen Community Regular

Aw B, I wish I could give you a big hug in person!

The gallbladder thing is good - get it the heck out of there, what gall does it have being in there anyway? ;)

Regarding conceiving, just keep in mind I was told I would have a 50/50 chance of EVER being able to conceive, and look how THAT turned out! :D

{{{{{{{{{{{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}

Karen

Guest BERNESES
Aw B, I wish I could give you a big hug in person!

The gallbladder thing is good - get it the heck out of there, what gall does it have being in there anyway? ;)

Regarding conceiving, just keep in mind I was told I would have a 50/50 chance of EVER being able to conceive, and look how THAT turned out! :D

{{{{{{{{{{{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}

Karen

You are so funny!

Thanks Everyone- I do feel better. It's just that it blows my mind that one thing culd potentially have caused all these problems (or not, who knows).

Moongirl- you sound just like the nurse i talked to yesterday, she said exactly what you did!!!!! You know your stuff.

I feel a little better today. One day at a time. Hugs back to all of you, Beverly

Lollie Enthusiast

Hi Berneses! Sorry to here that you got all that news in one day! Tough to swallow!

The gall baldder surgery is not bad! I had mine done a little over a year ago! I have 4 little scars, not so bad. You will be sore, but you do heal quickly. I thought the gas they fill you up with was the worst part. It took me a couple of days to get rid of all of it. But all in all, compared tothe sick the gall bladder did to me, the surgery was well worth it.

About the infertility issue. My mom had that happen to her in her early 20's before she conceived me. They told her she was in early menapause, no more kids. Well, they gave her some pill (I'll have to ask her what it was) to make her menustration start up again. It did and she, 8 years later, got pregnant with me! Now that was 30+ years ago. I have alot of hope for situations like this!

I'll be praying for you! Try to stay positive!

Lollie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      5

      Feel like I’m starting over

    2. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    3. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    4. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    5. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      5

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,294
    • Most Online (within 30 mins)
      7,748

    laurallee
    Newest Member
    laurallee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.