Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So0o Being New And All...


Kiki

Recommended Posts

Kiki Explorer

So with being new to this site...do we ever talk about anything else other than our illness. Not that there really is much I can think of at this particular moment in time but.. i dont know lol. Hope everyone is doing well. Back to what I know your all good at, which seems to be great advice.

If there is a list of web sites for good celiac foods could u share I can not find any to save my life. My mother is worried about me but i keep trying to assure her that im going to be alright. She doesnt really like message boards she likes chat rooms if anyone knows of a chat room could you enlighten me. Shes looking for like a list of foods that arent specialtys that can be used for both myself the celiac and herself and my brother the non-celiacs. Also I use Pantene Pro-V shampoo and conditioner are those okay to use. I use caress body soap as well. What is a good toothpaste? Im so confused there seems to be so0o much information and no so many brain cells to trap it all in lol. A list of makup and such. Also i heard of landry detergent and fabric softener.

I know there are alot of questions and i dont expect to ge tthem all answered but a start would be nice...

Everything is appreciated, Thank you!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Kiki

I know that alot of this is overwhelming to you as it was to me. There is alot on this site besides what you are looking at..

If you scroll down on on the opening page and scroll down, you will see a whole list of forum sites, from recipies, coping with, chat site (we tend to stay way from controversial issues though), children issues, teenage site, products and ingrediences, baking, friends and family issue site.......and so much more that just hearing us gab of celiac.

I have learned so much from this site since many of my doctors were not knowledable to celiac and I have found that most of it is here. All you have to do is ask, which you did. It could take you days and days to read through everything here and it will afford you the greated knowledge about your disease than any other place.

And to top it off, I have made some really good friends here that are some of the most caring people.

Try is out and I know that you mom will enjoy it, so she can make you some really good gluten free meals and you won't even know it. :):)

You can also do a search for toothpaste and shampoo and you will find it here

Guest nini

as far as mainstream products go, there are many... I have a newbie file that has a lot of that stuff in it... the Delphi forums list of mainstream gluten-free products, naturally gluten-free menu ideas and so on... if you would like this file e-mailed to you (it's a zip file) just e-mail me at nisla@comcast.net and I will send you the file ASAP. Just put "request newbie survival kit" in the subject line...

Jnkmnky Collaborator

There's a message board for topics other than Celiac.

mouse Enthusiast

Believe it or not, we discuss many different things beside Celiac. They usually are posted in the bottom of the forum selections. We have done pet photo's, weird happenings, etc. It is really a do it all forum and most of us are very friendly and helpful. We have also had a joke thread. We do try to lighten the serious subject of Celiac. And we all need to take a break from that at times. I hope that you stay around to find out how friendly we can be and see how weird our humor can be :blink::ph34r: .

Kiki Explorer

I will deffinaly be sticking around this place its great I have learned so much already. Everyone is so helpful and willing to do anything in their capabilities to make a newbie like me more informed on this thing(celiacs). I appreciate everything!!!!!!!!!! thanks

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.