Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vaccines?


odcdinah

Recommended Posts

odcdinah Contributor

My gastroenterologist office just called and left a vague message about writing an order for me to get 2 vaccines - they didn't specify which ones.

Any idea what they would be for and why? I was just diagnosed 3 weeks ago (by biopsy and blood test).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

My advice is, to avoid the vaccines, no matter which ones they are. Vaccines have never actually been proven to be safe and effective, long term effects have never been studied, and they don't help your immune system, but rather damage it.

So, if it was me, I'd call back and say, "Thanks, but no thanks, keep your vaccines".

But that is your choice, of course.

Fiddle-Faddle Community Regular

I agree with Ursula. I would also try to find out if this is some kind of mix-up on the part of the office. If not, I would ask to speak to the gastroenterologist and find out WHAT vaccines he is ordering and WHY. And then I would probably start looking for a new gastroenerologist. (Sorry!)

odcdinah Contributor

Thanks for the thoughts. I will call and check. Actually, I like him very much and he has treated me very well through the testing, follow-ups, etc, so I"m not ready to discard him quite yet.

jerseyangel Proficient

I have kind of a stupid question--does this line of thinking apply to tetnus shots? I had one 10 years ago, and have been debating whether I should get a booster this year.

Ursa Major Collaborator

Patti, I've read research that shows that tetanus shots make you MORE susceptible to getting tetanus, not less. And tetanus is easily avoided, anyway. The tetanus causing bacteria only thrive without oxygen. You wash and disinfect any open wound thoroughly before bandaging it, and the risk becomes so small, it is almost non-existent. And IF (a big if) you get tetanus anyway, antibiotics easily take care of it.

So, I say, forget about the booster, it isn't needed.

jerseyangel Proficient

Ursula--Thank you! I was hoping you would check back here and see my question :D . I'm going to take your advice--the shot always makes me sick, and my Kinesiologist told me that I have a lot of residual problems from "old vaccines". I learn so much from you, and it's much appreciated! Thanks again :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Some celiac experts recommend the pnuemonia vaccine for people with celiac.

richard

GreySaber Apprentice

I've heard many people compain about vaccines and what not, but I tend to be in favor of them. After all, no one gets polio anymore.

As to pnuemonia, it's still dangerous as it is very like a heavy cold or the flu, so you don't seek treatment, then die. (and there are about 10 million types of it, many of which you may already be carrying.)

Fiddle-Faddle Community Regular
I've heard many people compain about vaccines and what not, but I tend to be in favor of them. After all, no one gets polio anymore.

Try googling SV-40. Here's just one site for starters: Open Original Shared Link. Yes, we are lucky that nobody gets polio anymore, but it's very possible that polio has simply been replaced by things like MS, Lou Gherig's disease, and other immune system malfunctions (like celiac?).

mommida Enthusiast

Before there were a few cases of wild Polio reported (an Amish community), the recent cases have been from the vaccine. It wasn't always the vaccinated person. It is one of the reasons the live oral vaccine has been replaced with the attenuated version.

L.

tarnalberry Community Regular
Some celiac experts recommend the pnuemonia vaccine for people with celiac.

richard

Yep, I got the pneumovax after being diagnosed (I also have asthma, which puts me on the 'consider for this vaccine' list. I got a *bad* reaction to it (swelling, pain, redness, heat), though nothing bad enough to send me to the ER - just a call in to the doctor and a phone discussion with her on it, but it lasts about a decade, fortunately. The theory is that celiacs are more prone to pneumococcal infections, and these, if not discovered early, can get bad quickly.

Vaccines haven't been proven to be horrible things, and they *have* been proven to be quite effective (hence the lack of small pox, polio, diptheria, measles, mumps, tetnus, etc. that caused significant problems in populations in decades past). But there are risks to everything and vaccines are no exceptions. When you consider using something like a vaccine on everyone in the world, then a one in a thousand or even one in a million chance of something bad happening is going to seem like it happens a lot, because you're using the vaccine so many times. That's statistics for you. But it's wise to go in knowing the risks. Additionally, much of the valid concern over vaccines comes not specifically from the vaccine itself, but from the method of delivery - be it a schedule of multiple vaccine doses given over a relatively short period of time in young children with still-developing immune systems or the preservatives used in mass produced, bottled vaccines.

The basic premise behind vaccine therapy is exactly what your body uses every day, however.

As to pnuemonia, it's still dangerous as it is very like a heavy cold or the flu, so you don't seek treatment, then die. (and there are about 10 million types of it, many of which you may already be carrying.)

just for clarification, the pneumovax that is given covers more than respiratory pneumonia. in fact, the primary concern is pneumococcal infections of the blood, in this case.

Guest Viola
Some celiac experts recommend the pnuemonia vaccine for people with celiac.

richard

I've had the pnuemonia vaccine, and never go without the flu vaccine. In all the years I've been getting it, I've had one very short bout of the flu. I used to get so sick with it everytime it went through the area.

mouse Enthusiast

I had the pneumonia vaccine in 1997 and two weeks later I was hospitalized with pneumonia. Twenty eight months later I was hospitalized with a rare pneumonia and landed in intensive care, then cardiac iintensive care, then lung surgery. Two weeks all told and I remember very little as they kept me really drugged up. I had four different teams of doctors trying to keep me alive. Then 5 years ago, when I left Illinois for here, my GP said I should probably have a pneumonia booster and I told her "over my dead body" :blink::ph34r: . I know they reccommend it, but I will pass on this one. The flu shot I never had a problem with, except now I can never find a place that has them in supply. I have not been able to have one in 2 years and that does concern me.

Fiddle-Faddle Community Regular

When i've had the flu shot, I ended up with a huge hot red swelling at the injection site. The first time it was the size of a lime. The next time it was larger, and the last time, it was the size of a grapefruit. At that point, the doctor said I shouldn't get them anymore. I also felt mildly ill for weeks following the shots. Same thing happened to me with gamma globulin. I later found out that both the gamma globulin and the flu shot contain thimerasol, which I already knew I was allergic to from having reacted to eye drops that had them, but nobody told me they were in vaccines until it was too late.

tarnalberry Community Regular
When i've had the flu shot, I ended up with a huge hot red swelling at the injection site. The first time it was the size of a lime. The next time it was larger, and the last time, it was the size of a grapefruit. At that point, the doctor said I shouldn't get them anymore. I also felt mildly ill for weeks following the shots. Same thing happened to me with gamma globulin. I later found out that both the gamma globulin and the flu shot contain thimerasol, which I already knew I was allergic to from having reacted to eye drops that had them, but nobody told me they were in vaccines until it was too late.

That sounds like quite a round of negligence on a number of doctor's parts - both for not stopping the vaccines earlier, after the first reaction, and not paying attention when you told them about your reaction to the preservative in the eye drops in the first place.

loraleena Contributor

stay away from all vaccines. 'They are poison!! Read ihfo from Kevin Treadeau (the natural cures guy) on the history of vaccination and the horror they have caused. I believe that a rubella shot after the birth of my son may have been the trigger for all my health problems!!

lovegrov Collaborator

The pnuemonia vaccine does NOT protect against all types of pnuemonia just as the flu shot doesn't necessarily protect against all forms of the flu that might come around in any given year. My wife and I both had the flu together 20 years ago and we've both gotten the vaccine since then. Neither of us has had the flu since, thank goodness.

As for staying away from all vaccines, that's just irresponsible.

richard

Fiddle-Faddle Community Regular
As for staying away from all vaccines, that's just irresponsible.

richard

And what do you suggest for people who react badly to vaccines? Which vaccines would you pick and choose here? What about people with a family history of immune disorders? And food allergies?

I'm glad you and your wife have remained flu-free for 20 years. I didn't have the flu before taking the flu vaccine, but I sure did after having it. Once I stopped getting the flu vaccine, I also stopped getting the flu.

Based on my experience, and that of you and your wife, we can't really conclude anything, can we? We have neither proved nor disproved the efficacy of the flu shot.

natalunia Rookie

My husband and I both got the pneumonia vaccine this past fall. Last spring we both came down with a horrible case of pneumonia. The doctor was ready to put both of us in the hospital. We were miserable and decided even if the vaccine lessens the severity of pneumonia in the future, we'll take it. We both have asthma, and tend to catch every respiratory illness around. Since having the pneumonia vaccine in September, no respiratory infections for either of us except for one sinus infection. I always get the flu shot, and never get the flu. Oh, and I am a teacher, so I really need to be vaccinated because of all the germs that students bring in. I'm a fastidious hand washer, but that doesn't help when you have a student coughing their germs all around you.

mommida Enthusiast

I think every doctor should hand over the vaccine package insert before the injection. The patient should then READ the ENTIRE vaccine insert and make an informed consent. It is irresponsible on the doctor and the patient to ignore the information that should be available.

L.

penguin Community Regular

If you react badly to vaccines, then it's not irresponsible to not take them.

For the general population, they are by and large a good thing. They have saved far more lives than they have harmed. I agree that you should read the entire insert, and just like any other medication or treatment, and make an informed descison.

I'm not going to tell everyone that gluten is poison just because it is for me. I believe it's the same principle for vaccines. A blanket statement doesn't apply, though research goes for both sides.

tarnalberry Community Regular
Based on my experience, and that of you and your wife, we can't really conclude anything, can we? We have neither proved nor disproved the efficacy of the flu shot.

That is why efficacy trials require large population studies.

Even doctors who whole-hog support vaccines will tell you that there are some people who shouldn't get them. And people who have badly reacted to things they are made from are top of that list.

Fiddle-Faddle Community Regular
I'm not going to tell everyone that gluten is poison just because it is for me. I believe it's the same principle for vaccines. A blanket statement doesn't apply, though research goes for both sides.

I've been wondering if it's possible that gluten IS potentially poison for everybody--we just have a lower threshold than most!

Guest Viola
I've been wondering if it's possible that gluten IS potentially poison for everybody--we just have a lower threshold than most!

I don't think we should go the extreme on either side of any topic, when we all know that the truth is almost always somewhere in the middle.

Let's not get hostile on this subject, please :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.