Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Larry King Live

Rikki Tikki

By Rikki Tikki
in Publications & Publicity

Recommended Posts

Rikki Tikki Explorer
Rikki Tikki
Posted

Just tuned in Larry King Live and a woman named Deborah Scaling Kiley on her lead in was talking about people and survival and she actually mentioned people who survive celiac disease. I wish he had asked about it, but was shocked to hear it mentioned.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Wow! He comes on here later tonight! I'll have to check it out!

Thanks!

Karen

jerseyangel Proficient
jerseyangel
Posted

I'm going to Tivo the repeat later on tonight, and look at it tomorrow--thanks for the heads-up!

Rikki Tikki Explorer
Rikki Tikki
Posted
  • Author

Did anybody else hear this?

jerseyangel Proficient
jerseyangel
Posted

Sally--I did Tivo it and forgot about it till now! I just checked--the show was about people who survived life-threatening situations. The woman you mentioned was talking about her boat sinking and being attacked be sharks. 2 of her companions didn't survive. I heard no mention of Celiac....

Rikki Tikki Explorer
Rikki Tikki
Posted
  • Author

Hey Patti:

Can you listen to it one more time. If I heard it right she said it at the same time she said something about many people surviving different things and I am just sure she mentioned celiac. If not maybe I am finally losing it!

jerseyangel Proficient
jerseyangel
Posted
Hey Patti:

Can you listen to it one more time. If I heard it right she said it at the same time she said something about many people surviving different things and I am just sure she mentioned celiac. If not maybe I am finally losing it!

I found the transcript of the show--

Open Original Shared Link

Nothing that I can see :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Judyin Philly Enthusiast
Judyin Philly
Posted
I found the transcript of the show--

Open Original Shared Link

Nothing that I can see :)

WOW pATTI----YOUR ONE SHARP COOKIE. :lol: FINDING THE TRANSCRIPT.

i'LL PROBABLY NOT GET BACK ON TONIGHT BUT WILL EMAIL YOU TOMORROW. THANKS FOR NOTE TODAY.

I'M TAPING THE SHOW TONIGHT AT 9:00 HERE ON EAST COAST, AND IT'S ABOUT THE NEW 9/11 MOVIE AND INTERVIEWS WITH MAYBE PARENTS/ LOVED ONES REACTIONS ???NOW SURE...iT WILL SURE BE HARD TO WATCH THE MOVIE..NOT SURE I CAN BUT KNOW AS AN AMERICAN AND IN TRIBUTE TO THE ONES WHO SAVED THE CAPITAL...WILL TRY TO GET TO SEE IT. PROBABLY WILL WAIT AND SEE ON DVD IN OUR HOUSE..KNOW IT WILL JUST BE SO SAD.

JUDY

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Thank you Patti for finding the transcripts. I just read the transcripts and wow quite a story. It is amazing to say the least, I remember when this happened back in the early 80s. I also read her first book.

From what I can gather the person with celiac disease didn't come out on the show. This is what was said...

--------------------------------------------------------------------

""""KING: boy, that's all from "I Shouldn't Be Alive," a weekly on the Discovery Channel. Our guest is Deborah Scaling Kiley, author of, "No Victims, Only Survivors."

You have a foundation with that name, right?

KILEY: We're working on it right now. My lawyers are establishing it right now. It's really my goal, through this book, to really work with people and take them from that victimization into being survivors.

I tell stories of many different survivors here, and breast cancer, celiac's disease, there's diabetes. Yossi's story, who is here tonight, is also in there. """"

--------------------------------------------------------------------

If Deborah “Debbie” Kiley Blackmon speak of celiac disease in her book -- we need her as our celiac disease spokesperson!

I'll link her web site and if anyone wants to write and ask her more questions... Open Original Shared Link Click on the link 'the author' then choose 'eMail the author'

Rikki Tikki Explorer
Rikki Tikki
Posted
  • Author

I thought that's what I heard, wow thanks for finding the transcript. I wish he had asked about the celiac, but I think it's a good thing that it was mentioned.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

If no -one wants to write to her and ask -- I will... Just let me know...

I remember her story and read her first book about the boat the 'trashman'. I know what it feels like being at the mercy of the ocean. I'm a boater, have been my whole life, learned to swim before I learn to walk. And I've made the same trip from the NE to south Florida by yacht, and the gulf stream crossing many many times... and can imagine what it must have been like for them. I can't imagaine being a celiac and a drift for days with nothing... I've been in 12' seas and no navigational tools, only a compass in the middle if a fierce storm.

It's not clear by Larry Kings interview who was the Celiac...

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Has anyone else written to Deborah?

To thank her for getting celiac disease in the media?

I have...

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Deborah Scaling Kiley wrote me back -- Celiac is in her NEW BOOK. Her dear friends daughter almost died from celiac disease. They used her "The Ten Lessons For Survival" - in the book.

We have to get a copy. I'm ordering one...

If you want me to post a link to amazon, just ask and I will.

olalisa Contributor
olalisa
Posted
Deborah Scaling Kiley wrote me back -- Celiac is in her NEW BOOK. Her dear friends daughter almost died from celiac disease. They used her "The Ten Lessons For Survival" - in the book.

We have to get a copy. I'm ordering one...

If you want me to post a link to amazon, just ask and I will.

yes, yes PLEASE post the link! thanks :)

KaitiUSA Enthusiast
KaitiUSA
Posted

More people are starting to know about celiac and it's starting to be heard of more in the news/media. I am loving this!

Lister Rising Star
Lister
Posted

i dont get why she put it as surviving celiac disease though, its not life threating if u know you have it and you change your diet so how is there survivial storys??

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted
Open Original Shared Link you have to buy it through her web site. I think amazon only has her first book.
Smunkeemom Enthusiast
Smunkeemom
Posted
i dont get why she put it as surviving celiac disease though, its not life threating if u know you have it and you change your diet so how is there survivial storys??

my daughter almost died, if she hadn't been diagnosed in time she would have, she dropped 50% of her body weight in less than a month, at a year old she weighed less than she did when she was born. The doctors thought that we had caught it too late, they thought they were going to send her home to die. :(

Canadian Karen Community Regular
Canadian Karen
Posted
i dont get why she put it as surviving celiac disease though, its not life threating if u know you have it and you change your diet so how is there survivial storys??

Lister, make no mistake, people have died from this disease..... Undiagnosed celiac kills......

Even diagnosed, there are cases (and complications), google up refractory celiac sprue, or ulcerative jejunitis.

Karen

Lister Rising Star
Lister
Posted

wow didnt realise that sometimes the body does not responde to the diet... hope thats not whats happening with me guess i have not been on the diet long enough to really know. anyways yeah i know undiagnosed is dangeriuse and can be fatal just didnt know that it could get worse after getten caught

Canadian Karen Community Regular
Canadian Karen
Posted

Every person's response to the gluten free diet is different. Some people experience immediate improvment, others it takes over 2 years for the healing to begin...... Depends on the severity of the damage, I guess......

Karen

Lister Rising Star
Lister
Posted

sorry this kinda went off topic. yeah i had immediat improvments the first week but then i was back to where i was the next week really strange its like some days im improving and some days im getting worse. as for damage and me, the only thing my doctor has found was subsarean folds in my small intestine, so it looks like im in pretty good shape. o bye the way if anyone is looking for a copy of the book on lary king live, go to well pm me and i will give u a website where you can find a free copy of the book, its really good i just started reading it today, also the site has gluten free cookbooks and what not i just dont want to publicly post it

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Someone posted on one of these threads that they got a free copy and read it, or was reading it.

So tell tell, what's it about?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.