Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidental Glutening Again

Guest nini

By Guest nini
in Coping with Celiac Disease

Recommended Posts

Guest nini
Guest nini
Posted

ack... I got glutened yesterday... I only ate food at home that I prepared myself and the only questionable thing that I did was when I was getting food out of the fridge, touched something sticky and without even thinking put my finger in my mouth to taste it... (I should have known that hubby is not that careful with his gluten crumbs and it could've been jelly with biscuit crumbs in it...) I started getting really flushed in the face and my tummy really hurt then the big "D" came to visit and I itch ALL OVER MY BODY... hubby also woke me up during the night, said that I had TWO seizures in my sleep... Crap I hate this.

this morning all my joints are swollen and painful and I still freakin itch everywhere... I can't believe that it only takes a teeny tiny amount for me to get so sick...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Oh Nini--that sounds awful!!! Sorry you're so sick. I am always amazed at how little it takes to make us sick. Feel better :)

Guest cassidy
Guest cassidy
Posted

sorry you aren't feeling well. I think most of us have done this to ourselves.

I had a bad week last week. I went out to dinner with the entire family and let the waitress convince me they could make me a safe meal, which they couldn't. Three days later I went out to dinner for a business dinner at Bonefish, ordered off their gluten-free menu, and barely crawled to my car after dinner. Then, 3 days after that I was on vacation and let a waiter convince me that my specially prepared meal was gluten-free, when it certainly wasn't. That was a tough week that I haven't gotten over yet.

Hope you feel better soon!

Guest nini
Guest nini
Posted
sorry you aren't feeling well. I think most of us have done this to ourselves.

I had a bad week last week. I went out to dinner with the entire family and let the waitress convince me they could make me a safe meal, which they couldn't. Three days later I went out to dinner for a business dinner at Bonefish, ordered off their gluten-free menu, and barely crawled to my car after dinner. Then, 3 days after that I was on vacation and let a waiter convince me that my specially prepared meal was gluten-free, when it certainly wasn't. That was a tough week that I haven't gotten over yet.

Hope you feel better soon!

yikes Cassidy, that must've been one rough week...

yesterday was especially frustrating because my daughter and I had been out most of the day at two separate festivals and both had food, and since we couldn't eat any of them we were being so good and came home to eat... I guess I was just so tired from running around town that I just wasn't thinking... this itching is driving me crazy, but no visible rash...

happygirl Collaborator
happygirl
Posted

nini, i am so sorry that you are having such a reaction. it makes me sad that some of us react to such miniscule amounts, but it does make me feel better to know that I'm not the only one!

i thought of you last night when I made my cheese sticks :) :) :)

Becky6 Enthusiast
Becky6
Posted

Oh no! Im sorry!! I hate when stuff like that happens! I hope you feel better fast!

bluejeangirl Contributor
bluejeangirl
Posted

Its crazy isn't it Nini, I so sorry that it takes just that small amt. for such a reaction like that. Does it help to scarch the itch or do you just leave it alone? Make sure your taking your B-vits to get you back in balance. I'll have real light tremors lasting for about 15 seconds in my neck and shoulder area once in awhile and I never know what causes that. I'm sure its a nerve thing though because it happens when I start to fall asleep. Hope you recover fast.

{{{{{{{{hugs}}}}}}}} gail

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

thank you everyone... if I scratch, it actually makes me itch more, so I have to try to ignore it! I usually take b-vits anyway, so I'm good there... wondering if I should take some benedryl, if that will help...

aikiducky Apprentice
aikiducky
Posted

Sorry you got glutened Nini! Hope you feel better sooner rather than later... :(:)

Pauliina

flagbabyds Collaborator
flagbabyds
Posted

don't scratch, that just makes it feel worse, and then makes you scar a lot more easily, i have scars on my stomach from scrathcing during an anaphalyxis reaction. I don't take benadryl 'cause it makes me throw up almost instantly, don't know if it is from gluten, or i am just alergic to the benadryl in general.

Hope you feel better soon!

Guest nini
Guest nini
Posted
don't scratch, that just makes it feel worse, and then makes you scar a lot more easily, i have scars on my stomach from scrathcing during an anaphalyxis reaction. I don't take benadryl 'cause it makes me throw up almost instantly, don't know if it is from gluten, or i am just alergic to the benadryl in general.

Hope you feel better soon!

thanks... I didn't take the benedryl cos it usually knocks me out and I don't need to sleep the day away.

it's taking all my willpower to not scratch which is why I'm spending too much time on the computer today

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

nini -- I know what the seizures are like, I get them too. I wouldn't know if I get them in my sleep. I'm all alone. But I will say they are frightening to say the least! Be well!

jerseyangel Proficient
jerseyangel
Posted

Nini--can you take Claritan? When I get itchy with a reaction, I take one a day until I'm over it. It causes me no side effects.

wolfie Enthusiast
wolfie
Posted

Oh no!!! I am so sorry that you are feeling so badly! I hope that you are feeling better soon!

(((HUGS)))

Ursa Major Collaborator
Ursa Major
Posted

I'm sorry you feel so sick while being so careful most of the time! At least I know why I am sick today, I purposely glutened myself yesterday, to trigger DH (usually takes only a day or two for ugly, pus-filled blisters to appear) to get a positive biopsy from the dermatologist I am seeing tomorrow. Today I am feeling stupid for doing it.

Anyway, I hope you'll be better soon. I wished I'd know how to get rid of that itch myself, no good advice here.

Guest nini
Guest nini
Posted
Nini--can you take Claritan? When I get itchy with a reaction, I take one a day until I'm over it. It causes me no side effects.

It never seemed to help me in the past... I don't think it does anything for me... bummer though because THIS ITCHING HAS GOT TO GO!!! (oh and now I'm starting to get a bumpy rash that is visible)

jerseyangel Proficient
jerseyangel
Posted

Darn! Well, hope you get over that itching soon--sounds like no fun at all :angry:

WGibs Apprentice
WGibs
Posted

I take Ibuprofin for itchiness. I know it sounds crazy, but everyone I've told about it finds that they also get relief. All I can guess is that it blocks the itch receptors the same way it would block the pain receptors (?) I don't remember enough biology to know whether that idea is crazy. Anyway -- try it. It gives me more relief than things marketed for itchiness...I can't believe no one ever talks about it.

GreySaber Apprentice
GreySaber
Posted

How common are instant reactions? I tend to react about 20 minutes later myself. Basically if I eat something wrong as a restruant, I can usually predict my level of reaction on the way home from the way my stomache feels.

But then I might be an allergy and not a celiac. I'm not really sure.

Molly, you might be having a reaction to the antihistamines. I get weird reactions to sudafed.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium. A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake. With low D your body is not absorbing calcium from your food so it steals it from your bones. Heart has priority over bone. I've been taking 1...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    4. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Supplements for those Diagnosed with Celiac Disease

      By Wheatwacked · Posted

      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.