Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can You Beat This


Claire

Recommended Posts

Claire Collaborator

Now to the rant: I recently decided to change doctors. A lady Korean doctor was recommended to me by several people. I called and asked if she was taking new patients and was told that she was. I was given an appointment date and I told them that my records would be forwarded. I signed a release at my current doctor's office for my records to be transferred. I wrote an overview of past history and current issues and sent it to the new doctor - to help speed up the initial consultation.

About three days later I got a call from her office. Her secretary said that the doctor had read my information and gone over the test results and that she felt she could not take me as there was nothing whatever she could do for me. She said that there were no more tests to be done. I personally know better than that. I can name a half a dozen at least. I was stunned. As I have shared this with others - some medical people - they too are stunned. If my records were accepted she should have accepted me - otherwise incoming patients should be told up front that the doctor may decline to accept you. She could have had me come in on a consultancy basis - as in second opinion.

I tried to go back to the previous doctor but wasn't surprised when she wouldn't accept me back into the practice. So I am high and dry with no family doctor! I have asked people for recommendations but so far no one is taking on new patients.

I continue to be stunned. Her office did call with a recommendation for an alternative medicine doctor but insurance won't cover that. I did call and you have to have a family physician even to get a consultation. As the saying goes, "up the creek without a paddle".

I think she read the records and my 'overview' and decided she didn't want the challenge.

As much as I hate doctors, I know that I need to have one in case of emergency. Right now my records are in two doctors' offices and neither one of those doctors consider me a patient.

Very unprofessional, I think. There should be a stated policy so that incoming patients don't wind up as I have with no medical representation at all. Claire


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

that sucks, just glad that you might be able to be better when gluten-free and start feeling better.

Guest nini

I ran into something similar with my daughter's former pediatrician's office. Her ped. decided to retire to be at home with her baby and since this Dr.s office was a bit of a drive for us I decided to temporarily have her records sent to our family Dr., after this happened I ran into an issue with her preschool (she swallowed a bead) and I couldn't get EITHER Dr.s office to talk to me. The old office said she was no longer a patient and I couldn't discuss anything with them, and the new Dr.s office said that it was a pediatric issue that should be dealt with by her former office. It took a ton of phone calls but eventually I got the Family Dr.s office to take on the case. Sometimes you just have to put the pressure on these "by the book" people. They don't realize (nor do they care) that they are putting you in a bind.

debmidge Rising Star

Just when I thought I heard it all (about doctors) ....

hope you find a great doctor who doesn't think he/she is "God."

jerseyangel Proficient

Claire--That is terrible, and this is truly "one for the books!" I hope that you find a suitable doctor soon--I can imagine how uneasy you must feel knowing you don't have one at the moment.

CarlaB Enthusiast

I can't stand the medical system! They have their procedures and stop using their heads somewhere along the way, probably due to the insurance companies and malpractice suits. I got really, really sick four years ago from a pet bird (right after that was when the gluten-intolerance worsened). I found out what was wrong with me from the veterinarian! I went home and researched what I needed, then went to the doc, told him what I had and what I needed to get better. He didn't want to do the testing; I think it was because since it was from a bird, there would have been so much reporting to do, not to mention, the disease is pretty obscure and he probably didn't have the resources for it. Anyway, three weeks of doxycycline and I started getting better. If it weren't for the veterinarian, I don't know that I'd be here today. The bird isn't ...

Your story is strange, but doesn't surprise me a bit!

Claire Collaborator
that sucks, just glad that you might be able to be better when gluten-free and start feeling better.

I am already gluten-free - since last August. 90% gluten-free from 2990 - when I was diagnosed with intolerance for wheat, barley and rye. No mention of gluten at that time.

I am complex food issues - Type II delayed food reactions that cause me endless problems. Everyone -sick or well - needs a family doctor - even a 'bad' one - otherwise you are really stuck if you are injured or have a sudden illness. Claire


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
I am complex food issues - Type II delayed food reactions that cause me endless problems. Everyone -sick or well - needs a family doctor - even a 'bad' one - otherwise you are really stuck if you are injured or have a sudden illness. Claire

Well, if you're sick or have a sudden illness, you can always go to your hospital emergency room, or a walk-in-clinic. The biggest problem comes, when you need a referral. At least here in Canada, you can't go to ANY specialist without a referral from your family doctor. No family doctor? Too bad, can't see you. I've had it happen when my former doctor retired, and I needed to see an orthopedic surgeon (who I had seen before, but for an issue with my knee, and that time was for my ankle, which wouldn't heal properly after fracturing it).

Nini, that's weird, that a family doctor (who, as the name implies, should look after the FAMILY, children included) would tell you they won't look after a pediatric issue! I've never even had a pediatrician for my kids, I saw no need for one. My family doctors always looked after it, when I would take a kid in (maybe once in ten years, I know what I am doing).

dlp252 Apprentice
Now to the rant: I recently decided to change doctors. A lady Korean doctor was recommended to me by several people. I called and asked if she was taking new patients and was told that she was. I was given an appointment date and I told them that my records would be forwarded. I signed a release at my current doctor's office for my records to be transferred. I wrote an overview of past history and current issues and sent it to the new doctor - to help speed up the initial consultation.

About three days later I got a call from her office. Her secretary said that the doctor had read my information and gone over the test results and that she felt she could not take me as there was nothing whatever she could do for me. She said that there were no more tests to be done. I personally know better than that. I can name a half a dozen at least. I was stunned. As I have shared this with others - some medical people - they too are stunned. If my records were accepted she should have accepted me - otherwise incoming patients should be told up front that the doctor may decline to accept you. She could have had me come in on a consultancy basis - as in second opinion.

I tried to go back to the previous doctor but wasn't surprised when she wouldn't accept me back into the practice. So I am high and dry with no family doctor! I have asked people for recommendations but so far no one is taking on new patients.

I continue to be stunned. Her office did call with a recommendation for an alternative medicine doctor but insurance won't cover that. I did call and you have to have a family physician even to get a consultation. As the saying goes, "up the creek without a paddle".

I think she read the records and my 'overview' and decided she didn't want the challenge.

As much as I hate doctors, I know that I need to have one in case of emergency. Right now my records are in two doctors' offices and neither one of those doctors consider me a patient.

Very unprofessional, I think. There should be a stated policy so that incoming patients don't wind up as I have with no medical representation at all. Claire

Not only unprofessional, but just plain weird! It almost sounds like there was some notation in your file (but don't go by me--I tend to have a slight "conspiracy theory" mentality at times).

If you can find a doctor taking new patients, you can always make the consultation appointment and get the relationship established and THEN have the records forwarded.

The whole thing is just weird to me.

megsylvan2 Apprentice

I'm sorry that this happened to you, and I wonder the same things. I wonder if when you have your records sent to another doctor if they call one another or send a note along telling the other doctor what they think of you as a patient. You know, like - watch out - this one thinks she has Celiac disease and won't stop till she gets a diagnosis - or something to that effect. I wouldn't be surprised.

I also wondered if you went to see another doctor if your original doctor would be ticked off about it and wouldn't take you back. Or if your original doctor didn't like you as a patient if they would use that as an excuse to not take you back.

I recently went to another doctor for similar reasons regarding Celiac. BUt I still liked my original doctor very much for everything else except the exploration of the possibility of Celiac. I didn't like the other doctor, and would still like to keep my original doctor, but I wonder if I will have similar issues. If so, it is too bad that doctors have to be this way. Doesn't seem like a professional attitude to me. Especially that you are not given the chance to explain your reasons.

judy05 Apprentice
Now to the rant: I recently decided to change doctors. A lady Korean doctor was recommended to me by several people. I called and asked if she was taking new patients and was told that she was. I was given an appointment date and I told them that my records would be forwarded. I signed a release at my current doctor's office for my records to be transferred. I wrote an overview of past history and current issues and sent it to the new doctor - to help speed up the initial consultation.

About three days later I got a call from her office. Her secretary said that the doctor had read my information and gone over the test results and that she felt she could not take me as there was nothing whatever she could do for me. She said that there were no more tests to be done. I personally know better than that. I can name a half a dozen at least. I was stunned. As I have shared this with others - some medical people - they too are stunned. If my records were accepted she should have accepted me - otherwise incoming patients should be told up front that the doctor may decline to accept you. She could have had me come in on a consultancy basis - as in second opinion.

I tried to go back to the previous doctor but wasn't surprised when she wouldn't accept me back into the practice. So I am high and dry with no family doctor! I have asked people for recommendations but so far no one is taking on new patients.

I continue to be stunned. Her office did call with a recommendation for an alternative medicine doctor but insurance won't cover that. I did call and you have to have a family physician even to get a consultation. As the saying goes, "up the creek without a paddle".

I think she read the records and my 'overview' and decided she didn't want the challenge.

As much as I hate doctors, I know that I need to have one in case of emergency. Right now my records are in two doctors' offices and neither one of those doctors consider me a patient.

Very unprofessional, I think. There should be a stated policy so that incoming patients don't wind up as I have with no medical representation at all. Claire

Thsi is totally unacceptable, I think I would notify the AMA or the state board of licensing, no one should be treated this way.

  • 2 weeks later...
2kids4me Contributor
I can't stand the medical system! They have their procedures and stop using their heads somewhere along the way, probably due to the insurance companies and malpractice suits. I got really, really sick four years ago from a pet bird (right after that was when the gluten-intolerance worsened). I found out what was wrong with me from the veterinarian! I went home and researched what I needed, then went to the doc, told him what I had and what I needed to get better. He didn't want to do the testing; I think it was because since it was from a bird, there would have been so much reporting to do, not to mention, the disease is pretty obscure and he probably didn't have the resources for it. Anyway, three weeks of doxycycline and I started getting better. If it weren't for the veterinarian, I don't know that I'd be here today. The bird isn't ...

Your story is strange, but doesn't surprise me a bit!

Not as strange as oyu might think, my husband isa vet. We have had to send info with clients to take to their physicians about psittacosis, salmonella, tonsilittis, and pinworms to name a few.

Physicians told this family that the dog was a source of pinworms for their kids (pinworms are very speices specific and dogs DONT get pinworms) and to get rid of the dog.

Dogs and kids CAN share tonsilittis (dogs lick faces of kids most often) so if the dog has it and the kid hasa sore throat - we tell parents to og to the doctor. Doc's office will phone us and wonder why we think this kid needs to be seen.... we tell them.

Vets ahve to read body language and look at symptoms, we dont dismiss our patients as neurotic sicne they are sick - when blood tests come back normal, it doesnt mean the animal is healthy, esp when symptoms persist. It means we have not diagnosed the problem and we need to dig deeper.

I wish more GP's thought like vets. Believe it or not, I was often placated at the doc's office ("you read too much, or you worry too much") UNTIL my husband would come with me, suddenly the DR in front of his name (even though he was "just a vet") got more respect than the title "MOM". and tests got done.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.