Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Gross Question, I Am Sure It Has Been Asked Already

TinkerbellSwt

Recommended Posts

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Ok, one day I have the big D, the next I am so constipated I have to use an enema. What is the deal here? I am ingesting gluten and I dont know it and I am reacting by constipating? I am so frustrated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

Well, at this point there is no real sure way of telling. Possibilities--yes, you have gotten some gluten or you are reacting with constipation to another food, such as dairy (I do that) or your diet is poor and you need to chock up on fiber. (Don't be offended by that-b/c I have no idea what your diet is like! :) )

My recommendation is to keep a food and symptom journal. That should help you identify an offending food or product and link it to specific symptoms.

Guest nini
Guest nini
Posted

are you taking any digestive enzymes and probiotics? if not, you really should.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

I am going to try the food diary, and I am sure I probably dont get enough fiber. Can anyone tell me what are probiotics? and digestive enzymes?

ravenwoodglass Mentor
ravenwoodglass
Posted
Ok, one day I have the big D, the next I am so constipated I have to use an enema. What is the deal here? I am ingesting gluten and I dont know it and I am reacting by constipating? I am so frustrated!

Is this constipation something painful? Or do you simply not go? It is normal to not have a bowel movement the day after you have been cleaned out by D. Each persons different but it can take as long as 3 to 4 days for food to travel the whole route. Enemas can be dangerous, they can upset the balance of the intestines and are not good for routine use. Probiotics and or yogurt, as I think someone mentioned are something you should try along with increasing your fiber from fruits and veggies.

I am going to try the food diary, and I am sure I probably dont get enough fiber. Can anyone tell me what are probiotics? and digestive enzymes?

You can get probiotics and digestive enzymes at most health food departments or perhaps your pharmacy. The probiotics help to restore the proper balance of good bacteria in your intestines. If you don't like pills look for a live culture Gluten Free Yorgurt. Digestive Enzymes help you to more completely digest your food.

Make certain they are Gluten Free whichever you try.

TinkerbellSwt Collaborator
TinkerbellSwt
Posted
  • Author

oh yes, the constipation is painful. It is not that I am merely not going to the bathroom. I end up feeling like I have to go, and nothing, just painful. Then, unfortunatly I have to use the enema. I have tried being a doctors guinea pig once before, so I am rather apprehensive about doc's when it comes to celiacs. They had me on so many vitamins and such, I have a collection. The one thing that worked, maybe this is considered a digestive enzyme was something called Threelac. My ER doctor prescribed it, then took me off it. When I took it I had normal bowels everyday. It has a lot of yeast in it. I dont think so much yeast did me any good either. Should I try taking that again? Threelac is also sold on amazon for anyone who doesnt know what it is and wants to see it. I would appreciate any opinions.

junie20002 Newbie
junie20002
Posted
oh yes, the constipation is painful. It is not that I am merely not going to the bathroom. I end up feeling like I have to go, and nothing, just painful. Then, unfortunatly I have to use the enema. I have tried being a doctors guinea pig once before, so I am rather apprehensive about doc's when it comes to celiacs. They had me on so many vitamins and such, I have a collection. The one thing that worked, maybe this is considered a digestive enzyme was something called Threelac. My ER doctor prescribed it, then took me off it. When I took it I had normal bowels everyday. It has a lot of yeast in it. I dont think so much yeast did me any good either. Should I try taking that again? Threelac is also sold on amazon for anyone who doesnt know what it is and wants to see it. I would appreciate any opinions.

Hi newbie here I was diagnosed about 2 yrs ago but it seems to be getting worse and I do have the same problem as you do one day the big D is around the next is mainly pain!!!! I also do not know what else to do I am in a 99% gluten free diet and I feel miserable <_< does any one get Nausea and vomiting and extreme pain after eating ? I have been popping laxatives like if they were can dy just to relief the pain. help!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted

I have major D if I consume alot of gluten. Most of the time I have C. It is VERY annoying. If I eat fiber, I feel gross and major stomach pains. I wake up at night almost every night with pain in my abdomen. I feel like my food is just not digesting right at times. I have this weird feeling at night as if there is something "crawling" in my intestines. I toss and turn almost everynight and just don't sleep well. I am not severely constipated, so I don't feel that is the problem. It is like a low dose of gluten I am getting everyday. I just don't know anymore. For now I am trying to eliminate soy. I am through ever eating out. I seem to get sick everytime, no matter what I eat. I too get nausea sometimes. I am extremely frustrated with my body right now. This has been going on pretty steadily for a year. I don't take laxatives though. I just quit eating or drink coffee and then I will be ok.

HOpe you find the answers, but I think it could be a low dose gluttening. I don't know what else mine could be.

Monica

Lisa Mentor
Lisa
Posted

This may sound a little trivial to you, but, I always have a large container of cooked brown rice in the refer. and I add it to every meal that I eat.. To me it works well. I don't know if that will solve your problems. I do remember years ago when I would be bending over in a cold sweat with what I could relate to labor pains in my abdomin and then finallly to pass what was in me. I thought that I would pass out. Dr. said is was severe IBS (I, Be Stumped?)

Honestly, I don't know when my Celiac started, but I do know when the "high" symptoms kicked in....and I can recall the date. Apparently, I was a-symptomatic, with the genetic link for many years.

Everyone if different here and there are many stories and few are the same. So it is a puzzle that we have to put together for ourselves. There is knowledge here, but we also have to do our own reseach for find what fits our need to make us better.

Hope this will be helpful, Lisa

lorka150 Collaborator
lorka150
Posted

When I get glutened, like clockwork, 'd' the first day or two, then C the next. That's my first symptom to go away, then I get hit with everything else for a week.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748
    Michelle C.
    Newest Member
    Michelle C.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Is this celiac?

      By Wheatwacked · Posted

      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      Is this celiac?

      By trents · Posted

      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.