Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog


shellhoo

Recommended Posts

maemai Newbie

I love your key story..... here's my key story. I was getting ready to move and my apartment was being shown during the day. I got home a little late one night after a very tiring day and my key wouldn't work! I thought they had changed the locks. I had my boyfriend come over with his key to see if it would work. About the time he got to my apartment I was looking at my keychain and noticed there was a key I didn't remember having.... then slowly it came to me that the extra key was for the top lock, which I had not used in several months. I had completely forgotten that I had a different key for that lock and of course when they showed my apartment earlier in the day, they had locked both locks. Luckily the boyfriend kept me and we are married now!

I turn into a stoned goldfish.

For example: Once I spend half an hour looking for my keys. I looked high, I looked low, and I was half an hour late for work. You know where I finally found my keys? IN MY HAND! Top that. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



schuyler Apprentice
I turn into a stoned goldfish.

I feel like I'm stoned (no other way to describe it) and I have the 3-second attention span of a goldfish.

Really.

I would have a lot of blonde moments. A lot.

For example: Once I spend half an hour looking for my keys. I looked high, I looked low, and I was half an hour late for work. You know where I finally found my keys? IN MY HAND! Top that. :blink:

I'll ask someone a question and then I won't remember the answer 5 seconds later. Or I'll say something and it doesn't make any sense. It's a lot better now. I don't get so distracted by shiny things :rolleyes:

That sounds exactly like me. All of it. The keys thing just happened to me today. My family actually watched me search the house for my keys and said nothing (although I'm sure they were laughing). After awhile I gave up, and then my mom said "Have you checked your hand?" :ph34r:

When I'm glutened, I become so forgetful that my cousin has started calling me Dory, after the forgetful fish in Nemo.

If anything, Celiac has taught me how to laugh at myself :D

lorka150 Collaborator

Another way I can describe it is that if I were to shake my head back and forth, my eyes go slower than the rest and can never focus.

shellbean Apprentice

I have the brain fog alot. When I get it, my eyes go a little blurry and what I am thinking I want to say and what I actually say are completely different. I get tongue tied and I suddenly forget what I was saying in the first place. I forget how to do some of the simplest things. I was always smart and learned new things very quickly and never had trouble speaking but now it's like someone hit me with the stupid stick. It is very frustrating. I sound like I don't have a smart bone in my body anymore. I'm afraid the brain fog will cause problems at my job because even though I have notes on how to do everything, I get so confused and when I look at my notes, I swear it looks like greek to me. My friends (what I have left of 'em! :)) are a little confused themselves because they knew me to be smarter and to have a good memory. Not anymore...I forget what I did yesterday! :)

Guest TerpyTaylor

My brain fog makes me feel like my whole body is made out of lead. I get completely exhausted and I can't finish thoughts or sentences. My face will feel flushed and really hot. It usually doesn't last long, about a few hours, and it helps me a lot to take a nap. I've actually pulled over on the side of the road before and slept because I absolutely could not function. I have fibromyalgia as kind of a result of celiac, so maybe this makes my "brain fog" a little different. It was at it's worst, happening almost every day, right before I found out I had celiac. Now I hardly ever get, only if I get glutened badly. Brain fog is hard to explain, but the feeling is so awful; I'd rather be sick to my stomach or something!

penguin Community Regular
I would have a lot of blonde moments. A lot.

For example: Once I spend half an hour looking for my keys. I looked high, I looked low, and I was half an hour late for work. You know where I finally found my keys? IN MY HAND! Top that. :blink:

I did it again!

Yesterday morning I went to the store before work to get some chips (healthy, I know) and I stood outside my car in a near panic that I locked the keys in the car. They were in my friggin' hand. I think the peroxide is just seeping in :rolleyes:

  • 5 years later...
Februaryrich Rookie

Evil Gluten! Before the exams I barely eat just to make sure I don`t get glutened


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

For me I get the headache, then I get dizzy, my speach is like you described but my memory becomes realy bad. I will forget that I had already planned a meal and plan another one. I don't know how many times I have bought duplicate items. I will make an appt and totally forget I made it or have a conversationa nd have no memory of even talking to that person. I am a piano instructor and do some rather complex theory with my older students and have actually had to apologize because I had forgotten some of what I trying to teach, drving I may forget where I am going. Using an ATM machine I may go blank and forget the steps for a few seconds til I can get my brain back on track. It feels like what I would imagine Alzheimer's to be. My family knows when I have been bit as my teen daughter will tell me I am not making sense and will ask me if I have been eating gluten. High fructose effects me the same as gluten. It will last for 3 weeks, first 2 being the worst, so I have to be very careful.

AVR1962 Collaborator

For me I get sudden bursts of dizzyness and everything goes kinda shimmery, like my eyes can't focus right. Things that normally take little thought require great concentration to do correctly. It is very "out of body".. that's a good description. I'm studying to be an engineer, so I normally can't talk too eloquently (extreme number bias), but during those times I literally cannot think of any words. My mouth moves but no sound comes out.

I also feel extremely cold for days after a glutening.. it's as if my body cannot retain any heat. We are all so bizarre. :lol:

I too have problems staying warm but I had not linked it to the glutens, very interesting.

Twinklestars Contributor

My brain fog feels pretty much like elonwy explained on the first page. I often feel like I'm operating in a bubble at a slower pace than everyone outside it. It's so weird.

Katrala Contributor

I'll go somewhere and then think, "How did I get here?"

pricklypear1971 Community Regular

Ever seen the movie Get Him To The Greek??? Well, it's like I smoked a Jeffrey. Gluten and salicylates trigger an overstimulation if my adrenals - complemented by a feeling that someone closed doors in the hallways of my brain. So, it's like my thoughts are going down the hallways, but can't get in certain rooms to get the info they need.

And when I'm not Jeffried - I just want to lie down and sleep. And noises drive me nuts and I just want to lock myself in quiet dark room.

And the WORST part us that my brain is so screwed up during this time it takes a while to realize what's going on and by then I've already snapped at someone or done something stupid.

AND I've been on an antihistamine for DH (yeah, I know - doesnt work) that is also an antipsychotic and it's like someone tossed a soft, furry blanket over my brain. I couldn't remember anything more than 2 days ago and didn't care. Now I'm coming off it and have a brain. Scary part - I have a brain. Good part - I have a brain.

Aaaack!!!!

One of my first symptoms of improvement from going gluten-free was "thyroid" brain fog lifted. Happened when I started thyroid meds too. Came back this year with a vengeance.

And let's not even get into the shaking hands.....

zoogirl Rookie

Brain fog is one of my biggest issues, along with extreme chronic fatigue. Before I figured out the gluten connection just a couple months ago, I was really starting to worry that there would come a point where I wouldn't be able to function well enought to do my job. It was also the first thing I noticed an improvement in after going gluten-free.

For me, I guess it's most similar to a 'stoned' feeling. It feels like my mind is working through mud or something. Someone can be talking to me and I won't be able to follow anything they're saying. Like they're just speaking gibberish or something. If I get distracted during a task, I have to really think hard to get back on track even if its something I've done a million times.

I'm currently having a relapse of all of that since I've fallen completely off my gluten-free diet. Constantly reminding myself how much better I function and feel while I'm on it will be the only way to get back on track, I think.

Februaryrich Rookie

I get the eyes symptom too. I can't read stuff like my eyes won't focus on the letter correctly and I am part of another world. It's bad. Really bad.

color-me-confused Explorer

Has anyone tried treating brain fog? It's very similar to fibro fog found in fibromyalgia, and those patients are sometimes treated with drugs like Concerta (ADHD med) or Provigil (often used for narcolepsy) which clears the fog.

pricklypear1971 Community Regular

Has anyone tried treating brain fog? It's very similar to fibro fog found in fibromyalgia, and those patients are sometimes treated with drugs like Concerta (ADHD med) or Provigil (often used for narcolepsy) which clears the fog.

Quite frankly, I'd be terrified to try it. I react to EVERYTHING. besides, going gluten-free does it for me. Probably with a little help from thyroid meds.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.