Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh I Feel Glutened Again


Lister

Recommended Posts

Lister Rising Star

Ok so i just had my lunch/dinner since its 4pm not sure if i should swing another meal later. But ugh i feel so sick like bloated and i already feel like i have to use the restroom and im getting like a sea sick feeling (or another way to discribe it is when your coming up on mushrooms*did these not by choice about 3 months ago my friends put a hole bunch in my orange juice and i never noticed until it was to late* maybe when i think im getting glutend im not maybe its ibs i dont know but this is how i discribe beeing glutened and all i ate was

pork,lettece,carrots,and the crumbs from my lumbarg rice chips- none of these things should even have cc problems. the pork was hormel always tender pork- its on there safe list and i have never had cc issues with the rice chips- i ate them last night just fine, but ugh i feel so sick. So my question is am i acually glutened by on of those things or this hole time when i thought i keep getting glutened its just how my body reacts to food for now?? gah i dont wanna use the restroom since i just ate im afraid it will be D and it will be what i ate :( im trying to get some nutriants in my body


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

You could be having problems with other foods...not just gluten. The pork is probably *highly* processed and not good for anyone with bad digestive symptoms. That would be my guess anyways. Also did you drink anything?

Lister Rising Star

gatorade and water only for me. and the pork shouldnt be prossessed i meen its a slab of meat?

Rachel--24 Collaborator
gatorade and water only for me. and the pork shouldnt be prossessed i meen its a slab of meat?

Lots of meat gets processed. I have problems with regular meat I have to buy the organic stuff from the butcher at Whole Foods. I dont know what could be causing your symptoms but I know if I had eaten that pork and drank gatorade I'd probably be hallucinating right now.

laurelfla Enthusiast

Lister, I've read some of your posts but i can't remember how long you've been on the diet. if it's a fairly recent thing, your system may just not be up to snuff yet. i remember in the couple of months following diagnosis, i just didn't feel well at times (gluten symptoms), and most times, if not all, there was no way at all that i had ingested gluten. i chalked it up to my system's taking time to heal and just tried to eat as simply as possible to make sure. i'm sorry you're feeling bad. :(

mart Contributor

Yes, is it only weeks that you're on this diet? It took my son months until he felt better. Also, pork always makes me sick and naseous. Can you stick to bland type foods while your gut is recovering?

lorka150 Collaborator

Lister - you have mentioned that you had worms in your stools... Perhaps there is a larger problem at hand here. Have you spoken to your GI about issues other than potential celiac? In addition, keep in mind it might take awhile to heal. For nine months or so, all I could consume was veggies and nut butter, basically. Sometimes you need to simplify it as best as you can. And you're working with food daily at work - that could be a huge problem.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lister Rising Star

i thought i was taking it easy. and as for the worms, it looked like it could be one, i just got parasite/bactera testing sent in will get results in a couple of days.

judy05 Apprentice
i thought i was taking it easy. and as for the worms, it looked like it could be one, i just got parasite/bactera testing sent in will get results in a couple of days.

Lister,

I've been reading your posts and I can identify with a lot of your symptoms. I had a lot of stomach pain and bloating in the beginning. Along with gluten intolerance I also suffer from IBS. I had no damage to my villi so the doctor suggested more fiber. He recommended Citracel tabs 2 in the morning (they are gluten-free). After my colonoscopy he told me that I have a lot of gas and fiber would make it feel better. It is good for both constipation and diarrhea. I also follow an IBS type diet, sort of. By that I mean I never start a meal with anything but soluble foods, such as banana, mashed potatoes, rice, etc. If you start your day with a soluble food the rest of the day will go smoothly. I am only telling you this because it has helped me. Hope you feel better soon. Keep up the gluten free diet!!

Lister Rising Star

maybe i was wrong about getten glutened also. The symptoms went away after like 20 minutes/30 minutes besides for the head fog, got worse really but i did also smoke some of my medicine so now i cant even tell if im having brain fog or if its just my medicine in my system, i dont know thow its been about 2 hours since i smoked and it usaly only takes me 30-45 to sober up so maybe it is brain fog, but my sides really not bugging me/ well i guess slightly but its not like persistant

"start a meal with anything but soluble foods, such as banana, mashed potatoes, rice, etc." hmm i need to try that, in the morning around 6 my stomic starts to go crazy around 7 i eat a banana every morning and the pains go away for about 3 hours so that makes sense, i just need to start eating something like that before i eat my main course ? hmm ok so i will eat the rice first then the meat and see what happens

lorka150 Collaborator

perhaps your drugs are cross contaminated.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.