Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg I Might Actually Have celiac disease..

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

Yesterday I ate an Apple Fritter for breakfast, just to see what would happen. A couple hours afterwards, I started feeling fatigued and groggy, sort of like not getting enough sleep. O.K. no big deal..this happens..

felt better after lunch.

In the afternoon I felt better after my noontime run. I decided against discussing the possibility of celiac disease with

my dentist again. No way can I have it! I feel fine, I'm just being a hypocondriac...ect...

In the evening...bam it hits me, cramps, diarrhea, bloating... the works :wacko: . I can only attribute this to what

I had for breakfast.

How can it have taken me 45 years to make this connection?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

It can take a long time to figure out gluten sensitivities because gluten is in so many processed foods. It reminds me of the saying if you want to hide a tree, put it in the forest. There are so many variables to the rate of digestion. (exercise, bulk matter of the food, amount of liquid in stomach) Don't feel bad you didn't figure out what a doctor should have screened you for.

L.

Guhlia Rising Star
Guhlia
Posted

The same way it takes doctors (MEDICAL DOCTORS) 11 years to diagnose people! You're fortunate that you figured it out. Many go undiagnosed for life and end up with horrible complications from the disease. Are you planning on getting tested?

JerryK Community Regular
JerryK
Posted
  • Author
The same way it takes doctors (MEDICAL DOCTORS) 11 years to diagnose people! You're fortunate that you figured it out. Many go undiagnosed for life and end up with horrible complications from the disease. Are you planning on getting tested?

Yes, my symptoms and my dental defects make me believe I need to be tested. I understand they test you for antibodies. What tests should I make sure they run on me? If the antibody test comes out positive on me, do I have to have a biopsy? I think I'd like to pass on that....

ravenwoodglass Mentor
ravenwoodglass
Posted
Yes, my symptoms and my dental defects make me believe I need to be tested. I understand they test you for antibodies. What tests should I make sure they run on me? If the antibody test comes out positive on me, do I have to have a biopsy? I think I'd like to pass on that....

Ask them to run a complete Celiac Panel and also to do a B12, folate and iron check. Then go gluten free as soon as the blood is drawn. Many have a false negative on the blood tests so regardless of the results you will want to at least try the diet. And yes those pictures in the other post sure do look like 'celiac teeth'. I have had 8 crowns and more to go. Both my DS and I were constantly harrassed by our past dentist for not taking care of our teeth when we care for them the same as the reccommend. I bet you love that new smile, I know I love mine just not the process to get it.

KaitiUSA Enthusiast
KaitiUSA
Posted

You should definitely get tested....doctors are just crazy sometimes when it comes to celiac. Takes them forever, especially if you do not have the supposed "classic" symptoms

Ursa Major Collaborator
Ursa Major
Posted

Jerry, I completely agree with everything that has been said already. You should definitely be tested for celiac disease! And if that makes you feel better........I figured out I have celiac disease last year, at the age of 52! I did see many doctors with 'obvious' celiac disease symptoms (obvious to people who actually know about celiac disease, unfortunately, most doctors don't), but none of them clued in. Especially because I wasn't wasting away (even though as a kid I was a stick figure), but was gaining more and more weight.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JerryK Community Regular
JerryK
Posted
  • Author
Jerry, I completely agree with everything that has been said already. You should definitely be tested for celiac disease! And if that makes you feel better........I figured out I have celiac disease last year, at the age of 52! I did see many doctors with 'obvious' celiac disease symptoms (obvious to people who actually know about celiac disease, unfortunately, most doctors don't), but none of them clued in. Especially because I wasn't wasting away (even though as a kid I was a stick figure), but was gaining more and more weight.

Thanks everyone for your responses. I will try to motivate myself to discuss this with my dr. I'll load up on apple fritters right before the test :blink:

marciab Enthusiast
marciab
Posted

Jerry,

How about testing with plain macaroni or spagetti noodles ? Apple fritters have a lot of other ingredients besides flour that could have contributed to your symptoms. Anything fried tears me up ...

And I completely agree with the others about being tested prior to going gluten free. Even if the tests come back negative, you'll feel better that you were tested. But, from what I have read, no one really knows until they go on a strict gluten free diet whether or not they are celiac.

Hang in there ... I've been at this 10 months and I have so much to learn.

Marcia

tarnalberry Community Regular
tarnalberry
Posted
Thanks everyone for your responses. I will try to motivate myself to discuss this with my dr. I'll load up on apple fritters right before the test :blink:

You have guidance from another health professional! Your doctor isn't going to just ignore that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,806
    • Most Online (within 30 mins)
      7,748
    MoonBear
    Newest Member
    MoonBear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
    • wellthatsfun
      still struggling with cravings

      By wellthatsfun · Posted

      as my last post stated, i was diagnosed via endoscopy on the 14th of june. i have been eating amazing home cooked meals, luckily, mainly cooked by my boyfriend who is extremely careful about contamination (and is an incredible cook at that). however, i find myself in a mental rut still. being 18, this is the time in my life where i should be exploring things, going out, having fun. yet every corner i turn i'm tortured by the amazing smell of something i can't have anymore. the wonderful sight of such yummy foods. it's near torture. if my boyfriend and his friend who lives with us buy something i can't have, they'll usually eat it outside of the house or the car or wherever we are - which is greatly appreciated - but even seeing a burger or chips or a sausage roll in their hands guts me almost beyond repair. i just wanna have it again too. i miss it. i feel left out and it makes me very sad all the time. it's not their fault. they are allowed to eat whatever they want to, whatever their intestines will allow. it just stings, bad. and i feel so ungrateful given i basically have a private chef who is doubly the love of my life. but it's just so hard. i know i'll adapt. i haven't given up hope.i just wanted to vent. thank you for reading
    • RDLiberty
      Toothpaste question.

      By RDLiberty · Posted

      Thank you. I must have misinterpreted a study or something. Thank you for the clarification. Much appreciated. Almost three years into my celiac diagnosis and I'm still learning new things. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.