Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cold Hands And Feet.


barilla

Recommended Posts

barilla Explorer

I have had cold hand and feet almost my whole life,, or as long as I can remember.

I was wondering if anyone knew if this was related to celiacs disease. Does anyone else have cold hands and feet almost all the time?

They sometimes get clammy too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

My feet get very clammy and cold. In the wintertime, I spray them with antiperspirant to stop them from sweating so much. My hands get cold, but I put them in pockets or under my arms.

powderprincess Rookie

Hi Barilla

I am interested to hear responses to this as well. I've been dx with Raynaud's so I get cold waaay too easily and my body then over reacts.

ok, I am about to get very convoluted: I found out about Raynaud's and went to the Dr. to ask about it. I learned that Raynaud's can be related to Lupus so I had to be tested for that. The Dr. gave me meds to use only if I was doing something in the cold (or for use in winter daily) and tested me for Lupus. She thought I had it after taking blood, but then in follow up tests I did not test positive for it. Lupus can be related to celiac disease since it is another autoimmune disease. So. . somehow I think they could be related, but I have no idea exactly.

I'll be going to the dr tomorrow and friday so I'll ask and report back :)

CarlaB Enthusiast

How is your thyroid? Low thryoid can cause that.

barilla Explorer
My feet get very clammy and cold. In the wintertime, I spray them with antiperspirant to stop them from sweating so much. My hands get cold, but I put them in pockets or under my arms.

Hi! That's a good idea. I'll have to try that. My grandmother use to always say, cold hands means that you have a warm heart! :)

BRUMI1968 Collaborator

I've always had cold hands and feet too, but wonder if it gets worse when I'm anemic. I'm anemic right now pretty badly, and I'm all over cold, even though it might be 70 outside. Okay, we're not really having spring this year, so it is not 70 outside, it's 60. But still....

maybe anemia?

barilla Explorer
How is your thyroid? Low thryoid can cause that.

Maybe I should ask my doctor to test me for Lupus and Raynaud and anemia.

When they checked my levels for celiac's disease (a few weeks ago) I noticed that they checked my thyroid. They said that came back fine. I wonder if it's something they should keep checking.

I'm the same way,, somedays when it is beautiful outside,, I am so cold. It's like my body won't warm up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

I was just coming here to ask or search about being cold all the time. It is in the 70s here today and I am freezing still......sweatshirt over a shirt and capri pants. I am not underweight, thryroid is fine. I am getting tired of dressing like it is still winter! LOL!

dionnek Enthusiast

I also have Raynoids - cold hands and feet (but the rest of me overheats a lot). I have an extremely hard time when I go skiing b/c no matter how many socks and gloves I wear, my toes and fingers go numb immediately. I have to go inside after every run to warm them up. Pain in the butt! I also have night sweats - does anyone else have those?

powderprincess Rookie
I also have Raynoids - cold hands and feet (but the rest of me overheats a lot). I have an extremely hard time when I go skiing b/c no matter how many socks and gloves I wear, my toes and fingers go numb immediately. I have to go inside after every run to warm them up. Pain in the butt! I also have night sweats - does anyone else have those?

That sounds just like my alpine experiences. The medication I would take before a snowboard day helped a lot. I forget what it is called, otherwise I would let you know!

I do get extra hot easily, too. I have a small window of comfort as far as temps. go.

p.s. I am small but not underweight, and thyroid is ok according to recent blood test for celiac.

Green12 Enthusiast
I also have Raynoids - cold hands and feet (but the rest of me overheats a lot). I have an extremely hard time when I go skiing b/c no matter how many socks and gloves I wear, my toes and fingers go numb immediately. I have to go inside after every run to warm them up. Pain in the butt! I also have night sweats - does anyone else have those?

I have this too! My hands and feet and lips and nose get really really cold, like ice. My fingernails and toenails will turn blue. Also my core body temp will feel like it just bottoms out, I will be freezing. Sometimes so freezing that my body will shake and my teeth chatter. (do teeth chatter?) Then I will have hot flashes and sweating and a flush face, totally the opposite end of the spectrum.

I always thought the cold was connected to circulation, or lack of.

CarlaB Enthusiast

Talking about cold noses made me laugh. When my husband and I were dating and he was driving somewhere, I leaned over and put my nose in his cheek and stayed there. He asked what I was doing, and I answered that I was warming my nose! To this day, I get a cold nose and warm it that way!

It's usually REALLY cold out when that happens, so I don't think it's related to celiac for me.

utdan Apprentice

Yes, I have had cold hands and feet all my life too.

Clark Bent as Stupor-Man Contributor

cold hands aren't a celiac trait, they're a female trait B)... my ex's hands could steal the warmth out of a fridge..

I actually have Raynaud's as well but I'm hot almost all the time, maybe even moreso since going gluten-free.. I do wear gloves on my hands when it's cold out as a preventative measure but haven't had many problems with the Raynaud's since I was in high school... a few fingers used to lose all their color and become numb even when it wasn't that cold outside... I'd just run them under hot water for a couple minutes and they'd be alright.. there was even one time I remember from high school sitting at a computer and my fingers going numb for no reason.. but it's been a number of years since I've had this really happen..

mamaw Community Regular

I also have Raynauld's and at times get very hot feeling everywhere but hands and feet are ice cold. My hubby took to calling me his little ice cube!!!!! Now isn't that flattering and it also leaves a hugh space for off color comments....

thyroid also plays into this factor.

mamaw

Cape Newbie

I have Raynaud's Syndrome, I think. (A rhumotologist told me I had it without doing any tests way back when I was in my early 20's. I just told him my symptoms. He did test me for Lupus though. I've been tested for Lupus tons of times, all coming back negative.)

I did some googling on Raynaud's and found that it is also an autoimmune disease. I didn't know that. I had always thought that I had it because I got a mild case of frost bite as a child, but now I'm not so sure. When I'm cold, my fingers loose blood down to my knuckles and become numb. It gets me really freaked out (and my husband too) if I'm out and have no way to warm them up. I bought some of those chemical hand warmer packs which I plan to use next winter. (It's gotten worse since I've been gluten free.)

Is there any reason to get a properly tested diagnosis? I'm kind of sick of doctors at this point.

Made me laugh about the cold nose. I am always finding some warm part of my husband to warm my nose, toes, and knees. Since I have been gluten free, dairy free and lots of other things-free, I have lost lots of weight. I'm cold most of the time, wearing layers which get taken off and put back on during the day and evening. It's 90 today and I'm finally hot!

Bye, Cape

debbiewil Rookie

It's thyroid. Don't believe the TSH tests. A couple of years ago, they changed the standards for the test and made the top TSH normal number 3.3, AND advised that some people need treatment if TSH is over 2. Most labs did not bother changing their normal range, which was 5.5. So many people are over the correct (3.3) number but the lab still says it's normal since it's under 5.5. And the TSH isn't a thyroid hormone anyway, it's a pituitary one, so the test is often not accurate for thyroid. The best test for thyroid is a free T3. ASK your doctor for that test. And the free T3 number should be in the top third of the "normal" range. So don't let them tell you it's normal if it just hits the bottom of the labs range.

Debbie

CarlaB Enthusiast

You also might want to do an internet seach regarding Dr. Broda Barnes who thought temperature was the best indicator of thyroid. Just like celiac testing, throid testing could use some updating.

Kelly J. Apprentice

I've just been diagnosed with celiac, and I've had cold hands and feet my whole life! That's interesting. I wonder if it could be connected.

flagbabyds Collaborator

It seems like it could be realated to anemia because it has a lot to do with bad circulation.

Anglgrle3 Rookie

i cant tell you the number of times my boyfriend and i have been on the couch taking a nap and my feet (Heaven forbid!) touch him, he sits up, wide awake and puts socks on my feet! :D my mom says i was her little ice cube baby, my hands, feet and nose were always cold. The drs tested my circulation and said everything was normal though.

Im not sure how much of it is related to anemia since i have to be tested for anemia every month and its never come back positive. :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    3. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,768
    • Most Online (within 30 mins)
      7,748

    Cora Pifer
    Newest Member
    Cora Pifer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  
    • xxnonamexx
      Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  
    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.