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Anyone Eating Oats?


Mayam

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Mayam Apprentice

Hi,

I know the reasons why we are currently not approved to eat oats, but is there anyone here who eats oats? If so, where do you get them from so that they are not "contaminated"? I've heard some things about Irish oats. Any problems from eating them or other oats?

Thanks in advance,

Rachel - gluten-free since 2003 (diagnosed by bloodwork and biopsy)

daughter age 6 - gluten free since 2003 (diagnosed at 3 - bloodwork and biopsy)

daughter age 4 - gluten-free since 2004 (positive bloodwork, negative biopsy, 2 genetic markers at age 22 mos.)

son age 1 1/2 gluten-free since birth


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AndreaB Contributor

Rachel,

My family eats oats, but I don't know if we have celiac or allergic/intolerant. I have not had them for the last 1 1/2 months. The rest of my family just went gluten free with the exception of oats and I will be including them soon. Reading the home page for celiac.com it seems as if oats are not as bad as thought but still affect some people. We don't know if the family is wheat or gluten intolerant. Just sent out kits to Enterolab recently. It may be something you would have to test out.

I have read that contamination isn't a real issue but I don't know about that. I order mine from Azure Standard.

VydorScope Proficient
Hi,

I know the reasons why we are currently not approved to eat oats, but is there anyone here who eats oats? If so, where do you get them from so that they are not "contaminated"? I've heard some things about Irish oats. Any problems from eating them or other oats?

Thanks in advance,

Rachel - gluten-free since 2003 (diagnosed by bloodwork and biopsy)

daughter age 6 - gluten free since 2003 (diagnosed at 3 - bloodwork and biopsy)

daughter age 4 - gluten-free since 2004 (positive bloodwork, negative biopsy, 2 genetic markers at age 22 mos.)

son age 1 1/2 gluten-free since birth

Open Original Shared Link sells oats they calim are not contimated.

Outside of that all major brands (Quacker, Macanes, etc) all were tested and found to be continmated.

I am not willing try them with my son, when he is old enouhg to understand I will let him make that call.

chrissy Collaborator

we have ordered the oats that vincent mentioned-----my girls do not appear to have a problem with them, but they have not had a lot of them. recently, when i was in the hospital with my daughter, a nurse came in to talk to me because she had been told my kids had celiac. she has 2 children that have had celiac for 20+ years. she said her kids never had a problem with oats.

oats are one of the foods that people just have to try to see whether or not they are a problem for them. i'd be really interested to see the results of the blood work of someone who has been eating oats for awhile.

Celia the Celiac Apprentice
Hi,

I know the reasons why we are currently not approved to eat oats, but is there anyone here who eats oats? If so, where do you get them from so that they are not "contaminated"? I've heard some things about Irish oats. Any problems from eating them or other oats?

Thanks in advance,

Rachel - gluten-free since 2003 (diagnosed by bloodwork and biopsy)

daughter age 6 - gluten free since 2003 (diagnosed at 3 - bloodwork and biopsy)

daughter age 4 - gluten-free since 2004 (positive bloodwork, negative biopsy, 2 genetic markers at age 22 mos.)

son age 1 1/2 gluten-free since birth

Well,

I take what's called "Berry Green" It's an Organic Drink of fruits and vegetables. It says that there's organic oats in it. I've emailed the company and I'm waiting for a reply on this. But to just eat oats from anything out of any grocery store or actually cook with it....no

mamaw Community Regular

We eat oats and I ordered from the company in Wyoming (glutenfreeoats) , there is also cream hill in Canada that sells them. No problems for us but you should start out very slow when adding then to your diet. I think I actually liked the Cream Hill better but being in the US it was cheaper to order from a US company.....

mamaw

VydorScope Proficient

My understanding of the facts is this..

All mainnstream oat sources are contimated with gluten from wheat. If you have celiac disease you will get damage/etc from the wheat gluten, after all thats what celiac disease is. Some ppl may not think they react due to diferent levels of sensitivity. But the gluten is there, and that makes them off limits to anyonne that has celiac disease

If pure oat can truly be found, they do NOT have gluten naturaly. They do have a different protien , and some ppl with celiac disease will react to that protien, complete with damage to intestins, just like they do gluten.

Thats the facts as I understand them. If I had celiac disease I would prbly try the gluten-free oats, but with caution.


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Mayam Apprentice

Thank you for the input. I'm contemplating slowly adding oats into my diet and seeing what happens. Not sure yet - I'm kind of afraid, but we'll see. I'm not comfortable experimenting on my children though - I'll let them try, if they want, when they're old enough to decide and/or tell me how they're feeling.

Thanks again

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      Thanks for the reply. 
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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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